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1.
Obstet Gynecol ; 128(3): 440-446, 2016 09.
Article in English | MEDLINE | ID: mdl-27500340

ABSTRACT

OBJECTIVE: To examine whether being pregnant or postpartum was associated with excess risk for homicide among females in Illinois and to describe the association between pregnancy status and homicide by race, ethnicity, and age group. METHODS: This is a retrospective, multicohort, ecologic study of females of reproductive age in Illinois between 2002 and 2011 using Illinois Department of Public Health maternal mortality data and vital records data. We compared pregnancy-associated homicides with live births using χ tests. Among maternal deaths in the state, we calculated mortality rates per 100,000 live births for homicide and other violent causes and the leading direct obstetric causes. We calculated aggregate, pregnancy-associated, and nonpregnancy associated homicide rates stratified by race or ethnicity and age group. RESULTS: There were 636 pregnancy-associated deaths in Illinois from 2002 to 2011. Of these, 82 (13%) were the result of homicide (5.0 [95% confidence interval (CI) 4.0-6.2]/100,000 live births). There were 931 homicides among females of reproductive age not associated with pregnancy (2.88 [95% CI 2.70-3.07]/100,000 population). More than half of the homicides were women aged 20-29 years (n=53 [64.6%]), non-Hispanic black women (n=43 [52.4%]), women residing in Cook County (n=47 [57.3%]), and unmarried women (n=57 [69.5%]). Pregnant and postpartum females aged 10-29 years were at twice the risk of homicide compared with their nonpregnant or postpartum counterparts (relative risk 2.20 [95% CI 1.70-2.85]). Non-Hispanic black and Hispanic females experienced higher rates of homicide than non-Hispanic white females irrespective of pregnancy or age. CONCLUSION: Although all violence against women must be addressed, we recommend that state maternal mortality review committees, in addition to reviewing deaths resulting from obstetric and clinical causes, should conduct in-depth reviews of pregnancy-associated homicides and other violent deaths.


Subject(s)
Cause of Death , Homicide , Violence , Adolescent , Adult , Child , Ethnicity/statistics & numerical data , Female , Homicide/prevention & control , Homicide/statistics & numerical data , Humans , Illinois/epidemiology , Live Birth , Maternal Mortality/ethnology , Postpartum Period , Pregnancy , Retrospective Studies , Violence/prevention & control , Violence/statistics & numerical data
2.
Ann Epidemiol ; 26(4): 267-74, 2016 04.
Article in English | MEDLINE | ID: mdl-27085382

ABSTRACT

PURPOSE: Although previous studies demonstrate associations between adverse perinatal outcomes and developmental disabilities (DDs), study of population impacts is limited. METHODS: We computed relative risks adjusted (aRRs) for sociodemographic factors and component and summary population attributable fractions (PAFs) for associations between very low birth weight (VLBW, all preterm births), moderately low birth weight (MLBW) + Preterm, MLBW at term, and normal birth weight (NBW) + Preterm and seven DDs (cerebral palsy [CP], autism spectrum disorder [ASD], intellectual disability [ID], behavioral-conduct disorders, attention-deficit-hyperactivity disorder [ADHD], learning disability [LD], and other developmental delay) among children aged 3-17 years in the 2011-2012 National Survey of Children's Health. RESULTS: VLBW-Preterm, MLBW-Preterm and NBW-Preterm were strongly to moderately associated with CP (aRRs: 43.5, 10.1, and 2.2, respectively; all significant) and also associated with ID, ASD, LD, and other developmental delay (aRR ranges: VLBW-Preterm 2.8-5.3; MLBW-Preterm 1.9-2.8; and NBW-Preterm 1.6-2.3). Summary PAFs for preterm birth and/or LBW were 55% for CP, 10%-20% for ASD, ID, LD, and other developmental delay, and less than 5% for ADHD and behavioral-conduct disorders. Findings were similar whether we assessed DDs as independent outcomes or within mutually exclusive categories accounting for DD co-occurrence. CONCLUSIONS: Preterm birth has a sizable impact on child neurodevelopment. However, relative associations and population impacts vary widely by DD type.


