Your browser doesn't support javascript.
loading
Show: 20 | 50 | 100
Results 1 - 20 de 36
Filter
1.
Medicine (Baltimore) ; 102(18): e33641, 2023 May 05.
Article in English | MEDLINE | ID: mdl-37144996

ABSTRACT

The Medicare Parts C and D Star Ratings system was established to improve care quality in Medicare. Previous studies reported racial/ethnic disparities in the calculation of medication adherence measures of Star Ratings in patients with diabetes, hypertension, and hyperlipidemia. This study aimed to identify possible racial/ethnic disparities in the calculation of adherence measures of Medicare Part D Star Ratings among patients with Alzheimer's disease and related dementias (ADRD) and diabetes, hypertension, or hyperlipidemia. This retrospective study analyzed the 2017 Medicare data and Area Health Resources Files. Non-Hispanic White (White) patients were compared to Black, Hispanic, Asian/Pacific Islander (Asian), and other patients on their likelihood of being included in the calculation of adherence measures for diabetes, hypertension, and/or hyperlipidemia. To adjust for the individual/community characteristics, logistic regression was used when the outcome is the inclusion in the calculation of one adherence measure; multinomial regression was used when examining the inclusion in the calculation of multiple adherence measures. Analyzing the data of 1438,076 Medicare beneficiaries with ADRD, this study found that Black (adjusted odds ratio, or OR = 0.79, 95% confidence interval, or 95% CI = 0.73-0.84) and Hispanic (OR = 0.82, 95% CI = 0.75-0.89) patients were less likely than White patients to be included in the calculation of adherence measure for diabetes medications. Further, Black patients were less likely to be included in the calculation of the adherence measure for hypertension medications than White patients (OR = 0.81, 95% CI = 0.78-0.84). All minorities were less likely to be included in calculating the adherence measure for hyperlipidemia medications than Whites. The ORs for Black, Hispanic, and Asian patients were 0.57 (95% CI = 0.55-0.58), 0.69 (95% CI = 0.64-0.74), and 0.83 (95% CI = 0.76-0.91), respectively. Minority patients were generally likely to be included in the measure calculation of fewer measures than White patients. Racial/ethnic disparities were observed in the calculation of Star Ratings measures among patients with ADRD and diabetes, hypertension, and/or hyperlipidemia. Future studies should explore possible causes of and solutions to these disparities.


Subject(s)
Alzheimer Disease , Diabetes Mellitus , Hypertension , Medicare Part C , Medicare Part D , Humans , Aged , United States , Alzheimer Disease/drug therapy , Retrospective Studies , Diabetes Mellitus/drug therapy , Hypertension/drug therapy , Healthcare Disparities , White
2.
J Mech Behav Biomed Mater ; 128: 105102, 2022 04.
Article in English | MEDLINE | ID: mdl-35203020

ABSTRACT

The growth plate is a cartilaginous tissue that functions to lengthen bones in children. When fractured, however, the growth plate can lose this critical function. Our understanding of growth plate fracture and mechanobiology is currently hindered by sparse information on the growth plate's microscale spatial gradients in mechanical properties. In this study, we performed microindentation across the proximal tibia growth plate of 9-week-old New Zealand White rabbits (n = 15) to characterize spatial variations in mechanical properties using linear elastic and nonlinear poroelastic material models. Mean indentation results for Hertz reduced modulus ranged from 380 to 690 kPa, with a peak in the upper hypertrophic zone and significant differences (p < 0.05) between neighboring zones. Using a subset of these animals (n = 7), we characterized zonal structure and extracellular matrix content of the growth plate through confocal fluorescent microscopy and Raman spectroscopy mapping. Comparison between mechanical properties and matrix content across the growth plate showed that proteoglycan content correlated with compressive modulus. This study is the first to measure poroelastic mechanical properties from microindentation across growth plate cartilage and to discern differing mechanical properties between the upper and lower hypertrophic zones. This latter finding may explain the location of typical growth plate fractures. The spatial variation in our reported mechanical properties emphasize the heterogeneous structure of the growth plate which is important to inform future regenerative implant design and mechanobiological models.


