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2.
Autism Res ; 16(8): 1619-1629, 2023 08.
Article in English | MEDLINE | ID: mdl-37519223

ABSTRACT

Autistic adults experience significant unmet healthcare needs, with opportunities for improvement in both the systems and the practitioners who serve this population. Primary care physicians/practitioners (PCPs) are a natural choice to provide comprehensive care to autistic adults but often lack experience in serving this population. This pilot study developed and tested an Extension for Community Healthcare Outcomes (ECHO) Autism model adapted from our previous work, focused specifically on training PCPs in best-practice care for autistic adults. The project was informed directly by the perspectives and preferences of autistic adults, caregivers, and PCPs. Two consecutive cohorts of PCPs participated in ECHO Autism Adult Healthcare sessions. Each cohort met 1 h twice a month for 6 months, with 37 PCPs (n = 20 in Cohort 1, and n = 17 in Cohort 2) participating. Based on findings from the first cohort, adjustments were made to refine the session preparation, curriculum, conduct of the ECHO, resources, and evaluation. After participation in the ECHO Autism program, PCP self-efficacy and satisfaction improved, while the number of perceived barriers did not change. Knowledge did not improve significantly in Cohort 1, but after adjustments to the training model, participants in Cohort 2 showed significant knowledge gains. While attention to systems of care is critical to addressing barriers in healthcare in the autistic population, the ECHO Autism Adult Healthcare model is feasible and holds promise for improving PCP satisfaction and self-efficacy in working with autistic adults.


Subject(s)
Autism Spectrum Disorder , Autistic Disorder , Humans , Adult , Autistic Disorder/therapy , Pilot Projects , Autism Spectrum Disorder/therapy , Self Efficacy , Delivery of Health Care
3.
J Autism Dev Disord ; 53(10): 4035-4046, 2023 Oct.
Article in English | MEDLINE | ID: mdl-35947316

ABSTRACT

BACKGROUND: The term "weaponized autism" is frequently used on extremist platforms. To better understand this, we conducted a discourse analysis of posts on Gab, an alt-right social media platform. METHODS: We analyzed 711 posts spanning 2018-2019 and filtered for variations on the term "weaponized autism". RESULTS: This term is used mainly by non-autistic Gab users. It refers to exploitation of perceived talents and vulnerabilities of "Weaponized autists", described as all-powerful masters-of-technology who are devoid of social skills. CONCLUSIONS: The term "weaponized autism" is simultaneously glorified and derogatory. For some autistic people, the partial acceptance offered within this community may be preferable to lack of acceptance offered in society, which speaks to improving societal acceptance as a prevention effort.


Subject(s)
Autism Spectrum Disorder , Autistic Disorder , Social Media , Humans , Social Skills
4.
Front Psychiatry ; 13: 873121, 2022.
Article in English | MEDLINE | ID: mdl-35401260

ABSTRACT

People with autism spectrum disorder (ASD) are represented among those who espouse extremist thought and have committed violent acts associated with their beliefs. Media often highlight a perpetrator's psychiatric diagnosis following acts of mass violence, which in some instances has included ASD. ASD may itself not provide useful information for understanding motivations. Instead, understanding specific traits and neuropsychological and other vulnerabilities may offer an opportunity to make sense of these very complex events.

5.
J Dev Behav Pediatr ; 42(2): 91-100, 2021.
Article in English | MEDLINE | ID: mdl-33044397

ABSTRACT

OBJECTIVE: Despite their complex health care needs, transition-aged youth diagnosed with autism spectrum disorder (TAY-ASD) receive few transition services and describe difficulty finding adult providers. A 12-week primary care provider (PCP) training was developed to improve the delivery of transition services for TAY-ASD [Extension for Community Healthcare Outcomes (ECHO) Autism: Transition to Adulthood program]. The current study examines the PCPs' perspectives and experiences of the program and application of the training material. METHODS: This study used a qualitative descriptive framework to explore the experiences and perspectives of 10 PCPs who completed the ECHO Autism: Transition to Adulthood program. Semistructured focus groups, conducted through Zoom videoconferencing, were used to explore these topics. RESULTS: Three overarching categories were identified: (1) beneficial and influential aspects of the ECHO, (2) perceived challenges, and (3) suggestions for improvements and adjustments. Overall, participants found the program highly beneficial, describing an increased sense of community and comprehensive recommendations from a multidisciplinary team. Challenges included difficulties participating in the program during clinical hours and difficulties meeting the educational needs of participants with a wide range of previous experience caring for TAY-ASD. Recommendations included embedding the location-specific material into the program to account for regional differences and the use of an online platform for participants to ask questions and discuss issues outside of the regular sessions. CONCLUSION: The study results can inform the development and implementation of new virtual PCP trainings and future ECHOs, including the revision and broad implementation of the ongoing ECHO Autism: Transition to Adulthood program.


