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1.
Stud Health Technol Inform ; 309: 8-12, 2023 Oct 20.
Article in English | MEDLINE | ID: mdl-37869796

ABSTRACT

Patient involvement in research has been highlighted as a major requirement for the development of products and services that cover actual patients' needs. However, there has not been an agreement on a commonly used standard for patient involvement in research, at least not in the EU, partially because of lack of common terminology and implementation methodology. Within the standardization activities of "LifeChamps: A Collective Intelligent Platform To Support Cancer Champions", this qualitative study was developed to discover patients' views for their engagement in research. This is an ongoing qualitative study of semi-structured interviews of cancer survivors aged over 65 years of age, exiting the feasibility studies of the LifeChamps project in Stockholm and Thessaloniki. Findings from the thematic analysis of this study are expected to indicate requirements for involvement of patients in research studies as participants.


Subject(s)
Cancer Survivors , Neoplasms , Humans , Aged , Qualitative Research , Patient Participation/methods , Patients
2.
Stud Health Technol Inform ; 251: 309-312, 2018.
Article in English | MEDLINE | ID: mdl-29968665

ABSTRACT

Support of autonomy, at the onset and while Alzheimer's Disease progresses, is of utmost importance for both older adults and their caregivers. AD-Autonomy project aims at co-creating an innovative training platform with and for elderly people and their caregivers. Main aim of the project is to increase the competencies of older adults and their caregivers to cope with the disease effects, by leveraging existing ICT tools and applications, while transferring their applicability in real life contexts and activities. Initial anecdotal feedback is collected through a co-creation session, where all above themes were discussed and analyzed between seniors, family caregivers and professionals.


Subject(s)
Alzheimer Disease/rehabilitation , Personal Autonomy , Self-Help Devices , Vocational Education , Aged , Alzheimer Disease/nursing , Caregivers , Humans
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