Subject(s)
Cartilage , Growth Plate , Animals , Extracellular Matrix , Rabbits , Tibia
3.
Disabil Health J ; 15(1): 101180, 2022 01.
Article in English | MEDLINE | ID: mdl-34404627

ABSTRACT

BACKGROUND: People with disabilities have higher health care needs, service utilization, and expenditures. They are also more likely to lack insurance and experience unmet need for medical care. There has been limited research on the effects of the Affordable Care Act Medicaid expansion on people with disabilities. OBJECTIVE: To examine the effects of the Medicaid expansion on health insurance coverage, access, and service use for working-age adults with disabilities. METHODS: A retrospective study using 11 years (2007-2017) of data from the Medical Expenditure Panel Survey - Household Components, linked to Area Health Resource Files and Local Area Unemployment Statistics (N = 40,995). Difference-in-differences multinomial logistic and linear probability models with state and year fixed-effects were used to estimate the effects. RESULTS: We found strong evidence of increased Medicaid coverage in expansion states (3.2 to 5.0 percentage points), reasonably strong evidence of reduced private insurance coverage (-2.2 to -2.5 percentage points), and some evidence of reduced uninsured rate (from no effect to -3.7 percentage points). Results suggest that the increase in Medicaid coverage was due at least in part to the "crowd-out" of private insurance in expansion states. No statistically significant effects were detected for access and use outcomes. CONCLUSIONS: Findings suggest that state Medicaid expansions led to an increase in Medicaid coverage and a decrease in private insurance coverage as well as the uninsured. However, no evidence was found for health care access and use outcomes. Further research into access and use is needed when more data become available for the post-expansion period.


Subject(s)
Disabled Persons , Patient Protection and Affordable Care Act , Adult , Health Services Accessibility , Humans , Insurance Coverage , Insurance, Health , Medicaid , Retrospective Studies , United States
4.
J Adolesc Health ; 63(4): 445-450, 2018 10.
Article in English | MEDLINE | ID: mdl-30108024

ABSTRACT

PURPOSE: This study examined the impact of the 2010 Affordable Care Act's dependent coverage provision on gaps in insurance coverage for young adults with special healthcare needs (YASHCN). METHODS: We used the 2008 Survey on Income and Program Participation, a longitudinal survey covering 2008-2013. Our sample was comprised of 3,316 YASHCN ages 19-29. We used a difference-in-differenceregression approach to assess the effect of the dependent coverage provision on the probability that a YASHCN experienced a gap in insurance coverage. We compared outcomes for a treatment group, YASHCN ages 19-25, and a control group, YASHCN ages 27-29, before and after the 2010 policy change. The longitudinal data allow us to estimate regressions that control for individual and time fixed effects. RESULTS: After controlling for fixed effects and other confounding variables, we found that extending coverage until age 26 for YASHCN was associated with reduced insurance gaps. Specifically, our estimates suggest that the Affordable Care Act dependent coverage provision was associated with reduced insurance gaps among YASHCN by 2.4 percentage points. CONCLUSIONS: The Affordable Care Act dependent coverage provision helped mitigate the number ofinsurance gaps experienced by YASHCN. This is of particular importance to YASHCN, as they are a vulnerablepopulation and their continuity of insurance coverage is a critical part of their transition into adulthood.


