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1.
J Immigr Minor Health ; 26(3): 474-481, 2024 Jun.
Article in English | MEDLINE | ID: mdl-38172454

ABSTRACT

The aim of this project was to increase willingness to receive the influenza vaccine to the optimal rate of ≥ 70%. Low acuity adult patients who visited an Emergency Department (ED) were assessed regarding their willingness to receive the influenza vaccine before and after an educational intervention that included a provider recommendation and an educational handout. A total of seventy-six patients (n = 76) were assessed. Patients' willingness to receive the influenza vaccine rose from 29% pre-intervention to 72% post-intervention without disrupting the clinical flow in a busy ED. Similar vaccine educational strategies can be applied to influenza and other vaccines in EDs  to increase vaccination willingness in patients, including those who use the ED as a primary point of contact for healthcare, decreasing the burden of influenza illness in the community.


Subject(s)
Emergency Service, Hospital , Influenza Vaccines , Influenza, Human , Patient Acceptance of Health Care , Quality Improvement , Humans , Female , Influenza Vaccines/administration & dosage , Male , Quality Improvement/organization & administration , Influenza, Human/prevention & control , Middle Aged , Adult , Aged , Vaccination , Health Knowledge, Attitudes, Practice , Vaccination Hesitancy
2.
Psychogeriatrics ; 24(1): 58-71, 2024 Jan.
Article in English | MEDLINE | ID: mdl-37953694

ABSTRACT

BACKGROUND: Current literature lacks evidence about the relationship between reminiscence functions and depression and the mediating role of clinical constructs such as loneliness and religion. The study aimed to examine the mediating effects of loneliness and religion on the association between reminiscence functions and depression in a sample of older Jordanian adults. METHODS: An anonymous online cross-sectional survey was employed to collect data from 365 older Jordanian adults. Convenience and snowball sampling methods were used to recruit participants through social media. RESULTS: In the depression model, Bitterness Revival and Intimacy Maintenance factors, educational level, and Intrinsic Religiosity were statistically significant predictors of depression. Bitterness Revival and Intimacy Maintenance factors, work sector, and Intrinsic Religiosity were statistically significant predictors of loneliness. Loneliness has a negative, partial mediating effect on Intimacy Maintenance and depression. CONCLUSION: Depression caused by significant losses in the Arab Jordanian environment might be mitigated by Intimacy Maintenance by reducing feelings of loneliness. Understanding how Intimacy Maintenance correlates with depression through loneliness could help psychiatric nurses develop psychosocial interventions that reduce depression among older adults.


Subject(s)
Depression , Loneliness , Humans , Aged , Loneliness/psychology , Depression/psychology , Mental Health , Cross-Sectional Studies , Religion
3.
Clin J Oncol Nurs ; 27(1): 98-103, 2023 01 25.
Article in English | MEDLINE | ID: mdl-37677826

ABSTRACT

Cancer is an emerging public health concern in sub-Saharan Africa. In Botswana, the most prevalent cancers are HIV related. The symptom burden that results from cancer and HIV infection is associated with poorer quality of li.


Subject(s)
HIV Infections , Neoplasms , Humans , Quality of Life , Botswana/epidemiology , HIV Infections/complications , HIV Infections/epidemiology , Patients
4.
Arch Psychiatr Nurs ; 40: 115-123, 2022 10.
Article in English | MEDLINE | ID: mdl-36064234

ABSTRACT

AIM: This study aimed to describe psychiatric nurses' experiences and the emotional and psychological sequelae after being psychologically or physically assaulted in inpatient psychiatric units. METHOD: The study employed a descriptive, phenomenological research approach. A purposive sample of 27 psychiatric nurses participated in in-depth one-on-one interviews. The collected data were transcribed and analyzed using ​Colaizzi's (1978) seven-step method. RESULTS: Three themes and ten sub-themes emerged: A Fertile Environment for Physical and Psychological Workplace Violence, Psycho-Emotional Sequelae Aftermath of Assault, and Proactive Strategies for Combating Violence. DISCUSSION: A thorough understanding of workplace violence aids in the development of strategies for preventing and addressing this phenomenon and its psychological and emotional consequences. IMPLICATIONS FOR PRACTICE: The current study provides new insights on the importance of offering mental health and emotional support to assaulted nurses, especially those with accumulated exposure to violence.


