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1.
Arch Gerontol Geriatr ; 122: 105371, 2024 Jul.
Article in English | MEDLINE | ID: mdl-38471410

ABSTRACT

INTRODUCTION: Functional decline, chronic illness, reduced quality of life and increased healthcare utilisation are common in older adults. Evidence suggests music and dance can support healthy ageing in older adults. This study explored the feasibility, potential for effect and cost effectiveness of the Music and Movement for Health (MMH) programme among community-dwelling older adults using a pragmatic cluster-randomised, controlled feasibility trial design. METHODS: Community-dwelling adults aged 65 years or older were recruited to seven clusters in the Mid-West region of Ireland. Clusters were block randomised to either the MMH intervention or control. Primary feasibility outcomes included recruitment, retention, adherence, fidelity, and safety. Secondary outcomes measured physical activity, physical and cognitive performance, and psychosocial well-being, along with healthcare utilisation were assessed at baseline and after 12 weeks. RESULTS: The study successfully met feasibility targets, with recruitment (n = 100), retention (91 %), adherence (71 %), data completeness (92 %) and intervention fidelity (21 out of 24) all meeting predetermined criteria. Both groups exhibited an increase in self-reported physical activity and improved physical function. Participants in the intervention group scored consistently better in psychosocial measures compared to the control group at follow-up. The health economic analysis confirmed the feasibility of the methodology employed and points to the potential cost-effectiveness of the MMH relative to the control or no organised programme. DISCUSSION AND IMPLICATIONS: The MMH intervention and study design were found to be feasible and acceptable with important findings to inform future evaluation of the clinical and cost-effectiveness of a definitive randomised controlled trial.


Subject(s)
Feasibility Studies , Independent Living , Humans , Aged , Male , Female , Music Therapy/methods , Quality of Life , Dancing/psychology , Exercise , Cost-Benefit Analysis , Ireland , Aged, 80 and over , Dance Therapy/methods , Healthy Aging/psychology
2.
Article in English | MEDLINE | ID: mdl-37239545

ABSTRACT

There are many music experiences for people with dementia and their caregivers including but not limited to individualized playlists, music and singing groups, dementia-inclusive choirs and concerts, and music therapy. While the benefits of these music experiences have been well documented, an understanding of the differences between them is often absent. However, knowledge of and distinction between these experiences are crucial to people with dementia and their family members, caregivers, and health practitioners to ensure a comprehensive music approach to dementia care is provided. Considering the array of music experiences available, choosing the most appropriate music experience can be challenging. This is an exploratory phenomenological study with significant Public and Patient Involvement (PPI). Through consultation with PPI contributors with dementia via an online focus group and senior music therapists working in dementia care via online semi-structured interviews, this paper aims to identify these distinctions and to address this challenge by providing a visual step-by-step guide. This guide can be consulted when choosing an appropriate music experience for a person with dementia living in the community.


Subject(s)
Dementia , Music Therapy , Music , Singing , Humans , Dementia/therapy , Caregivers
3.
Rural Remote Health ; 23(1): 8162, 2023 01.
Article in English | MEDLINE | ID: mdl-36802704

ABSTRACT

INTRODUCTION: Since the outset of COVID-19, we have become more reliant on technology to stay connected to others. Notable benefits of telehealth have been observed, including increased access to health and community support services for community dwelling people living with dementia and their family caregivers and diminishing barriers such as geographical location, mobility issues and increased cognitive decline. Music therapy is an evidence-based intervention for people living with dementia and has been proven to promote improved quality of life, increase social interaction and provide a form of meaningful communication and expression when language becomes difficult. This project is one of the first internationally to pilot telehealth music therapy for this population. METHODS: This mixed methods action research project has six iterative phases of planning, research, action, evaluation, and monitoring. Public and Patient Involvement (PPI) has been sought from members of The Dementia Research Advisory Team at the Alzheimer Society of Ireland at all stages of the research process to ensure the research remains relevant and applicable to those with dementia. The presentation will briefly outline the phases of the project. RESULTS: Preliminary results from this ongoing research suggest that there is feasibility for telehealth music therapy to provide psychosocial support to this population. Collaboration with PPI contributors resulted in the following research priorities: (1) ensuring a person-centered approach; (2) advanced care planning using music; and (3) the signposting of music related supports for community dwelling people living with dementia. Music therapy is being piloted currently and preliminary results will be outlined. DISCUSSION: Telehealth music therapy has the potential to complement existing rural health and community services for people living with dementia, in particular addressing social isolation. Recommendations regarding the relevance of cultural and leisure pursuits on health and well-being of people living with dementia will be discussed, particularly the development of online access.