Subject(s)
Developmental Disabilities/epidemiology , Infant, Low Birth Weight , Premature Birth/epidemiology , Adolescent , Birth Weight , Child , Child, Preschool , Developmental Disabilities/diagnosis , Developmental Disabilities/psychology , Female , Follow-Up Studies , Gestational Age , Humans , Incidence , Male , Maternal Age , Population Surveillance , Pregnancy , Risk Factors , Socioeconomic Factors
3.
J Relig Health ; 55(5): 1824-31, 2016 Oct.
Article in English | MEDLINE | ID: mdl-26613588

ABSTRACT

The American Orthodox Jewish community has specific cultural factors that may contribute to overweight and obesity. This study aimed to look at caloric intake on the Sabbath and its contribution to overweight and obesity. Twelve married or previously married women who identify themselves as Orthodox Jews were recruited to do 24-h food recalls over the phone. The participants were divided into three weight groups (normal, overweight, and obese) based on their BMI. The overweight and obese participants' data were combined into one group for the purposes of statistical testing. Paired t tests looking at the data for all participants showed significantly great caloric intake during an average Sabbath day than an average weekday [t(4) = 7.58, p < 0.001]. A repeated-measures ANOVA showed significantly greater energy intake on the Sabbath for the overweight-obese women compared to the normal weight women [F(1) = 7.83, p = 0.02]. No statistical difference was seen between the weekday energy intake of the normal weight women as compared to the combined group of overweight-obese women [F(1) = 0.501, p = 0.499]. These results support the hypotheses that all groups eat significantly more on the Sabbath than on weekdays, and overweight and obese individuals eat significantly more on the Sabbath than normal weight individuals. This supports the theory that caloric intake on the Sabbath is a contributing factor to overweight and obesity within the American Orthodox Jewish community.


Subject(s)
Energy Intake/physiology , Judaism , Obesity/epidemiology , Body Weight , Culture , Diet Records , Female , Humans , Pilot Projects
4.
J Public Health Manag Pract ; 22(3): E1-8, 2016.
Article in English | MEDLINE | ID: mdl-25905668

ABSTRACT

CONTEXT: Birth defects remain a leading cause of infant mortality in the United States and contribute substantially to health care costs and lifelong disabilities. State population-based surveillance systems have been established to monitor birth defects, yet no recent systematic examination of their efforts in the United States has been conducted. OBJECTIVE: To understand the current population-based birth defects surveillance practices in the United States. DESIGN: The National Birth Defects Prevention Network conducted a survey of US population-based birth defects activities that included questions about operational status, case ascertainment methodology, program infrastructure, data collection and utilization, as well as priorities and challenges for surveillance programs. Birth defects contacts in the United States, including District of Columbia and Puerto Rico, received the survey via e-mail; follow-up reminders via e-mails and telephone were used to ensure a 100% response rate. RESULTS: Forty-three states perform population-based surveillance for birth defects, covering approximately 80% of the live births in the United States. Seventeen primarily use an active case-finding approach and 26 use a passive case-finding approach. These programs all monitor major structural malformations; however, passive case-finding programs more often monitor a broader list of conditions, including developmental conditions and newborn screening conditions. Active case-finding programs more often use clinical reviewers, cover broader pregnancy outcomes, and collect more extensive information, such as family history. More than half of the programs (24 of 43) reported an ability to conduct follow-up studies of children with birth defects. CONCLUSIONS: The breadth and depth of information collected at a population level by birth defects surveillance programs in the United States serve as an important data source to guide public health action. Collaborative efforts at the state and national levels can help harmonize data collection and increase utility of birth defects programs.


Subject(s)
Congenital Abnormalities/epidemiology , Population Surveillance/methods , Age Factors , Data Collection/economics , Data Collection/methods , Female , Genetic Predisposition to Disease , Humans , Infant , Infant, Newborn , Neonatal Screening , Pregnancy , Pregnancy Outcome/epidemiology , Premature Birth/epidemiology , Socioeconomic Factors , United States/epidemiology
5.
Public Health Rep ; 130(6): 722-30, 2015.
Article in English | MEDLINE | ID: mdl-26556943

ABSTRACT

OBJECTIVE: We assessed the practices of U.S. population-based birth defects surveillance programs in addressing current and emergent public health needs. METHODS: Using the CDC Strategic Framework considerations for public health surveillance (i.e., lexicon and standards, legal authority, technological advances, workforce, and analytic capacity), during 2012 and 2013, we conducted a survey of all U.S. operational birth defects programs (n=43) soliciting information on legal authorities, case definition and clinical information collected, types of data sources, and workforce staffing. In addition, we conducted semi-structured interviews with nine program directors to further understand how programs are addressing current and emergent needs. RESULTS: Three-quarters of birth defects surveillance programs used national guidelines for case definition. Most birth defects surveillance programs (86%) had a legislative mandate to conduct surveillance, and many relied on a range of prenatal, postnatal, public health, and pediatric data sources for case ascertainment. Programs reported that the transition from paper to electronic formats was altering the information collected, offering an opportunity for remote access to improve timeliness for case review and verification. Programs also reported the growth of pooled, multistate data collaborations as a positive development. Needs identified included ongoing workforce development to improve information technology and analytic skills, more emphasis on data utility and birth defects-specific standards for health information exchange, and support to develop channels for sharing ideas on data interpretation and dissemination. CONCLUSION: The CDC Strategic Framework provided a useful tool to determine the birth defects surveillance areas with positive developments, such as multi-state collaborative epidemiologic studies, and areas for improvement, such as preparation for health information exchanges and workforce database and analytic skills. Our findings may inform strategic deliberations for enhancing the effectiveness of birth defects surveillance programs.


