[Information sources and therapeutic education in autoimmune bullous diseases]. / Sources d'information et éducation thérapeutique dans les maladies bulleuses auto-immunes.

Finding information about diseases and their treatment can be useful for healthcare professionals, patients and their families. The Internet has made it easy to find information on rare diseases. However, it is sometimes difficult to select useful and accurate data sources. One of the roles of reference centers and patient associations is to provide appropriate, high-quality information. Another of their aims is to develop therapeutic patient education to improve quality of life.

[Hygiene care and local treatment of skin and mucous membranes in autoimmune bullous diseases]. / Soins d'hygiène et traitements locaux de la peau et des muqueuses dans les maladies bulleuses auto-immunes.

As part of its therapeutic patient education program, the Avicenne hospital in the Paris region invites patients with an autoimmune bullous disease to a workshop dedicated to local skin and mucous membrane care. Together, a nurse, patient partners and patients review best practices in hygiene care and treatment of the skin, eyes, nose, mouth, genitals and anus. This is essential for healing lesions and avoiding local complications.