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Article in English | MEDLINE | ID: mdl-20208301

ABSTRACT

BACKGROUND: American Indian and Alaska Native cancer incidence data are limited by underreporting and misclassification. These populations also suffer from a history of research abuse. OBJECTIVES: The project's goal was to use community-based participatory research (CBPR) to assess the local burden of cancer in the American Indian communities in Wisconsin and assess the accuracy of Wisconsin American Indian cancer data. METHODS: Thirteen organizations partnered to conduct a retrospective review of American Indian clinics cancer cases. A match of the clinic identified cases with Wisconsin Cancer Reporting System records was then conducted. LESSONS LEARNED: Relationship building, mutual education, and local engagement in data interpretation were significant factors in this project achieving its objectives and laying a foundation for future research partnerships. CONCLUSIONS: This project demonstrates the successful application of CBPR in a complex multisite project with multiple partners using collective resources to address cancer health disparities.


Subject(s)
Community-Based Participatory Research , Indians, North American , Neoplasms/epidemiology , Population Surveillance , Program Development , Health Promotion , Health Status Disparities , Humans , Incidence , Program Evaluation , Public Health , United States/epidemiology , Wisconsin/epidemiology
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