Social Vulnerability and Mental Health Inequalities in the "Syndemic": Call for Action.

Covid-19 is referred to as a "syndemic," i.e., the consequences of the disease are exacerbated by social and economic disparity. Poor housing, unstable work conditions, caste, class, race and gender based inequities and low incomes have a profound effect on mental health and wellbeing. Such disparities are increasing between, among and within countries and are exacerbated by human rights violations, in institution and in society, stigma and discrimination. Social capital can mediate health outcomes, through trust and reciprocity, political participation, and by mental health service systems, which can be coercive or more open to demand of emancipation and freedom. Societal inequalities affect especially vulnerable groups, and Covid itself had a wider impact on the most socially vulnerable and marginalized populations, suffering for structural discrimination and violence. There are complex relations among these social processes and domains, and mental health inequalities and disparity. Participation and engagement of citizens and community organizations is now required in order to achieve a radical transformation in mental health. A Local and Global Action Plan has been launched recently, by a coalition of organizations representing people with lived experience of mental health care; who use services; family members, mental health professionals, policy makers and researchers, such as the International Mental Health Collaborating Network, the World Federation for Mental Health, the World Association for Psychosocial Rehabilitation, the Global Alliance of Mental Illness Advocacy Networks (GAMIAN), The Mental Health Resource Hub in Chennai, India, The Movement for Global Mental Health (MGMH) and others. The Action Plan addresses the need for fundamental change by focusing on social determinants and achieving equity in mental health care. Equally the need for the politics of wellbeing has to be embedded in a system that places mental health within development and social justice paradigm, enhancing core human capabilities and contrasting discriminatory practices. These targets are for people and organizations to adopt locally within their communities and services, and also to indicate possible innovative solutions to Politics. This global endeavor may represent an alternative to the global mental discourse inspired by the traditional biomedical model.

La pena y la cura. Servicios de salud mental en Italia después del cierre de los hospitales psiquiátricos judiciales / Penal conviction and treatment. Mental health services in Italy after the closure of forensic hospitals

El artículo describe el proceso de reforma que tuvo lugar en Italia con el cierre de los seis hospitales psiquiátricos judiciales del país y su sustitución por pequeñas unidades forenses. El uso de los hospitales judiciales se regía por la exclusión de los juicios de las personas con enfermedades mentales graves que dificultaban el ejercicio de su capacidad, las cuales, si eran declaradas "socialmente peligrosas", eran sometidas a un sistema de "medidas de seguridad". Este cambio significativo, que se llevó a cabo a través de los Ministerios de Salud y de Justicia, y de las Regiones, ocurrió en Italia entre 2011 y 2017, y se entiende como el paso final del proceso de reforma en la atención de la salud mental que comenzó en 1978 y culminó con el cierre completo de todos los hospitales psiquiátricos en 1999.Las nuevas pequeñas unidades forenses/judiciales, con un número limitado de camas para todo el país, se denominan REMS (Residencias para la Ejecución de Medidas de Seguridad). Están gestionadas por las Regiones y se basan en los principios de orientación terapéutica y de recuperación, respuesta transitoria y territorial, y responsabilidad de los servicios de salud mental de la comunidad para facilitar el alta. Las formas de aplicación de la ley en lo que respecta a las características de las REMS fueron diversas, por ejemplo, gestión pública o privada, número de camas, política de puertas abiertas, inclusión en los departamentos de salud mental con fines de prevención y provisión de alternativas por parte de los servicios comunitarios de salud mental. Experiencias significativas, como la de Trieste y la región de Friuli Venezia Giulia, interpretan esta reforma en función del papel que desempeñan los servicios públicos de salud mental en la prevención de delitos mediante una respuesta rápida y eficaz a las crisis, estableciendo vías de atención personalizadas y apoyando a sus pacientes dentro de la prisión y en el sistema judicial. (AU)

The paper describes the process of reform that took place in Italy with the closing of all of the forensic psychiatric hospitals in the country and their replacement with a network of small forensic units. The use of forensic hospitals was ruled by the exclusion from trials of persons with a severe mental illness that hampered their capacity, but, if declared ‘socially dangerous', were submitted to a system of ‘security measures'. This significant change in Italy occurred between 2011 and 2017, and it was meant as the final step of the reform process in mental heathcare that started in 1978, with the complete closure of all psychiatric hospitals in 1999.The new small forensic units, with an overall limited number of beds for the whole country, are called REMS (Residences for the Execution of Security Measures). They are managed by Regions and are based on the principles of therapeutic and recovery orientation, transitory and territorial response, and responsibility of community mental health services for facilitating discharge. The ways of implementing the law regarding REMS' features were diverse, e.g., public or private management, number of beds, open door policy, or inclusion in mental health departments aiming at the prevention and provision of alternatives on part of community mental health services. Some significant experiences were those of Trieste and the region of Friuli Venezia Giulia, which set up personalized pathways of care, supporting their patients within prison and in the judicial system. (AU)

Dual diagnosis: A systematic review of the organization of community health services.

