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Index enferm ; 28(3): 100-104, jul.-sept. 2019. ilus
Article in Spanish | IBECS | ID: ibc-192662

ABSTRACT

El objetivo principal ha sido explorar la experiencia de mujeres con fibromialgia en relación a su itinerario terapéutico, a la vivencia del diagnóstico y al día a día con la enfermedad. METODOLOGÍA: estudio fenomenológico y constructivista de seis narrativas, obtenidas gracias a entrevistas semiestructuradas de corte biográfico y analizadas mediante el análisis de contenido. RESULTADOS: Las narrativas se organizaron siguiendo estos ejes: (a) problema, que surge con la aparición de los síntomas y la inserción de la persona en el sistema sanitario, (b) nudo, basado en la búsqueda de un diagnóstico y en las alteraciones del mundo de la vida cotidiana que provoca el dolor, y (c) desenlace, el tratamiento. CONCLUSIONES: Para comprender la fibromialgia es necesario aplicar paradigmas menos medicalizadores y emplear modelos de corte bio-psico-social que permitan situar la experiencia individual con y en la enfermedad. Consideramos necesario debatir los modelos y roles de género que provocan sufrimiento en las mujeres


The main objective has been to explore the experience of women with fibromyalgia in relation to their therapeutic itinerary, to the experience of the diagnosis and the coexistence with the disease. METHODOLOGY: phenomenological and constructivist study about six narratives, obtained through semi-structured interviews of a biographical nature and analyzed through content analysis. RESULTS: The narratives were organized following these axes: (a) the problem referring to the first symptoms and the insertion of the person in the health system problem, with the appearance of symptoms and the insertion of the person in the health system, (b) the crux, based on the search for a diagnosis and alterations of the world of daily life that promotes the pain and (c) outcome, treatment. CONCLUSIONS: To understand fibromyalgia, it is necessary to apply less medicalizing paradigms and to use bio-psycho-social models that allow the individual experience with and in the disease. We consider it necessary to debate the models and gender roles that cause suffering in women


Subject(s)
Humans , Female , Middle Aged , Personal Narratives as Topic , Social Stigma , Fibromyalgia/psychology , Health Personnel , Social Support , Pain Management , Stereotyping
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