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1.
Clin Exp Dent Res ; 7(5): 894-902, 2021 10.
Article in English | MEDLINE | ID: mdl-33754493

ABSTRACT

OBJECTIVES: The impact of dental occlusion on the experiences of head and neck cancer patients and their oral, social and psychological functioning has been sparsely investigated. There is a lack of knowledge regarding the experience of tooth loss and dentures among patients treated for head and neck cancer. The aim of this study was to describe the experiences of head and neck cancer patients of prophylactic tooth extractions and temporary removable dentures, 6 months after radiotherapy treatment. MATERIAL AND METHODS: An individual interview with 25 patients 6 months after radiotherapy was subjected to a qualitative content analysis. RESULTS: Two categories, Impaired oral function and Belief in the future, and seven subcategories described the patients' experiences of temporary removable dentures during the first 6 months after prophylactic tooth extractions. The temporary removable dentures affected the patients' ability to chew, swallow and speak, caused pain, and were experienced as an enemy. Despite that, the patients were hopeful and had a wish for recovery, which gave them the energy to live. CONCLUSION: Prophylactic tooth extractions and temporary removable dentures 6 months after radiotherapy treatment affect head and neck cancer patients' recovery and everyday life. However, they have the will to take on these challenges, pertaining not only to themselves, but also to relatives and health professionals. At the individual level, the patient needs individualized professional support to get through the arduous procedure, from the acute situation until the end of the rehabilitation phase.


Subject(s)
Head and Neck Neoplasms , Tooth Loss , Dentures , Head and Neck Neoplasms/radiotherapy , Humans , Tooth Extraction
2.
BMC Med Genet ; 21(1): 184, 2020 09 21.
Article in English | MEDLINE | ID: mdl-32957930

ABSTRACT

BACKGROUND: Two important aspects for the development of anxiety disorders are genetic predisposition and alterations in the hypothalamic-pituitary-adrenal (HPA) axis. In order to identify genetic risk-factors for anxiety, the aim of this exploratory study was to investigate possible relationships between genetic polymorphisms in genes important for the regulation and activity of the HPA axis and self-assessed anxiety in healthy individuals. METHODS: DNA from 72 healthy participants, 37 women and 35 men, were included in the analyses. Their DNA was extracted and analysed for the following Single Nucleotide Polymorphisms (SNP)s: rs41423247 in the NR3C1 gene, rs1360780 in the FKBP5 gene, rs53576 in the OXTR gene, 5-HTTLPR in SLC6A4 gene and rs6295 in the HTR1A gene. Self-assessed anxiety was measured by the State and Trait Anxiety Inventory (STAI) questionnaire. RESULTS: Self-assessed measure of both STAI-S and STAI-T were significantly higher in female than in male participants (p = 0.030 and p = 0.036, respectively). For SNP rs41423247 in the NR3C1 gene, there was a significant difference in females in the score for STAI-S, where carriers of the G allele had higher scores compared to the females that were homozygous for the C allele (p < 0.01). For the SNP rs53576 in the OXTR gene, there was a significant difference in males, where carriers of the A allele had higher scores in STAI-T compared to the males that were homozygous for the G allele (p < 0.01). CONCLUSION: This study shows that SNP rs41423247 in the NR3C1 gene and SNP rs53576 in the OXTR gene are associated with self-assessed anxiety in healthy individuals in a gender-specific manner. This suggests that these SNP candidates are possible genetic risk-factors for anxiety.


Subject(s)
Anxiety Disorders/genetics , Genetic Predisposition to Disease/genetics , Hypothalamo-Hypophyseal System/metabolism , Pituitary-Adrenal System/metabolism , Polymorphism, Single Nucleotide , Receptors, Glucocorticoid/genetics , Receptors, Oxytocin/genetics , Adult , Alleles , Anxiety/psychology , Anxiety Disorders/psychology , Female , Gene Frequency , Genotype , Humans , Male , Risk Factors , Surveys and Questionnaires , Young Adult
3.
J Patient Rep Outcomes ; 4(1): 7, 2020 Jan 23.
Article in English | MEDLINE | ID: mdl-31974688

