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1.
J Med Humanit ; 41(3): 341-361, 2020 Sep.
Article in English | MEDLINE | ID: mdl-30488328

ABSTRACT

Canadian and American population-based research concerning sexual and/or gender minority populations provides evidence of persistent breast and gynecologic cancer-related health disparities and knowledge divides. The Cancer's Margins research investigates the complex intersections of sexual and/or gender marginality and incommensurabilities and improvisation in engagements with biographical and biomedical cancer knowledge. The study examines how sexuality and gender are intersectionally constitutive of complex biopolitical mappings of cancer health knowledge that shape knowledge access and its mobilization in health and treatment decision-making. Interviews were conducted with a diverse group (n=81) of sexual and/or gender minority breast or gynecologic cancer patients. The LGBQ//T2 cancer patient narratives we have analyzed document in fine grain detail how it is that sexual and/or gender minority cancer patients punctuate the otherwise lockstep assemblage of their cancer treatment decision-making with a persistent engagement in creative attempts to resist, thwart and otherwise manage the possibility of discrimination and likewise, the probability of institutional erasure in care settings. Our findings illustrate the demands that cancer places on LGBQ//T2 patients to choreograph access to, and mobilization of knowledge and care, across significantly distinct and sometimes incommensurable systems of knowledge.


Subject(s)
Neoplasms , Sexual and Gender Minorities , Canada , Female , Gender Identity , Humans , Minority Groups , Sexual Behavior
3.
Can J Public Health ; 109(5-6): 622-632, 2018 12.
Article in English | MEDLINE | ID: mdl-30076535

ABSTRACT

RéSUMé: OBJECTIF: L'objectif était d'étudier le déploiement des discours sur la vaccination contre les VPH (VVPH) et leur impact sur les filles, les parents, les infirmiers/infirmières et les médecins canadiens. MéTHODES: Des entrevues ont été réalisées avec des participant(e)s (n = 146) de quatre provinces canadiennes. Une analyse poststructuraliste du discours a permis d'examiner les campagnes de VVPH et les transcriptions d'entrevues pour documenter la façon dont les participant(e)s interprètent les VVPH et se positionnent comme sujets au sein des discours de l'industrie ou des agences de santé publique. RéSULTATS: Les campagnes de VVPH sont sexistes, hétéro-normatives et trompeuses. Émergeant de l'analyse des entrevues est le manque d'information des filles et des parents en ce qui a trait à la VVPH. Les mères se construisent en tant que bio-citoyennes responsables, mais au prix de l'impuissance, de l'anxiété et de la peur ressenties parallèlement à l'impératif d'agir pour minimiser le risque de cancer de leur fille. Quant aux professionnel(le)s de la santé, ils s'approprient les discours dominants sur la VVPH et utilisent la peur comme stratégie pour fabriquer le consentement pour la VVPH. Les occasions de dialogue sur la VVPH et la santé sexuelle des filles sont perdues et les positions en tant que sujets sont problématiques pour tous les types de participant. CONCLUSIONS: Nous nous questionnons à savoir si la santé publique est bien servie quand les discours sur la VVPH transforment des corps en santé en corps « à risque ¼ et quand la peur du cancer est instrumentalisée pour la pharmacologisation de la santé publique.


Subject(s)
Communication , Health Knowledge, Attitudes, Practice , Papillomavirus Vaccines , Professional-Patient Relations , Vaccination/psychology , Adolescent , Canada , Child , Female , Humans , Immunization Programs , Male , Neoplasms/prevention & control , Neoplasms/psychology , Nurses/psychology , Papillomavirus Vaccines/administration & dosage , Papillomavirus Vaccines/adverse effects , Parents/psychology , Physicians/psychology , Public Health , Qualitative Research , Risk Assessment , Young Adult
4.
Nurs Inq ; 21(3): 202-11, 2014 Sep.
Article in English | MEDLINE | ID: mdl-24330165

ABSTRACT

In this article, we use qualitative methodology to explore how 15 low-income women of diverse sociocultural location construct and experience health and weight gain during pregnancy, as well as how they position themselves in relation to messages pertaining to weight gain, femininity and motherhood that they encounter in their lives. Discussing the findings through a feminist poststructuralist lens, we conclude that the participants are complex, fragmented subjects, interpellated by multiple and at times conflicting subject positions. While the discourse of maternal responsibility (i.e. managing personal behaviours for the baby's health) is very much in evidence in their narratives, embodied experiences of pregnancy, lived experiences of financial constraints and religious beliefs provided some with an alternative discourse and resistant subject position. Participants also had mixed emotions about weight gain; they recognized the need to gain weight in order to have a healthy pregnancy, but weight gain was also not welcome as participants reproduced the dominant discourse of obesity and the discourse of 'feminine' bodily norms. Based on our results, we advocate for change to recent clinical guidelines and social discourses around pregnancy and weight gain, as well as for policies that provide pregnant women with a range of health-promoting resources.


