ABSTRACT
This study examines the intersection of early intervention and the role of women as primary caregivers for children with disabilities. Studies for this analysis were collected through a meticulous search in the Web of Science (WoS) and Scopus databases. This process ensured the inclusion of a wide range of relevant literature from the field of study. A rigorous procedure of identification, selection, eligibility assessment, and inclusion of potentially relevant studies in this research area was conducted. We analyzed 130 articles, identifying 8 key research areas. Significant factors include the impact on parental interactions, communication skills, the role of women in developmental disabilities, mothers' understanding of their children's disabilities, emotional overload, parental stress, and psychological aspects. These factors significantly affect the well-being and development of mothers and children with disabilities. The study also considers the impact on women's careers. While research on psychological aspects and maternal overload is well-developed, establishing early intervention systems to optimize resources for proper child development is a challenge. The findings have high social value, paving the way for improving the quality of early childhood services.
ABSTRACT
(1) Background: Because life events when there is a family member with a disability can affect the overall family wellbeing, contributing to enhance family quality of life (FQoL) in the field of early childhood intervention has become a priority. However, it is a distal outcome that needs other short-term outcomes to be addressed, some of them under the potential impact of support services. This study examines the relationships between caregiver burden, family confidence, and FQoL, as well as the influence of child and family variables. (2) Method: A total of 58 families with children in early intervention from four Spanish communities participated. Hierarchical regression was conducted to assess the relevance of each predictor. Also, a mediation was performed to investigate the mediating role of family confidence. (3) Results: The family income impacted FQoL scores, and when burden and confidence were added, it was no longer relevant. Mothers with higher levels of confidence predicted a higher FQoL. Finally, we found a complete mediation of family confidence in the relations between severity and caregiver burden on FQoL. (4) Conclusions: Caregiver burden and family confidence affect FQoL. Building families' confidence contributes to attenuating the impact of burden on FQoL.
ABSTRACT
ANTECEDENTS: In recent years, telepractice has become widespread as an intervention strategy in Early Childhood Intervention (ECI) services. However, studies supporting its use in this field remain scarce. Because reliable instruments are needed to evaluate the perceived quality, satisfaction and the acceptability of telepractice from the families' perspective, the present study aims to report the psychometric properties of an ECI-specific instrument that includes a variety of social validity indicators that are also important and consistent with a family-centered approach. METHOD: This study, with a sample of 738 families, introduces an instrument aimed at evaluating the social validity of telepractice. The scale includes the main indicators of social validity: Usability, Effectiveness; Feasibility, Utility, intervention with natural caregivers, and Future Intentions. The study aims to report its psychometric properties through a split-sample method, conducting both exploratory and confirmatory factor analysis with randomly assigned sub-samples. RESULTS: We found that all seven items fit into one factor measuring social validity of telepractice, with acceptable internal consistency and sensitive enough to capture differences between the type of service delivery families received. CONCLUSIONS: In addition, the proposed instrument provides relevant information for professionals to improve the quality of service-delivery in ECI.
Subject(s)
Caregivers , Personal Satisfaction , Humans , Child, Preschool , Psychometrics , Reproducibility of Results , Surveys and QuestionnairesABSTRACT
Implementing evidence-based practices in early intervention has generated new research interest in the need for effective early childhood systems. This study used a bibliometric analysis to discern the importance and relevance of the field. The analysis highlights that the main goals of the future direction of the research field need to be better defined. First, articles published in the Web of Science database between 2012 and 2022 were reviewed, and then word and author combinations were analyzed. Finally, articles were collected in different groups for bibliographic linking. Five key points were identified as the most important practices recommended by the Department of Early Childhood or Professional Development. It should be noted that the main difficulty encountered in this field arises from the novelty of our research topic, i.e., there is no research on constructing systems for early intervention. However, it is worth highlighting the articles that are relevant to the field of study and our success with integrating them in order to demonstrate the importance of serving children with disabilities and their families. In conclusion, the establishment of a system built on evidence-based practices is underdeveloped but shows promise for the future of early intervention systems.
ABSTRACT
The aim of this study was to find out about attitudes toward inclusion and benefits perceived by families with children enrolled in schools attended by students with ASD at different educational stages (from kindergarten to high school). 323 families of classmates of students with ASD from different educational stages of 16 mainstream schools participated. The analysis of the attitudes, perceived benefits, relationship with the teacher, and relationship with the school was carried out through questionnaires. The results show positive attitudes toward the inclusive education of students with ASD in all families, but especially among families of children with SEN. All the families identified the benefit of inclusion. Attitudes are related to collaboration with the school and satisfaction with teachers.
