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1.
Br J Pain ; 15(2): 147-154, 2021 May.
Article in English | MEDLINE | ID: mdl-34055336

ABSTRACT

OBJECTIVES: To explore the effects of a hypnotic communication (HC) training for paediatric nurses in decreasing patients' pain and distress during venipunctures. METHODS: A 4-day theoretical and practical HC training was offered to five paediatric oncology nurses. The effects of HC were tested with 22 young cancer patients (13 girls, 9 boys, 10 ± 4 years) over four time points, with 88 encounters being video-recorded and coded in stable professional-patient dyads. Patients' pain and distress were rated by patients and parents with visual analogue scales and coded from recordings using the Faces, Legs, Activity, Cry and Consolability (FLACC) scale. RESULTS: We observed a significant decrease in pre-post distress reported by parents (d = 0.45, p = 0.046). Two out of five nurses with higher skills acquisition had larger reduction in patients' self-reported pain (d = 1.03, p = 0.028), parents perceived pain (d = 1.09, p = 0.042), distress (d = 1.05, p = 0.043) as well as observed pain (d = 1.22, p = 0.025). Favourable results on pain and distress did not maintain at follow-up. CONCLUSION AND CLINICAL IMPLICATIONS: Training nurses in HC may translate into improved pain and distress in patients, both self-rated and observed provided that skills are used in practice. HC training is a promising non-pharmacological intervention to address pain in paediatrics.

2.
Complement Ther Med ; 52: 102426, 2020 Aug.
Article in English | MEDLINE | ID: mdl-32951704

ABSTRACT

OBJECTIVES: The purpose of this study was to test the feasibility of a training in hypnotic communication techniques (HCTech) for pediatric nurses to prevent procedural pain and distress in children during venipunctures. Specifically, this study aimed to (1) assess nurses' mastery of HCTech and (2) nurses' experience regarding the training program. METHODS: Participants were 6 female pediatric nurses and 33 of their cancer patients. Nurses took part in a 4-day theoretical and practical training in HCTech. Venipuncture procedures were video-recorded and assessed to evaluate nurses' mastery of HCTech using a standardized scale. Pre-training use of HCTech was compared with post-training and follow-up for the entire nurse sample and across nurses with the same patients (109 nurse-patient interactions). After the follow-up, nurses were questioned about their experience in regards to the training and activities (themes and practice). RESULTS: Results showed medium pre-post changes in hypnotic communication behaviours (pre-post d = 0.74), with changes maintaining at follow-up (pre-follow-up d = 0.97). Interviews transcripts' analyses revealed moderate levels of motivation and satisfaction regarding the training content and format. Nurses suggested to emphasize on the practice of HCTech in a noisy outpatient clinic as well as offer more practical exercises. CONCLUSION: A 4-day training in hypnotic communication techniques translated into the use of HCTech by nurses practicing in pediatric oncology when comparing the same dyads at baseline, post-training and follow-up. Results support further refinement and suggest nurses could be trained to prevent pain and distress with hypnosis-derived communication strategies.


Subject(s)
Attitude of Health Personnel , Communication , Hypnosis/methods , Nurse-Patient Relations , Nurses, Pediatric/education , Pain Management/methods , Phlebotomy/psychology , Adolescent , Adult , Child , Female , Humans , Neoplasms/therapy
3.
Haemophilia ; 25(2): 252-257, 2019 Mar.
Article in English | MEDLINE | ID: mdl-30694571