Subject(s)
COVID-19 , Dementia , Music Therapy , Music , Telemedicine , Humans , Caregivers/psychology , Dementia/therapy , Dementia/psychology , Independent Living , Quality of Life , Ireland
4.
Rural Remote Health ; 23(1): 8142, 2023 01.
Article in English | MEDLINE | ID: mdl-36802717

ABSTRACT

Introduction (including aim): There is a lack of community-based programmes for older adults in Ireland. Such activities are vital to enable older people to (re)connect after COVID-19 measures, which had a detrimental effect on physical function, mental health and socialisation. The aims of the preliminary phases of the Music and Movement for Health study were to refine stakeholder informed eligibility criteria, recruitment pathways and obtain preliminary measures for feasibility of the study design and programme, which incorporates research evidence, practice expertise and participant involvement. METHODS: Two Transparent Expert Consultations (TECs) (EHSREC No: 2021_09_12_EHS), and Patient and Public Involvement (PPI) meetings were conducted to refine eligibility criteria and recruitment pathways. Participants from three geographical regions in the mid-west of Ireland will be recruited and randomised by cluster to participate in either a 12-week Music and Movement for Health programme or control. We will assess the feasibility and success of these recruitment strategies by reporting recruitment rates, retention rates and participation in the programme. RESULTS: Both the TECs and PPIs provided stakeholder-informed specification on inclusion/ exclusion criteria and recruitment pathways. This feedback was vital in strengthening our community-based approach as well as effecting change at the local level. The success of these strategies from phase 1 (March-June) are pending. DISCUSSION: Through engaging with relevant stakeholders, this research aims to strengthen community systems by embedding feasible, enjoyable, sustainable and cost-effective programmes for older adults to support community connection and enhance health and wellbeing. This will, in turn, reduce demands on the healthcare system.Note: We would like to thank and acknowledge those who participated in the PPIs for their time and invaluable feedback.


Subject(s)
COVID-19 , Music , Humans , Aged , Feasibility Studies , Health Promotion , Mental Health
6.
Health Promot Int ; 37(6)2022 Dec 01.
Article in English | MEDLINE | ID: mdl-36482784

ABSTRACT

A mixed-methods concurrent identical design was implemented to explore the following research question: what are the emotional, social, and practical impacts of group singing for women from a regeneration area? Members of an all-female community choir based in an area of disadvantage participated in a focus group and survey. The most significant quantitative finding was an increase in the overall perceived level of health, which seemed linked to qualitative themes of 'positive emotions', 'redefining and reclaiming identity', 'choir as an extended family' and 'community interaction and impact'. Three themes arose from qualitative data: social impact, health and well-being aspects, and practical issues. Integrating qualitative and quantitative findings identified an overarching concept that 'choir participation may increase emotional and social health and well-being'. Group singing was found beneficial, with a potential to serve as a resource in cultivating resilience in individuals living in areas of disadvantage.


There is a growing body of evidence supporting the health and emotional, social, and psychological well-being benefits of group singing (Clift et al., 2008, 2010; Clift and Hancox, 2010; Reagon et al., 2016; Fancourt and Finn, 2019). This study explored the experience of group singing for a specific demographic: women from an area of disadvantage. Members of an all-female choir based in a council estate of Limerick participated in a focus group and completed a survey investigating the emotional, social and practical impacts of group singing. Gains were noted across all three categories, and participant feedback was overwhelmingly positive regarding the benefits of choir membership. There were two particularly noteworthy findings: the 'universality of singing' across various age groups and 'weariness of labels', a novel subtheme that emerged during the focus group.


Subject(s)
Singing , Female , Humans , Extended Family
7.
8.
Health Promot Int ; 37(Supplement_1): i49-i61, 2022 Jun 02.
Article in English | MEDLINE | ID: mdl-35417003

ABSTRACT

The majority of people living with dementia are cared for by their families. Family carers play a vital role in upholding the formal care system. Caring for a family member with dementia can be fulfilling. However, this role can have a considerable negative impact on family carers' mental and physical health and quality of life. Several empirical research studies have recently been conducted that explore the potential benefits of music interventions for family carers of people living with dementia. Singing has been the primary musical medium employed. This article presents the first review of this literature to date. It investigates the impact of music interventions on the health and well-being of family carers of people living with dementia, and how they experience and perceive these interventions. Whittemore and Knafl's five-stage integrative review framework was utilized: (i) problem identification; (ii) literature search; (iii) data evaluation; (iv) data analysis and synthesis; and (v) presentation of the findings. A total of 33 studies met the inclusion criteria. Analysis and synthesis resulted in three overarching themes: impact on family carers, carer perceptions of music interventions and null quantitative findings in small studies. The review found that singing and music interventions may improve family carers' social and emotional well-being, enhance their ability to cope and care and ameliorate the caring relationship, contributing to experiences of flourishing. However, it highlighted that this area is under-researched and pointed to the need for larger, more rigorous studies.