Subject(s)
Congenital Abnormalities/epidemiology , Epidemiological Monitoring , Centers for Disease Control and Prevention, U.S. , Data Collection/legislation & jurisprudence , Data Collection/standards , Electronic Health Records , Health Workforce , Humans , Surveys and Questionnaires , United States
6.
Matern Child Health J ; 19(12): 2621-6, 2015 Dec.
Article in English | MEDLINE | ID: mdl-26140837

ABSTRACT

OBJECTIVES: To compare the results of two maternal death review processes conducted from 2002 to 2012 by Illinois regionalized perinatal centers with those conducted by the Illinois Department of Public Health's (IDPH's) statewide multidisciplinary external Maternal Mortality Review Committee (MMRC). METHODS: This is a retrospective record review linking MMRC case assessment forms to the IDPH's Maternal Mortality Review Form database to compare causes of death and potential preventability as determined by both review processes. RESULTS: MMRC records for 76 maternal death reviews were linked to the IDPH maternal mortality review form database. Most deaths reviewed by the statewide MMRC were due to pregnancy-related causes. The statewide MMRC differed from the regional perinatal centers on cause of death in 55.3% (n = 42) of cases and on the disposition of potential preventability in 48.7% (n = 37) of cases. The statewide MMRC judged 69.7% (n = 53) of cases potentially preventable, compared with 40.8% (n = 31) for the regional perinatal centers. The MMRC identified more preventable provider and systems factors for potentially preventable deaths compared with regional perinatal centers which identified more preventable patient factors. CONCLUSIONS FOR PRACTICE: The statewide MMRC found more potential preventability and determined that preventability was associated with provider and systems factors, not patient factors. Observed discrepancies between regional perinatal center and statewide MMRC reviews were likely due to the complexity of cases selected for review, the multidisciplinary external composition of the review team, and the de-identification of cases. Multidisciplinary statewide expert panels should be implemented in addition to local and regionalized reviews.


Subject(s)
Cause of Death/trends , Maternal Mortality/trends , Pregnancy Complications/mortality , Adolescent , Adult , Female , Humans , Illinois/epidemiology , Pregnancy , Pregnancy Complications/prevention & control , Retrospective Studies
7.
Environ Health ; 14: 21, 2015 Apr 07.
Article in English | MEDLINE | ID: mdl-25889033

ABSTRACT

BACKGROUND: Environmental lead exposure poses a risk to educational performance, especially among poor, urban children. Previous studies found low-level lead exposure was a risk factor for diminished academic abilities, however, this study is distinct because of the very large sample size and because it controlled for very low birth weight and early preterm birth-two factors closely associated with lower academic performance. In this study we examined the association between lead concentration in whole blood (B-Pb) of Chicago Public School (CPS) children and their performance on the 3(rd) grade Illinois Standard Achievement Tests (ISAT) reading and math scores. METHODS: We examined 58,650 children born in Chicago between 1994 and 1998 who were tested for blood lead concentration between birth and 2006 and enrolled in the 3(rd) grade at a CPS school between 2003 and 2006. We linked the Chicago birth registry, the Chicago Blood Lead Registry, and 3(rd) grade ISAT scores to examine associations between B-Pb and school performance. RESULTS: After adjusting for other predictors of school performance including poverty, race/ethnicity, gender, maternal education and very low birth weight or preterm-birth, we found that B-Pbs below 10 µg/dL were inversely associated with reading and math scores in 3(rd) grade children. For a 5 µg/dL increase in B-Pb, the risk of failing increased by 32% for reading (RR = 1.32, 95%CI = 1.26, 1.39) and math (RR = 1.32, 95%CI = 1.26, 1.39). The effect of lead on reading was non-linear with steeper failure rates at lower B-Pbs. We estimated that 13% of reading failure and 14.8% of math failure can be attributed to exposure to blood lead concentrations of 5 to 9 vs. 0 to 4 µg/dL in Chicago school children. CONCLUSIONS: Early childhood lead exposure is associated with poorer achievement on standardized reading and math tests in the third grade, even at very low B-Pbs. Preventing lead exposure in early childhood is critical to improving school performance.


