Necesidades de las cuidadoras familiares de personas con accidente cerebrovascular en el domicilio: Revisión estructurada 2000-2007 / Needs of the family caregivers of stroke survivors in the home: structured review of the literature from 2000 to 2007

Objetivo. Realizar una revisión estructurada de la bibliografía entre los años 2000 y 2007, acerca de las necesidades que presentan las personas cuidadoras no profesionalizadas (familiares) de personas supervivientes de accidente cerebro vascular (ACV) en fase subaguda en el ámbito domiciliario. Material y métodos. La búsqueda se realizó en las bases de datos CINAHL, MEDLINE, EMBASE, PSYCHINFO, Cochrane Library Plus, CDSR (coch), DARE, CCTR, ACP Journal Club (ACP), IBECS, LILACS e IME, utilizando los términos ¿cerebral vascular accident¿, ¿caregiver¿ y ¿needs (assesment)¿. Resultadosse seleccionaron un total de 270 resúmenes de artículos, de los que tan sólo 53 cumplieron todos los criterios de inclusión; de éstos, sólo 12 cumplían los niveles de calidad metodológica previamente establecidos. Aunque con mucha variabilidad entre los estudios evaluados, la bibliografía identifica la información y el apoyo en el desarrollo de habilidades en el cuidado, como los 2 ámbitos de necesidades más señalados por las personas cuidadoras no profesionalizadas de familiares supervivientes de ACV. El cuidado de la propia persona cuidadora así como el desarrollo y la provisión de recursos de apoyo al desempeño del rol, son las grandes áreas que estas personas señalan como necesidades en su adaptación al nuevo rol y a la nueva situación. Conclusiones. Los estudios revisados ponen también de manifiesto una incipiente demanda de atención y cuidados para estas cuidadoras. Los muy diferentes contextos de origen de los trabajos revisados, la falta de una definición explícita del concepto de ¿necesidad¿ y la pluralidad de realidades en la figura de la cuidadora dificultan la síntesis de resultados y sugieren el desarrollo de nuevos trabajos en nuestro contexto que traten de tomar en cuenta y superar dichas limitaciones(AU)

Objective. To perform a structured review of the literature from 2000 to 2007 on the needs of the caregivers of stroke survivors in the postacute phase of the illness process at home. MethodsSearches were conducted in the CINAHL, MEDLINE, EMBASE, PSYCHINFO, Cochrane Library Plus, CDSR (coch), DARE, CCTR, ACP Journal Club (ACP), IBECS, LILACS and IME databases using the terms ¿stroke¿, ¿caregiver¿ and ¿needs (assessment)¿. ResultsWe selected 270 abstracts for review. Of these, only 53 met the inclusion criteria and just 12 achieved preestablished quality standards. Despite wide variability among the selected studies, the literature reviewed revealed that the two most prevalent needs for the caregivers of stroke survivors were information and support in the development of caregiving skills. Care for the caregiver herself, as well as the development and provision of support services, were defined as the two main areas where these participants seem to need support while adapting to and performing this newly adopted role. ConclusionsThe studies reviewed show an increasing demand for support and care for stroke survivors¿ caregivers. Because of the highly diverse contexts of these studies, the lack of an explicit definition on the concept of ¿need¿, and the wide heterogeneity in caregivers¿ situations, summarizing the results of these studies is difficult. New studies are required in our context that take these limitations into account and try to overcome them(AU)

[Needs of the family caregivers of stroke survivors in the home: structured review of the literature from 2000 to 2007]. / Necesidades de las cuidadoras familiares de personas con accidente cerebrovascular en el domicilio: revisión estructurada 2000-2007.

OBJECTIVE: To perform a structured review of the literature from 2000 to 2007 on the needs of the caregivers of stroke survivors in the postacute phase of the illness process at home. METHODS: Searches were conducted in the CINAHL, MEDLINE, EMBASE, PSYCHINFO, Cochrane Library Plus, CDSR (coch), DARE, CCTR, ACP Journal Club (ACP), IBECS, LILACS and IME databases using the terms "stroke", "caregiver" and "needs (assessment)". RESULTS: We selected 270 abstracts for review. Of these, only 53 met the inclusion criteria and just 12 achieved preestablished quality standards. Despite wide variability among the selected studies, the literature reviewed revealed that the two most prevalent needs for the caregivers of stroke survivors were information and support in the development of caregiving skills. Care for the caregiver herself, as well as the development and provision of support services, were defined as the two main areas where these participants seem to need support while adapting to and performing this newly adopted role. CONCLUSIONS: The studies reviewed show an increasing demand for support and care for stroke survivors' caregivers. Because of the highly diverse contexts of these studies, the lack of an explicit definition on the concept of "need", and the wide heterogeneity in caregivers' situations, summarizing the results of these studies is difficult. New studies are required in our context that take these limitations into account and try to overcome them.