BACKGROUND: Dual diagnosis (DD), as the co-occurrence of a substance use disorder and a psychiatric disorder, is underestimated, under-diagnosed and often poorly treated throughout the world, although it is highly prevalent in people suffering from a mental disorder. AIMS AND METHODS: This review analyzed 48 studies from a PubMed and PsycINFO databases search, in order to verify the state of the art regarding the organization of community health services for DD treatment. RESULTS: Four macro-themes have been identified: service organization, critical issues, assessment tools and evidence-based interventions. An effective service recognizes the complexity of DD, promotes a common staff culture, and tailors the organization to local needs. The main critical issues in its implementation include the lack of specific staff training, the poor management of resources and the need for greater personalization of care plans, with attention to psychosocial interventions. Integrated service assessment tools can be used as a benchmark measure at the program level for implementation planning and at the national level to affect policy change. The integrated treatment model for DD should also aim to improve access to care and offer treatments based on scientific evidence. It is also evident that the integration of services can improve outcomes but it is not a guarantee for it. CONCLUSION: There is an urgent need to improve networking between mental health and addiction services in order to deal with DD and create new integrated intervention models, paying attention to an approach to the whole person, seen in his/her absolute uniqueness.

Reducing coercion in mental healthcare.

AIMS: To examine the extent and nature of coercive practices in mental healthcare and to consider the ethical, human rights challenges facing the current clinical practices in this area. We consider the epidemiology of coercion in mental health and appraise the efficacy of attempts to reduce coercion and make specific recommendations for making mental healthcare less coercive and more consensual. METHODS: We identified references through searches of MEDLINE, EMBASE, PsycINFO and CINAHL Plus. Search was limited to articles published from January 1980 to May 2018. Searches were carried out using the terms mental health (admission or detain* or detention or coercion) and treatment (forcible or involuntary or seclusion or restraint). Articles published during this period were further identified through searches in the authors' personal files and Google Scholar. Articles resulting from searches and relevant references cited in those articles were reviewed. Articles and reviews of non-psychiatric population, children under 16 years, and those pertaining exclusively to people with dementia were excluded. RESULTS: Coercion in its various guises is embedded in mental healthcare. There is very little research in this area and the absence of systematic and routinely collected data is a major barrier to research as well as understanding the nature of coercion and attempts to address this problem. Examples of good practice in this area are limited and there is hardly any evidence pertaining to the generalisability or sustainability of individual programmes. Based on the review, we make specific recommendations to reduce coercive care. Our contention is that this will require more than legislative tinkering and will necessitate a fundamental change in the culture of psychiatry. In particular, we must ensure that clinical practice never compromises people's human rights. It is ethically, clinically and legally necessary to address the problem of coercion and make mental healthcare more consensual. CONCLUSION: All forms of coercive practices are inconsistent with human rights-based mental healthcare. This is global challenge that requires urgent action.

Global mental health in high-income countries.

Over the past decade there have been significant efforts to scale-up mental health services in resource-poor countries. A number of cost-effective innovations have emerged as a result. At the same time, there is increasing concern in resource-rich countries about efficacy, efficiency and acceptability of mental health services. We consider two specific innovations used widely in low- and middle-income countries, task-sharing and a development model of mental healthcare, that we believe have the potential to address some of the current challenges facing mental health services in high-income countries.

Quality of care and its determinants in longer term mental health facilities across Europe; a cross-sectional analysis.