Subject(s)
Dementia , Music Therapy , Music , Singing , Caregivers/psychology , Dementia/psychology , Dementia/therapy , Family/psychology , Humans , Quality of Life
9.
HRB Open Res ; 5: 42, 2022.
Article in English | MEDLINE | ID: mdl-36726486

ABSTRACT

Background: Arts-based health programmes (ABHP) can enhance the physical and psychosocial health and wellbeing of older people. However, the feasibility and usefulness of such programmes in Ireland are currently unknown. The primary aim of this study is to examine the feasibility of the study design, its application to a music and movement for health programme and associated costs. The secondary aim is to obtain preliminary effect estimates of an ABHP on health and wellbeing in older adults. Methods: This study is a pragmatic cluster-randomised controlled feasibility trial. Community-dwelling adults, aged 65 years or older will be recruited in the mid-west region of Ireland via methods including social prescription, traditional and social media. The clusters, based on geographical region, will be block randomised to either the ABHP or control using 1:1 allocation ratio. The programme will comprise a 1.5-hour music and dance session each week for 12-weeks together with a 1-hour home-based music and movement programme for 12-weeks. A qualitative and quantitative process evaluation of the arts-based health programme will be performed. Outcomes: Primary outcomes for feasibility include recruitment rates (the number of participants recruited per cluster per month); retention rate (the number of participants who complete measures at baseline and at follow up post intervention, and minimum average attendance. Secondary outcomes will include physical function, balance, physical activity, loneliness, social isolation, cognition, mood, as well as quality of life and cost. Conclusions: If this pioneering study finds evidence to support feasibility and acceptability, a future larger-scale definitive trial will be conducted to examine the effectiveness of an arts-based health programme for older adults. This research aims to strengthen collaborative efforts to implement effective, sustainable and cost-effective programmes for older adults to support community connection, enhancing health and wellbeing, in turn reducing demands on the healthcare system. ISRCTN registration: ISRCTN35313497 (18/02/2022).

10.
Arts Health ; 14(1): 85-101, 2022 02.
Article in English | MEDLINE | ID: mdl-33119993

ABSTRACT

BACKGROUND: Dementia can negatively impact the well-being of people living with dementia and their family carers. Research suggests that music psychosocial interventions are effective, safe alternatives to pharmacological interventions for the promotion of well-being . However, evidence is limited, and research gaps remain. This study explores how a community-based group singing intervention impacts the well-being of people with early-stage dementia and their family carers. METHODS: A phenomenological methodological approach was adopted. Participants engaged in a six-week group singing intervention facilitated by a music therapist in a community arts centre. Semi-structured interviews were conducted (n = 7). RESULTS: Interpretative Phenomenological Analysis revealed four superordinate themes: (1) Social Connection; (2) Happiness and Rejuvenation; (3) Reconnection with the Self; and (4) Supporting the Carer-Cared-for Relationship. CONCLUSIONS: Evidence of multidimensional enhancement of well-being, absence of adverse effects, and accessibility of this musical medium support the increased provision of community-based singing groups for these populations.


Subject(s)
Dementia , Music , Singing , Caregivers/psychology , Dementia/psychology , Dementia/therapy , Humans
12.
Complement Ther Med ; 60: 102745, 2021 Aug.
Article in English | MEDLINE | ID: mdl-34102278

ABSTRACT

BACKGROUND: A period of hospitalisation can have negative consequences on physical function and autonomy for older adults, including functional decline, dependency and reduced quality of life. Older adults favour activity that focuses on social connectedness, fun and achievable skills. OBJECTIVE: The primary aim of this early-stage development mixed methods study was to determine the feasibility and acceptability of a randomised crossover trial design and two arts-based interventions tailored for older adults recently discharged from hospital. MATERIALS AND METHODS: Community-dwelling adults, aged 65 years and older, who reported reduced mobility and less than six weeks post discharge from hospital were invited to participate in the study. Two sites were randomised to either a four-week dance or music therapy intervention, followed by a four-week washout and subsequently to the alternate intervention. Participants and stakeholders were interviewed to share their views and perspectives of the study design and interventions developed. RESULTS: The arts-based interventions were acceptable and safe for participants. Randomisation was completed per protocol and no implementation issues were identified. The outcome measures used were acceptable and feasible for this group of patients and did not lead to fatigue or excessive assessment time. Participants were positive about their experience of the programme. CONCLUSIONS: This early development study provides a precursor and several imperative learning points to guide and inform future research in the area. Difficulties in recruitment and attrition were in part due to the barriers encountered when recruiting an incident cohort of vulnerable individuals post hospitalisation.