Subject(s)
Crime Victims , Nurses , Psychiatric Nursing , Emotions , Humans , Violence/psychology
5.
J Hosp Palliat Nurs ; 24(4): E109-E116, 2022 08 01.
Article in English | MEDLINE | ID: mdl-35438657

ABSTRACT

This cross-sectional study evaluated the acceptability and feasibility of oncology nurses using validated cancer symptom assessment instruments to assess symptom burden. A consecutive sample of cancer patients and oncology ward nurses at a hospital in Gaborone, Botswana, was used. Patients' symptom burden was assessed using the Memorial Symptom Assessment Scale-Short Form and the Visual Analog Scale-Pain, and patient- and nurse-acceptability data were assessed using the Client Satisfaction Questionnaire and the Intervention Rating Profile. Rates of participation, assessment length of time, and rates of completed Memorial Symptom Assessment Scale-Short Form and Visual Analog Scale-Pain determined feasibility. The sample included 124 patients (female, 84) and 20 nurses (female, 14). The mean (SD) Client Satisfaction Questionnaire score was 30.1 (2.8; minimum-maximum, 19-32), and the mean (SD) Intervention Rating Profile score was 86.8 (4.3; minimum-maximum, 74-90). There was a significant difference in the scores of the Intervention Rating Profile between preassessment (mean [SD], 80.1 [6.0]) and postassessment (mean [SD], 86.8 [4.3]; t19 = -4.853, P < .001). All patient participants (100%) completed assessments. The routine nursing assessment was acceptable to and feasible among patients and nurses. Nurses can integrate validated instruments into routine nursing assessment to determine patients' symptom burden for quick referrals to palliative care.


Subject(s)
Neoplasms , Botswana , Cross-Sectional Studies , Feasibility Studies , Female , Hospitals , Humans , Neoplasms/complications , Neoplasms/diagnosis , Pain , Symptom Assessment
6.
Support Care Cancer ; 30(2): 1011-1014, 2022 Feb.
Article in English | MEDLINE | ID: mdl-34697675

ABSTRACT

The importance of routine distress screening in cancer patients is widely acknowledged, though non-compliance with screening protocols is common. Cited reasons for non-adherence include lack of time and expertise and concerns about the resources associated with the identification and management of clinically relevant distress. This commentary examines changes in distress among people with cancer who participated in a tele-based psychosocial intervention, from the point of initial distress screening to 12 months after commencing the intervention. The goal is to contribute to the discussion about the potential infrastructure requirements of implementing screening programs among screening 'hesitant' cancer care services. Secondary analysis showed a general downward distress trajectory though the greatest reduction occurred between recruitment and baseline and before receiving a low-intensity psychosocial intervention (ß = - 1.84, 95% CI - 2.12, - 1.56). While acknowledging transience of distress in some patients, our results support the possible therapeutic benefit of assessing and validating individuals' distress in the hope of preventing the development of more overt health problems associated with undiagnosed and untreated symptoms.


Subject(s)
Mass Screening , Neoplasms , Humans , Longitudinal Studies , Neoplasms/therapy , Stress, Psychological/diagnosis , Stress, Psychological/epidemiology , Stress, Psychological/etiology
7.
BMC Palliat Care ; 20(1): 191, 2021 Dec 20.
Article in English | MEDLINE | ID: mdl-34930220

ABSTRACT

BACKGROUND: Existential distress is a significant source of suffering for patients facing life-threatening illness. Psychedelic-Assisted Therapies (PAT) are novel treatments that have shown promise in treating existential distress, but openness to providing PAT may be limited by stigma surrounding psychedelics and the paucity of education regarding their medical use. How PAT might be integrated into existing treatments for existential distress within palliative care remains underexplored. METHODS: The present study aimed to elucidate the attitudes of palliative care clinicians regarding treatments for existential distress, including PAT. We recruited palliative care physicians, advanced practice nurses, and spiritual and psychological care providers from multiple US sites using purposive and snowball sampling methods. Attitudes toward PAT were unknown prior to study involvement. Semi-structured interviews targeted at current approaches to existential distress and attitudes toward PAT were analyzed for thematic content. RESULTS: Nineteen respondents (seven physicians, four advanced practice nurses, four chaplains, three social workers, and one psychologist) were interviewed. Identified themes were 1) Existential distress is a common experience that is frequently insufficiently treated within the current treatment framework; 2) Palliative care providers ultimately see existential distress as a psychosocial-spiritual problem that evades medicalized approaches; 3) Palliative care providers believe PAT hold promise for treating existential distress but that a stronger evidence base is needed; 4) Because PAT do not currently fit existing models of existential distress treatment, barriers remain. CONCLUSIONS: PAT is seen as a potentially powerful tool to treat refractory existential distress. Larger clinical trials and educational outreach are needed to clarify treatment targets and address safety concerns. Further work to adapt PAT to palliative care settings should emphasize collaboration with spiritual care as well as mental health providers and seek to address unresolved concerns about equitable access.