BACKGROUND: The Quality Indicator for Rehabilitative Care (QuIRC) is an international, standardised quality tool for the evaluation of mental health facilities that provide longer term care. Completed by the service manager, it comprises 145 items that assess seven domains of care: living environment; treatments and interventions; therapeutic environment; self-management and autonomy; social interface; human rights; and recovery based practice. We used the QuIRC to investigate associations between characteristics of longer term mental health facilities across Europe and the quality of care they delivered to service patients. METHODS: QuIRC assessments were completed for 213 longer term mental health units in ten countries that were at various stages of deinstitutionalisation of their mental health services. Associations between QuIRC domain scores and unit descriptive variables were explored using simple and multiple linear regression that took into account clustering at the unit and country level. RESULTS: We found wide variation in QuIRC domain scores between individual units, but across countries, fewer than a quarter scored below 50 % on any domains. The quality of care was higher in units that were smaller, of mixed sex, that had a defined expected maximum length of stay and in which not all patients were severely disabled. CONCLUSIONS: This is the first time longer term mental health units across a number of European countries have been compared using a standardised measure. Further use of the QuIRC will allow greater understanding of the quality of care in these units across Europe and provide an opportunity to monitor pan-European quality standards of care for this vulnerable patient group.

A Tale of Two Cities: The Exploration of the Trieste Public Psychiatry Model in San Francisco.

According to the World Health Organization (WHO), the "Trieste model" of public psychiatry is one of the most progressive in the world. It was in Trieste, Italy, in the 1970s that the radical psychiatrist, Franco Basaglia, implemented his vision of anti-institutional, democratic psychiatry. The Trieste model put the suffering person-not his or her disorders-at the center of the health care system. The model, revolutionary in its time, began with the "negation" and "destruction" of the traditional mental asylum ('manicomio'). A novel community mental health system replaced the mental institution. To achieve this, the Trieste model promoted the social inclusion and full citizenship of users of mental health services. Trieste has been a collaborating center of the WHO for four decades with a goal of disseminating its practices across the world. This paper illustrates a recent attempt to determine whether the Trieste model could be translated to the city of San Francisco, California. This process revealed a number of obstacles to such a translation. Our hope is that a review of Basaglia's ideas, along with a discussion of the obstacles to their implementation, will facilitate efforts to foster the social integration of persons with mental disorders across the world.

Community mental health care in Trieste and beyond: an "open door-no restraint" system of care for recovery and citizenship.

Since Franco Basaglia's appointment in 1971 as director of the former San Giovanni mental hospital, Trieste has played an international benchmark role in community mental health care. Moving from deinstitutionalization, the Department of Mental Health (DMH) has become a laboratory for innovation on social psychiatry, developing a model that can be defined as the "whole system, whole community" approach. The DMH provides care through a network of community services but also places great emphasis on working with the wider community with a view to promoting mental health and taking care of the social fabric. The network of services is based on 24/7 Community Mental Health Services, whose organization and activities are here described in detail. Data are provided on activity and outcome. The performance of DMH as a World Health Organization collaborating center disseminating best community mental health practices is also reviewed.

Social network intervention in patients with schizophrenia and marked social withdrawal: a randomized controlled study.

OBJECTIVE: To evaluate the efficacy and feasibility of actions intended to implement or improve patients' social network within the Italian National Health Service community mental health services. METHODS: We conducted a randomized clinical trial through a network of 47 community mental health services on patients with a diagnosis in the schizophrenia spectrum (F20 in the International Classification of Diseases, 10th Revision), who were young (aged younger than 45 years), and with a poor social network (less than 5 relationships). In addition to routine treatments, for the experimental group, the staff identified possible areas of interest for individual patients and proposed social activities taking place outside the services' resources and with members of the community. The main outcome was an improvement in the patients' social network; secondary end points were clinical outcome, abilities of daily living, and work. RESULTS: One- and 2-year outcomes of 345 and 327, respectively, of the 357 patients randomized were analyzed by intention-to-treat. A social network improvement was observed at year 1 in 25% of the patients allocated to routine treatment and in 39.9% of those allocated to the experimental arm (OR 2.0, 95% CI 1.3 to 3.1; adjusted OR 2.4, 95% CI 1.4 to 3.9). The difference remained statistically significant at year 2. No significant differences emerged for any of the other end points. However, patients with 1 or more other areas of improvement at year 1 and 2 showed a statistically significant social network improvement. CONCLUSIONS: The activation of social networks as an activity integrated with standard psychiatric care is practicable, without added economic and organizational costs, and appears to produce an effect persisting well beyond its implementation.