Subject(s)
Achievement , Environmental Exposure , Lead/blood , Chicago , Child , Child, Preschool , Cohort Studies , Environmental Monitoring , Female , Humans , Infant , Infant, Newborn , Male , Retrospective Studies , Risk Factors , Schools
8.
Matern Child Health J ; 19(2): 271-9, 2015 Feb.
Article in English | MEDLINE | ID: mdl-24985696

ABSTRACT

This paper reports on the structure, implementation and outcomes of the Maternal and Child Health (MCH) Epidemiology (MCHEPI) program at the University of Illinois School of Public Health (UIC-SPH) and discusses the successes and challenges in developing MCH Epidemiology leaders for the local, state, and national public health workforce. The MCHEPI program at UIC-SPH offers both the MPH and PhD degree and is based on six key components: integration across school divisions, competency-based training, tailored curricula, practica/dissertations with public health agencies, personal leadership training and development, and socialization. Based on data from the 1998-2012 cohorts, all former and current MCHEPI MPH students (n = 28) have participated in practica with local or state public health agencies and former and current MCHEPI doctoral students at the dissertation stage (12 out of 15) have partnered with local, state or national public health agencies in conducting their dissertations. The alumni of the MCHEPI MPH program (n = 25) appear to serve in higher level positions in their second compared to their first placements post-graduation. All MCHEPI doctoral alumni (n = 8) serve at the emerging senior level or senior scientist level upon graduation, in local, state and federal agencies, or in academe. Explicit linkage of MCHEPI students to practice through tailored curricula, practica, and dissertations with public health agencies, and the development of an identity as a member of the MCHEPI field appear to be important to the generation of epidemiology leaders for the MCH workforce. Leadership development is a lifelong process and as such, snapshots of current students and alumni at any one point in time do not provide the entire picture of the impact of MCH epidemiology training programs. Examining the trajectories of emerging leaders over time is essential for evaluating the true success of Maternal and Child Health Bureau workforce and training investments.


Subject(s)
Education, Public Health Professional/organization & administration , Health Personnel/statistics & numerical data , Leadership , Maternal-Child Health Centers/organization & administration , Professional Competence , Adult , Child , Curriculum , Epidemiology/education , Female , Forecasting , Health Personnel/education , Health Workforce/organization & administration , Humans , Male , Program Evaluation , United States , Universities
9.
Am J Obstet Gynecol ; 211(6): 698.e1-11, 2014 Dec.
Article in English | MEDLINE | ID: mdl-24956547

ABSTRACT

OBJECTIVE: We sought to describe the potential preventability of pregnancy-related deaths in Illinois from 2002 through 2012 as determined by perinatal centers following the Illinois maternal death review process. STUDY DESIGN: We conducted a retrospective review of all known maternal deaths in the state from 2002 through 2012 with complete records in the Illinois Department of Public Health's Maternal Mortality Review Form database. The association between causes of death and potential preventability was analyzed for pregnancy-related deaths. RESULTS: There were 610 maternal deaths in Illinois during the study period (31.8 per 100,000 live births). One-third of maternal deaths (n = 210) were directly or indirectly related to pregnancy, 7.0% (n = 43) were possibly related, and 52.6% (n = 321) were unrelated. Vascular causes were the most common cause of pregnancy-related death, followed by cardiac causes and hemorrhage. One-third of deaths directly or indirectly related to pregnancy were deemed potentially preventable. Hemorrhage and deaths due to psychiatric causes were most likely to be considered avoidable, while cancer and vascular-related deaths were generally not considered preventable. CONCLUSION: This analysis of pregnancy-related deaths in Illinois, the first in >60 years, found similar causes of death and potential preventability as pregnancy-related death reviews in other states. Analyzing the causes of pregnancy-related death is a critical and necessary step in improving maternal health outcomes, particularly in decreasing potentially preventable pregnancy-related deaths. Greater attention should be directed toward intervening on the provider, systems, and patient factors contributing to preventable deaths.


Subject(s)
Maternal Death/prevention & control , Pregnancy Complications/mortality , Adolescent , Adult , Cause of Death , Cohort Studies , Female , Hemorrhage/mortality , Humans , Illinois/epidemiology , Maternal Mortality , Mental Disorders/mortality , Postpartum Hemorrhage/mortality , Pregnancy , Pregnancy Complications, Cardiovascular/mortality , Pregnancy Complications, Infectious/mortality , Pregnancy Complications, Neoplastic/mortality , Retrospective Studies , Young Adult
10.
Ann Epidemiol ; 24(4): 260-6, 2014 Apr.
Article in English | MEDLINE | ID: mdl-24529515