Subject(s)
Hallucinogens , Attitude , Humans , Palliative Care
8.
BMC Palliat Care ; 20(1): 51, 2021 Mar 29.
Article in English | MEDLINE | ID: mdl-33781246

ABSTRACT

BACKGROUND: Cancer is a global disease that affects all populations, including Muslims. Psychological and spiritual care of Muslim patients with cancer includes psychosocial and spiritual techniques that help to improve their mental health and spiritual well-being. Although these techniques are available to cancer patients worldwide, they are poorly studied among Muslim patients. This review aims to integrate the literature on the psychosocial-spiritual outcomes and perspectives of Muslim patients with cancer who have undergone psychotherapy. METHOD: We used the Whittemore and Knafl five-step methodology. We conducted a comprehensive search of PubMed, CINAHL, and PsycINFO using relevant keywords. Studies that focused on adult patients with cancer and on published evidence of using psychosocial and spiritual interventions among Muslim patients were included. Each study was reviewed, evaluated, and integrated. RESULTS: A systematic search produced 18 studies that were thematically analyzed. Results showed different psychosocial and spiritual approaches currently used to care for Muslim patients with cancer that target mainly patients' mental health, quality of life, and spiritual well-being. Four major themes emerged: (1) Treating Psychological Distress Without Psychopharmacologic Agents, (2) Improving Knowledge of Cancer for Improving QOL, (3) Depending on Faith for Spiritual Well-being, and (4) Relying on Religious and Spiritual Sources: Letting Go, Letting God. CONCLUSIONS: The rigor of psychosocial and spiritual studies that target psychosocial-spiritual outcomes of Muslim cancer patients needs to be improved to reach conclusive evidence about their efficacy in this population.


Subject(s)
Neoplasms , Quality of Life , Adult , Humans , Islam , Neoplasms/therapy , Psychotherapy , Spirituality
9.
BMC Palliat Care ; 20(1): 32, 2021 Feb 16.
Article in English | MEDLINE | ID: mdl-33593352

ABSTRACT

BACKGROUND: Nurses' palliative and hospice care-specific education is associated with the quality of palliative and hospice care that influences health outcomes of patients with life-limiting illnesses and their caregivers. However, China lacks measures available to assess nurses' educational needs in palliative and hospice care. The End-of-Life Professional Caregiver Survey (EPCS) is a psychometrically reliable self-reporting scale to measure multidisciplinary professionals' palliative and hospice care educational needs. This study was performed to explore the psychometric properties of the Chinese version of the EPCS (EPCS-C) among Chinese nurses. METHODS: We translated and culturally adapted the EPCS into Chinese based on Beaton and colleagues' instrument adaptation process. A cross-sectional study design was used. We recruited 312 nurses from 1482 nurses in a tertiary hospital in central China using convenience sampling to complete the study. Participants completed the EPCS-C and a demographic questionnaire. Exploratory and confirmatory factor analysis was carried out to test and verify the construct validity of the nurse-specific EPCS-C. Cronbach's alpha coefficient was used to appraise the reliability of the nurse-specific EPCS-C. RESULTS: A three-factor structure of EPCS-C was determined, including cultural, ethical, and national values; patient- and family-centered communication; and effective care delivery. The exploratory factor analysis explained 70.82% of the total variances. The 3-factor solution of the nurse-specific EPCS-C had a satisfactory model fit: χ2 = 537.96, χ2/df = 2.96, CFI = 0.94, RMSEA = 0.079, IFI = 0.94, and GFI = 0.86. Cronbach's alpha coefficient of the overall questionnaire was 0.96. CONCLUSIONS: The nurse-specific EPCS-C showed satisfactory reliability and validity to assess nurses' palliative and hospice care educational need. Further research is required to verify the reliability and validity of the EPCS-C in a larger sample, especially the criterion-related validity.