Objectif : Évaluer l'efficacité et la faisabilité de mesures destinées à mettre en œuvre ou à améliorer le réseau social des patients au sein des services de santé mentale du Service national de la santé communautaire italien. Méthodes : Nous avons mené un essai clinique randomisé dans un réseau de 47 services de santé mentale communautaires avec des patients ayant un diagnostic du spectre de la schizophrénie (F20 dans la Classification internationale des maladies, 10e révision), qui étaient jeunes (moins de 45 ans), et dont le réseau social était médiocre (moins de 5 relations). Outre les traitements réguliers, pour le groupe expérimental, le personnel a cerné des champs d'intérêt possibles pour les patients individuels et proposé des activités sociales qui avaient lieu en dehors des ressources des services, avec les membres de la communauté. Le résultat principal a été l'amélioration du réseau social des patients; les indicateurs de résultats secondaires étaient un résultat clinique, les aptitudes à la vie quotidienne et le travail. Résultats : Les résultats à 1 an et 2 ans, de 345 et 327 respectivement, sur les 357 patients randomisés ont été analysés selon le principe de vouloir traiter. Une amélioration du réseau social a été observée à l'an 1 chez 25 % des patients affectés au traitement régulier et chez 39,9 % de ceux affectés au volet expérimental (RC 2,0; IC à 95 % 1,3 à 3,1; RC corrigé 2,4; IC à 95 % 1,4 à 3,9). La différence demeurait statistiquement significative à l'an 2. Aucune différence significative n'est apparue pour aucun des autres indicateurs de résultats. Cependant, les patients ayant amélioré 1 ou plusieurs domaines à l'an 1 et 2 présentaient une amélioration statistiquement significative de leur réseau social. Conclusions : L'activation des réseaux sociaux comme activité intégrée dans des soins psychiatriques standards est réalisable, sans frais économiques et organisationnels additionnels, et semble produire un effet qui persiste bien au-delà de sa mise en œuvre.

Quality of longer term mental health facilities in Europe: validation of the quality indicator for rehabilitative care against service users' views.

BACKGROUND: The Quality Indicator for Rehabilitative Care (QuIRC) is a staff rated, international toolkit that assesses care in longer term hospital and community based mental health facilities. The QuIRC was developed from review of the international literature, an international Delphi exercise with over 400 service users, practitioners, carers and advocates from ten European countries at different stages of deinstitutionalisation, and review of the care standards in these countries. It can be completed in under an hour by the facility manager and has robust content validity, acceptability and inter-rater reliability. In this study, we investigated the internal validity of the QuIRC. Our aim was to identify the QuIRC domains of care that independently predicted better service user experiences of care. METHOD: At least 20 units providing longer term care for adults with severe mental illness were recruited in each of ten European countries. Service users completed standardised measures of their experiences of care, quality of life, autonomy and the unit's therapeutic milieu. Unit managers completed the QuIRC. Multilevel modelling allowed analysis of associations between service user ratings as dependent variables with unit QuIRC domain ratings as independent variables. RESULTS: 1750/2495 (70%) users and the managers of 213 units from across ten European countries participated. QuIRC ratings were positively associated with service users' autonomy and experiences of care. Associations between QuIRC ratings and service users' ratings of their quality of life and the unit's therapeutic milieu were explained by service user characteristics (age, diagnosis and functioning). A hypothetical 10% increase in QuIRC rating resulted in a clinically meaningful improvement in autonomy. CONCLUSIONS: Ratings of the quality of longer term mental health facilities made by service managers were positively associated with service users' autonomy and experiences of care. Interventions that improve quality of care in these settings may promote service users' autonomy.

The development of the Quality Indicator for Rehabilitative Care (QuIRC): a measure of best practice for facilities for people with longer term mental health problems.

BACKGROUND: Despite the progress over recent decades in developing community mental health services internationally, many people still receive treatment and care in institutional settings. Those most likely to reside longest in these facilities have the most complex mental health problems and are at most risk of potential abuses of care and exploitation. This study aimed to develop an international, standardised toolkit to assess the quality of care in longer term hospital and community based mental health units, including the degree to which human rights, social inclusion and autonomy are promoted. METHOD: The domains of care included in the toolkit were identified from a systematic literature review, international expert Delphi exercise, and review of care standards in ten European countries. The draft toolkit comprised 154 questions for unit managers. Inter-rater reliability was tested in 202 units across ten countries at different stages of deinstitutionalisation and development of community mental health services. Exploratory factor analysis was used to corroborate the allocation of items to domains. Feedback from those using the toolkit was collected about its usefulness and ease of completion. RESULTS: The toolkit had excellent inter-rater reliability and few items with narrow spread of response. Unit managers found the content highly relevant and were able to complete it in around 90 minutes. Minimal refinement was required and the final version comprised 145 questions assessing seven domains of care. CONCLUSIONS: Triangulation of qualitative and quantitative evidence directed the development of a robust and comprehensive international quality assessment toolkit for units in highly variable socioeconomic and political contexts.

