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1.
Patient Educ Couns ; 101(3): 452-459, 2018 03.
Article in English | MEDLINE | ID: mdl-29078964

ABSTRACT

OBJECTIVE: To examine the acceptability of and preliminary effects associated with a novel educational intervention for children at elevated risk for melanoma. The intervention incorporated information on mechanisms through which melanoma preventive behaviors mitigate risk for melanoma and was delivered to parents and children concurrently. METHODS: Twenty-two parents (with a personal history of melanoma or spouse with a history of melanoma) and 33 children (mean age 11.8 years) were asked to complete questionnaires immediately prior to and after an educational session and at a one-month follow-up. RESULTS: Both parents and children endorsed that the educational materials were acceptable. Knowledge about melanoma risk and preventive and screening behaviors increased significantly. Children's perceived risk for melanoma increased significantly, while parents' perceptions of children's risk started at a higher level and remained constant. There were significant increases in reported engagement in sun protective behaviors. CONCLUSION: The educational intervention shows promise in terms of its acceptability and effects on participant knowledge, perceived risk, and engagement in melanoma preventive behaviors. PRACTICE IMPLICATION: Children at elevated risk for melanoma and their parents may benefit from receiving educational information on their disease risk and strategies for prevention and screening.


Subject(s)
Health Knowledge, Attitudes, Practice , Melanoma/prevention & control , Parents/education , Patient Education as Topic , Skin Neoplasms/prevention & control , Sunburn/prevention & control , Adolescent , Adult , Child , Female , Humans , Male , Melanoma/genetics , Middle Aged , Parents/psychology , Pilot Projects , Program Evaluation
2.
J Cancer Educ ; 33(4): 774-781, 2018 08.
Article in English | MEDLINE | ID: mdl-27889875

ABSTRACT

Efforts to prevent melanoma, especially for those at elevated risk for the disease, should ideally begin during childhood. However, there are few preventive interventions targeting children who are at higher risk for melanoma due to a family history of the disease. Further, there are no educational interventions that aim to help these at-risk children understand their risk for melanoma and the ways in which preventive behaviors, such as sun protection, can mitigate their risk. The current paper describes a multidisciplinary team's process for creating a developmentally appropriate educational intervention about melanoma risk and prevention for children ages 8-17 years who have a family history of melanoma. Drawing from the fields of dermatology, health behavior change and education, genetic risk communication, science education, and graphic arts, the multimedia intervention created covers key learning points relevant to understanding melanoma, the role of DNA damage in melanoma development, inherited risk factors for melanoma, environmental factors causing DNA damage, and methods for preventing DNA damage, such as sun protective behaviors. Lessons learned during the development of the educational intervention, particularly relevant to multidisciplinary team interactions, are discussed. Implications for future testing and refinement of the novel educational content are also reviewed.


Subject(s)
Genetic Predisposition to Disease , Melanoma , Patient Education as Topic , Skin Neoplasms , Adolescent , Child , Female , Health Behavior , Humans , Male , Melanoma/genetics , Melanoma/prevention & control , Risk Factors , Skin Neoplasms/genetics , Skin Neoplasms/prevention & control
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