Enhanced communication between care professionals and patients with hemophilia by using a web enabled electronic logbook.

Hemophilia is an X-linked clotting disorder. Treatment consists of intravenous substitution of the missing clotting factor. Although very effective, clotting factor products are very expensive. Most of the clotting factors are administered at home by the patients themselves. Documentation of the amount used and reasons for administrating of these scarce and expensive clotting factors in a paper logbook is a problem. The use of an electronic logbook results in improved compliance in documentation of clotting factor use and therefore in improved quality of treatment of patients with hemophilia.

Use cases and DEMO: aligning functional features of ICT-infrastructure to business processes.

OBJECTIVES: The proper alignment of functional features of the ICT-infrastructure to business processes is a major challenge in health care organisations. This alignment takes into account that the organisational structure not only shapes the ICT-infrastructure, but that the inverse also holds. To solve the alignment problem, relevant features of the ICT-infrastructure should be derived from the organisational structure and the influence of this envisaged ICT to the work practices should be pointed out. The objective of our study was to develop a method to solve this alignment problem. METHODS: In a previous study we demonstrated the appropriateness of the business process modelling methodology Dynamic Essential Modelling of Organizations (DEMO). A proven and widely used modelling language for expressing functional features is Unified Modelling Language (UML). In the context of a specific case study at the University Medical Centre Utrecht in the Netherlands we investigated if the combined use of DEMO and UML could solve the alignment problem. RESULTS AND CONCLUSION: The study demonstrated that the DEMO models were suited as a starting point in deriving system functionality by using the use case concept of UML. Further, the case study demonstrated that in using this approach for the alignment problem, insight is gained into the mutual influence of ICT-infrastructure and organisation structure: (a) specification of independent, re-usable components-as a set of related functionalities-is realised, and (b) a helpful representation of the current and future work practice is provided for in relation to the envisaged ICT support.