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1.
BMJ Open Respir Res ; 11(1)2024 Apr 16.
Article in English | MEDLINE | ID: mdl-38626928

ABSTRACT

OBJECTIVE: This study aimed to systematically review the psychometric properties of outcome measures that assess dysfunctional breathing (DB) in adults. METHODS: Studies on developing and evaluating measurement properties to assess DB were included. The study investigated the empirical research published between 1990 and February 2022, with an updated search in May 2023 in the Cochrane Library database of systematic reviews and the Cochrane Central Register of Controlled Trials, the Ovid Medline (full), the Ovid Excerta Medica Database, the Ovid allied and complementary medicines database, the Ebscohost Cumulative Index to Nursing and Allied Health Literature and the Physiotherapy Evidence Database. The included studies' methodological quality was assessed using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) risk of bias checklist. Data analysis and synthesis followed the COSMIN methodology for reviews of outcome measurement instruments. RESULTS: Sixteen studies met the inclusion criteria, and 10 outcome measures were identified. The psychometric properties of these outcome measures were evaluated using COSMIN. The Nijmegen Questionnaire (NQ) is the only outcome measure with 'sufficient' ratings for content validity, internal consistency, reliability and construct validity. All other outcome measures did not report characteristics of content validity in the patients' group. DISCUSSION: The NQ showed high-quality evidence for validity and reliability in assessing DB. Our review suggests that using NQ to evaluate DB in people with bronchial asthma and hyperventilation syndrome is helpful. Further evaluation of the psychometric properties is needed for the remaining outcome measures before considering them for clinical use. PROSPERO REGISTRATION NUMBER: CRD42021274960.


Subject(s)
Outcome Assessment, Health Care , Adult , Humans , Reproducibility of Results , Systematic Reviews as Topic , Surveys and Questionnaires , Psychometrics/methods
2.
BMJ Paediatr Open ; 8(1)2024 Mar 21.
Article in English | MEDLINE | ID: mdl-38519065

ABSTRACT

BACKGROUND: This systematic review aims to synthesise the qualitative evidence exploring parents' experiences of children with acquired brain injury (ABI) undergoing neurorehabilitation during the first year post-injury. METHODS: A systematic review of qualitative research was conducted using thematic synthesis with Thomas and Harden's approach. The population, exposure and outcome model was used for the search strategy. The electronic databases Ovid Embase, Ovid MEDLINE, CINAHL, Scopus and PsycINFO were searched from 2009 to 2023. The review included qualitative and mixed-method studies published in English only. Grey literature was excluded. There were no geographical restrictions. Reporting within the review followed the Enhancing Transparency in Reporting the Synthesis of Qualitative Research guideline. The studies' quality was appraised using the Critical Appraisal Skills Programme tool. RESULTS: Three studies met the inclusion criteria and were included in the synthesis, representing the experiences of 30 parents. The quality assessment showed that the three included studies met most quality indicators. Following thematic synthesis, four analytical themes were identified: school unpreparedness, parents as advocates and navigators, parents as monitors, and parents recognising the impact of ABI on their child. The reviewers proposed a group of recommendations for services reviewing their parental support. CONCLUSION: This review highlights some challenges parents of children diagnosed with ABI experience during their child's neurorehabilitation journey. This review has suggested potential improvements that could be made in paediatric neurorehabilitation services when reviewing their parental support and care pathways. These will ultimately influence parents' and children's experience of paediatric neurorehabilitation services.


Subject(s)
Brain Injuries , Parents , Child , Humans , Qualitative Research , Schools
3.
BMJ Paediatr Open ; 7(1)2023 05.
Article in English | MEDLINE | ID: mdl-37130655