Subject(s)
Health Behavior , Poverty , Pregnancy/physiology , Weight Gain/physiology , Adult , Female , Feminism , Health Promotion/methods , Humans , Maternal Behavior/psychology , Narration , Obesity , Qualitative Research , Socioeconomic Factors
5.
J Immigr Minor Health ; 16(1): 150-64, 2014 Feb.
Article in English | MEDLINE | ID: mdl-23340805

ABSTRACT

Our interest stems from the dramatic increase in the number of obesity studies, which expose Canadian women to a huge amount of information that links health to weight. Using feminist poststructuralist and postcolonial lenses, this paper investigates young Lebanese-Canadian women's constructions of the body and "health" practices within the context of the dominant obesity discourse. Participant-centered conversations were held with 20 young Christian Lebanese-Canadian women. A thematic analysis was first conducted and was followed by a poststructuralist discourse analysis to further our understanding of how the participants construct themselves as subjects within various discourses surrounding health, obesity, and the body. Our findings reveal that most participants conflate the "healthy" body and the "ideal" body, both of which they ultimately portray as thin. The young women construct the "healthy"/"ideal" body as a solely individual responsibility, thus reinforcing the idea of "docile bodies." The majority of participants report their frequent involvement in disciplinary practices such as rigorous physical activity and dietary restrictions, and a few young women mention the use of other extreme forms of bodily monitoring such as detoxes, dieting pills, and compulsive exercise. We discuss the language employed by participants to construct their multiple and shifting subjectivities. For instance, many of these Lebanese-Canadian women use the term "us" to dissociate themselves from Lebanese women ("them"), whom they portray as overly focused on thinness and beauty and engaged in physical activity and other bodily practices for "superficial" purposes. The participants also use the "us/them" trope to distance themselves from "Canadian" women (read: white Euro-Canadian women), whom they portray as very physically active for purposes beyond the improvement of the physical appearance of the body. We discuss the impacts of the young Christian Lebanese-Canadian women's hybrid cultural identities and diasporic spaces on their discursive constructions of the body and "health" practices. Finally, we examine the participants' fluid subject-positions: On one hand, they construct themselves as neoliberal subjects re-citing elements of dominant neoliberal discourses (self-responsibility for health, traditional femininity, and obesity) but, on the other hand, they at times construct themselves as "timid" poststructuralist subjects expressing awareness of, and "micro-resistance" to such discourses.


Subject(s)
Body Image , Health Behavior , Obesity/ethnology , Self Concept , Adult , Canada/epidemiology , Female , Feminism , Humans , Lebanon/ethnology , Obesity/epidemiology
6.
Health (London) ; 17(4): 407-21, 2013 Jul.
Article in English | MEDLINE | ID: mdl-23074298

ABSTRACT

In this article, we critically examine the clinical guidelines for obesity in pregnancy put forth by the Society of Obstetricians and Gynaecologists of Canada (SOGC) that are underpinned by the rules of Evidence-Based Medicine (EBM), a system of ranking knowledge that promises to provide unbiased evidence about the effectiveness of treatments. While the SOGC guidelines are intended to direct health practitioners on 'best practice' as they address pregnancy weight gain with clients in the clinical context, we question their usefulness, arguing that despite their commitment to objectivity, they remain mired in cultural biases that stigmatize large female bodies and associates them to 'unfit' mothers.


Subject(s)
Obesity/complications , Practice Guidelines as Topic , Pregnancy Complications/therapy , Body Mass Index , Canada , Evidence-Based Medicine/methods , Evidence-Based Medicine/standards , Female , Humans , Obesity/diagnosis , Obesity/therapy , Pregnancy , Pregnancy Complications/diagnosis
7.
J Eval Clin Pract ; 14(5): 682-9, 2008 Oct.
Article in English | MEDLINE | ID: mdl-19018894

ABSTRACT

This essay asks how we might best elaborate an ethics of authentic practice. Will we be able to agree on a set of shared terms through which ethical practice will be understood? How will we define ethics and the subject's relation to authoritative structures of power and knowledge? We begin by further clarifying our critique of evidence-based medicine (EBM), reflecting on the intimate relation between theory and practice. We challenge the charge that our position amounts to no more than 'subjectivism' and 'antiauthoritarian' theory. We argue that an ethical practice ought to question the authority of EBM without falling into the trap of dogmatic antiauthoritarianism. In this, we take up the work of Hannah Arendt, who offers terms to help understand our difficult political relation to authority in an authentic ethical practice. We continue with a discussion of Michel Foucault's use of 'free speech' or parrhesia, which he adopts from Ancient Greek philosophy. Foucault demonstrates that authentic ethical practice demands that we 'speak truth to power.' We conclude with a consideration of recent biotechnologies, and suggest that these biomedical practices force us to re-evaluate our theoretical understanding of the ethical subject. We believe that we are at a crucial juncture: we must develop an ethics of authentic practice that will be commensurable with new and emergent biomedical subjectivities.