ABSTRACT

PURPOSE: Numerous studies establish associations between adverse perinatal outcomes/complications and autism spectrum disorder (ASD). There has been little assessment of population attributable fractions (PAFs). METHODS: We estimated average ASD PAFs for preterm birth (PTB), small for gestational age (SGA), and Cesarean delivery (CD) in a U.S. population. Average PAF methodology accounts for risk factor co-occurrence. ASD cases were singleton non-Hispanic white, non-Hispanic black, and Hispanic children born in 1994 (n = 703) or 2000 (n = 1339) who resided in 48 U.S. counties included within eight Autism and Developmental Disabilities Monitoring Network sites. Cases were matched on birth year, sex, and maternal county of residence, race-ethnicity, age, and education to 20 controls from U.S. natality files. RESULTS: For the 1994 cohort, average PAFs were 4.2%, 0.9%, and 7.9% for PTB, SGA, and CD, respectively. The summary PAF was 13.0% (1.7%-19.5%). For the 2000 cohort, average PAFs were 2.0%, 3.1%, and 6.7% for PTB, SGA, and CD, respectively, with a summary PAF of 11.8% (7.5%-15.9%). CONCLUSIONS: Three perinatal risk factors notably contribute to ASD risk in a U.S. population. Because each factor represents multiple etiologic pathways, PAF estimates are best interpreted as the proportion of ASD attributable to having a suboptimal perinatal environment resulting in PTB, SGA, and/or CD.


Subject(s)
Child Development Disorders, Pervasive/etiology , Perinatal Care , Population Surveillance , Adult , Birth Weight , Cesarean Section , Female , Gestational Age , Humans , Infant, Newborn , Male , Pregnancy , Pregnancy Outcome/epidemiology , Premature Birth , Risk Factors , United States/epidemiology , Young Adult
11.
Matern Child Health J ; 18(5): 1123-31, 2014 Jul.
Article in English | MEDLINE | ID: mdl-23917900

ABSTRACT

To investigate the relationship between gestational weight gain (GWG) and birthweight outcomes among a low-income population in Hawaii using GWG recommendations from the 2009 Institute of Medicine (IOM) guidelines. Data were analyzed for 19,130 mother-infant pairs who participated in Hawaii's Special Supplemental Nutrition Program for Women, Infants, and Children from 2003 through 2005. GWG was categorized as inadequate, adequate, or excessive on the basis of GWG charts in the guidelines. Generalized logit models assessed the relationship between mothers' GWG and their child's birthweight category (low birthweight [LBW: < 2,500 g], normal birthweight [2,500 g ≤ BW < 4,000 g], or high birthweight [HBW: ≥ 4,000 g]). Final models were stratified by prepregnancy body mass index (underweight, normal weight, overweight, or obese) and adjusted for maternal age, education, race/ethnicity, smoking status, parity, and marital status. Overall, 62% of the sample had excessive weight gain and 15% had inadequate weight gain. Women with excessive weight gain were more likely to deliver a HBW infant; this relationship was observed for women in all prepregnancy weight categories. Among women with underweight or normal weight prior to pregnancy, those with inadequate weight gain during pregnancy were more likely to deliver a LBW infant. Among the low-income population of Hawaii, women with GWG within the range recommended in the 2009 IOM guidelines had better birthweight outcomes than those with GWG outside the recommended range. Further study is needed to identify optimal GWG goals for women with an obese BMI prior to pregnancy.


Subject(s)
Birth Weight , Food Assistance , Pregnancy Outcome , Weight Gain , Adult , Body Mass Index , Demography , Female , Hawaii , Humans , Infant, Newborn , Poverty , Pregnancy , Weight Gain/ethnology
12.
Matern Child Health J ; 17(8): 1414-23, 2013 Oct.
Article in English | MEDLINE | ID: mdl-23010864

ABSTRACT

To assess whether a measure of prenatal case management (PCM) dosage is more sensitive than a dichotomous PCM exposure measure when evaluating the effect of PCM on low birthweight (LBW) and preterm birth (PTB). We constructed a retrospective cohort study (N = 16,657) of Iowa Medicaid-insured women who had a singleton live birth from October 2005 to December 2006; 28 % of women received PCM. A PCM dosage measure was created to capture duration of enrollment, total time with a case manager, and intervention breadth. Propensity score (PS)-adjusted odds ratios (ORs), and 95 % confidence intervals (95 % CIs) were calculated to assess the risk of each outcome by PCM dosage and the dichotomous PCM exposure measure. PS-adjusted ORs of PTB were 0.88 (95 % CI 0.70-1.11), 0.58 (95 % CI 0.47-0.72), and 1.43 (95 % CI 1.23-1.67) for high, medium, and low PCM dosage, respectively. For LBW, the PS-adjusted ORs were 0.76 (95 % CI 0.57-1.00), 0.64 (95 % CI 0.50-0.82), and 1.36 (95 % CI 1.14-1.63), for high, medium, and low PCM dosage, respectively. The PCM dichotomous participation measure was not significantly associated with LBW (OR = 0.95, 95 % CI 0.82-1.09) or PTB (0.97, 95 % CI 0.87-1.10). The reference group in each analysis is No PCM. PCM was associated with a reduced risk of adverse pregnancy outcomes for Medicaid-insured women in Iowa. PCM dosage appeared to be a more sensitive measure than the dichotomous measure of PCM participation.