Subject(s)
Dancing , Quality of Life , Aftercare , Aged , Hospitalization , Humans , Patient Discharge
13.
Dementia (London) ; 20(1): 373-380, 2021 Jan.
Article in English | MEDLINE | ID: mdl-31684765

ABSTRACT

This paper presents innovative practice in the area of interdisciplinary collaboration between pastoral care and music therapy professionals to meet the spiritual needs of people with dementia in a hospital environment. Our qualitative research identified the following themes to guide future endeavours in this area: Music has the capacity to facilitate spiritual expression; music therapy contributes to validating the individuality of the person with dementia; collaborative work between music therapy and pastoral care is worthy of further exploration. This study is one of few to address the potential for combining pastoral care and music therapy in the care of people with dementia.


Subject(s)
Dementia , Music Therapy , Pastoral Care , Dementia/therapy , Humans , Music , Spirituality
14.
Clin Med (Lond) ; 20(2): 208-211, 2020 03.
Article in English | MEDLINE | ID: mdl-32188660

ABSTRACT

Although the medical humanities are increasingly well established in terms of scholarly research and undergraduate medical education, a notable deficit has been its low profile in postgraduate training and continuing professional development (CPD).We undertook to develop a programme in the medical humanities to address the deficit in CPD and specialist training, working with colleagues in a range of colleges and disciplines in Ireland. We describe the first element, a masterclass embedded in a series devoted to more traditionally recognised clinical aspects of CPD, webcast live to a range of hospitals across Ireland, whose focus was an introduction to the medical humanities by a panel of clinician scholars each of whom had published in peer-reviewed journals on the topic.Postgraduate colleges of medicine can play an important role in developing medical humanities strands in their postgraduate training and CPD activities. Given the relative novelty of developing postgraduate training and CPD in medical humanities, it may be worthwhile developing an intercollegiate platform among the wider range of medical colleges in the British Isles to jointly develop the most effective mechanisms to further propagate medical humanities and leverage the expertise of a larger pool of faculty in medical humanities.


Subject(s)
Education, Medical, Undergraduate , Humanities , Curriculum , Education, Medical, Continuing , Humans , Ireland
15.
Health Promot Int ; 35(3): 527-534, 2020 Jun 01.
Article in English | MEDLINE | ID: mdl-31132126

ABSTRACT

This paper explores the well-being ['well-being' and 'wellbeing' are used interchangeably in the literature. Well-being is used in this paper (except in the reference list where exact wording is maintained)] benefits of participation in a workplace choir for health service staff. A mixed method study, this project combines quantitative measures of work engagement, perceived stress, resilience levels and work absences with qualitative interviews with choir participants. It is the first study of workplace choirs in Ireland and one of very few studies internationally that research health service staff choirs. There is some preliminary evidence of benefits that choir attendance may increase positive perception of workers' mental health as well as effect depression rates. However, evidence is limited quantitatively and difficulties in measuring the health benefits of arts interventions are noted. Qualitative data, however, confirms previous study findings, namely that a workplace choir can promote social connectedness, enjoyment at work and staff engagement. Work place choir was also noted to appeal mainly to a limited demographic of work place staff and people with relatively positive health and well-being. Efforts must be made to engage staff from lower socio-economic backgrounds, diverse cultural backgrounds and male staff in work place health promotion activities, as these groups were found less likely to join a work place choir. Given the low cost and low risk of this activity, and the qualitative benefits reported, it is recommended to continue to develop and evaluate health service workplace choirs.


Subject(s)
Health Promotion/methods , Mental Health/statistics & numerical data , Singing , Adult , Female , Health Services , Humans , Ireland , Male , Middle Aged , Personnel, Hospital/psychology , Qualitative Research , Sick Leave/statistics & numerical data , Stress, Psychological , Surveys and Questionnaires , Workplace/psychology
17.
J Med Humanit ; 40(1): 85-100, 2019 Mar.
Article in English | MEDLINE | ID: mdl-27966059