"A life in the community": Italian mental health reform and recovery.

There are remarkable parallels between the vision of the Italian Mental Health Reform of the 1960s and 1970s and the vision of "recovery" being promoted around the globe. Most importantly, they share a fundamental conviction in the right of individuals with mental illnesses to "a life in the community", arguing that the basic rights of social inclusion, self-determination, and citizenship provide the necessary foundation for, rather than follow after, recovery. This article describes four strategies used in the Italian Reform to actualize this vision: creating two-way streets between the mental health system and the broader community, establishing social cooperatives with joining forces with other citizens' groups, and working toward community inclusion on a person-by-person basis. The authors suggest that useful lessons learned from these efforts can be applied to the present challenge of affording all individuals with serious mental illnesses the "life in the community" to which they are entitled.

A systematic review of the international published literature relating to quality of institutional care for people with longer term mental health problems.

BACKGROUND: A proportion of people with mental health problems require longer term care in a psychiatric or social care institution. However, there are no internationally agreed quality standards for institutional care and no method to assess common care standards across countries. We aimed to identify the key components of institutional care for people with longer term mental health problems and the effectiveness of these components. METHODS: We undertook a systematic review of the literature using comprehensive search terms in 11 electronic databases and identified 12,182 titles. We viewed 550 abstracts, reviewed 223 papers and included 110 of these. A "critical interpretative synthesis" of the evidence was used to identify domains of institutional care that are key to service users' recovery. RESULTS: We identified eight domains of institutional care that were key to service users' recovery: living conditions; interventions for schizophrenia; physical health; restraint and seclusion; staff training and support; therapeutic relationship; autonomy and service user involvement; and clinical governance. Evidence was strongest for specific interventions for the treatment of schizophrenia (family psychoeducation, cognitive behavioural therapy (CBT) and vocational rehabilitation). CONCLUSION: Institutions should, ideally, be community based, operate a flexible regime, maintain a low density of residents and maximise residents' privacy. For service users with a diagnosis of schizophrenia, specific interventions (CBT, family interventions involving psychoeducation, and supported employment) should be provided through integrated programmes. Restraint and seclusion should be avoided wherever possible and staff should have adequate training in de-escalation techniques. Regular staff supervision should be provided and this should support service user involvement in decision making and positive therapeutic relationships between staff and service users. There should be clear lines of clinical governance that ensure adherence to evidence-based guidelines and attention should be paid to service users' physical health through regular screening.

Study protocol for the development of a European measure of best practice for people with long term mental health problems in institutional care (DEMoBinc).

BACKGROUND: This study aims to build a measure for assessing and reviewing the living conditions, care and human rights of people with longer term mental health problems in psychiatric and social care institutions. Protection of their human rights is imperative since impaired mental capacity secondary to mental illness can make them vulnerable to abuse and exploitation from others. They also constitute a major resource pressure for mental health services, social services, informal carers and society as a whole. METHODS/DESIGN: This study uses an iterative methodology to develop a toolkit to assess internationally agreed domains of care that are considered most important for recovery. These domains are identified by collating results from: i) a systematic review of the literature on institutional care for this service user group; ii) a review of the relevant care standards in each participating country; iii) Delphi exercises in partner countries with mental health professionals, service users, carers and advocates. Common domains and cross-cutting themes are agreed by the principal researchers and an international expert panel. Items are developed to assess these domains and incorporated into the toolkit which is designed to be administered through a face to face interview with the institution's manager. The toolkit is refined in response to inter-rater reliability testing, feedback from interviewers and interviewees regarding its utility, and feedback from key stakeholders in each country about its ability to deliver information that can be used within each country's established systems for quality assessment and review. Cross-validation of the toolkit ratings against service users' quality of life, autonomy and markers of recovery tests whether it can deliver a proxy-measure of the service users' experiences of care and the institution's promotion of their human rights and recovery. The ability of the toolkit to assess the "value for money" delivered by institutions is investigated by comparing toolkit ratings and service costs. DISCUSSION: The study will deliver the first international tool for the assessment of the quality of institutional care for people with longer term mental health problems that is accurate, reliable, informative, useful and easy to use.