ABSTRACT
BACKGROUND: We describe reach, partnerships, products, benefits, and lessons learned of the 25 Community Network Programs (CNPs) that applied community-based participatory research (CBPR) to reduce cancer health disparities. METHODS: Quantitative and qualitative data were abstracted from CNP final reports. Qualitative data were grouped by theme. RESULTS: Together, the 25 CNPs worked with more than 2,000 academic, clinical, community, government, faith-based, and other partners. They completed 211 needs assessments, leveraged funds for 328 research and service projects, trained 719 new investigators, educated almost 55,000 community members, and published 991 articles. Qualitative data illustrated how use of CBPR improved research methods and participation; improved knowledge, interventions, and outcomes; and built community capacity. Lessons learned related to the need for time to nurture partnerships and the need to attend to community demand for sustained improvements in cancer services. IMPLICATIONS: Findings demonstrate the value of government-supported, community-academic, CBPR partnerships in cancer prevention and control research.
Subject(s)
Community-Based Participatory Research/organization & administration , Health Status Disparities , National Cancer Institute (U.S.)/organization & administration , Needs Assessment/organization & administration , Neoplasms/ethnology , Community Networks , Humans , Minority Groups , Qualitative Research , Racial Groups , United StatesABSTRACT
BACKGROUND: The Spirit of E.A.G.L.E.S. is a National Cancer Institute funded Special Populations Network. Prior to its inception, there was limited infrastructure available to American Indian and Alaska Native populations to support cancer control activities. METHODS: Awareness has been raised about the burden of cancer in this special population. RESULTS AND CONCLUSIONS: Changes have started to support truly comprehensive cancer control across the cancer care continuum and will drive future community-based, participatory action research.