ABSTRACT

BACKGROUND: Over the past decade, the importance of person-centered care has led to increased interest in patient-reported outcome measures (PROMs). In cardiovascular care, selecting an appropriate PROM for clinical use or research is challenging because multimorbidity is often common in patients. The aim was therefore to provide an overview of heart-disease specific PROMs and to compare the content of those outcomes using a bio-psycho-social framework of health. METHODS: A scoping review of heart disease-specific PROMs, including arrhythmia/atrial fibrillation, congenital heart disease, heart failure, ischemic heart disease, and valve diseases was conducted in PubMed (January 2018). All items contained in the disease-specific PROMs were mapped to WHO's International Classification of Functioning, Disability and Health (ICF) according to standardized linking rules. RESULTS: A total of 34 PROMs (heart diseases in general n = 5; cardiac arrhythmia n = 6; heart failure n = 14; ischemic heart disease n = 9) and 147 ICF categories were identified. ICF categories covered Body functions (n = 61), Activities & Participation (n = 69), and Environmental factors (n = 17). Most items were about experienced problems of Body functions and less often about patients' daily activities, and most PROMs were specifically developed for heart failure and no PROM were identified for valve disease or congenital heart disease. CONCLUSIONS: Our results motivate and provide information to develop comprehensive PROMs that consider activity and participation by patients with various types of heart disease.

4.
Eur J Cardiovasc Nurs ; 17(7): 589-597, 2018 10.
Article in English | MEDLINE | ID: mdl-29493266

ABSTRACT

BACKGROUND: The aim of this study was to evaluate the effects of a brief dyadic cognitive behavioural therapy (CBT) programme on the health-related quality of life (HRQoL), as well as the sense of coherence in atrial fibrillation patients, up to 12 months post atrial fibrillation. METHODS: A longitudinal randomised controlled trial with a pre and 12-month post-test recruitment of 163 persons and their spouses, at a county hospital in southern Sweden. In all, 111 persons were randomly assigned to either a CBT ( n=56) or a treatment as usual (TAU) group ( n=55). The primary outcome was changes in the HRQoL (Euroqol questionnaire; EQ-5D), and the secondary outcomes were changes in psychological distress (hospital anxiety and depression scale; HADS) and sense of coherence (sense of coherence scale; SOC-13). RESULTS: At the 12-month follow-up, the CBT group experienced a higher HRQoL than the TAU group (mean changes in the CBT group 0.062 vs. mean changes in the TAU group -0.015; P=0.02). The sense of coherence improved in the CBT group after the 12-month follow-up, compared to the TAU group (mean changes in the CBT group 0.062 vs. mean changes in the TAU group -0.16; P=0.04). The association between the intervention effect and the HRQoL was totally mediated by the sense of coherence ( z=2.07, P=0.04). CONCLUSIONS: A dyadic mindfulness-based CBT programme improved HRQoL and reduced psychological distress up to 12 months post atrial fibrillation. The sense of coherence strongly mediated the HRQoL; consequently, the sense of coherence is an important determinant to consider when designing programmes for atrial fibrillation patients.


Subject(s)
Atrial Fibrillation/psychology , Atrial Fibrillation/rehabilitation , Cognitive Behavioral Therapy/methods , Mindfulness , Quality of Life/psychology , Sense of Coherence , Stress, Psychological/rehabilitation , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Surveys and Questionnaires , Sweden
5.
Eur J Cardiovasc Nurs ; 17(5): 446-455, 2018 06.
Article in English | MEDLINE | ID: mdl-29135285