ABSTRACT

BACKGROUND: Children with severe acquired brain injury (ABI) require early and effective neurorehabilitation provision to promote a good long-term functional outcome. Transcranial magnetic stimulation (TMS) has been used to improve motor skills for children with cerebral palsy but there is limited material supporting its use in children with ABI who have a motor disorder. OBJECTIVE: To systematically answer what the TMS intervention effects are on motor function in children with ABI as reported in the literature. METHODS AND ANALYSIS: This scoping review will follow Arksey and O'MaIIey's scoping review methodological framework. A comprehensive computerised bibliographic databases search will be performed in MEDLINE, EMBASE, CINAHL, Allied and Complementary Medicine, BNI, Ovid Emcare, PsyclNFO, Physiotherapy Evidence Database, Cochrane Central Register using keywords related to TMS and children with ABI.Studies that examine the effect of TMS intervention on motor function as either a primary or secondary objective will be included for this review. Study design and publication detail, participant demographic details, type and severity of ABI and other clinical information, TMS procedure, associated therapy intervention, comparator/control parameters and the outcome measure used data will be gathered.The International Classification of Functioning, Disability and Health for Children and Youth framework will be used to report the TMS effect in children with ABI. A narrative synthesis of the findings describing the therapeutic effects of TMS intervention, limitations and adverse effects will be synthesised and reported. This review will help to summarise the existing knowledge base and to guide further research areas. This review outcome may help to evolve therapists' role to next-generation technology-based neurorehabilitation programmes. ETHICS AND DISSEMINATION: No ethical approval is required for this review as we will be collecting data from previously published studies. We will present the findings at scientific conferences and publish in a peer-review journal.


Subject(s)
Brain Injuries , Cerebral Palsy , Adolescent , Humans , Child , Transcranial Magnetic Stimulation/adverse effects , Brain Injuries/complications , Brain Injuries/rehabilitation , Cerebral Palsy/therapy , Cerebral Palsy/complications , Research Design , Physical Therapy Modalities , Review Literature as Topic
4.
BMJ Open ; 13(4): e066254, 2023 04 19.
Article in English | MEDLINE | ID: mdl-37076161

ABSTRACT

INTRODUCTION: Children with moderate to severe acquired brain injury frequently require a period of demanding medical and rehabilitative care to optimise their long-term capabilities and quality of life. Usually, the initial acute care is provided in tertiary centres and can last up to 12 months following the original injury. Parents of children with acquired brain injury share that experience with their child and face many different challenges encountered as their child's long-term needs become apparent. Parents are essential partners in care, hence there is a need to better understand their experiences to support them as they face those challenges and adapt to the needs of their child. We aim to synthesise the qualitative evidence exploring parents' experiences of children undergoing neuro-rehabilitative care. METHODS AND ANALYSIS: The Enhancing Transparency in Reporting the Synthesis of Qualitative Research guideline was used in the design of this protocol. The Population, Exposure and Outcome model was used to define inclusion and exclusion criteria and refine search terms. The databases Ovid Embase, Ovid MEDLINE, CINAHL, Scopus and PsychINFO will be searched from 2009 to 2022. Two independent reviewers will review studies, assess quality using the Critical Appraisal Skills Programme and scrutinise and extract the data. Disagreements will be resolved after discussion with the third reviewer. Thematic synthesis using Thomas and Harden's approach will be undertaken to provide the evidence to develop a model for parental support during the first year of their child's neuro-rehabilitation. ETHICS AND DISSEMINATION: Ethical committee approval will not be required as no new data will be collected. The findings will be disseminated through presentations at professional conferences, publications in peer-reviewed journals and shared with the public through relevant charities and local family support groups and networks. PROSPERO REGISTRATION NUMBER: CRD42022333182.


Subject(s)
Brain Injuries , Medicine , Neurology , Humans , Child , Quality of Life , Parents , Qualitative Research
6.
J Hand Ther ; 32(4): 426-434.e1, 2019.
Article in English | MEDLINE | ID: mdl-30017414