Subject(s)
Caregivers , Death , China , Cross-Sectional Studies , Humans , Psychometrics , Reproducibility of Results , Surveys and Questionnaires
10.
Nurs Open ; 7(6): 2056-2059, 2020 11.
Article in English | MEDLINE | ID: mdl-33072391

ABSTRACT

An empathic approach to patient-centred care is a core of nursing practice. One of the methods to develop empathy, which is gaining currency is the use of virtual reality simulations in education. This paper posits some questions, does it simply reinforce a 'type' of patient, neglecting caring for the patient as unique, is empathy what results or is it pity, does it result in a greater distance being created between the patient and the health care provider? Can we ever really know what it is like to walk in a patient's shoes when what we experience through virtual reality provides a small snapshot of the vicissitudes of living with an illness or disability. We suggest that what matters most in simulations using virtual reality is how the student exits the experience and if they leave knowing just what patients 'like that' feel, or whether they leave with humility and curiosity.


Subject(s)
Education, Nursing , Virtual Reality , Empathy , Health Personnel , Humans
12.
Oncol Nurs Forum ; 47(1): 33-43, 2020 01 01.
Article in English | MEDLINE | ID: mdl-31845922

ABSTRACT

PURPOSE: To identify barriers and corresponding solutions for implementing a telephone-based, nurse-led supportive care intervention for men with advanced prostate cancer. PARTICIPANTS & SETTING: 21 healthcare professionals with an average 15.81 years of experience in diverse prostate cancer care settings. METHODOLOGIC APPROACH: Data from semistructured interviews were coded into the Theoretical Domains Framework and mapped to behavior change techniques (BCTs) to inform the development of an implementation schema. FINDINGS: Barriers included lack of knowledge about the effectiveness of survivorship interventions and how to deliver them, low referral rates to psychosocial oncology care, low help-seeking behavior among men with advanced prostate cancer, lack of care coordination skills, and inadequate service capacity. IMPLICATIONS FOR NURSING: Interprofessional support exists for a nurse-led supportive care intervention. Causes of low engagement with supportive care among men with advanced prostate cancer extend beyond gendered patterns of response.


Subject(s)
Behavior Therapy/methods , Health Personnel/psychology , Nurse-Patient Relations , Oncology Nursing/methods , Prostatic Neoplasms/nursing , Prostatic Neoplasms/psychology , Social Support , Adult , Aged , Aged, 80 and over , Attitude of Health Personnel , Australia , Female , Focus Groups , Humans , Male , Middle Aged , Qualitative Research
13.
Palliat Support Care ; 18(5): 569-574, 2020 10.
Article in English | MEDLINE | ID: mdl-31771678

ABSTRACT

OBJECTIVES: The aim of this study was to translate, culturally adapt, and psychometrically evaluate the Brazilian version of the "End-of-Life Professional Caregiver Survey" (BR-EPCS). METHOD: This is an observational cross-sectional study. The sample was composed of 285 Brazilian healthcare professionals who work or worked in the palliative care area. A minimum number of 280 participants were established, following the recommendation of 10 subjects for each instrument item. The European Organisation for Research and Treatment of Cancer - Quality of Life Group Translation Procedure protocol was used for the translation and the cultural adaptation. For the precise/reliable evaluation of factors measured by the BR-EPCS, Cronbach's alpha (α) and composite reliability coefficients were used. The factorial analyses were made by means of the exploratory structural equation modeling methods and confirmatory factor analysis. We have conducted a multiple linear regression analysis to evaluate the sociodemographic variables' capabilities in the result prediction measured by BR-EPCS factors. RESULTS: The factorial analysis showed the relevance of two factors: Factor 1 - "Given care effectiveness" (18 items; Cronbach's α = 0.94; Composite Reliability = 0.95) and Factor 2 - "Mourning and ethical and cultural values" (10 items; Cronbach's α = 0.89; Composite Reliability = 0.88). Multiple linear regression analyses revealed that the working time, sex, palliative care training, and its own advance directives are predictors of the constructs assessed by the BR-EPCS. SIGNIFICANCE OF RESULTS: The BR-EPCS is a reliable, valid, and culturally appropriate tool to identify the educational needs of healthcare professionals who work with palliative care. This instrument can be used for educational and research reasons.


