ABSTRACT
The current study involves the analysis of six bereaved parents' stories and argues that the development of philanthropic foundations helped these parents make meaning of their children's deaths and find purpose in the midst of their grief. Furthermore, philanthropy, as a way of making meaning and finding purpose, is a mutually beneficial process because it helps both the bereaved founders and the communities the organizations reach. Connections between these narratives and the bereavement literature help us better understand the individual/family grief process and meaning making, as well as how internal grief states intersect with communities.
Subject(s)
Attitude to Death , Charities , Foundations , Grief , Parents/psychology , Adaptation, Psychological , Adult , Anecdotes as Topic , Child , Female , Humans , Male , Middle Aged , Parent-Child Relations , Self-Help Groups , Social SupportABSTRACT
Adolescent and young adult (AYA) survivors of cancer are an understudied population with unique developmental and medical needs that extend well beyond their active treatment. Survivors diagnosed as AYAs may experience both physical and emotional late effects. In particular, the experiences of Latino cancer survivors have not been explored. The purpose of this study was to conduct interviews with AYA Latino cancer survivors to inform professionals working with these survivors. A hermeneutic phenomenological approach was selected based on the focus on experiences and meanings of Latino adolescents' cancer survivorship. Phenomenology allows for understanding the subjective meaning and lived experience of populations that are understudied or marginalized. In-depth interviews were conducted with participants. Enrolled in the study were Latino AYAs between the ages of 14 and 21 years, after treatment. Interviews revealed 7 themes regarding the experience and meaning of survivorship for this population: gratitude, humor/positive attitude, empathy for younger children with cancer, God and faith, cancer happens for a reason/cancer changed my life, familial support, and staff relationships. Latino AYA cancer survivors develop meaning out of unique cancer experiences. Programs need to be developed specifically to address Latino adolescents and young adult survivors of cancer.
Subject(s)
Hispanic or Latino , Neoplasms/diagnosis , Stress, Psychological , Adaptation, Psychological , Adolescent , Adult , Age Factors , Child , Female , Health Knowledge, Attitudes, Practice , Humans , Male , New Mexico , Pilot Projects , Psychometrics , Survivors , Texas , United States , Young AdultABSTRACT
This study provides an analysis of the relationships among perceived stigma, reported disclosure and perceived social support for those living with HIV. The meta-analytic summary of 21 studies (4,104 participants) showed, as predicted, a positive, heterogeneous correlation between disclosure and social support (r = .159), a negative, heterogeneous correlation between stigma and social support (r = -.344) and a negative, homogenous correlation between stigma and disclosure (r = -.189). The heterogeneity of the first two relationships indicates the presence of moderators, which may include participants' age and publications' year.