ABSTRACT

BACKGROUND: Atrial fibrillation is a prevalent cardiac arrhythmia. Effective communication of risks (e.g. stroke risk) and benefits of treatment (e.g. oral anticoagulants) is crucial for the process of shared decision making. AIM: The aim of this study was to explore factors associated with confidence in decision making and satisfaction with risk communication after a follow-up visit among patients who three months earlier had visited an emergency room for atrial fibrillation related symptoms. METHODS: A cross-sectional design was used and 322 patients (34% women), mean age 66.1 years (SD 10.5 years) with atrial fibrillation were included in the south of Sweden. Clinical examinations were done post an atrial fibrillation episode. Self-rating scales for communication (Combined Outcome Measure for Risk Communication and Treatment Decision Making Effectiveness), uncertainty in illness (Mishel Uncertainty in Illness Scale-Community), mastery of daily life (Mastery Scale), depressive symptoms (Hospital Anxiety and Depression Scale) and vitality, physical health and mental health (36-item Short Form Health Survey) were used to collect data. RESULTS: Decreased vitality and mastery of daily life, as well as increased uncertainty in illness, were independently associated with lower confidence in decision making. Absence of hypertension and increased uncertainty in illness were independently associated with lower satisfaction with risk communication. Clinical atrial fibrillation variables or depressive symptoms were not associated with satisfaction with confidence in decision making or satisfaction with risk communication. The final models explained 29.1% and 29.5% of the variance in confidence in decision making and satisfaction with risk communication. CONCLUSION: Confidence in decision making is associated with decreased vitality and mastery of daily life, as well as increased uncertainty in illness, while absence of hypertension and increased uncertainty in illness are associated with risk communication satisfaction.


Subject(s)
Atrial Fibrillation/psychology , Atrial Fibrillation/therapy , Communication , Decision Making , Patient Satisfaction , Aged , Anticoagulants/therapeutic use , Atrial Fibrillation/complications , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Risk Factors , Sweden , Treatment Outcome , Uncertainty
6.
Eur J Cardiovasc Nurs ; 16(7): 614-622, 2017 Oct.
Article in English | MEDLINE | ID: mdl-28895483

ABSTRACT

BACKGROUND: Takotsubo cardiomyopathy (TSCM) has detrimental effects on both physical and psychological health of sufferers. However, little is known whether TSCM also affects sexual functioning in female patients. AIM: The aim of this study was to investigate psychological distress (depression and anxiety), health-related quality of life, and sexual functioning in women with TSCM and compare them with women with acute myocardial infarction and with healthy controls. METHODS: A three group prospective case-control design was used. Female patients with TSCM or acute myocardial infarction, as well as healthy controls (94 in each group), were recruited across eight Iranian university hospitals. Data were collected at baseline and after six and 18 months using the Hospital Anxiety and Depression Scale, the Short Form-12, the Female Sexual Function Index and the Female Sexual Distress Scale. Multilevel logistic regression was conducted. RESULTS: The TSCM group showed worst sexual functioning and the highest level of anxiety and depression at baseline ( p<0.01) compared with the two other groups. The TSCM and AMI groups showed comparable health-related quality of life at baseline, which was lower in both groups compared with the healthy controls ( p<0.01). Overall, depression, anxiety and health-related quality of life showed a significant change over time, especially in the TSCM group, with health-related quality of life decreasing, while anxiety and depression were increasing. Compared with the acute myocardial infarction and healthy control groups, the TSCM group showed a higher prevalence of sexual problems (odds ratios = 3.10 and 2.28, respectively) across time. Moreover, sexual functioning was found to be a mediator between anxiety and health-related quality of life in the TSCM group. CONCLUSION: Depression, anxiety, health-related quality of life, and sexual dysfunction tend to increase over time in female patients with TSCM; thus, healthcare providers should pay attention to these problems and provide appropriate treatment where necessary.


Subject(s)
Quality of Life/psychology , Sexual Behavior/psychology , Sexual Dysfunction, Physiological/psychology , Stress, Psychological , Takotsubo Cardiomyopathy/psychology , Adult , Aged , Aged, 80 and over , Case-Control Studies , Female , Humans , Iran , Middle Aged , Odds Ratio , Prevalence , Prospective Studies , Surveys and Questionnaires
7.
J Clin Nurs ; 26(21-22): 3699-3709, 2017 Nov.
Article in English | MEDLINE | ID: mdl-28122413