Subject(s)
Caregivers/psychology , Cultural Competency/psychology , Psychometrics/standards , Adult , Aged , Analysis of Variance , Brazil , Caregivers/statistics & numerical data , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Psychometrics/instrumentation , Psychometrics/methods , Reproducibility of Results , Surveys and Questionnaires , Terminal Care/methods , Terminal Care/psychology , Terminal Care/statistics & numerical data , Translating
14.
Eur J Cancer Care (Engl) ; 28(4): e13036, 2019 Jul.
Article in English | MEDLINE | ID: mdl-30968987

ABSTRACT

OBJECTIVE: To evaluate the RE-AIM framework's effect on retention of participants and implementation outcomes of a 5-year cancer research education programme on psychosocial distress screening in cancer centres across the United States. METHODS: A one-group pre-/post-test design was used to evaluate the programme on participant retention and implementation outcomes at 6, 12 and 24 months after enrolling in the programme (baseline) and analysed using descriptive statistics. RESULTS: Seventy-two cancer centres participated in four cohorts. Participant retention was 100%. At baseline and 24 months, respectively, 52 (72%) and 64 (88%) of the cancer centres had formulated a psychosocial distress screening policy; 51 (71%) and 70 (98%) had started screening in more than one clinic/population; 15 (21%) and 45 (63%) had started auditing health records for documentation of screening. Each outcome rate improved at the cancer-centre level over the 24 months. CONCLUSION: RE-AIM can be used as a framework for cancer research education programmes. Future research is needed on the use of a randomised adaptive design to test the optimal support for implementation of quality care standards according to cancer centres' needs.


Subject(s)
Cancer Care Facilities , Information Dissemination , Neoplasms/psychology , Psychological Distress , Female , Humans , Implementation Science , Male , Mass Screening
15.
Eur J Cancer Care (Engl) ; 28(4): e13046, 2019 Jul.
Article in English | MEDLINE | ID: mdl-31016811

ABSTRACT

Previous studies have reported high prevalence of psychosocial distress among lung cancer patients in Western countries, but the prevalence of distress in Chinese patients is not established. The study objectives were to report the prevalence of and factors associated with psychosocial distress in a sample of hospitalised patients in China and to implement distress screening in one thoracic specialty department. In this cross-sectional study, adult patients completed a self-reported demographic and clinical questionnaire and the distress thermometer with the problem list. Distress was dichotomised (high vs. low) and compared. Regression analyses were used to determine which variables were associated with psychosocial distress. One hundred eighty-six of 420 patients (38.6%) reported distress ≥4/10. They were unemployed, had New Rural Cooperative Medical System (NRCMS) insurance and Stage IV cancer. NRCMS insurance contributed to the likelihood of high distress and worry. Patients reported significant psychosocial distress during hospitalisation related to practical, emotional and physical problems. In this case study, staff reported they screened consecutive patients but there were no available referrals after discharge. We concluded it may be premature to screen patients for distress prior to instituting resources to establish services. To do otherwise is premature in ensuring patients' relief.


Subject(s)
Lung Neoplasms/psychology , Stress, Psychological/etiology , Adult , Aged , China/epidemiology , Cross-Sectional Studies , Early Diagnosis , Female , Hospitalization , Humans , Lung Neoplasms/epidemiology , Lung Neoplasms/therapy , Male , Middle Aged , Prevalence , Stress, Psychological/diagnosis , Stress, Psychological/epidemiology , Young Adult
16.
Eur J Cancer Care (Engl) ; 28(4): e13031, 2019 Jul.
Article in English | MEDLINE | ID: mdl-30828899