ABSTRACT

This paper explores the role of the curator in hospitals. The arts play a significant role in every society; however, recent studies indicate a neglect of the aesthetic environment of healthcare. This international study explores the complex role of the curator in modern hospitals. Semi-structured interviews were conducted with ten arts specialists in hospitals across five countries and three continents for a qualitative, phenomenological study. Five themes arose from the data: (1) Patient involvement and influence on the arts programme in hospital (2) Understanding the role of the curator in hospital (3) Influences on arts programming in hospital (4) Types of arts programmes (5) Limitations to effective curation in hospital. Recommendations arising from the research included recognition of the specialised role of the curator in hospitals; building positive links with clinical staff to effect positive hospital arts programmes and increasing formal involvement of patients in arts planning in hospital. Hospital curation can be a vibrant arena for arts development, and the role of the hospital curator is a ground-breaking specialist role that can bring benefits to hospital life. The role of curator in hospital deserves to be supported and developed by both the arts and health sectors.


Subject(s)
Art , Hospitals , Professional Role , Administrative Personnel , Developed Countries , Female , Humanities , Humans , Interviews as Topic , Male , Qualitative Research
19.
Thromb J ; 16: 8, 2018.
Article in English | MEDLINE | ID: mdl-29445314

ABSTRACT

BACKGROUND: An incidental/unsuspected diagnosis of pulmonary embolism (IPE) in cancer patients is a frequent occurrence. This single-institution analysis of uniformly managed patients investigates short and long-term outcomes and proposes a prognostic risk score, aiming to assist clinical decision-making. METHODS: Data from a prospectively recorded cohort of 234 consecutive cancer patients with IPE were analysed. Multivariate logistic regression and the Cox regression survival methods were used to identify factors with independent association with early (30-day, 3-month, 6-month) mortality and survival. Receiver operator characteristic analysis (ROC) was used to assess appropriate cut-offs for continuous variables and the fitness of prognostic scoring. RESULTS: 30-day, 3-month and 6-month mortality was 3.4% (n = 8), 15% (n = 35) and 31% (n = 72) respectively. Recurrence during anticoagulation occurred in 2.6% (n = 6) and major haemorrhage in 2.1% (n = 5) of the patients. A prognostic score incorporating performance status (0 vs 1-2 vs 3-4) and the presence of new or worsening symptoms, with and without the consideration of the presence of incurable malignancy, correlated with overall survival (p < .001 respectively) as well as early mortality (AUC = .821, p = .004 and AUC = .805, p = 0.006, respectively). CONCLUSION: A simple prognostic score incorporating basic oncologic clinical assessment and self-reported symptomatology could reliably stratify the mortality risk of ambulant cancer patients and IPE. TRIAL REGISTRATION: Audit registration No. 2013.287, Hull and East Yorkshire Hospitals Trust, 29/11/2013.

20.
Perspect Public Health ; 138(3): 160-168, 2018 May.
Article in English | MEDLINE | ID: mdl-29137545

ABSTRACT

AIM: This mixed-methods exploratory study investigates the perceived health benefits of singing in a choir from an international sample of choristers. METHOD: An online questionnaire including demographic information, 28 quantitative statements and two qualitative questions relating to the perceived health benefits of singing in a choir was distributed via email and social media over a period of 4 months to a sample of 1,779 choristers. Basic descriptives and comparisons between subgroups of the sample are presented along with thematic analysis of qualitative comments. RESULTS: Basic descriptives suggest an overwhelmingly positive response. Females scored significantly higher than males on physical benefits, social benefits and emotional benefits. Professional singers reported significantly more physical, social and spiritual benefits than amateur singers. Bias may be present in these findings as the results were entirely self-reported by people who already sing in choirs. Qualitative thematic analysis identified six key themes which may counter this bias by providing deeper understanding of the perceived benefits for choir singers. These include social connection, physical and physiological benefits (specifically respiratory health), cognitive stimulation, mental health, enjoyment and transcendence. CONCLUSION: Choral singing elicits a positive response in the chorister across a plethora of domains. This research confirms previous findings on the health benefits of singing but offers evidence from the largest sample of singers to date. However, results are based on self-perceptions of choristers, and findings are, therefore, limited. Results may be used as a base on which to develop further research in this area. It also provides confirmatory evidence to support choral singing as a means of improving wellbeing in many populations, including but not limited to workplaces, schools, nursing homes, communities and churches.


Subject(s)
Health Status , Interpersonal Relations , Quality of Life , Singing , Spirituality , Adolescent , Adult , Aged , Aged, 80 and over , Cognition , Cross-Sectional Studies , Emotions , Female , Happiness , Humans , Male , Mental Health , Middle Aged , Perception , Personal Satisfaction , Qualitative Research , Sex Factors , Socioeconomic Factors , Young Adult
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