ABSTRACT

AIMS AND OBJECTIVES: To explore illness beliefs in couples where one spouse has atrial fibrillation. BACKGROUND: Beliefs are the lenses through which we view the world, guiding our behaviour and constructing our lives. Couples evolve an ecology of beliefs from their interaction whereby their actions and choices arise from their beliefs. Atrial fibrillation is a common cardiac arrhythmia that has implications for both patients and partners. A couple's illness beliefs play an important role in convalescence and illness management, and no previous studies have explored illness beliefs in couples living with atrial fibrillation. DESIGN: A qualitative hermeneutic design. METHODS: Data collection constituted in-depth interviews with nine couples (patient and partner together). Hermeneutic philosophy as described by Gadamer was used to interpret and to understand illness beliefs in couples living with atrial fibrillation. RESULTS: The findings revealed both core illness beliefs and secondary illness beliefs. From the core illness belief 'The heart is a representation of life', two secondary illness beliefs were derived: atrial fibrillation is a threat to life and atrial fibrillation can and must be explained. From the core illness belief 'Change is an integral part of life', two secondary illness beliefs were derived: atrial fibrillation is a disruption in our lives and atrial fibrillation will not interfere with our lives. Finally, from the core illness belief 'Adaptation is fundamental in life', two secondary illness beliefs were derived: atrial fibrillation entails adjustment in daily life and atrial fibrillation entails confidence in and adherence to professional care. CONCLUSION: Couples' interaction has developed mutual illness beliefs regarding atrial fibrillation that guide them in their daily lives and influence their decisions. The adoption of a family-centred perspective in cardiovascular care settings is warranted.


Subject(s)
Adaptation, Psychological , Atrial Fibrillation/psychology , Attitude to Health , Spouses/psychology , Aged , Female , Humans , Male , Middle Aged , Qualitative Research , Self Report
8.
Drugs Aging ; 34(2): 143-156, 2017 02.
Article in English | MEDLINE | ID: mdl-28004259

ABSTRACT

BACKGROUND: Patients undergoing coronary artery bypass graft (CABG) surgery are required to take a complex regimen of medications for extended periods, and they may have negative outcomes because they struggle to adhere to this regimen. Designing effective interventions to promote medication adherence in this patient group is therefore important. OBJECTIVE: The present study aimed to evaluate the long-term effects of a multifaceted intervention (psycho-education, motivational interviewing, and short message services) on medication adherence, quality of life (QoL), and mortality rates in older patients undergoing CABG surgery. METHODS: Patients aged over 65 years from 12 centers were assigned to the intervention (EXP; n = 144) or treatment-as-usual (TAU; n = 144) groups using cluster randomization at center level. Medication adherence was evaluated using the Medication Adherence Rating Scale (MARS), pharmacy refill rate, and lipid profile; QoL was evaluated using Short Form-36. Data were collected at baseline; 3, 6, and 18 months after intervention. Survival status was followed up at 18 months. Multi-level regressions and survival analyses for hazard ratio (HR) were used for analyses. RESULTS: Compared with patients who received TAU, the MARS, pharmacy refill rate, and lipid profile of patients in the EXP group improved 6 months after surgery (p < 0.01) and remained so 18 months after surgery (p < 0.01). QoL also increased among patients in the EXP group as compared with those who received TAU at 18 months post-surgery (physical component summary score p = 0.02; mental component summary score p = 0.04). HR in the EXP group compared with the TAU group was 0.38 (p = 0.04). CONCLUSION: The findings suggest that a multifaceted intervention can improve medication adherence in older patients undergoing CABG surgery, with these improvements being maintained after 18 months. QoL and survival rates increased as a function of better medication adherence. ClinicalTrials.gov NCT02109523.


Subject(s)
Coronary Artery Bypass/mortality , Medication Adherence , Motivational Interviewing/standards , Pharmaceutical Services/standards , Quality of Life , Aged , Female , Follow-Up Studies , Humans , Male , Medication Adherence/psychology , Medication Adherence/statistics & numerical data , Middle Aged , Motivational Interviewing/statistics & numerical data , Patient Education as Topic , Pharmaceutical Services/statistics & numerical data , Survival Analysis
9.
J Fam Nurs ; 22(3): 368-91, 2016 08.
Article in English | MEDLINE | ID: mdl-27385260

ABSTRACT

Individual behavior affects and is affected by other people. The aim of this study was to examine if emotional distress in patients with atrial fibrillation (AF) and their spouses was associated with their own and their partner's perceived health. Participants included 91 dyads of patients and their spouses. Emotional distress was measured using the Hospital Anxiety and Depression Scale and perceived health was measured with the Short Form 36 Health Survey. The Actor-Partner Interdependence Model was used for dyad-level analyses of associations, using structural equation modeling. Higher levels of anxiety and depression were associated with lower levels of perceived health in patients and spouses. Higher levels of depression in patients were associated with lower levels of vitality in spouses and vice versa. As AF patients and their spouses influence each other, health-care interventions should consider the dyad to address dyadic dynamics. This may benefit the health of the individual patient and of the couple.


