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AMA J Ethics ; 20(9): E849-856, 2018 09 01.
Article in English | MEDLINE | ID: mdl-30242816

ABSTRACT

Humans exploring beyond low-Earth orbit face environmental challenges coupled with isolation, remote operations, and extreme resource limitations in which personalized medicine, enabled by genetic research, might be necessary for mission success. With little opportunity to test personalized countermeasures broadly, the National Aeronautics and Space Administration (NASA) will likely need to rely instead on collection of significant amounts of genomic and environmental exposure data from individuals. This need appears at first to be in conflict with the statutes and regulations governing the collection and use of genetic data. In fact, under certain conditions, the Genetic Information Nondiscrimination Act (GINA) of 2008 allows for the use of genetic information in both occupational surveillance and research and in the development of countermeasures such as personalized pharmaceuticals.


Subject(s)
Aerospace Medicine , Astronauts , Genetic Research , Genomics , Occupational Health , Social Justice , United States National Aeronautics and Space Administration , Aerospace Medicine/ethics , Aerospace Medicine/legislation & jurisprudence , Data Collection/ethics , Data Collection/legislation & jurisprudence , Environmental Exposure , Genetic Research/ethics , Genetic Research/legislation & jurisprudence , Genomics/ethics , Genomics/legislation & jurisprudence , Government Regulation , Humans , Occupational Health/ethics , Occupational Health/legislation & jurisprudence , United States
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