Subject(s)
Authoritarianism , Dissent and Disputes , Ethical Theory , Evidence-Based Medicine/ethics , Philosophy, Medical , Postmodernism , Benchmarking , Clinical Competence , Clinical Medicine , Diffusion of Innovation , Evidence-Based Medicine/education , Evidence-Based Medicine/organization & administration , Existentialism , Freedom , Humans , Information Dissemination , Knowledge , Power, Psychological , Professional Autonomy , Risk-Taking , Thinking , Truth Disclosure
8.
J Eval Clin Pract ; 13(4): 512-6, 2007 Aug.
Article in English | MEDLINE | ID: mdl-17683287

ABSTRACT

No exit? Have we arrived at an impasse in the health sciences? Has the regime of 'evidence', coupled with corporate models of accountability and 'best-practices', led to an inexorable decline in innovation, scholarship, and actual health care? Would it be fair to speak of a 'methodological fundamentalism' from which there is no escape? In this article, we make an argument about intellectual integrity and good faith. We take this risk knowing full well that we do so in a hostile political climate in the health sciences, positioning ourselves against those who quietly but assiduously control the very terms by which the public faithfully understands 'integrity' and 'truth'. In doing so, we offer an honest critique of these definitions and of the systemic power that is reproduced and guarded by the gatekeepers of 'Good Science'.


Subject(s)
Diffusion of Innovation , Ethics, Clinical , Evidence-Based Medicine/organization & administration , Health Knowledge, Attitudes, Practice , Humans , Philosophy, Medical
9.
Int J Evid Based Healthc ; 4(3): 180-6, 2006 Sep.
Article in English | MEDLINE | ID: mdl-21631765

ABSTRACT

Background Drawing on the work of the late French philosophers Deleuze and Guattari, the objective of this paper is to demonstrate that the evidence-based movement in the health sciences is outrageously exclusionary and dangerously normative with regards to scientific knowledge. As such, we assert that the evidence-based movement in health sciences constitutes a good example of microfascism at play in the contemporary scientific arena. Objective The philosophical work of Deleuze and Guattari proves to be useful in showing how health sciences are colonised (territorialised) by an all-encompassing scientific research paradigm - that of post-positivism - but also and foremost in showing the process by which a dominant ideology comes to exclude alternative forms of knowledge, therefore acting as a fascist structure. Conclusion The Cochrane Group, among others, has created a hierarchy that has been endorsed by many academic institutions, and that serves to (re)produce the exclusion of certain forms of research. Because 'regimes of truth' such as the evidence-based movement currently enjoy a privileged status, scholars have not only a scientific duty, but also an ethical obligation to deconstruct these regimes of power.

10.
Int J Evid Based Healthc ; 4(3): 189-90, 2006 Sep.
Article in English | MEDLINE | ID: mdl-21631767
12.
Int J Health Serv ; 35(4): 745-63, 2005.
Article in English | MEDLINE | ID: mdl-16320901

ABSTRACT

Prolonged standing is associated with health problems. Despite regulations providing for access to seats, most Québec (Canada) workers usually stand. Only one in six can sit at will. Standing service workers such as cashiers and sales personnel are often confined to a small area where sitting is theoretically feasible. In many other countries, such workers have access to seats. This study asks why North American workers do not press for seats. In a qualitative, exploratory approach, 30 young workers who usually work standing were interviewed about their perceptions and experiences of prolonged standing at work. All but one experienced discomfort associated with this posture, and two-thirds reported that they had changed their lifestyle in some way as a result of their symptoms. However, their accounts of relationships with employers, health care personnel, and the health and safety system suggest that many environmental factors as well as attitudes toward work, employers, health, and the body contribute to maintaining the status quo. Workers describe problems with the image of a seated worker and thought that asking for a seat would threaten their relationship with the employer. Personal comfort was considered an insufficient reason to challenge worksite design, attitudes, and organization.


Subject(s)
Employment , Health Knowledge, Attitudes, Practice , Negotiating , Occupational Exposure/adverse effects , Posture/physiology , Adolescent , Adult , Data Collection , Female , Humans , Male , Middle Aged , Quebec
13.
J Women Aging ; 17(1-2): 83-98, 2005.
Article in English | MEDLINE | ID: mdl-15914421

ABSTRACT

Women 65 years old and over make up the fastest growing population segment in North America. They are, particularly among the underprivileged, known to be heavy consumers of prescribed and over-the-counter drugs. The objective of this study was to identify the role of medication in underprivileged elderly women's strategies for aging well and dealing with minor health problems. A qualitative study was conducted among 40 women aged 65 to 75. Results show that elderly women seldom mention resorting to medication to "age well" although they report using this strategy to deal with minor health problems. Overall, the elderly women mentioned a wide range of strategies to cope with aging and minor health problems, which suggests that they are well equipped to face the challenges of aging.


Subject(s)
Aging , Nonprescription Drugs/therapeutic use , Pharmaceutical Services/statistics & numerical data , Aged , Evaluation Studies as Topic , Female , Humans , Poverty , Quebec
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