ABSTRACT

INTRODUCTION: Acquired haemophilia A (AHA) is a rare autoimmune bleeding disorder caused by neutralizing antibodies against factor VIII (FVIII). Despite significant initial morbidity and mortality, most patients achieve remission with immunosuppressive therapy. AIM: Long-term follow-up data from the Quebec Reference Centre for Inhibitors (QRCI) were analysed to identify factors predictive of AHA relapse and the influence of relapse on survival. METHODS: Criteria used to define AHA were levels of FVIII <0.3 IU/mL and FVIII inhibitor titres ≥0.6 Bethesda Units (BU). Complete remission was defined as FVIII >0.5 IU/mL and/or FVIII inhibitor titres <0.6 BU while not on immunosuppression. RESULTS: Between 2000 and 2012, 111 subjects met the inclusion criteria and were followed for a median of 25.6 months. Ninety per cent of them reached remission on immunosuppression in a median time of 45 days. Fourteen patients presented one or more relapses in a median time of 13.4 months. Most relapse episodes were successfully treated. Associated lymphoproliferative syndromes (LPS) were predictive of relapse, whereas FVIII activity and inhibitor titres at initial diagnosis or immunosuppressive regimens were not. The overall survival (OS) was the same, with or without relapse. CONCLUSION: Among the recognized potential risk factors for relapse, only LPS was statistically significant. The long-term follow-up of our patients also showed that late or multiple relapses may occur, but that relapse is not associated with a worse OS. Thus, long-term follow-up is important for optimal management of AHA.


Subject(s)
Hemophilia A/diagnosis , Autoimmune Diseases/complications , Autoimmune Diseases/diagnosis , Coagulants/therapeutic use , Factor VIII/analysis , Follow-Up Studies , Hemophilia A/drug therapy , Hemophilia A/mortality , Humans , Immunosuppressive Agents/therapeutic use , Isoantibodies/blood , Lymphoproliferative Disorders/complications , Lymphoproliferative Disorders/diagnosis , Recurrence , Remission Induction , Risk Factors , Survival Rate
4.
Soc Work ; 63(4): 379-380, 2018 10 01.
Article in English | MEDLINE | ID: mdl-30137514
5.
Complement Ther Med ; 37: 178-184, 2018 Apr.
Article in English | MEDLINE | ID: mdl-29609931

ABSTRACT

BACKGROUND: Several studies in pediatric oncology have shown the successful effects of using hypnotic communication techniques (HCTech) during painful medical procedures. Since no studies assessed the precise use of these techniques with a validated tool, it is unsure that the observed relationships involve the use of HCTech. OBJECTIVES: To develop a scale evaluating healthcare professionals' behaviours when using HCTech and to evaluate its inter-rater reliability. METHODS: This study involved the preliminary steps of the Sainte-Justine Hypnotic Communication Assessment Scale (SJ-HCAS) development process. As part of a larger intervention study, the SJ-HCAS was developed in three steps by five experts and four lay raters using an iterative process applied to subsets of video-recorded nurse-patient interactions. The development aimed to maximize clarity and precision of items as well as minimize redundancy amongst items. Inter-rater reliability was assessed in a randomly selected sample of 1/3 of collected video-recorded interactions (n=42). RESULTS: The final version of the scale is composed of 11 items categorized in two domains pertaining to Relationship and Technique. We found excellent inter-rater reliability for both subscores and total score in two independent inter-rater comparisons (median ICC=0.879), with most items showing very good to perfect inter-rater reliability (median Kappa=0.847). CONCLUSIONS: The results support further work with the SJ-HCAS. The scale has the potential to help ensure the integrity of hypnotic communication training in children which could ultimately promote the dissemination of the practice of HCTech.


Subject(s)
Hypnosis/methods , Mind-Body Therapies/standards , Neoplasms/nursing , Neoplasms/therapy , Nurse-Patient Relations , Adolescent , Adult , Child , Female , Humans , Male , Middle Aged , Nurses, Pediatric , Pediatric Nursing/methods , Young Adult
6.
BMC Hematol ; 16: 26, 2016.
Article in English | MEDLINE | ID: mdl-27833753

