ABSTRACT
AIMS: This pilot study describes the experiences of six people who reported post-leptospirosis symptoms. Our aim was to perform an exploratory qualitative study to document participants' experiences and to identify themes to gain understanding of the impact and burden experienced. METHODS: Participants self-recruited, meaning they had directly contacted the first author prior to the study commencing and had offered to tell their stories. Face-to-face semi-structured interviews were conducted in January 2016 and summative content analysis was used to distil themes. RESULTS: The participants were male, had been employed in livestock slaughter plants (n=2) or farming (n=4) when they first contracted leptospirosis and claimed they had been suffering from post-leptospirosis symptoms for 1-35 years. Symptoms included exhaustion, brain fog and mood swings, and participants' lifestyles and relationships were severely affected. Participants and their partners reported poor awareness and knowledge of leptospirosis when they sought help, and that employers and the Accident Compensation Corporation (ACC) were dismissive of post-leptospirosis symptoms. Participants also reported some positive experiences and had advice to share. CONCLUSION: Leptospirosis may have severe long-term consequences for patients, their families and their communities. We recommend that the aetiology, pathogenesis and burden of the persistence of leptospirosis symptoms become topics for future research.
