ABSTRACT
INTRODUCTION: Patient engagement and integrated knowledge translation (iKT) processes improve health outcomes and care experiences through meaningful partnerships in consensus-building initiatives and research. Consensus-building is essential for engaging a diverse group of experienced knowledge users in co-developing and supporting a solution where none readily exists or is less optimal. Patients and caregivers provide invaluable insights for building consensus in decision-making around healthcare, policy and research. However, despite emerging evidence, patient engagement remains sparse within consensus-building initiatives. Specifically, our research has identified a lack of opportunity for youth living with chronic health conditions and their caregivers to participate in developing consensus on indicators/benchmarks for transition into adult care. To bridge this gap and inform our consensus-building approach with youth/caregivers, this scoping review will synthesise the extent of the literature on patient and other knowledge user engagement in consensus-building healthcare initiatives. METHODS AND ANALYSIS: Following the scoping review methodology from Joanna Briggs Institute, published literature will be searched in MEDLINE, EMBASE, CINAHL and PsycINFO databases from inception to July 2023. Grey literature will be hand-searched. Two independent reviewers will determine the eligibility of articles in a two-stage process, with disagreements resolved by a third reviewer. Included studies must be consensus-building studies within the healthcare context that involve patient engagement strategies. Data from eligible studies will be extracted and charted on a standardised form. Abstracted data will be analysed quantitatively and descriptively, according to specific consensus methodologies, and patient engagement models and/or strategies. ETHICS AND DISSEMINATION: Ethics approval is not required for this scoping review protocol. The review process and findings will be shared with and informed by relevant knowledge users. Dissemination of findings will also include peer-reviewed publications and conference presentations. The results will offer new insights for supporting patient engagement in consensus-building healthcare initiatives. PROTOCOL REGISTRATION: https://osf.io/beqjr.
Subject(s)
Caregivers , Consensus , Patient Participation , Humans , Translational Research, Biomedical , Review Literature as Topic , Research Design , Transition to Adult CareABSTRACT
The risk of viral infection during the COVID-19 pandemic has caused many hospitals to prohibit all patient visitors, including family caregivers for people with intellectual disabilities. Drawing on a postmodern, intersubjective view of the body, as well as my experience as the mother of a young adult with profound disabilities, I argue that caregiver knowledge while unconventional within the medical paradigm must be viewed as essential expertise. People with profound intellectual disabilities often have concurrent, complex medical issues that are complicated by their inability to self-advocate. Optimal care rests upon the ongoing presence and expertise of their primary caregiver. Medical professionals risk patient care by excluding the essential expertise of family caregivers at any time, and specifically during COVID-19.
Subject(s)
COVID-19 , Intellectual Disability , Caregivers , Family , Humans , Pandemics , Young AdultSubject(s)
Parents/psychology , Physician-Patient Relations , Primary Health Care/methods , Adolescent , Cerebral Palsy/therapy , Child , Epilepsy/therapy , Female , Humans , MaleABSTRACT
This is an ethnographic study exploring the role of emotion, images, and sacred texts in the spiritual reflection of non-chaplaincy health care professionals who offer spiritual care to their patients. Purposeful sampling of 20 health care professionals was employed. These non-chaplaincy professionals were interviewed and the researchers also kept field notes on the cultures in which they worked. Both interviews and field notes were transcribed and analyzed using the constant comparative method of data analysis. Findings indicate that emotion and images are the main doors that these professionals use to reflect spiritually on their practice of spiritual care. Sacred texts are the third door. Outcomes of the use of feelings and emotions in spiritual reflection are a deeper sense of peace, grounding and letting go, that is, transformation. Recommendations for collaboration with chaplains and further research are offered.
Subject(s)
Anthropology, Cultural , Bible , Emotions , Health Personnel/psychology , Spirituality , Female , Humans , Interviews as Topic , Ontario , ResearchABSTRACT
Necrotizing fasciitis (NF) is a rapidly spreading infection affecting the subcutaneous soft tissue. Because of its rapid progression and high mortality, it is essential that the patient is diagnosed and treated early. Over the past century and a half, little has changed in the mortality of this disease. The orthopaedic nurse is in a key position to assist with the early detection and treatment of NF. In the following article, the pathophysiology, early disease detection, diagnostic and treatment challenges, and appropriate nursing interventions will be discussed as it relates to improving the care of the patient with NF.