Subject(s)
Case Management/organization & administration , House Calls/statistics & numerical data , Outcome and Process Assessment, Health Care , Pregnancy Outcome , Prenatal Care/statistics & numerical data , Adolescent , Adult , Case Management/statistics & numerical data , Confidence Intervals , Female , Humans , Infant, Low Birth Weight , Infant, Newborn , Iowa , Medicaid , Odds Ratio , Pregnancy , Premature Birth , Propensity Score , Retrospective Studies , Risk Factors , Socioeconomic Factors , Time Factors , United States , Young Adult
14.
Matern Child Health J ; 16 Suppl 2: 196-202, 2012 Dec.
Article in English | MEDLINE | ID: mdl-23143158

ABSTRACT

The purpose of this article is to summarize the methodology, partnerships, and products developed as a result of a distance-based workforce development initiative to improve analytic capacity among maternal and child health (MCH) epidemiologists in state health agencies. This effort was initiated by the Centers for Disease Control's MCH Epidemiology Program and faculty at the University of Illinois at Chicago to encourage and support the use of surveillance data by MCH epidemiologists and program staff in state agencies. Beginning in 2005, distance-based training in advanced analytic skills was provided to MCH epidemiologists. To support participants, this model of workforce development included: lectures about the practical application of innovative epidemiologic methods, development of multidisciplinary teams within and across agencies, and systematic, tailored technical assistance The goal of this initiative evolved to emphasize the direct application of advanced methods to the development of state data products using complex sample surveys, resulting in the articles published in this supplement to MCHJ. Innovative methods were applied by participating MCH epidemiologists, including regional analyses across geographies and datasets, multilevel analyses of state policies, and new indicator development. Support was provided for developing cross-state and regional partnerships and for developing and publishing the results of analytic projects. This collaboration was successful in building analytic capacity, facilitating partnerships and promoting surveillance data use to address state MCH priorities, and may have broader application beyond MCH epidemiology. In an era of decreasing resources, such partnership efforts between state and federal agencies and academia are essential for promoting effective data use.


Subject(s)
Capacity Building , Cooperative Behavior , Epidemiology , Maternal-Child Health Centers , Professional Competence , Data Collection , Education, Distance/organization & administration , Education, Public Health Professional/organization & administration , Epidemiology/education , Government Agencies/organization & administration , Humans , State Government , State Health Planning and Development Agencies , Statistics as Topic , United States , Workforce
15.
Matern Child Health J ; 16 Suppl 2: 330-8, 2012 Dec.
Article in English | MEDLINE | ID: mdl-22976880

ABSTRACT

This study extends mediation analysis techniques to explore whether and to what extent differential access to a medical home explains the black/white disparity in unmet healthcare needs among children with special healthcare needs (CSHCN). Data were obtained from the 2007 National Survey of Children's Health, with analyses limited to non-Hispanic white and black CSHCN (n = 14,677). The counterfactual approach to mediation analysis was used to estimate odds ratios for the natural direct and indirect effects of race on unmet healthcare needs. Overall, 43.0 % of white CSHCN and 60.4 % of black CSHCN did not have a medical home. Additionally, 8.8 % of white CSHCN and 15.3 % of black CSHCN had unmet healthcare needs. The natural indirect effect indicates that the odds of unmet needs among black CSHCN are elevated by approximately 20 % as a result of their current level of access to the medical home rather than access at a level equal to white CSHCN (OR(NIE) = 1.2, 95 % CI = 1.1, 1.3). The natural direct effect indicates that even if black CSHCN had the same level of access to a medical home as white CSHCN, blacks would still have 60 % higher odds of unmet healthcare needs than whites (OR(NDE) = 1.6, 95 % CI = 1.1, 2.4). The racial disparity in unmet healthcare needs among CSHCN is only partially explained by disparities in having a medical home. Ensuring all CSHCN have equal access to a medical home may reduce the racial disparity in unmet needs, but will not completely eliminate it.


Subject(s)
Child Health Services/organization & administration , Child Health Services/statistics & numerical data , Disabled Children , Health Services Accessibility/statistics & numerical data , Healthcare Disparities/statistics & numerical data , Needs Assessment , Patient-Centered Care/organization & administration , Adolescent , Black People , Child , Child, Preschool , Continuity of Patient Care , Cross-Sectional Studies , Female , Health Care Surveys , Health Services Accessibility/organization & administration , Health Services Needs and Demand , Healthcare Disparities/ethnology , Humans , Infant , Infant, Newborn , Logistic Models , Male , Odds Ratio , Risk Factors , Socioeconomic Factors , United States , White People
16.
Matern Child Health J ; 16(2): 393-405, 2012 Feb.
Article in English | MEDLINE | ID: mdl-21369724

