ABSTRACT
PURPOSE: The purpose of this qualitative research study was to expand our understanding of the process of communication between parents of hospitalized technology dependent children and their nurses originally detailed in the Theory of Shared Communication (TSC). DESIGN AND METHODS: This grounded theory study was conducted with five parents of technology dependent children hospitalized in a large Midwestern children's hospital and nine nurses who care for technology dependent children admitted to the same hospital during July and August 2013. Semi-structured interviews and journals (parents only), field notes and a demographic survey were used to collect data which was analyzed using constant comparative analysis. RESULTS: Parents verified the concepts of the TSC and relationships among them. Nurses' perceptions of communication with parents reflected the same parent identified and verified concepts upon which the TSC was originally grounded including respect for own and other's expertise, asking, listening, explaining, advocating, verifying understanding and negotiating roles to achieve mutual understanding of the child's plan of care. The nurses' perceptions differed stylistically but not categorically from those of the parents. CONCLUSIONS: The addition of the nurse's perspectives to the verified TSC expands our understanding of this process of communication. PRACTICE IMPLICATIONS: With the integration of nurse and parent perspectives, the TSC can be used to enhance communication and care for hospitalized technology dependent children and their families.
Subject(s)
Communication , Disabled Children/rehabilitation , Patient Care Planning/organization & administration , Professional-Family Relations , Self-Help Devices/statistics & numerical data , Adult , Child , Child, Hospitalized , Child, Preschool , Dependent Ambulation , Disability Evaluation , Grounded Theory , Humans , Interviews as Topic , Nurse-Patient Relations , Outcome Assessment, Health Care , Qualitative Research , United StatesABSTRACT
Care may be compromised for hospitalized technology-dependent children if nurses do not communicate with parents to include their knowledge in the child's plan of care. A qualitative study using grounded theory methodology was undertaken to identify parental perceptions and experiences of communication with nurses. The Theory of Shared Communication was the result of this study and includes questioning, listening, explaining, advocating, verifying understanding and negotiating roles to achieve the outcome of mutual understanding of the child's plan of care. Nurses should be aware of parent perceptions about communication when working with families to optimize the care they provide.