ABSTRACT

BACKGROUND: When availability and/or affordability of anti-hemophilic factor concentrates are limited, optimal prophylaxis regimens in severe hemophilia A (HA) remain to be determined. In selected situations, low-dose daily prophylaxis (LDDP) may be an effective and economical option. The goal of our study was to evaluate if subjects on a LDDP regimen could achieve adherence and good clinical outcome. METHODS: Seventeen subjects (age between 15.2 and 28.4) on LDDP suffering from severe/moderate HA were followed prospectively for 2 to 3 years as part of a health-related quality of life (HRQoL) study. Bleeding and treatments data were collected using electronic diaries and validated every three months. The SF-36 questionnaire was administered at the beginning of the study and then every 6 months until the end of the study. RESULTS: The subjects (mean age 22.0, median 21.9, standard deviation 4.06), were all from a single centre and on LDDP for at least 12 months as part of their routine care before entering the study. Fifteen subjects were prescribed a daily dose of 500 IU factor VIII (FVIII) and 2 subjects received 1000 IU FVIII per day, resulting into a median dose of 7.1 IU/kg/day (ranging from 4 to 13 IU/kg/day) and of 2591 IU/kg/year. Median adherence (the percentage of the prescribed daily dose received) was 84 % (mean 80 %, range 57 % to 94 %) throughout the study. Seventy-six bleeds in the 6 index joints and 51 other types of bleeds were observed throughout the study. The median annualized bleeding rate in joints (ABRjoints) was 0.7 and the median annualized bleeding rate for all bleeds (ABRall) was 1.6. The Physical Component and Mental Component Summary scores of SF-36, and the Hemophilia Joint Health Score were not significantly different over the course of the study (respective medians of 49.8, 52.4 and 16.0 at entry; vs. 52.5, 51.5 and 16.0 upon exit). CONCLUSIONS: This prospective longitudinal study in youth and young adults shows that LDDP may be associated with low ABRs, adequate adherence and HRQoL comparable to previously reported.

7.
J Pediatr Hematol Oncol ; 37(5): e328-32, 2015 Jul.
Article in English | MEDLINE | ID: mdl-25851553

ABSTRACT

Children with acute lymphoblastic leukemia (ALL) are at high risk of thrombotic complications, resulting from multiple risk factors (malignancy, chemotherapy, central venous access devices, and inherent host characteristics). Non-O blood groups have been associated with an increased risk of venous thromboembolism (VTE) in adults, with a compounding effect in the presence of thrombophilia or cancer. We hypothesized that among children with ALL receiving a standardized protocol, there would be an increased risk of thrombotic events in non-O compared with O blood group patients. In a retrospective study of 523 children with ALL from June 1995 to April 2013, there were 56 (10.7%) thromboembolic events. Patients with VTE were compared with the whole cohort, based on blood group, age, sex, leukemia phenotype, and clinical risk category. Among children with VTE, 42 (75%) had non-O and 14 (25%) had O blood group, compared with 302 (57.7%) non-O and 221 (42.3%) O blood groups in the cohort. Non-O blood group was confirmed as an independent risk factor for VTE in multivariate analysis. This is the first study to report a significant association between non-O blood groups and VTE in children with cancer.


Subject(s)
ABO Blood-Group System/adverse effects , Precursor Cell Lymphoblastic Leukemia-Lymphoma/complications , Venous Thrombosis/epidemiology , Antineoplastic Combined Chemotherapy Protocols/therapeutic use , Child , Humans , Precursor Cell Lymphoblastic Leukemia-Lymphoma/blood , Precursor Cell Lymphoblastic Leukemia-Lymphoma/drug therapy , Prevalence , Proportional Hazards Models , Retrospective Studies , Risk Factors , Thrombosis/epidemiology , Thrombosis/etiology , Venous Thrombosis/blood , Venous Thrombosis/etiology
9.
Soc Work Public Health ; 23(6): 99-125, 2008.
Article in English | MEDLINE | ID: mdl-19301546

ABSTRACT

In recent years, increasing attention has been paid to the delivery of primary care services to underserved populations. This paper presents a subset of data from a larger exploratory study that examined how three professional groups (social workers, physicians, and administrators) in neighborhood health centers perceived the type and extent of psychosocial problems in their patient populations and the roles of their staff in addressing these problems. We examined the perceptions of physicians, administrators, and social workers as to who handles various psychosocial problems and whose responsibility it is to perform a range of psychosocial functions, with a focus on the function of social work. Social workers were highly praised and valued by administrators and physicians. While the respondents in neighborhood health centers confirmed the value of social work, public and private funders are reluctant to reimburse for social services beyond limited clinically diagnosed mental health services. Outcomes studies focused on the efficacy and efficiency of social work practice in neighborhood health centers are necessary to begin to overcome this barrier to social work services.