Subject(s)
Autism Spectrum Disorder , Child , Humans , Schools , Students , Mainstreaming, Education , AttitudeABSTRACT
Antecedents: In recent years, telepractice has become widespread as an intervention strategy in Early Childhood Intervention (ECI) services. However, studies supporting its use in this field remain scarce. Because reliable instruments are needed to evaluate the perceived quality, satisfaction and the acceptability of telepractice from the families perspective, the present study aims to report the psychometric properties of an ECI-specific instrument that includes a variety of social validity indicators that are also important and consistent with a family-centered approach. Method: This study, with a sample of 738 families, introduces an instrument aimed at evaluating the social validity of telepractice. The scale includes the main indicators of social validity: Usability, Effectiveness; Feasibility, Utility, intervention with natural caregivers, and Future Intentions. The study aims to report its psychometric properties through a split-sample method, conducting both exploratory and confirmatory factor analysis with randomly assigned sub-samples. Results: We found that all seven items fit into one factor measuring social validity of telepractice, with acceptable internal consistency and sensitive enough to capture differences between the type of service delivery families received. Conclusions: In addition, the proposed instrument provides relevant information for professionals to improve the quality of service-delivery in ECI.(AU)
Antecedentes: En los últimos años, la telepráctica se ha generalizado como estrategia de intervención en los servicios de Atención Temprana. Sin embargo, los estudios que avalan su uso en este ámbito siguen siendo escasos. Además, las investigaciones muestran que es necesario disponer de instrumentos fiables para evaluar la calidad percibida, la satisfacción y la aceptabilidad de la telepráctica, tanto desde la perspectiva de los profesionales como de las familias. Método: Este estudio, realizado con una muestra de 738 familias, introduce un instrumento destinado a evaluar la validez social de la telepráctica y analiza sus propiedades psicométricas. La escala integra los principales indicadores de validez social: Usabilidad, Eficacia; Viabilidad, Utilidad, intervención con cuidadores naturales e Intenciones de futuro. Resultados: Los resultados de este estudio mostraron la fortaleza de este instrumento reportado por los padres para medir la validez social de la telepráctica en la Intervención Temprana. Conclusiones: Además, el instrumento propuesto proporciona información relevante para los profesionales que mejoran la calidad de la prestación de servicios en Atención Temprana.(AU)
Subject(s)
Humans , Male , Female , Family , Parents , Parenting , Cognitive Remediation , Psychology, Child , Social Validity, Research , Factor Analysis, Statistical , PsychologyABSTRACT
Despite the importance of empowerment and the support network of families who receive early intervention (EI) with a family-centered approach, there is little evidence of a relationship between these two variables and family characteristics that might influence this relationship. This study analyzes the correlations between the perception of empowerment of the families, the family supports used, and the socio-demographic factors of both the child and the family. The study consisted of 44 families who received family-centered EI services. Our results show that families mainly used formal supports, followed by informal supports, and, to a lesser extent, intermediate supports. This indicates that families with children who receive EI preferably use the support network based on EI programs, schools, and professionals. Along with this formal support network, primary caregivers rely on their partners, parents, or friends-that is, the informal support network. Family empowerment was not correlated with age, diagnosis, or the reason for referral to EI; on the other hand, it was related to the supports where the families with the lowest empowerment scores were those who made greater use of formal support over informal support. Early intervention professionals must know, from the first encounter, the type and level of support of each family to enhance the development of the child and promote empowerment in families.
Subject(s)
Early Intervention, Educational , Family , Child , Family Characteristics , Friends , Humans , Referral and ConsultationABSTRACT
The field of telepractice is generating increasing interest in recent years. In recent years, early childhood services have used resources such as support for interventions in families with children with autism spectrum disorder. Due to this situation, the social validity of such resources has emerged in this sector, receiving individual attention from academics and practitioners. However, a further deepening of such analyses is needed. Therefore, the main objective of this work is to analyze papers published in the Web of Science on social validity and telepractice in autism spectrum disorders. Bibliometric analysis allows us to discover the current state of a research field, to identify the main authors, articles, and topics, and to propose future lines of research to develop it further. Articles published between 2000 and 2021 were analyzed quantitatively, and by co-occurrence of words and authors. Subsequently, through bibliographic linking, the articles were grouped into different clusters. Five central themes were found, with social skills and the effectiveness of intervention programs being the most developed areas of research. Furthermore, studies focusing on evidence-based practices are necessary for the development of this research field. Thus, the analysis of social validity in the field of telepractice in children with autism spectrum disorders is a developing field within the early childhood sector.