Subject(s)
Insurance Coverage/statistics & numerical data , Insurance, Health/statistics & numerical data , Patient Protection and Affordable Care Act/legislation & jurisprudence , Adolescent , Adult , Female , Humans , Longitudinal Studies , Male , Surveys and Questionnaires , United States , Young Adult
5.
Arch Gerontol Geriatr ; 78: 269-274, 2018.
Article in English | MEDLINE | ID: mdl-30055517

ABSTRACT

INTRODUCTION: Despite policy efforts to reduce unwanted nursing home (NH) admissions, NH residents increasingly are being admitted from hospitals, with a significant share diagnosed with mental health disorders. OBJECTIVES: We examined interactive effect of Black race and mental health disorder's impact on older patients' (age 65 and older) NH admission upon hospital discharge. MATERIAL AND METHODS: We analyzed 186,646 older patients using pooled data from the 2007 through 2010 National Hospital Discharge Survey. Logistic regression analyses were used to examine the risk factors for NH admission. RESULTS: Diagnosis of mental health disorders increased the odds of NH admission among the older sample patients (OR = 1.15, 95%CI[1.04,1.28]). Black race was not associated with higher odds, whereas black patients experienced higher odds if they were diagnosed with mental health disorders (OR = 1.60, 95%CI[1.43,1.79]). Medicare as primary payer was associated with greater odds of NH admission. Admission from nursing facilities substantially increased the odds of NH admission upon hospital discharge. Patients discharged with diagnoses of stroke, lower-limb fractures, and a chronic ulcer, as well as those with a longer length-of-stay (> 5 days) experienced increased odds of NH admission. Being discharged from a larger hospital (with >200 beds) decreased the odds for NH admission; as did being discharged from a government-owned hospital. CONCLUSIONS: Older Black patients with mental health disorder experienced significantly greater odds of NH admission after adjusting for other factors. Public policy initiatives are needed to address the specific needs in the vulnerable population to avoid unwanted NH admission.


Subject(s)
Mental Disorders/epidemiology , Nursing Homes , Black or African American , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Patient Admission , Patient Discharge , United States
6.
Psychiatr Rehabil J ; 40(2): 233-243, 2017 06.
Article in English | MEDLINE | ID: mdl-28252979

ABSTRACT

OBJECTIVE: Many working-age individuals with a serious mental health disability go without primary care. Gender and racial/ethnic disparities have been found in primary care utilization. This article examines whether the interaction of gender and race/ethnicity with serious mental health disability is associated with primary care use among working-age individuals. METHOD: We pooled data from the Medical Expenditure Panel Survey-Household Component (MEPS-HC) panels for the years 2001 to 2007 creating a sample of 34,199 individuals, 1,605 of whom had serious mental health disability. MEPS-HC is a nationally representative survey of the civilian noninstitutionalized population of the United States. We defined serious mental health disability as having scored less than 30 on the Mental Health Composite Score of the Short Form 12. Primary care visits were defined as nonspecialty, nonemergency visits to a physician's office or clinic. Zero-inflated Poisson regression models and bootstrapped predictive margins of visits were estimated using weights to account for survey design. RESULTS: Relative to women, men with serious mental health disability had significantly more primary care visits and lower log odds of "zero" visits-the opposite pattern was found for people without serious mental health disability. We did not find a significant interaction between race/ethnicity and serious mental health disability. CONCLUSION AND IMPLICATIONS FOR PRACTICE: Serious mental health disability appears to have differing impacts on men and women's use of primary care. There is a continued need to understand what differentiates users from nonusers among adults with serious mental health disability and the relative contribution of patient, provider, and system factors. (PsycINFO Database Record


Subject(s)
Black or African American/statistics & numerical data , Health Expenditures/statistics & numerical data , Hispanic or Latino/statistics & numerical data , Patient Acceptance of Health Care/statistics & numerical data , Persons with Mental Disabilities/statistics & numerical data , Primary Health Care/statistics & numerical data , White People/statistics & numerical data , Adolescent , Adult , Black or African American/ethnology , Female , Humans , Male , Middle Aged , Patient Acceptance of Health Care/ethnology , Sex Factors , United States , White People/ethnology , Young Adult
7.
Am J Intellect Dev Disabil ; 121(4): 295-311, 2016 Jul.
Article in English | MEDLINE | ID: mdl-27351698