ABSTRACT

The aim of this study is to examine the relationship between prenatal care (PNC) provider site and the extent of documented adherence to recommended PNC content, and the relationship between adherence to recommended PNC content and adverse pregnancy outcomes among women in Illinois' Medical Assistance Program (MA). Utilizing the medical record, MA claims, and birth certificate data of 374 women who gave birth in 2003 and 2004 in four high-risk communities in Chicago, crude and adjusted analyses of the relationship between provider site and the extent of documented adherence to PNC content, and between adherence to PNC content and the incidence of low birthweight (LBW) and preterm birth (PTB) were conducted. The extent of documented adherence to recommended PNC content was measured from medical records as the percentage of 19 components of standard obstetrical practice that were delivered during pregnancy, converted to a three level categorical variable (low 50%, medium 50-79% and high 80% or greater). The majority of women had less than 80% of the recommended PNC content documented in their medical records. Among high-risk women, a greater proportion of women served by hospitals received care in which the extent of documented adherence was high (≥80%) compared to women served by physicians'offices (P < 0.05). Among low-risk women, a greater proportion of women served by FQHCs received care in which the extent of documented adherence was high compared to women served by hospitals (P < 0.10). Lower adherence to PNC content was significantly associated with LBW and PTB among women receiving prenatal care from physicians. Examination of the extent of adherence to recommended PNC content and its relationship to adverse pregnancy outcomes provides valuable data to inform potential interventions. In particular, a relationship between adherence to recommended PNC content and LBW and PTB among women receiving PNC at physicians' offices suggests the importance of increased quality assurance and provider education efforts.


Subject(s)
Guideline Adherence , Outcome and Process Assessment, Health Care/methods , Practice Guidelines as Topic/standards , Prenatal Care/standards , Professional Practice Location/statistics & numerical data , Adolescent , Adult , Chicago , Female , Health Care Surveys , Humans , Infant, Low Birth Weight , Infant, Newborn , Infant, Premature , Outcome and Process Assessment, Health Care/standards , Poverty , Pregnancy , Pregnancy Outcome , Prenatal Care/economics , Quality of Health Care , Young Adult
17.
Matern Child Health J ; 15(8): 1143-52, 2011 Nov.
Article in English | MEDLINE | ID: mdl-20848170

ABSTRACT

This paper discusses characteristics that are associated with enhanced maternal and child health (MCH) epidemiology functioning in state health agencies. The concept of the "MCH Epidemiology Effort" is introduced as "the epidemiologic work carried out by multiple units and agencies aimed at informing program planning and policy development on behalf of women, children and families." This concept focuses attention on MCH epidemiology functioning at the organizational level rather than on individual MCH epidemiologists. The analysis used data from all 50 states and the District of Columbia. Each state participated in a telephone interview and submitted material that demonstrated the breadth, depth, and capacity of its MCH Epidemiology Effort. Several organizations, including the Council for State and Territorial Epidemiologists, the Health Resources and Services Administration/Maternal and Child Health Bureau, and the Centers for Disease Control and Prevention provided additional secondary data. The outcome for analysis was a three-category measure of MCH epidemiology functioning. The findings are consistent with, and add specificity to, those from prior assessments. In a multivariable model, agenda-setting by consensus, involvement of external stakeholders, the total of doctorally trained staff, and accessing CDC assignees or other staff were all significantly related to higher level MCH epidemiology functioning (ORs of 6.1, 6.6, 2.5, and 6.4, respectively; P<0.05). Organizational visibility of the MCH Epidemiology Effort and a data environment marked by routine data-sharing and data integration were marginally related. We provide recommendations for action at the state and federal level for advancing evidence-based decision-making in maternal and child health.


Subject(s)
Efficiency, Organizational , Epidemiology/standards , Maternal-Child Health Centers , Public Health Administration , State Government , Female , Humans , Infant , Interviews as Topic , Maternal-Child Health Centers/organization & administration , Odds Ratio , United States
18.
ORL Head Neck Nurs ; 26(3): 8-15, 2008.
Article in English | MEDLINE | ID: mdl-18822811

ABSTRACT

Juvenile onset recurrent respiratory papillomatosis is a chronic disease of the pediatric airway caused by human papillomavirus. This paper discusses the etiology, epidemiology, symptomatology, diagnosis, and treatment of this disease. The role of the pediatric nurse practitioner is described in applying the medical home model. Comprehensive primary care is described for children with recurrent respiratory papillomatosis, including well child care, episodic illness management, and care coordination.


