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1.
Am J Clin Oncol ; 41(6): 519-525, 2018 06.
Article in English | MEDLINE | ID: mdl-27465657

ABSTRACT

OBJECTIVES: The rate of contralateral prophylactic mastectomy (CPM) has risen sharply in the past decade. The current study was designed to examine social network, surgeon, and media influence on patients' CPM decision-making, examining not only who influenced the decision, and to what extent, but also the type of influence exerted. METHODS: Patients (N=113) who underwent CPM at 4 Indiana University-affiliated hospitals between 2008 and 2012 completed structured telephone interviews in 2013. Questions addressed the involvement and influence of the social network (family, friends, and nonsurgeon health professionals), surgeon, and media on the CPM decision. RESULTS: Spouses, children, family, friends, and health professionals were reported as exerting a meaningful degree of influence on patients' decisions, largely in ways that were positive or neutral toward CPM. Most surgeons were regarded as providing options rather than encouraging or discouraging CPM. Media influence was present, but limited. CONCLUSIONS: Patients who choose CPM do so with influence and support from members of their social networks. Reversing the increasing choice of CPM will require educating these influential others, which can be accomplished by encouraging patients to include them in clinical consultations, and by providing patients with educational materials that can be shared with their social networks. Surgeons need to be perceived as having an opinion, specifically that CPM should be reserved for those patients for whom it is medically indicated.


Subject(s)
Breast Neoplasms/psychology , Decision Making , Directive Counseling , Prophylactic Mastectomy/psychology , Social Networking , Surgeons/statistics & numerical data , Adult , Aged , Breast Neoplasms/surgery , Female , Follow-Up Studies , Humans , Middle Aged , Prognosis , Referral and Consultation , Surveys and Questionnaires , Young Adult
2.
BMC Womens Health ; 17(1): 10, 2017 02 01.
Article in English | MEDLINE | ID: mdl-28143474

ABSTRACT

BACKGROUND: Despite no demonstrated survival advantage for women at average risk of breast cancer, rates of contralateral prophylactic mastectomy (CPM) continue to increase. Research reveals women with higher socioeconomic status (SES) are more likely to select CPM. This study examines how indicators of SES, age, and disease severity affect CPM motivations. METHODS: Patients (N = 113) who underwent CPM at four Indiana University affiliated hospitals completed telephone interviews in 2013. Participants answered questions about 11 CPM motivations and provided demographic information. Responses to motivation items were factor analyzed, resulting in 4 motivational factors: reducing long-term risk, symmetry, avoiding future medical visits, and avoiding treatments. RESULTS: Across demographic differences, reducing long-term risk was the strongest CPM motivation. Lower income predicted stronger motivation to reduce long-term risk and avoid treatment. Older participants were more motivated to avoid treatment; younger and more-educated patients were more concerned about symmetry. Greater severity of diagnosis predicted avoiding treatments. CONCLUSIONS: Reducing long-term risk is the primary motivation across groups, but there are also notable differences as a function of age, education, income, and disease severity. To stop the trend of increasing CPM, physicians must tailor patient counseling to address motivations that are consistent across patient populations and those that vary between populations.


Subject(s)
Breast Neoplasms/prevention & control , Health Knowledge, Attitudes, Practice , Motivation , Prophylactic Mastectomy/psychology , Social Class , Adult , Breast Neoplasms/psychology , Educational Status , Female , Humans , Income/statistics & numerical data , Indiana , Middle Aged , Prophylactic Mastectomy/trends , Racial Groups/psychology , Risk Adjustment/methods , Surveys and Questionnaires , Survivors/psychology , Survivors/statistics & numerical data
3.
Health Commun ; 30(8): 772-83, 2015.
Article in English | MEDLINE | ID: mdl-25175387

ABSTRACT

Drawing on Goldsmith's (2004) normative theory, this article maps dilemmas family members experience when talking with returning service members (SMs) about seeking mental health care. Eighty family members of United States SMs who served in Iraq or Afghanistan read a scenario where their SM was displaying posttraumatic stress disorder (PTSD) or depression symptoms. Participants described goals they would pursue, barriers they might encounter, and advice they would give others in the situation. Four dilemmas of talking about mental health emerged: (a) getting you to recognize the problem without implying you're not normal, (b) convincing you to seek help without implying you're weak, (c) being persistent but patient, and (d) wanting you to open up without implying I can understand. Family members reported using four groups of strategies to manage these dilemmas. Directions for expanding the concept of dilemmas as "paradoxes" and for supporting military families as well as rethinking policy assumptions are discussed.


Subject(s)
Communication , Conflict, Psychological , Depression/therapy , Family/psychology , Military Personnel/psychology , Patient Acceptance of Health Care/psychology , Stress Disorders, Post-Traumatic/therapy , Adult , Afghan Campaign 2001- , Female , Humans , Iraq War, 2003-2011 , Male , Middle Aged , Military Personnel/statistics & numerical data , United States , Young Adult
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