Subject(s)
Anxiety , Atrial Fibrillation/psychology , Stress, Psychological , Aged , Depression , Female , Humans , Male , Middle Aged , Quality of Life , Spouses
10.
Biomed Res Int ; 2015: 371905, 2015.
Article in English | MEDLINE | ID: mdl-26557661

ABSTRACT

INTRODUCTION: Atrial fibrillation (AF) is a common heart rhythm disorder. Several life-style factors have been identified as risk factors for AF, but less is known about the impact of work-related stress. This study aims to evaluate the association between work-related stress, defined as job strain, and risk of AF. METHODS: Data from the Swedish WOLF study was used, comprising 10,121 working men and women. Job strain was measured by the demand-control model. Information on incident AF was derived from national registers. Cox proportional hazard regression was used to estimate hazard ratios (HR) and 95% confidence intervals (CI) for the association between job strain and AF risk. RESULTS: In total, 253 incident AF cases were identified during a total follow-up time of 132,387 person-years. Job strain was associated with AF risk in a time-dependent manner, with stronger association after 10.7 years of follow-up (HR 1.93, 95% CI 1.10-3.36 after 10.7 years, versus HR 1.11, 95% CI 0.67-1.83 before 10.7 years). The results pointed towards a dose-response relationship when taking accumulated exposure to job strain over time into account. CONCLUSION: This study provides support to the hypothesis that work-related stress defined as job strain is linked to an increased risk of AF.


Subject(s)
Atrial Fibrillation/etiology , Stress, Psychological/complications , Work/physiology , Adult , Cohort Studies , Female , Follow-Up Studies , Humans , Longitudinal Studies , Male , Proportional Hazards Models , Risk Factors , Sweden , White People/psychology , Work/psychology
11.
Curr Heart Fail Rep ; 12(6): 350-9, 2015 Dec.
Article in English | MEDLINE | ID: mdl-26497193

ABSTRACT

Treatment for chronic heart failure (CHF) has improved, and symptom burden has been identified as an important treatment goal. Because patient-centered care may ease the burden, we need to know its benefits for patients with CHF, hence this systematic literature review. We found that one benefit of person-centered care is an increase in quality of life in patients with CHF. Improvements were found in self-care, physical and mental status, health care costs, general uncertainty regarding illness and recovery, patient dignity, treatment, and systems of care. Improvements also were observed in symptom burden, self-efficacy, and quality of life. These findings indicate that person-centered care is a powerful approach to current and future health care. However, because an appropriate tool to measure person-centered care does not yet exist, it will be a challenge to determine whether the goal has been reached from a long-term and patient perspective.


Subject(s)
Heart Failure/therapy , Patient-Centered Care , Quality of Life , Chronic Disease , Humans , Self Care
12.
Open Nurs J ; 8: 48-55, 2014.
Article in English | MEDLINE | ID: mdl-25419253

ABSTRACT

BACKGROUND: The well-being of relatives of patients having chronic heart diseases (CHD) has been found to be negatively affected by the patient's condition. Studies examining relatives of patients with atrial fibrillation (AF) indicate that their well-being may be affected in a similar manner, but further research is needed. AIM: To explore and describe critical incidents in which relatives of patients experience how AF affects their well-being and what actions they take to handle these situations. DESIGN AND METHOD: An explorative, descriptive design based on the critical incident technique (CIT) was used. Interviews were conducted with 19 relatives (14 women and five men) of patients hospitalised in southern Sweden due to acute symptoms of the AF. RESULTS: The well-being of relatives was found to be affected by their worries (patient-related health), as well as the sacri-ficing of their own needs (self-related health). In handling their own well-being, these relatives adjusted to and supported the patient (practical involvement), along with adjusting their own feelings and responding to the mood of the patients (emotional involvement). CONCLUSION: The well-being of relatives of patients with AF was affected depending on the patients' well-being. In their attempt to handle their own well-being, the relatives adjusted to and supported the patients. Further research is needed in order to evaluate the effects of support to relatives and patients respectively and together.