Subject(s)
Community Health Centers , Insurance, Health, Reimbursement , Social Work , Female , Humans , Interviews as Topic , Male , New York City , Primary Health Care , United States
10.
Health Soc Work ; 30(2): 155-65, 2005 May.
Article in English | MEDLINE | ID: mdl-15974376

ABSTRACT

This article examines the responses of social work administrators to the changes occurring throughout their hospitals over three time periods in the 1990s; the major accomplishments of social work services in their facilities; and the failures, frustrations, and obstacles in the delivery of social work services. It compares the reports of social work director cohorts on the changes they experienced over an eight-year period with what they had expected in their settings. It also analyzes their perceptions over time of obstacles and opportunities for hospital social work administrators in response to these changes. The authors present the ways in which social work administrators understand and address the complexities they face.


Subject(s)
Delivery of Health Care/organization & administration , Hospital Administrators/psychology , Leadership , Social Work Department, Hospital/organization & administration , Cohort Studies , Humans , Longitudinal Studies , Organizational Innovation , Surveys and Questionnaires
11.
J Community Health ; 30(2): 125-40, 2005 Apr.
Article in English | MEDLINE | ID: mdl-15810565

ABSTRACT

Little is known about how health care professionals perceive and understand the psychosocial problems of individuals receiving services in neighborhood health centers (NHCs). We conducted interviews with health care professionals in NHCs in New York City. The respondents identified seven problems, including a lack of financial resources, unsafe housing, and emotional distress/depression as affecting large portions of their patient populations. Respondents reported that they are presently meeting many of the psychosocial needs of their clients, but they were pessimistic about their ability to continue to do so due to a lack of funding streams to support their provision of comprehensive health care that includes psychosocial services. The findings suggest that while NHCs may be "holding their own" in providing quality services to their clients, this will be harder to sustain in the future if the numbers of the uninsured served continues to increase, and the revenues generated continue to decrease.


Subject(s)
Attitude of Health Personnel , Community Health Centers/statistics & numerical data , Psychosocial Deprivation , Adult , Aged , Data Collection , Female , Health Services Needs and Demand/classification , Humans , Male , New York City , Quality of Health Care
12.
Soc Work Health Care ; 37(2): 71-100, 2003.
Article in English | MEDLINE | ID: mdl-12959487

ABSTRACT

This article builds on prior analyses of data collected from a qualitative study of 50 pairs of social worker-physician collaborators in. This article presents the elements of a typology of collaborators from both professions developed from those analyses. The typology was also applied to the entire sample and each respondent characterized according to type (traditional, transitional or transformational). Further analysis was done to evaluate the relationships between type and collaborative perspectives. The sample was primarily transitional (56%-58%) and there were more traditional social workers (22%) and transformational doctors (24%) than anticipated. Social workers, as a group, were much less satisfied with the doctors than the doctors were with them although both groups of traditional respondents were the most dissatisfied. Both groups were least transformational in relation to control over decision making.


Subject(s)
Cooperative Behavior , Interprofessional Relations , Physicians/psychology , Professional Role/psychology , Social Work/classification , Decision Making, Organizational , Female , Health Services Research , Humans , Male , Massachusetts , New York , Patient Care Team , Physicians/statistics & numerical data , Surveys and Questionnaires
13.
Soc Work Health Care ; 37(1): 1-18, 2003.
Article in English | MEDLINE | ID: mdl-12921403

ABSTRACT

Market forces continue to shape the health care environment, producing radical changes within the hospital. These changes are affecting social work structure, staffing, and processes within the hospital setting, particularly in the area of social work staffing. This paper examines the changes impacting hospital settings over three fiscal years. A primary question is whether or not social work staffing is being negatively impacted by these hospital changes, and what factors predict the downsizing of social work staff.


Subject(s)
Organizational Innovation , Personnel Staffing and Scheduling/trends , Social Work Department, Hospital , Health Services Research , Leadership , Longitudinal Studies , Personnel Downsizing , Workforce
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