ABSTRACT

Medicaid is the most significant source of funding for medical services for individuals with autism spectrum disorder (ASD). We surveyed state Medicaid directors or their designees regarding their use of autism specific 1915(c) waivers and other Medicaid benefits to provide services to children and youth with ASD, with a response rate of 84%. Ten states used autism-specific waivers to provide services. These waivers varied in the number of children served, eligibility criteria and services provided, among other characteristics. Issues related to the number of children to serve and the specific services to provide were perceived to be the most difficult waiver design issues, while provider geographic distribution, capacity and expertise were perceived to be the most difficult implementation concerns. States used a variety of additional Medicaid state plan services (e.g., the optional rehabilitation benefit) and 1915(c) waivers (e.g., a more general waiver serving individuals with intellectual and developmental disabilities) to provide services to children and youth with ASD. Thus, continuing to examine the adequacy and effectiveness of state use of a range of Medicaid benefits, including autism-specific 1915(c) waivers is critical. Expanding the evidence base for intervention effectiveness is important as well.


Subject(s)
Autism Spectrum Disorder/rehabilitation , Child Health Services/statistics & numerical data , Eligibility Determination , Government Agencies , Insurance Benefits/statistics & numerical data , Medicaid/statistics & numerical data , Adolescent , Child , Child, Preschool , Humans , Surveys and Questionnaires , United States
8.
J Stud Alcohol Drugs ; 77(4): 589-95, 2016 07.
Article in English | MEDLINE | ID: mdl-27340963

ABSTRACT

OBJECTIVE: Although not originally enacted to deter the problem of underage drinking in the United States, one set of laws that may influence this behavior is juvenile curfew laws. This research asked the following: (a) What is the effect of enacting a juvenile curfew law on youth drinking, and (b) do demographic variables moderate the relation between juvenile curfew law enactment and drinking? This study examined the effect of juvenile curfew laws on underage drinking, using data from 46 U.S. cities from 1991 to 2005. METHOD: In 2014, we compiled a data set containing alcohol and curfew law data by zip code. It included 63,081 minors (ages 12-17 years) from 1,081 zip codes. We used difference-in-difference regressions to analyze the data. RESULTS: The effect of the enactment of a curfew law on the likelihood of consuming alcohol in the past year or past 30 days or of heavy episodic drinking in the past 2 weeks was not significant when compared with cities without curfew laws during the same periods. Although the likelihood of consuming alcohol over the past year differed depending on an individual's characteristics (e.g., race/ethnicity, age, and gender), none of the interaction terms between these characteristics and curfew laws were significant. CONCLUSIONS: Curfew laws appear to have a nonsignificant effect on youth drinking, but these results are unclear without more knowledge as to where and when youth are drinking both before and after the enactment of curfew laws and how these laws are being enforced.


Subject(s)
Alcohol Drinking/legislation & jurisprudence , Underage Drinking/prevention & control , Adolescent , Adolescent Behavior , Child , Cities , Cross-Sectional Studies , Female , Humans , Male , United States
9.
J Aging Soc Policy ; 28(1): 49-64, 2016.
Article in English | MEDLINE | ID: mdl-26549155

ABSTRACT

Although state use of Medicaid home- and community-based services (HCBS) to provide long-term services and supports to older adults and individuals with physical disabilities continues to increase, progress is uneven across states. We used generalized linear models to examine state factors associated with increased allocation of Medicaid dollars to HCBS for the period 2000 to 2011. We observed enhanced growth in states that began the period with limited investment in HCBS, as reflected in significant year trends among these states. The political environment appeared to be an important influence on states' investment for states with limited initial allocation to HCBS, as was housing affordability, a policy amenable variable. There continues to be wide variation in states' relative investment, calling for additional policy attention and research.


