ABSTRACT
OBJECTIVE: The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling of loss of dignity and was designed for patients at the end of life. The aim of the present work was to generate a better understanding of the experiences of healthcare staff when using the PDI. METHOD: An exploratory qualitative study is presented about the experience of 4 professionals who applied the PDI to 124 advanced-cancer patients. Our study consisted of an analysis of their experiences, taken from information generated in a focus group. A thematic analysis was performed on the information generated at that meeting by two researchers working independently. RESULTS: The initial experiences with the PDI on the part of the professionals led them to systematically administer the questionnaire as part of an interview instead of having patients fill it out themselves in written form. What started out as an evaluation very often led to a profound conversation on the meaning of life, dignity, and other sensitive, key issues related to the process of the illness. SIGNIFICANCE OF RESULTS: The PDI has intrinsic therapeutic value and is useful in clinical practice, and it is also a way of examining issues related to dignity and the meaning of life within the context of advanced-stage illness. There is a need for studies that examine patient experiences through a PDI-based interview.
Subject(s)
Palliative Care/methods , Personhood , Psychometrics/standards , Quality of Life/psychology , Adaptation, Psychological , Female , Humans , Male , Middle Aged , Palliative Care/standards , Psychometrics/instrumentation , Psychometrics/methods , Qualitative Research , Reproducibility of Results , Surveys and QuestionnairesABSTRACT
Objetivo: Describir la calidad de vida percibida en trabajadoras latinoamericanas como cuidadoras en España y sus diferencias en relación a ciertas variables que les son comunes. Métodos: Se utilizó el cuestionario SF-36 para la medición de la calidad de vida percibida en 517 mujeres de Baleares, Cataluña, País Vasco, Canarias y Madrid. Se estudiaron diversas variables relacionadas con su perfil sociodemográfico y proceso migratorio, usando la prueba t de Student, el test ANOVA y modelos de regresión lineal. Resultados: Obtuvieron muy bajas puntuaciones en las dimensiones de rol físico y rol emocional. El trabajo como interna, la falta de contrato, las múltiples tareas, el estatus irregular y la edad más joven se relacionaron con una peor calidad de vida dentro del grupo. Conclusiones: Las condiciones laborales y los factores ligados al proceso migratorio son determinantes para explicar la vulnerabilidad de estas mujeres (AU)
Objective: To describe perceived quality of life in Latin American caregivers working in Spain and how it varies in relation to certain variables shared by this group. Methods: We used the SF-36 to measure perceived quality of life in 517 women residing in five Spanish regions: the Balearic Islands, Catalonia, the Basque Country, the Canary Islands, and Madrid. Several variables related to the socio-demographic profile and migration process were studied using Student's t test, ANOVA and linear regression models. Results: The participants scored very low on the dimensions of physical and emotional roles. The factors associated with lower quality of life scores within the group were working as a live-in caregiver, lack of contract, multitasking, irregular status, and younger age. Conclusions: The vulnerability of these women can be explained by poor working conditions and other factors related to the migratory process (AU)
Subject(s)
Humans , Female , Adult , Middle Aged , Young Adult , Caregivers , Emigrants and Immigrants , Occupational Health , Quality of Life , Cross-Sectional Studies , Self Report , Latin America/ethnology , SpainABSTRACT
OBJECTIVE: To describe perceived quality of life in Latin American caregivers working in Spain and how it varies in relation to certain variables shared by this group. METHODS: We used the SF-36 to measure perceived quality of life in 517 women residing in five Spanish regions: the Balearic Islands, Catalonia, the Basque Country, the Canary Islands, and Madrid. Several variables related to the socio-demographic profile and migration process were studied using Student's t test, ANOVA and linear regression models. RESULTS: The participants scored very low on the dimensions of physical and emotional roles. The factors associated with lower quality of life scores within the group were working as a live-in caregiver, lack of contract, multitasking, irregular status, and younger age. CONCLUSIONS: The vulnerability of these women can be explained by poor working conditions and other factors related to the migratory process.
Subject(s)
Caregivers , Emigrants and Immigrants , Occupational Health , Quality of Life , Adult , Cross-Sectional Studies , Female , Humans , Latin America/ethnology , Middle Aged , Self Report , Spain , Young AdultABSTRACT
Introducción: El cuidado prestado por los cuidadores principales de personas mayores constituye el principal soporte que éstas reciben. Proporcionar estos cuidados afecta de diferente manera a cada cuidador. La literatura es amplia y extensa al describir estas repercusiones de la tarea de cuidar sobre el cuidador, así como en referencia a los recursos de apoyo utilizados. Método: Se ha realizado una revisión sistemática de la literatura, en las principales bases de datos nacionales e internacionales, sobre las intervenciones, recursos y repercusiones de la tarea de cuidar sobre los cuidadores informales de personas mayores. Conclusiones: Los cuidadores informales españoles de personas mayores parecen disponer de diferentes recursos de apoyo en su tarea de cuidado, aunque sigue siendo la familia la principal fuente de ayuda frente a los sistemas formales. La literatura recoge repercusiones tanto positivas como negativas derivadas de la responsabilidad del cuidado. Entre estos últimos, encontramos como máximo exponente los estados ansioso-depresivos, así como la sobrecarga del cuidador. Sin embargo, estas consecuencias negativas se entrelazan e interactúan con las afectaciones positivas. La revisión realizada nos invita a afirmar que se precisa el desarrollo de más estudios para tratar de esclarecer la relación entre ambos polos de la experiencia del cuidado (AU)