ABSTRACT

INTRODUCTION: Gay, bisexual and queer (GBQ) men with prostate cancer have unique experiences of the prostate cancer journey. The current integrative review aimed to synthesise existing scientific literature for the purpose of identifying GBQ men's psychosocial experience of undergoing treatment for prostate cancer. METHODS: We utilised the Whittemore and Knafl (Journal of Advanced Nursing, 52, 546-553) integrative review methodology and the Garrard (Health sciences literature review made easy. Jones & Bartlett Publishers) matrix method. RESULTS: After a systematic search, 18 quantitative and non-empirical studies were included for thematic analysis. Three themes emerged: (a) Prostate cancer, and its treatment affect sexual wellbeing, including negatively affecting their relationships and sense of self. (b) Health care is heteronormative, exemplified by clinicians dismissing GBQ men's concerns, leading GBQ men to fare worse on psychosocial outcomes, including treatment satisfaction, in comparison with heterosexual counterparts. (c) Prostate cancer affects social support. GBQ men rely on an expansive support network, but often isolate themselves during prostate cancer treatment as to not be burden others. CONCLUSION: Psychosocial supportive care needs to address GBQ men's sexual, emotional and social needs. Future psycho-oncologic trials are needed, especially on GBQ-specific peer-support interventions.


Subject(s)
Patient Satisfaction , Prostatic Neoplasms/psychology , Prostatic Neoplasms/therapy , Sexual and Gender Minorities/psychology , Social Support , Humans , Male , Patient Reported Outcome Measures , Treatment Outcome
17.
Eur J Cancer Care (Engl) ; 28(3): e13010, 2019 May.
Article in English | MEDLINE | ID: mdl-30740814

ABSTRACT

OBJECTIVE: To prospectively explore predictors of hope in people with colorectal cancer at 24 months post-diagnosis. METHODS: The present study is a secondary analysis of two waves within a longitudinal survey of patients newly diagnosed with colorectal cancer in Queensland, Australia. Baseline predictors (sociodemographic, disease, lifestyle characteristics, cancer threat appraisal and quality of life domains) were measured via mailed surveys and telephone interviews at 6 months post-diagnosis. Hope was measured via mailed surveys at 24 months post-diagnosis. RESULTS: At 24 months post-diagnosis, 1,265 participants completed the hope measure. Hope was predicted by higher education, physical activity, cancer threat appraisal and each quality of life domain (i.e., physical, social, emotional and functional well-being; and colorectal cancer-specific concerns), which explained 23.63% of the total variance in hope, F(14, 1,081) = 23.89, p < 0.001. CONCLUSION: At 24 months post-diagnosis, hope was associated with greater functional, social and emotional well-being, and less threatened cancer appraisals. As hope programmes continue to be developed, designers should include activities that increase well-being and reduce cancer threat appraisal for people with colorectal cancer.


Subject(s)
Colorectal Neoplasms/psychology , Hope , Quality of Life , Aged , Educational Status , Emotions , Exercise , Female , Humans , Longitudinal Studies , Male , Mental Health , Middle Aged , Practice Patterns, Nurses' , Prospective Studies , Psychology , Queensland , Social Behavior
18.
Palliat Support Care ; 17(3): 253-261, 2019 06.
Article in English | MEDLINE | ID: mdl-29880068

ABSTRACT

OBJECTIVE: Many cancer centers struggle to implement standardized distress screening despite the American College of Surgeons' Commission on Cancer 2012 mandate for a distress screening program standard of care by 2015. This paper presents outcomes for the first cohort of participants (n = 36) of a Screening for Psychosocial Distress Program (SPDP), a 2-year training program designed to assist clinicians in implementing routine distress screening as mandated by the American College of Surgeons Commission on Cancer. Specifically, participants' success with distress screening implementation, institutional barriers and facilitators to implementation, and the role of the SPDP are described. METHOD: This research followed a longitudinal pre- and posttest mixed methods design. An investigator-developed questionnaire collected qualitative (distress screening goals, institutional barriers and facilitators, facilitators associated with participation in the SPDP) and quantitative (level of goal achievement) data at 6, 12, and 24 months of participation in the SPDP. Conventional content analysis was applied to qualitative data. Mixed methods data analysis in Dedoose evaluated (1) types and number of distress screening goals, barriers, and facilitators, and (2) goal achievement at 6, 12, and 24 months of participation.ResultNinety-five percent of distress screening implementation goals were completed after 2 years of participation. Most common institutional barriers to distress screening implementation were "lack of staff," "competing demands," and "staff turn-over." Most common institutional facilitators were "buy-in," "institutional support," and "recognition of participants' expertise." The number of reported facilitators associated with SPDP participation was higher than the number associated with any institutional factor, and increased over time of participation.Significance of resultsParticipating in training programs to implement distress screening may facilitate successful achievement of the Commission on Cancer's distress screening standard, and benefits seem to increase with time of participation. Training programs are needed to promote facilitators and overcome barriers to distress screening.