13.
BMC Nurs ; 13: 22, 2014.
Article in English | MEDLINE | ID: mdl-25104917

ABSTRACT

BACKGROUND: This study is part of an interactive improvement intervention aimed to facilitate empowerment-based chronic kidney care using data from persons with CKD and their family members. There are many challenges to implementing empowerment-based care, and it is therefore necessary to study the implementation process. The aim of this study was to generate knowledge regarding the implementation process of an improvement intervention of empowerment for those who require chronic kidney care. METHODS: A prospective single qualitative case study was chosen to follow the process of the implementation over a two year period. Twelve health care professionals were selected based on their various role(s) in the implementation of the improvement intervention. Data collection comprised of digitally recorded project group meetings, field notes of the meetings, and individual interviews before and after the improvement project. These multiple data were analyzed using qualitative latent content analysis. RESULTS: TWO FACILITATOR THEMES EMERGED: Moving spirit and Encouragement. The healthcare professionals described a willingness to individualize care and to increase their professional development in the field of chronic kidney care. The implementation process was strongly reinforced by both the researchers working interactively with the staff, and the project group. One theme emerged as a barrier: the Limitations of the organization. Changes in the organization hindered the implementation of the intervention throughout the study period, and the lack of interplay in the organization most impeded the process. CONCLUSIONS: The findings indicated the complexity of maintaining a sustainable and lasting implementation over a period of two years. Implementing empowerment-based care was found to be facilitated by the cooperation between all involved healthcare professionals. Furthermore, long-term improvement interventions need strong encouragement from all levels of the organization to maintain engagement, even when it is initiated by the health care professionals themselves.

14.
J Cardiovasc Nurs ; 29(3): E1-10, 2014.
Article in English | MEDLINE | ID: mdl-24108265

ABSTRACT

BACKGROUND: Living with a chronic disease such as atrial fibrillation (AF) not only affects the patient but also has implications for the partner. There is a lack of research on couples living with AF and, in particular, how they experience and deal with the disease. OBJECTIVE: The aim of this study was to explore couples' main concerns when one of the spouses is afflicted with AF and how they continually handle it within their partner relationship. METHODS: Classical grounded theory was used throughout the study for data collection and analysis. Interviews were conducted with 12 couples (patient and partner together). There were follow-up interviews with 2 patients and 2 partners separately. RESULTS: Couples living with AF experience uncertainty as a common main concern. This uncertainty was fundamentally rooted in not knowing the cause of AF and apprehension about AF episodes. Couples managed this uncertainty by either explicitly sharing concerns related to AF or through implicitly sharing their concerns. Explicit sharing incorporated strategies of mutual collaboration and finding resemblance, whereas implicit sharing incorporated strategies of keeping distance and tacit understanding. Time since diagnosis and time being symptom-free were factors influencing afflicted couples' shifting between implicit and explicit sharing. CONCLUSIONS: Atrial fibrillation affects the partner relationship by bringing uncertainty into couples' daily lives. Even though this study shares similarities with previous studies on couples living with chronic disease, it contributes to the existing knowledge by presenting a set of strategies used by couples in managing uncertainty when living with AF.


Subject(s)
Atrial Fibrillation , Family Health , Spouses , Uncertainty , Atrial Fibrillation/psychology , Chronic Disease , Female , Grounded Theory , Humans , Male , Middle Aged , Qualitative Research , Spouses/psychology
15.
Eur J Cardiovasc Nurs ; 12(2): 132-9, 2013 Apr.
Article in English | MEDLINE | ID: mdl-22936792

ABSTRACT

BACKGROUND: Atrial fibrillation (AF) influences the lives of patients in the form of worsened well-being. Patients' own experience of and how to handle AF is rarely investigated. These are important aspects for healthcare services to understand in order to support the well-being of patients with AF. AIM: To explore and describe critical incidents in which patients experience how AF affects their well-being and what actions they take to prevent and handle it. DESIGN AND METHODS: An explorative, descriptive design based on the critical incident technique (CIT) was used. Interviews were conducted with 25 patients (16 men and 9 women) with AF in a healthcare area in southern Sweden. RESULTS: Patients experienced discomfort and limitations in daily life. The actions they took were self-care related actions and healthcare related actions. CONCLUSION: AF affects well-being when it is uncomfortable and leads to pronounced limitations in daily life with the patients trying to maintain or restore well-being through adapting and developing strategies for self-care. Patients base the handling of AF on their personal experience.