Subject(s)
Community Health Services , Disabled Persons/statistics & numerical data , Health Care Rationing , Long-Term Care , Medicaid , Aged , Community Health Services/organization & administration , Community Health Services/trends , Eligibility Determination/methods , Female , Health Care Rationing/methods , Health Care Rationing/trends , Healthcare Financing , Homes for the Aged/economics , Homes for the Aged/organization & administration , Humans , Long-Term Care/economics , Long-Term Care/organization & administration , Male , Medicaid/organization & administration , Medicaid/trends , Needs Assessment , Nursing Homes/economics , Nursing Homes/organization & administration , Social Support , United States
10.
J Nurs Care Qual ; 31(1): E9-E16, 2016.
Article in English | MEDLINE | ID: mdl-26121056

ABSTRACT

This research studied 12,507 residents in 1174 nursing homes from the 2004 National Nursing Home Survey. A multinomial logistic regression model was used to predict risk-adjusted probabilities of pressure ulcers with 4 stages. A medical director or a director of nursing on board reduced the odds of ulcers. Facilities offering clusters of beds for rehabilitation and special care programs for hospice care or behavior problems reduced the odds of stage IV ulcers.


Subject(s)
Hospices , Nursing Homes , Pressure Ulcer/epidemiology , Rehabilitation Centers , Age Factors , Aged , Aged, 80 and over , Female , Humans , Longitudinal Studies , Male , Middle Aged , Quality of Health Care , Risk Factors , Sex Factors , United States/epidemiology
11.
Am J Prev Med ; 49(6): 945-51, 2015 Dec.
Article in English | MEDLINE | ID: mdl-26456877

ABSTRACT

CONTEXT: Automobile crashes cause more than 800,000 youth injuries and deaths each year. Other youth suffer the consequences from being either a perpetrator or victim of a crime. One type of law that has an effect on youth behavior is juvenile curfew laws. These laws restrict the times that youth may occupy public places or streets. We systematically reviewed studies evaluating the effectiveness of these laws to address the question: Can juvenile curfew laws be used to improve youth public health and juvenile justice outcomes? EVIDENCE ACQUISITION: In 2013, we used a standardized set of keywords to search 24 databases for studies that evaluated effectiveness outcome measures of juvenile curfew laws. After applying the exclusion criteria and removing duplicate studies, 14 studies of juvenile curfews remained. EVIDENCE SYNTHESIS: Of the six studies examining the effectiveness of juvenile curfew laws on adverse youth health outcomes, five found a positive impact. Of the eight studies examining the effectiveness of curfew laws on juvenile crime and victimization, four found a positive impact. CONCLUSIONS: The studies that found that juvenile curfew laws were effective at reducing adverse youth health outcomes (e.g., trauma transports); juvenile crime; and victimization were of higher quality (e.g., stronger methodologic approaches) than those finding no effects. However, given the limited number of studies and concerns with quality, we conclude that more research is needed before conclusions can be drawn about the effectiveness of juvenile curfew laws.


Subject(s)
Accidents, Traffic/prevention & control , Law Enforcement , Public Health , Adolescent , Databases, Factual , Humans , Time Factors
12.
Disabil Health J ; 8(3): 443-51, 2015 Jul.
Article in English | MEDLINE | ID: mdl-25910553

ABSTRACT

BACKGROUND: The prevalence of Autism Spectrum Disorder (ASD) has increased dramatically, with one in every 68 children in the U.S. currently diagnosed with ASD. Medicaid is the primary public funder of health care services for individuals with ASD. One mechanism state Medicaid agencies can use to craft ASD-specific services is a 1915(c) waiver. OBJECTIVE: This study investigated what state policy makers perceived to be primary success factors and barriers to adopting an ASD specific 1915(c) waiver, as well as what services and supports are available in each state for children and transition-age youth with ASD. METHODS: Data were collected by contacting state Medicaid directors via email with an electronic survey, with an 84% response rate. RESULTS: Support from state legislators and parents and family members were the primary success factors in adopting an ASD specific waiver. The primary barrier was insufficient funding. States not adopting an ASD specific waiver also perceived that children and youth with ASD were served sufficiently well through other Medicaid benefits. Analysis of specific services indicated that the majority of states provide their services to children and transition age youth with ASD through a 1915(c) waiver for individuals with intellectual or developmental disabilities, often coupled with an ASD specific waiver for children, another 1915(c) waiver for children, and/or a another 1915(c) waiver, most often for children with serious emotional disturbance. CONCLUSION: Further research is needed to determine which approach(es) is most effective in enhancing access and improving outcomes for children and youth with ASD.