Subject(s)
Mass Screening/instrumentation , Neoplasms/psychology , Psychological Distress , Cohort Studies , Humans , Longitudinal Studies , Mass Screening/methods , Neoplasms/complications , Program Development/methods , Qualitative Research , Surveys and Questionnaires
19.
J Palliat Care ; 34(1): 52-61, 2019 Jan.
Article in English | MEDLINE | ID: mdl-30231835

ABSTRACT

The objective of this review was to detail the experiences of Muslim oncology patients receiving palliative and end-of-life care and identify where gaps in the providing of culturally aware care occur. We also sought to examine ways in which providers could be better educated on the needs of Muslim patients at the end-of-life and identify barriers Muslims faced when being treated with hospice and palliative care models developed for non-Muslim populations. We conducted a search in April 2018 in the National Library of Medicine and CINAHL databases using the search terms "palliative care," "Muslim," and "cancer." Included were articles with focuses on adult Muslims with palliative and end-of-life care experiences. We then followed the PRISMA guidelines for an integrative review and used a data extraction matrix to identify 20 papers that met the inclusion criteria of the review. We identified four major themes patient experiences, patient care delivery suggestions, Muslim provider experiences, and definitions of death, present in all 20 papers of the review. Each of the included papers was categorized based on the dominant theme in the paper. This review ultimately found that the care provided to Muslim patients is subpar for the standard of culturally competent care and that the needs of Muslim patients at the end-of-life, as well as the needs of their families, are not being met. Moving forward further research on this topic is needed with a particular focus on examining the experiences of terminally ill Muslim patients receiving treatment in non-Muslim majority settings.


Subject(s)
Culturally Competent Care/organization & administration , Health Services Needs and Demand , Hospice Care/psychology , Islam , Neoplasms/nursing , Palliative Care/psychology , Spirituality , Terminal Care/psychology , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Qualitative Research
20.
Eur J Cancer Care (Engl) ; 28(1): e12924, 2019 Jan.
Article in English | MEDLINE | ID: mdl-30252180

ABSTRACT

Female partners of prostate cancer (PCa) survivors experience heightened psychological distress that may be greater than that expressed by PCa patients. However, optimal approaches to detect distressed, or at risk of distress, partners are unclear. This study applied receiver operating characteristics analysis to evaluate diagnostic accuracy, sensitivity and specificity of the Distress Thermometer (DT) compared to widely used measures of general (Hospital Anxiety and Depression Scale) and cancer-specific (Impact of Events Scale-Revised) distress. Participants were partners of men with localised PCa (recruited around diagnosis) about to undergo or had received surgical treatment (N = 189), and partners of men diagnosed with PCa who were 2-4 years post-treatment (N = 460). In both studies, diagnostic utility of the DT overall was not optimal. Although area under the curve scores were acceptable (ranges: 0.71-0.92 and 0.83-0.94 for general and cancer-specific distress, respectively), sensitivity, specificity and optimal DT cut-offs for partner distress varied for general (range: ≥2 to ≥5) and cancer-specific (range: ≥3 to ≥5) distress both across time and between cohorts. Thus, it is difficult to draw firm conclusions about the diagnostic capabilities of the DT for partners or recommend its use in this population. More comprehensive screening measures may be needed to detect partners needing psychological intervention.


Subject(s)
Anxiety/psychology , Depression/psychology , Spouses/psychology , Stress, Psychological/psychology , Adult , Aged , Aged, 80 and over , Anxiety/diagnosis , Depression/diagnosis , Female , Humans , Male , Middle Aged , Prostatic Neoplasms , ROC Curve , Reproducibility of Results , Sensitivity and Specificity , Stress, Psychological/diagnosis , Surveys and Questionnaires , Visual Analog Scale , Women/psychology
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