Subject(s)
Atrial Fibrillation/prevention & control , Activities of Daily Living , Adult , Aged , Aged, 80 and over , Atrial Fibrillation/psychology , Female , Humans , Male , Middle Aged , Task Performance and Analysis
16.
Nephrol Nurs J ; 39(4): 285-93; quiz 294, 2012.
Article in English | MEDLINE | ID: mdl-23061113

ABSTRACT

Empowering interventions can improve person-centered care. A pre- and post-evaluation using interactive research involving two years of empowering interventions was designed to improve quality of care in outpatients with chronic kidney disease who were pre-dialysis. The results showed significantly increased empowerment in the intervention group. Interactive research facilitated the implementation of the empowerment intervention, which may increase sustainability over time.


Subject(s)
Nurse-Patient Relations , Patient-Centered Care , Power, Psychological , Quality Improvement , Renal Insufficiency, Chronic/nursing , Activities of Daily Living , Adaptation, Psychological , Aged , Case-Control Studies , Female , Humans , Internal-External Control , Longitudinal Studies , Male , Renal Insufficiency, Chronic/psychology , Socioeconomic Factors , Sweden
17.
Eur J Cardiovasc Nurs ; 11(3): 276-83, 2012 Sep.
Article in English | MEDLINE | ID: mdl-22514142

ABSTRACT

BACKGROUND: After being through a myocardial infarction (MI), a severe recovery period ensues for the patient. Long-term follow-ups are helpful, but what this should include differs between patients. Today there is no established approach to identify needs for support after an MI. AIM: The aim was to describe sense of coherence (SOC) over time in relation to sex, as well as further SOC in relation to quality of life (QoL) and treatment satisfaction in patients with an MI. METHODS: This study had an observational and longitudinal design and followed 18 women and 60 men with an acute MI for 49-67 months after the onset of MI. Instruments used were the SOC-13 and the Seattle angina questionnaire. RESULTS: Women scored lower SOC than men. A main effect of time was shown for comprehensibility which increased significantly from baseline to the long-term follow-up. Women increased from a lower level to an equal level as men at the long-term follow-up. The total SOC was significantly associated with QoL and treatment satisfaction. CONCLUSION: High comprehensibility and high SOC give the patient a better basis to handle life after MI. Thus, healthcare professionals should keep in mind that SOC and especially comprehensibility have meaning for the patient's ability to handle her or his recovery. Healthcare professionals need to together with the patient identify and work with lifestyle factors that contribute to increased comprehensibility about the disease, which gives the patient the foundation to preserve and promote her or his health both in the short and long term.


Subject(s)
Comprehension , Convalescence/psychology , Myocardial Infarction/psychology , Sense of Coherence , Adult , Aged , Analysis of Variance , Angina Pectoris/complications , Female , Follow-Up Studies , Humans , Linear Models , Male , Middle Aged , Myocardial Infarction/complications , Myocardial Infarction/rehabilitation , Quality of Life , Risk Factors , Sex Factors , Surveys and Questionnaires
18.
J Clin Nurs ; 21(5-6): 897-904, 2012 Mar.
Article in English | MEDLINE | ID: mdl-22081948

ABSTRACT

AIM AND OBJECTIVE: The aim was to explore empowerment within the patient-staff encounter as experienced by out-patients with chronic kidney disease. BACKGROUND: Empowerment has an important role to play in the patient-staff relationship in the case of patients with a chronic disease. When it comes to patients with chronic kidney disease, there has been little research on empowerment, for which reason interviewing such patients about their experiences of empowerment will provide useful knowledge within the context of out-patient care. DESIGN: A qualitative interview study was chosen to gain an understanding of empowerment from the patient perspective. METHOD: The study was carried out at an out-patient clinic in Sweden and involved 20 patients with chronic kidney disease. The interviews were subjected to latent content analysis. RESULTS: Five of the seven sub-themes emerging from the analysis represented empowerment: Accessibility according to need, Confirming encounter, Trust in the competence of the healthcare staff, Participation in decision-making, Learning enables better self-management. The other two represented non-empowerment: Meeting with nonchalance, Lack of dialogue and influence. From the seven sub-themes, one comprehensive theme was generated: Creation of trust and learning through encounter. CONCLUSION: The main finding regarding the central role of the creation of trust and learning through the patient-staff encounter underlines the importance of understanding empowerment from the patient's perspective. RELEVANCE TO CLINICAL PRACTICE: Nursing and other healthcare staff need knowledge and understanding of the meaning of empowerment from the patients' perspective to meet their needs in out-patient care.


