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1.
J Cancer Surviv ; 14(6): 939-958, 2020 12.
Article in English | MEDLINE | ID: mdl-32607715

ABSTRACT

PURPOSE: This study explored cancer survivors' experiences with and priorities for cancer survivorship care to describe a patient-centered approach to quality survivorship care. METHODS: We conducted 22 focus groups with 170 adult survivors of breast, prostate, and colorectal cancer from six cities across the country and online. We used thematic analysis to identify participants' principles and priorities for quality survivorship care. RESULTS: Based on our analysis of a limited group of cancer survivors, we identified two core principles that underlie participants' expectations for survivorship care and 11 practice priorities that reflect opportunities to improve patient-centeredness at the individual, interpersonal, and organizational levels. The principles reflect participants' desire to be better prepared for and equipped to accept and manage their chronic care needs post-cancer treatment. The priorities reflect practices that patients, providers, and cancer centers can engage in to ensure survivors' goals for post-treatment care are met. CONCLUSIONS: Results from the study suggest the need to expand conceptualization of high-quality survivorship care. The survivor principles and practice priorities identified in this study challenge the field to organize a more patient-centered survivorship care system that empowers and respects patients and provides a holistic approach to survivors' chronic and long-term needs. IMPLICATIONS FOR CANCER SURVIVORS: Quality cancer survivorship care must reflect patients' priorities. The findings from this study can be used to develop a patient-centered framework for survivorship care that can be used in conjunction with quality guidelines to ensure survivorship care is organized to achieve both clinical and patient-centered outcomes.


Subject(s)
Cancer Survivors/psychology , Concept Formation , Delivery of Health Care/standards , Neoplasms/therapy , Patient-Centered Care/organization & administration , Quality of Health Care/standards , Survivorship , Female , Humans , Male , Middle Aged , Outcome Assessment, Health Care
2.
Am J Obstet Gynecol ; 212(2): 171.e1-8, 2015 Feb.
Article in English | MEDLINE | ID: mdl-25093946

ABSTRACT

OBJECTIVE: The objective of the study was to examine the associations between prenatal and postpartum contraceptive counseling and postpartum contraceptive use. STUDY DESIGN: The Pregnancy Risk Assessment Monitoring System 2004-2008 data were analyzed from Missouri, New York state, and New York City (n = 9536). We used multivariable logistic regression to assess the associations between prenatal and postpartum contraceptive counseling and postpartum contraceptive use, defined as any method and more effective methods (sterilization, intrauterine device, or hormonal methods). RESULTS: The majority of women received prenatal (78%) and postpartum (86%) contraceptive counseling; 72% received both. Compared with those who received no counseling, those counseled during 1 time period (adjusted odds ratio [AOR], 2.10; 95% confidence interval [CI], 1.65-2.67) and both time periods (AOR, 2.33; 95% CI, 1.87-2.89) had significantly increased odds of postpartum use of a more effective contraceptive method (32% vs 49% and 56%, respectively; P for trend < .0001). Results for counseling during both time periods differed by type of health insurance before pregnancy, with greater odds of postpartum use of a more effective method observed for women with no insurance (AOR, 3.51; 95% CI, 2.18-5.66) and Medicaid insurance (AOR, 3.74; 95% CI, 1.98-7.06) than for those with private insurance (AOR, 1.87; 95% CI, 1.44-2.43) before pregnancy. Findings were similar for postpartum use of any contraceptive method, except that no differences by insurance status were detected. CONCLUSION: The prevalence of postpartum contraceptive use, including the use of more effective methods, was highest when contraceptive counseling was provided during both prenatal and postpartum time periods. Women with Medicaid or no health insurance before pregnancy benefited the most.


Subject(s)
Contraception Behavior , Contraception/statistics & numerical data , Counseling/statistics & numerical data , Postnatal Care/statistics & numerical data , Prenatal Care/statistics & numerical data , Adult , Contraception/methods , Contraceptive Agents, Female/therapeutic use , Contraceptive Devices, Female/statistics & numerical data , Contraceptives, Oral/therapeutic use , Female , Humans , Insurance, Health/statistics & numerical data , Intrauterine Devices/statistics & numerical data , Logistic Models , Medicaid/statistics & numerical data , Multivariate Analysis , Postnatal Care/methods , Pregnancy , Prenatal Care/methods , Sterilization, Reproductive/statistics & numerical data , United States , Young Adult
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