ABSTRACT
Palliative care is essential in the pediatric intensive care unit (PICU). Because of the mortality rates and the presence of life-threatening conditions in children admitted to the PICU, pediatricians must be prepared to provide palliative care independently of cure-directed therapies. The present article reviews certain issues, including the decision-making process in the PICU, psychosocial needs and susceptibility to burnout among PICU staff, and the emotions and attitudes of the staff when a child dies. We provide some guidelines on how to act when a child dies, how to meet with parents after the child's death and how to follow-up parental bereavement. Strategies that can help PICU pediatricians to cope with the numerous loses they experience are suggested.
Subject(s)
Attitude of Health Personnel , Attitude to Death , Intensive Care Units, Pediatric , Palliative Care/methods , Physician-Patient Relations , Physicians/psychology , Autopsy , Child , Guidelines as Topic , Health Services Needs and Demand , Humans , Withholding TreatmentABSTRACT
The present article reviews aspects unique to pediatric palliative care: the attitudes of medical staff toward pediatric death and life-threatening conditions, distinct patterns of pediatric deaths, the causes of suffering in children with life-threatening conditions and their families, and the features that make palliative care a challenge for children, families, medical staff and society. Concepts of pediatric palliative care and various approaches are described. In addition, Universal Principles of Pediatric Palliative Care are presented. Special attention is paid to approaches that start palliative care at diagnosis of a life-threatening conditions, do not require a short-term life prognosis and do not exclude curative or life-prolonging therapies since these approaches can benefit both children who survive life-threatening conditions and those who die, as well as their families. The need for certain changes through education and research is proposed to improve the quality of life of children and families who currently suffer, satisfaction and cohesion among medical staff, and healthcare quality.
Subject(s)
Delivery of Health Care/methods , Palliative Care/methods , Terminal Care/methods , Attitude to Death , Child , Delivery of Health Care/ethics , Delivery of Health Care/standards , Family , Hospitals, Pediatric/ethics , Hospitals, Pediatric/standards , Humans , Palliative Care/ethics , Palliative Care/standards , Pediatrics/ethics , Pediatrics/methods , Pediatrics/standards , Professional-Family Relations , Quality of Life , Terminal Care/ethics , Terminal Care/standardsABSTRACT
Children with chronic diseases have to undergo numerous and repeated painful medical procedures. Psychological interventions have produced good results in the treatment of this kind of pediatric pain and, although they have not been routinely incorporated into pediatric practice, they provide an effective complement to physical and pharmacological therapies. The present article reviews research into cognitive-behavioral treatment of the distress, pain and anxiety associated with medical procedures in pediatric oncology. We present the possible benefits of these interventions and suggest uses for cognitive-behavioral techniques when performing painful medical procedures.
Subject(s)
Adaptation, Psychological , Behavior Therapy , Neoplasms/psychology , Pain Management , Pain/psychology , Child , Humans , Neoplasms/diagnosis , Neoplasms/therapy , Pain/etiologyABSTRACT
BACKGROUND: Psychological treatments for procedural distress have shown good results in pediatric oncology and several institutions recommend their implementation to reduce the procedural distress, anxiety and pain associated with painful medical procedures. OBJECTIVES: To assess the results of a psychological intervention in the first child participating in the study "Prospective Analysis of a Psychological Program for Coping with Medical Procedures in Pediatric Oncology". METHODS: We performed a single-case study, using pain and anxiety self-reports by the child and an observational scale in a psychological intervention with the following components: Breathing exercises, imagery, reinforcement, and behavioral rehearsal. RESULTS: The psychological intervention decreased procedural distress, anticipatory anxiety and pain. The 3-year-old child was able to give pain and anxiety self-reports using appropiate tools. CONCLUSIONS: The potential benefits of this kind of intervention are discussed, and some recommendations for future research are proposed.
Subject(s)
Adaptation, Psychological , Behavior Therapy , Neoplasms/psychology , Pain Management , Pain/psychology , Anxiety , Child, Preschool , Humans , Male , Neoplasms/diagnosis , Neoplasms/therapy , Pain/etiology , Pain MeasurementABSTRACT
Los niños con enfermedades crónicas tienen que padecer numerosos y repetidos procedimientos médicos dolorosos. Las intervenciones psicológicas han conseguido buenos resultados en el tratamiento de este tipo de dolor pediátrico y resultan ser un buen complemento para las terapias físicas y farmacológicas, aunque este tipo de intervenciones no se han aplicado de manera sistemática en la práctica pediátrica. En este artículo se revisan algunos trabajos de investigación sobre el tratamiento cognitivoconductual del estrés, del dolor y de la ansiedad asociados a procedimientos médicos en la población oncológica pediátrica. Se exponen los posibles beneficios derivados de este tipo de intervenciones, además de sugerencias para la realización de procedimientos médicos dolorosos utilizando técnicas cognitivo-conductuales (AU)
Subject(s)
Child , Humans , Behavior Therapy , Adaptation, Psychological , Pain , NeoplasmsABSTRACT
In this article we review the instruments most commonly used in clinical practice and research to assess the pain and anxiety experienced by children with cancer undergoing painful medical procedures. Issues such as the prevalence of pain in childhood cancer, the psychologic impact of medical procedures in children, and the efforts some institutions are making to implement pediatric pain assessment programs are also reviewed, bearing in mind that pain is a subjective and multidimensional experience. Behavioral measures, self-reports, multidimensional assessment tools and physiological measures are included, emphasizing the importance of self-reports, which are considered the gold standard in pediatric pain assessment. This literature review indicates the need for research and for the education of health care professionals in pediatric pain assessment. Finally, recommendations for pediatric pain assessment are suggested.