Subject(s)
Kidney Failure, Chronic/therapy , Patient Care Team/organization & administration , Power, Psychological , Professional-Patient Relations , Adult , Aged , Aged, 80 and over , Ambulatory Care/standards , Ambulatory Care/trends , Ambulatory Care Facilities , Attitude of Health Personnel , Female , Humans , Interviews as Topic , Kidney Failure, Chronic/diagnosis , Kidney Failure, Chronic/nursing , Long-Term Care , Male , Middle Aged , Nurse's Role , Outcome Assessment, Health Care , Patient Satisfaction , Qualitative Research , Risk Assessment , Sweden , Trust/psychology
19.
Eur J Cardiovasc Nurs ; 11(3): 331-8, 2012 Sep.
Article in English | MEDLINE | ID: mdl-21683655

ABSTRACT

BACKGROUND: Sense of coherence is a theoretical construct which is used to measure the degree to which a person finds the world comprehensible, manageable and meaningful. AIM: The main aim of the present study was to assess the hypothesis of Antonovsky that meaningfulness is the most crucial component in sense of coherence. The second aim was to explore the importance of its components and factors at baseline on sense of coherence changes and if the findings can be used in cardiac rehabilitation. METHODS: One hundred patients, who suffered a primary myocardial infarction were followed during two years. The instruments used were; sense of coherence questionnaire-13, 12-item short-form health survey questionnaire, the Seattle angina questionnaire and health curve. RESULTS: Thirty-nine percent of the participants fulfilled Antonovsky's hypothesis. Comprehensibility and the baseline factors of smoking, alcohol use, marital status and disease perception proved to be of importance for sense of coherence changes over time. CONCLUSION: The hypothesis that meaningfulness is the most crucial component in sense of coherence is rejected for patients with primary myocardial infarction. Comprehensibility is more important than meaningfulness for changes in sense of coherence. Nurses therefore have an important task to increase comprehensibility and sense of coherence by providing information and knowledge about myocardial infarction and lifestyle changes at an early stage. The information should be given in an individualized and easily understandable way from a salutogenic perspective, which means to identify and work with factors that can contribute to preserving and promoting health.


Subject(s)
Comprehension , Health Status , Myocardial Infarction/psychology , Sense of Coherence , Adult , Aged , Female , Humans , Linear Models , Longitudinal Studies , Male , Middle Aged , Myocardial Infarction/rehabilitation , Psychological Theory
20.
Scand J Caring Sci ; 26(1): 203-8, 2012 Mar.
Article in English | MEDLINE | ID: mdl-21777263

ABSTRACT

The patients' sexual life after a myocardial infarction is important for his/her quality of life. In spite of this, many patients are in doubt regarding their sex life after a myocardial infarction (MI) and the sexual information received, and counselling from health care providers has been seen to be insufficient. The purpose of this study was to evaluate the psychometric properties of 'The 25-item Sex after MI Knowledge Test' in a Swedish context. A convenience sample was recruited. The scale was translated into Swedish and completed by 79 former patients from The Heart and Lung Patients' National Association on two occasions, with an interval of 2 weeks. The scale was tested for face and content validity, internal consistency and test-retest reliability. The result in this study indicates that the instrument has good face and content validity and displayed a moderate internal consistency (alpha 0.61). The instrument showed some level of instability in test-retest reliability with 60% of the items presenting moderate or strong agreement between the test and retest. Further studies that use this instrument in larger and more diverse samples are thus needed.


Subject(s)
Health Knowledge, Attitudes, Practice , Myocardial Infarction/rehabilitation , Sexuality , Surveys and Questionnaires , Aged , Female , Humans , Male , Psychometrics , Reproducibility of Results , Sweden
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