ABSTRACT

STUDY DESIGN: Systematic review. INTRODUCTION: Children with cerebral palsy (CP) may have limited use of their hands for functional activities and for fine motor skills. Virtual reality (VR) is a relatively new and innovative approach to facilitate hand function in children with CP. PURPOSE OF THE STUDY: The primary purpose of this study was to determine the effectiveness of VR as an intervention to improve hand function in children with CP compared to either conventional physiotherapy or other therapeutic interventions. The secondary purpose was to classify the outcomes evaluated according to the International Classification of Functioning, Disability and Health (ICF) dimensions. METHODS: A International prospective register of systematic reviews (PROSPERO)-registered literature search was carried out in August 2015 in MEDLINE, CINAHL, ERIC, HealthSTAR, AMED, BNI, Embase, PsycINFO, PEDro, Cochrane Central Register, DARE, OTSeeker, REHABDATA, HaPI, CIRRIE, and Scopus. PRISMA guidelines were followed. Only randomized controlled trials (RCTs) were included, and their methodological qualities were examined using the Cochrane collaboration's risk of bias (RoB) tool. A narrative synthesis was performed. RESULTS: The 6 RCTs published on this topic provide conflicting results. Four studies reported improved hand function (2 low RoB, 1 high RoB, and 1 unclear RoB), whereas 2 studies reported no improvement. All of the RCTs reported the activity element of ICF, but no study explicitly described the effect of VR intervention based on the ICF model. CONCLUSION: The role of VR ti imrpove hand fucntion in children with CP is unclear due to limited evidence; use as an adjunct has some support.


Subject(s)
Cerebral Palsy/rehabilitation , Hand/physiopathology , Motor Skills Disorders/rehabilitation , Physical Therapy Modalities , Virtual Reality , Cerebral Palsy/physiopathology , Humans , Motor Skills Disorders/physiopathology
7.
Gait Posture ; 40(2): 279-85, 2014 Jun.
Article in English | MEDLINE | ID: mdl-24798609

ABSTRACT

Instrumented gait analysis (IGA) is an expensive technique used to objectively detect gait abnormalities in children. Observational gait assessment is considered as a cost effective alternate for IGA in regular clinical practice. This article is aimed at systematically reviewing the available paediatric gait analysis tools and examines their reliability and validity compared to IGA. This review also examines the structure of these tools, their clinical use and limitations. Articles were searched from PubMed, CINHL, AMED, BNI, EMBASE, PEDro and Cochrane library from the earliest record on the database to December 2012. Hand searches were carried out in a few journals. Studies that examined children's gait using a structured assessment tool were included and analysed for their quality, reliability and validity. Pre-established criteria were used to judge the quality of methodology and reliability and validity. Five observational gait tools for children with Cerebral Palsy (CP) and one for children with Downs Syndrome were identified. Nine studies related to children with CP were enrolled for this review. None of the tools have accomplished the level of IGA's consistency. Edinburgh Visual Gait Score (EVGS) was found to have better reliability and validity than the other tools. Very limited studies were available for most of the gait assessment tools therefore their clinical use cannot be judged based on the existing evidence. EVGS was found to have better concurrent validity and reliability and it should be considered to assess CP gait in regular practice. Future work to investigate the use of low cost technology to improve observers' accuracy of EVGS is suggested.


Subject(s)
Cerebral Palsy/complications , Gait Disorders, Neurologic/diagnosis , Gait Disorders, Neurologic/etiology , Gait , Physical Examination/methods , Child , Humans , Physical Examination/standards , Reproducibility of Results
8.
Accid Anal Prev ; 39(2): 334-9, 2007 Mar.
Article in English | MEDLINE | ID: mdl-17049470

ABSTRACT

Studies on traffic accidents among underage users of motorcycles are seldom seen in literature. This study was done in Yamunanagar, India where boys as young as 8 years ride motorcycles. It attempts to find out the behavioural and non-behavioural factors leading to motorcycle use and the predisposition to accidents among male school children aged between 10 and 16 years. A questionnaire was used to evaluate those factors among 1760 subjects in 38 schools. Fifteen percent of subjects had had an accident while riding motorcycle. Most of the behavioural and all the non-behavioural factors have a statistically significant influence on accident proneness. Aggressive behaviour and previous encounter with the police are the two strong predictors of accidents (p<0.001). Children as riders are exposed to higher risks of accident and longer life with disability. It also explains how these children behaviourally take up adult roles and seek adult risk taking attitudes. The implications of child motorcycle riders upon children themselves and on the society are discussed for a greater discourse on road safety motorcycle riding policy and to highlight the behavioural and non-behavioural factors that are associated with traffic accidents.


Subject(s)
Accidents, Traffic/statistics & numerical data , Motorcycles , Risk-Taking , Adolescent , Child , Decision Making , Humans , India , Male
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