Subject(s)
Autism Spectrum Disorder , Child , Humans , Child, Preschool , Autism Spectrum Disorder/therapy , Evidence-Based Practice , ForecastingABSTRACT
En atención temprana la evidencia científica pone de manifiesto la eficacia y eficiencia de las prácticas centradas en la familia y en entornos naturales. Las intervenciones con niños que padecen una discapacidad o se encuentran en una situación de riesgo deben permitir la participación de las familias y/o los profesores. Las prácticas que generan competencias en los cuidadores del niño son las que favorecen el desarrollo en sus rutinas y contextos habituales. En este trabajo presentamos el análisis de un caso que ejemplifica cómo los aspectos teóricos pueden trasladarse a la esfera de la práctica diaria. Se muestran los aspectos clave de la intervención con prácticas centradas en la familia y en entornos naturales siguiendo el modelo basado en rutinas. Se describen el plan individual de apoyo a la familia y los apoyos educativos de una niña desde su evaluación inicial, descripción de objetivos funcionales, plan de intervención y seguimiento. Como resultado de la intervención, se observa una mejora en el desarrollo funcional de la pequeña y tanto la familia como la profesora se sienten más competentes, empoderados y con mejor calidad de vida familiar. Queda reflejada la importancia del trabajo transdisciplinar, la colaboración entre diferentes agentes sociales y el indiscutible papel de la familia durante todo el proceso (AU)
Scientific evidence demonstrates in Early Intervention the effectiveness and efficiency of family-centered practices and natural environments. Interventions with children who have a disability or are at a risk should allow participation of families and/or teachers. The practices must generate skills in the child's caregivers to promote the development of their usual routines and contexts. This paper presents the analysis of a case that exemplifies how the theoretical aspects can be transferred to the sphere of daily practice. We use de Routines Based Model to shown the intervention. The Individual Family Support Plan describes the service: Initial assessment, functional objectives, intervention plan and monitoring. As a result of the intervention, we can see the improvement in the functional development and we observe the family and the teacher feel more competent, empowered and better family quality of family life. The importance of transdisciplinary work, collaboration between different social agents and the undisputed role of the family throughout the process is reflected (AU)
Subject(s)
Humans , Female , Child , Early Medical Intervention/methods , Early Medical Intervention , Family/psychology , Speech, Language and Hearing Sciences/methods , Speech-Language Pathology/methods , Speech-Language Pathology/trends , Chromosomes, Human, Pair 5/genetics , Amniocentesis/psychology , Language DevelopmentABSTRACT
El presente estudio pretende analizar el impacto que variables de gestión (Calidad del Servicio, Valor Percibido y Satisfacción General), así como variables de la propia discapacidad (origen y tipo de discapacidad) influyen sobre las Intenciones Futuras de volver al evento de los deportistas con discapacidad. Se trata de un estudio particularmente interesante teniendo en cuenta la escasa literatura existente, así como por incluir variables propias de la discapacidad en el análisis y por combinar modelos de regresión tradicionales y un modelo fuzzy-set qualitative comparative analysis (fsQCA). La muestra del presente estudio consistió en 231 deportistas con discapacidad que participaron en 14 competiciones deportivas durante las temporadas 2013-2014 y 2014-2015. El modelo de regresión jerárquica sugiere que las variables de gestión parecen más relevantes que las relacionadas con la propia discapacidad. Por su parte, en base a los resultados de los modelos fsQCA, la única variable necesaria para la intención de volver al evento es el no tener una discapacidad visual, mientras que la condición suficiente más explicativa resulta de la combinación de tener la discapacidad de nacimiento, alto Valor percibido, alta Satisfacción y alta Calidad Servicio
This study aims to analyze the impact of management variables (Service Quality, Perceived Value and General Satisfaction) and variables of disability itself (origin and type of disability) on the future intentions to attend again of disabled athletes. This is a particularly interesting study taking into account the limited existing literature, the inclusion of disability variables in the analysis and due to the combination of traditional regression models and fuzzy-set qualitative comparative analysis models (fsQCA). The sample of this study consisted of 231 disabled athletes participating in 14 sports competitions during 2013-2014 and 2014-2015 seasons. The hierarchical regression model suggests that management variables seem more relevant than those related to the disability itself. Meanwhile, based on the results of the fsQCA model, the only necessary condition for future intentions to return to the event is not having a visual impairment, while the most explanatory sufficient condition results from the combination of having a disability from birth, high perceived value, high general satisfaction and high service quality