Subject(s)
Autism Spectrum Disorder/economics , Disabled Persons , Health Services Accessibility/economics , Home Care Services/economics , Medicaid , Policy , State Government , Adolescent , Adult , Autistic Disorder/economics , Child , Child Development Disorders, Pervasive/economics , Child, Preschool , Family , Humans , Infant , Infant, Newborn , Prevalence , United States , Young Adult
13.
J Aging Soc Policy ; 26(4): 324-46, 2014.
Article in English | MEDLINE | ID: mdl-25010813

ABSTRACT

Disability is increasing among middle-aged adults and, reversing earlier trends, increasing among older adults as well. Disability is experienced disproportionately by Black and lower socioeconomic status (SES) individuals. We used Medical Expenditure Panel Survey data to examine health care disparities in access to health care for middle-aged (31 to 64 years of age) and older (65+ years of age) adults with disabilities by race and ethnicity, education, and income (n=13,174). Using logistic regression, we examined three measures of potential (e.g., usual source of care), and three measures of realized (e.g., counseling related to smoking) access. Middle-aged and older minority individuals with disabilities had lower relative risks of having usual sources of care and higher relative risks of having suboptimal usual sources of care (e.g., a place rather than a person) than White adults with disabilities. There were SES effects observed for middle-aged adults with disabilities across most measures that were, for certain measures, more pronounced than SES effects among older adults with disabilities. These findings are important, since health resources (e.g., a usual source of care) may mediate relations among disability, morbidity, and mortality. Policy actions that may mitigate the disparities we observed include financial incentives to support access to an optimal usual source of care and mechanisms to foster behavioral interventions related to smoking and exercise. Ensuring that these actions address the specific concerns of individuals with disabilities, such as physical accessibility and provider cultural competency, is essential.


Subject(s)
Disabled Persons , Health Services Accessibility/economics , Healthcare Disparities/economics , Adult , Aged , Aged, 80 and over , Ethnicity , Female , Health Care Surveys , Health Expenditures , Humans , Logistic Models , Male , Middle Aged , Socioeconomic Factors
15.
Am J Public Health ; 104(3): e85-93, 2014 Mar.
Article in English | MEDLINE | ID: mdl-24328621

ABSTRACT

OBJECTIVES: We examined disparities among US adults with disabilities and the degree to which health insurance attenuates disparities by race, ethnicity, and socioeconomic status (SES). METHODS: We pooled data from the 2001-2007 Medical Expenditure Panel Survey on individuals with disabilities aged 18 to 64 years. We modeled measures of access and use as functions of predisposing, enabling, need, and contextual factors. We then included health insurance and examined the extent to which it reduced observed differences by race, ethnicity, and SES. RESULTS: We found evidence of disparities in access and use among adults with disabilities. Adjusting for health insurance reduced these disparities most consistently for emergency department use. Uninsured individuals experienced substantially poorer access across most measures, including reporting a usual source of care and experiencing delays in or being unable to obtain care. CONCLUSIONS: Although health insurance is an important enabling resource among adults with disabilities, its effect on reducing differences by race, ethnicity, and SES on health care access and use was limited. Research exploring the effects of factors such as patient-provider interactions is warranted.