Subject(s)
Neoplasm Recurrence, Local/therapy , Nurse Practitioners/organization & administration , Papillomavirus Infections/therapy , Pediatric Nursing/organization & administration , Primary Health Care/organization & administration , Respiratory Tract Neoplasms/therapy , Child , Chronic Disease , Comprehensive Health Care/organization & administration , Continuity of Patient Care/organization & administration , Health Services Needs and Demand , Humans , Laryngoscopy , Models, Nursing , Neoplasm Recurrence, Local/complications , Neoplasm Recurrence, Local/diagnosis , Nurse's Role , Papillomavirus Infections/complications , Papillomavirus Infections/diagnosis , Patient Care Planning/organization & administration , Patient Education as Topic , Recurrence , Respiratory Tract Neoplasms/complications , Respiratory Tract Neoplasms/diagnosis
19.
Obstet Gynecol ; 109(2 Pt 1): 281-8, 2007 Feb.
Article in English | MEDLINE | ID: mdl-17267825

ABSTRACT

OBJECTIVE: Fecal incontinence is an embarrassing and disabling condition of which the epidemiology is poorly understood. Our goal is to estimate the incidence of fecal incontinence after childbirth. METHODS: A population-based survey was mailed to all women who delivered a liveborn infant in the state of Oregon between April 2002 and September 2002. The survey estimated the incidence of fecal incontinence. Surveys were to be completed within 3-6 months postpartum. Women were considered to have fecal incontinence based upon the National Institute of Child Health and Human Development definition of fecal incontinence: recurring episodes of involuntary loss of stool or flatus. RESULTS: Surveys were mailed to 21,824 eligible postpartum women. A total of 8,774 women responded (40%) to the survey, 2,569 (29%) of whom reported experiencing fecal incontinence since delivery. Almost half (46%) of all women with postpartum fecal incontinence reported incontinence of stool, and 38% reported exclusively incontinence of flatus. Approximately 46% reported onset of incontinence after delivery of their first child. Higher body mass index, longer pushing, forceps-assisted delivery, third- or fourth-degree laceration, and smoking were associated with severe fecal incontinence. CONCLUSION: In this population-based study, more than one in four women reported fecal incontinence within 6 months of childbirth, with almost half reporting onset of symptoms after delivery of their first child. Four in 10 women reported loss of flatus or stool during intercourse. Given the burden of this condition, both in number and social impact coupled with the hesitancy of women to want to initiate this conversation, providers should ask women about symptoms of fecal incontinence during postpartum examinations. Additionally, these data suggest that there may be a benefit to extending postpartum follow-up visits beyond the typical 6-8 weeks to provide surveillance for potential incontinence. LEVEL OF EVIDENCE: II.


Subject(s)
Fecal Incontinence/epidemiology , Puerperal Disorders/epidemiology , Adult , Delivery, Obstetric/adverse effects , Female , Health Surveys , Humans , Incidence , Maternal Age , Oregon/epidemiology , Parity , Pregnancy , Risk Factors
20.
Matern Child Health J ; 11(1): 11-7, 2007 Jan.
Article in English | MEDLINE | ID: mdl-16763773

ABSTRACT

OBJECTIVES: To examine pre-pregnancy Medicaid coverage and initiation of prenatal care among women likely eligible for Medicaid coverage regardless of pregnancy. METHODS: The Pregnancy Risk Assessment Monitoring System (PRAMS) was used to identify very low-income women with Medicaid payment for delivery. We then compared prenatal care initiation among women with (Non-GAP) and without (Medicaid GAP) pre-pregnancy Medicaid coverage. RESULTS: Rates of first trimester prenatal care were 47.3% for women in the Medicaid GAP, 70.0% for women who were not. The adjusted odds ratio for being in the Medicaid GAP and delayed prenatal care was 2.7 (95% CI 1.2, 6.2), although this varied by race/ethnicity and education. The relationship was strongest among White and Hispanic women with less than a high school education: OR=13.8, (95% CI 3.0, 62.7) and OR=19.0 (95% CI 2.4, 149.2), respectively. CONCLUSIONS: Pre-pregnancy Medicaid coverage appears to be associated with early initiation of prenatal care. Almost a decade after welfare reform, it is essential to preserve the Medicaid expansions for pregnant women, foster Medicaid family planning waivers, and promote access to primary care and early prenatal care, particularly for very low-income women.


Subject(s)
Health Services Accessibility/economics , Maternal Welfare/economics , Medicaid/statistics & numerical data , Medically Uninsured/statistics & numerical data , Poverty , Prenatal Care/statistics & numerical data , Risk Assessment/methods , Adult , Black or African American/statistics & numerical data , Birth Certificates , Chi-Square Distribution , Eligibility Determination/legislation & jurisprudence , Female , Health Services Accessibility/legislation & jurisprudence , Hispanic or Latino/statistics & numerical data , Humans , Maternal Welfare/legislation & jurisprudence , Maternal Welfare/trends , Medicaid/legislation & jurisprudence , Poverty/ethnology , Pregnancy , Pregnancy Trimester, First , Prenatal Care/economics , Risk Factors , United States , White People/statistics & numerical data
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