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Brain Inj ; 33(2): 168-182, 2019.
Article in English | MEDLINE | ID: mdl-30396278

ABSTRACT

OBJECTIVE: To provide a qualitative examination of the service and support needs of children who have had a mild traumatic brain injury (mTBI), and their parents, in order to improve clinical services. METHODS: Semi-structured interviews were conducted with 9 children (8-12 years; M = 10.6 years, SD = 0.8) and their parents (n = 9) 29-55 days (M = 34 days; SD = 9.3) after presenting to an Australian Paediatric Emergency Department (PED) for mTBI. Children's post-concussive symptoms (PCS) were additionally measured using the Post-Concussive Symptom Inventory (PCSI). Audio recordings were transcribed, and a thematic analysis was conducted. RESULTS: Post-injury needs were reflected in four main themes: Communication; Family Burden; Continuity of Care; and Social and Community Support. These themes reflected children's and parents' needs for information, emotional/social/community support, and follow-up care. Both the children's and parents' needs, and the extent to which they were met, appeared to be related to the severity and duration of the child's PCS. CONCLUSIONS: Dedicated pediatric mTBI follow-up services that build on family's resources and meet their individual needs for information, emotional support, and referral may assist in optimizing post-injury outcomes.


Subject(s)
Brain Concussion/rehabilitation , Health Services Needs and Demand/statistics & numerical data , Parents/psychology , Social Support , Adolescent , Adult , Australia , Brain Concussion/psychology , Caregivers/psychology , Child , Child, Preschool , Communication , Continuity of Patient Care , Cost of Illness , Disabled Children , Female , Humans , Male , Middle Aged , Post-Concussion Syndrome/psychology , Post-Concussion Syndrome/rehabilitation
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