Subject(s)
Disabled Persons/statistics & numerical data , Healthcare Disparities , Insurance Coverage/statistics & numerical data , Insurance, Health , Adolescent , Adult , Black People/statistics & numerical data , Confidence Intervals , Female , Health Care Surveys , Health Services Accessibility , Hispanic or Latino/statistics & numerical data , Humans , Male , Middle Aged , Socioeconomic Factors , United States , White People/statistics & numerical data , Young Adult
16.
Gerontologist ; 54(3): 473-87, 2014 Jun.
Article in English | MEDLINE | ID: mdl-23480893

ABSTRACT

PURPOSE OF THE STUDY: We extend research to examine relations between gender, disability, and age in the receipt of preventive services. DESIGN AND METHODS: We pool Medical Expenditure Panel Survey data for years 2001-2007. Using logit models, we examine the relations between gender, disability, and age and the receipt of preventive services. RESULTS: For most services, both women and men with disabilities had higher probabilities of receiving preventive services relative to those without disabilities. There was a pattern of more significant differences for men relative to women. Predicted probabilities for receipt of services were significantly higher among older adults relative to younger adults. A usual source of care was a significant predictor across services. For example, we estimate that adults aged 18-64 with a place as a usual source of care received 59% of recommended services, whereas those with a person as a source of care received 63% of services relative to 47% for those without a usual source of care. Among older adults, the predicted percentage of preventive services received for no usual source of care was 52% and that for a place or a person as a usual source of care were 71% and 76%, respectively. Across gender, disability, and age, receipt of a range of clinical preventive services is suboptimal. IMPLICATIONS: Policy actions that may mitigate the differences we observed include mechanisms to support access to a usual source of care, financial incentives to enhance the receipt of preventive services, and implementation of community-based prevention services with attention to their linkage to clinical care.


Subject(s)
Disabled Persons , Health Services Accessibility/trends , Preventive Health Services , Adolescent , Adult , Age Factors , Aged , Female , Humans , Male , Middle Aged , Sex Factors , United States , Young Adult
17.
J Pediatr ; 163(4): 961-7.e3, 2013 Oct.
Article in English | MEDLINE | ID: mdl-23726546

ABSTRACT

OBJECTIVE: Candida remains an important cause of late-onset infection in preterm infants. Mortality and neurodevelopmental outcome of extremely low birth weight (ELBW) infants enrolled in the Candida study were evaluated based on infection status. STUDY DESIGN: ELBW infants born at Eunice Kennedy Shriver National Institute of Child Health and Human Development Neonatal Research Network (NRN) centers between March 2004 and July 2007 who were screened for suspected sepsis were eligible for inclusion in the Candida study. Primary outcome data for neurodevelopmental impairment (NDI) or death were available for 1317 of the 1515 infants (87%) enrolled in the Candida study. The Bayley Scales of Infant Development-II or -III was administered at 18 months' adjusted age. A secondary comparison was performed with 864 infants enrolled in the NRN Generic Database during the same cohort who were never screened for sepsis and therefore not eligible for the Candida study. RESULTS: Among ELBW infants enrolled in the Candida study, 31% with Candida and 31% with late-onset non-Candida sepsis had NDI at 18 months. Infants with Candida sepsis and/or meningitis had an increased risk of death and were more likely to have the composite outcome of death and/or NDI compared with uninfected infants in adjusted analysis. Compared with infants in the NRN registry never screened for sepsis, overall risk for death were similar but those with Candida infection were more likely to have NDI (OR 1.83, 95% CI 1.01-3.33, P = .047). CONCLUSIONS: In this cohort of ELBW infants, those with infection and/or meningitis were at increased risk for death and/or NDI. This risk was highest among those with Candida sepsis and/or meningitis.


Subject(s)
Candidiasis/complications , Infant, Extremely Low Birth Weight/growth & development , Candida , Candidiasis/mortality , Databases, Factual , Developmental Disabilities/diagnosis , Female , Humans , Infant , Infant, Newborn , Infant, Premature/growth & development , Infant, Premature, Diseases , Male , Meningitis, Fungal/diagnosis , Prospective Studies , Risk Factors , Sepsis/diagnosis , Sepsis/microbiology
18.
Health Soc Care Community ; 21(6): 634-43, 2013 Nov.
Article in English | MEDLINE | ID: mdl-23647700