Subject(s)
Autism Spectrum Disorder , Autistic Disorder , Adolescent , Adult , Aged , Autism Spectrum Disorder/therapy , Autistic Disorder/therapy , Community Health Services , Health Personnel , Humans , Videoconferencing
6.
Autism ; 24(3): 633-644, 2020 04.
Article in English | MEDLINE | ID: mdl-31581793

ABSTRACT

Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study developed and tested an adaptation of the Extension for Community Healthcare Outcomes model to train and mentor primary care providers (n = 16) in best-practice care for transition-age youth and young adults with autism spectrum disorder. The Extension for Community Healthcare Outcomes Autism Transition program consisted of 12 weekly 1-h sessions connecting primary care providers to an interdisciplinary expert team via multipoint videoconferencing. Sessions included brief didactics, case-based learning, and guided practice. Measures of primary care provider self-efficacy, knowledge, and practice were administered pre- and post-training. Participants demonstrated significant improvements in self-efficacy regarding caring for youth/young adults with autism spectrum disorder and reported high satisfaction and changes in practice as a result of participation. By contrast, no significant improvements in knowledge or perceived barriers were observed. Overall, the results indicate that the model holds promise for improving primary care providers' confidence and interest in working with transition-age youth and young adults with autism spectrum disorder. However, further refinements may be helpful for enhancing scope and impact on practice.


Subject(s)
Autism Spectrum Disorder/therapy , Delivery of Health Care , Health Personnel/education , Primary Health Care , Transitional Care , Adolescent , Adult , Female , Humans , Male , Self Efficacy , Transition to Adult Care , Young Adult
7.
J Autism Dev Disord ; 39(9): 1329-38, 2009 Sep.
Article in English | MEDLINE | ID: mdl-19430897

ABSTRACT

The features of autism that inhibit the independent demonstration of skills, as well as three effective interventions for increasing independence, are explored in this review article. Independent performance may prove difficult for individuals with autism spectrum disorders (ASD) due to the core deficits of the disability, as well as executive function deficits that impact initiation and generalization. These difficulties, coupled with intervention strategies that encourage over-reliance on adult support, contribute to poor long term outcomes for adults with ASD in employment, housing, and relationship development. Self-monitoring, video modeling, and individual work systems each emphasize a shift in stimulus control from continuous adult management to an alternative stimulus and have proven successful in addressing executive function deficits and increasing independence.


Subject(s)
Activities of Daily Living/psychology , Autistic Disorder/therapy , Behavior Therapy/methods , Self Care/psychology , Attention , Autistic Disorder/diagnosis , Autistic Disorder/psychology , Awareness , Cognition Disorders/diagnosis , Cognition Disorders/psychology , Cognition Disorders/therapy , Cues , Generalization, Psychological , Humans , Imitative Behavior , Practice, Psychological , Programmed Instructions as Topic , Reinforcement, Psychology , Social Behavior , Social Environment , Transfer, Psychology , Video Recording
8.
J Autism Dev Disord ; 38(6): 1124-35, 2008 Jul.
Article in English | MEDLINE | ID: mdl-18064552

ABSTRACT

Students with autism have difficulty initiating social interactions and may exhibit repetitive motor behavior (e.g., body rocking, hand flapping). Increasing social interaction by teaching new skills may lead to reductions in problem behavior, such as motor stereotypies. Additionally, self-monitoring strategies can increase the maintenance of skills. A multiple baseline design was used to examine whether multi-component social skills intervention (including peer training, social initiation instruction, and self-monitoring) led to a decrease in repetitive motor behavior. Social initiations for all participants increased when taught to initiate, and social interactions continued when self-monitoring was introduced. Additionally, participants' repetitive motor behavior was reduced. Changes in social behavior and in repetitive motor behavior maintained more than one month after the intervention ended.


Subject(s)
Autistic Disorder/therapy , Behavior Therapy , Peer Group , Social Behavior , Stereotyped Behavior , Attention , Autistic Disorder/diagnosis , Autistic Disorder/psychology , Awareness , Child , Humans , Mainstreaming, Education , Male , Self Care/psychology
9.
Am J Ment Retard ; 111(3): 199-215, 2006 May.
Article in English | MEDLINE | ID: mdl-16597187

ABSTRACT

The factor structure, internal consistency, and convergent validity of the Autism Diagnostic Interview-Revised (ADI-R) algorithm items were examined in a sample of 226 youngsters with pervasive developmental disabilities. Exploratory factor analyses indicated a three-factor solution closely resembling the original algorithm and explaining 38% of the variance, with one significant discrepancy: Unlike the algorithm, all nonverbal communication items were associated with the Social factor. Internal consistencies of domain scores ranged from .54 to .84. Correlations between ADI-R domain and total scores and instruments assessing adaptive behavior, psychopathology, and autism were examined. They indicated some similarities between constructs, but also that the ADI-R measures autism in a unique fashion.


Subject(s)
Autistic Disorder/diagnosis , Interview, Psychological , Surveys and Questionnaires , Adolescent , Child , Child, Preschool , Demography , Female , Humans , Male , Reproducibility of Results , Severity of Illness Index
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