ABSTRACT

There are more than 12 million children with special healthcare needs (CSHCNs) in the United States, many of whom require specialised health-care to treat chronic physical and developmental conditions. This study is a qualitative investigation of programme, surgical and at-home recovery experiences among CSHCNs and their family carers who participated in a spine surgical care programme at a paediatric hospital in the Western United States. The programme is designed to manage increased surgical risk and the transition of care from hospital to home for children with severe scoliosis undergoing spinal fusion surgery. We conducted 30 semi-structured in-depth interviews with 14 surgical team members and 16 family carers of children who had programme evaluations and spinal surgeries in 2006. Data were collected in 2008 and 2009 in hospital or at home locations to gather programme participation feedback from families and inform the adequacy of programme support to families during at-home recovery. Data were analysed by reflexive team and content analysis methodologies. Results showed the programme was effective at improving preoperative surgical evaluation and helping families to anticipate some aspects of the surgical experience and hospital discharge. However, the impact of spinal fusion surgery and the subsequent transition to home-based care was profoundly emotional for patients and their carers. Our data indicate that programme providers underestimated the extent of emotional trauma experienced by patients and families, particularly during the at-home recovery process. The data also suggest meaningful differences in providers' and carers' expectations for surgery. Carers' disappointment with their recovery experiences and the perceived lack of post-discharge support impacted their interpretations of and perspectives on their surgical experience. Implications of this research for surgical care programmes include the need for assessment and provision of support for physical, social, and emotional burdens experienced by patients and carers at pre-surgical, surgical and at-home recovery phases.


Subject(s)
Caregivers/psychology , Home Nursing , Patient Satisfaction , Spinal Fusion , Adolescent , Child , Female , Humans , Male , Patient Discharge , Qualitative Research , Spinal Fusion/nursing , Young Adult
19.
J Public Health Epidemiol ; 5(9): 397-401, 2013 Sep.
Article in English | MEDLINE | ID: mdl-34026298

ABSTRACT

The objective of this study was to assess how hospital designation of race/ethnicity based on Spanish surnames of mothers correlated with the self-report, and explores how these mothers identified their own race/ethnicity using the National Institutes of Health (NIH) categories. 235 mothers were enrolled prospectively and asked to report their race/ethnicity. Positive predictive value (PPV) of using surnames as a tool for assigning race/ethnicity was determined. The PPV of using surnames to identify ethnicity and race was 79 and 30%, respectively. 57% of mothers could not identify their race by the NIH categories. Although Spanish surnames more accurately reflected ethnicity than race, its use was associated with substantial discrepancies.

20.
J Aging Soc Policy ; 24(3): 271-90, 2012.
Article in English | MEDLINE | ID: mdl-22720887

ABSTRACT

Middle-aged adults are becoming an increasing share of the nursing home population. Minimum Data Set assessment data for 2000 and 2008 are used to explore similarities and differences in sociodemographic, residential, medical, and psychiatric characteristics of newly admitted middle-aged adults (31-64) compared to their older counterparts (65+). Relative to their share of the state population, Black middle-aged adults are overrepresented in nursing homes across 45 states and the District of Columbia. Chronic conditions, including diabetes, renal failure, chronic obstructive pulmonary disease, asthma, and circulatory/heart disorders, appeared to contribute to the increasing presence of middle-aged adults. There were substantial increases in diagnoses of psychiatric disorders at admission; psychiatric diagnoses were significantly higher among middle-aged adults. Middle-aged adults were also more likely to have residential histories of prior stays in psychiatric facilities relative to older adults. States' rebalancing efforts need to attend to the increasing presence of disability associated with chronic medical and psychiatric conditions among middle-aged adults.


Subject(s)
Nursing Homes/statistics & numerical data , Residence Characteristics/statistics & numerical data , Adult , Age Distribution , Aged , Centers for Medicare and Medicaid Services, U.S./statistics & numerical data , Chronic Disease/epidemiology , Female , Geriatric Assessment , Humans , Insurance Claim Review/statistics & numerical data , Male , Mental Disorders/epidemiology , Middle Aged , Sex Distribution , Socioeconomic Factors , United States
SELECTION OF CITATIONS
SEARCH DETAIL
...