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1.
Support Care Cancer ; 27(5): 1783-1792, 2019 May.
Article in English | MEDLINE | ID: mdl-30155569

ABSTRACT

PURPOSE: Developmentally appropriate care underpins quality cancer treatment. This study aimed to describe how well Australian cancer services deliver patient-focussed, developmentally appropriate care to adolescents and young adults (AYAs) with cancer. METHODS: In a national, cross sectional study, 196 AYAs with cancer aged between 15 and 25 years at diagnosis reported their general experiences of the cancer care team (Cancer Needs Questionnaire), access to age-appropriate treatment environments (Cancer Needs Questionnaire) and frequency of psychosocial assessment (Adolescent Friendly Hospital Survey). RESULTS: Very positive responses were reported around engagement and communication with staff who were reported as approachable, friendly and trustworthy; 11 of the 14 items were positively rated by over 90% of respondents. In contrast, over 70% of AYAs expressed unmet need around their physical and social environments, whether in relation to the opportunity to be nursed in wards designed for AYAs, spend time with other young people with cancer, or talk to young people their own age; less than a third reported their needs had been met on the majority of these items. The frequency that specific psychosocial assessment domains were discussed was highly variable; responses suggested that AYAs were less commonly questioned about overtly sensitive topics. AYAs who experienced private consultations with health care providers (41%) were significantly more likely to experience thorough psychosocial assessment. CONCLUSION: Australian cancer services are generally communicating well with AYAs. There is room for improvement around more developmentally specific aspects of healthcare quality, such as psychosocial assessment, and around treatment environments that promote greater social interaction between AYAs.


Subject(s)
Adolescent Medicine/methods , Neoplasms/therapy , Adolescent , Adult , Age Factors , Australia , Communication , Cross-Sectional Studies , Female , Humans , Interpersonal Relations , Male , Neoplasms/psychology , Patient-Centered Care/methods , Social Environment , Young Adult
2.
J Asthma ; 55(9): 1018-1027, 2018 09.
Article in English | MEDLINE | ID: mdl-29064746

ABSTRACT

Objective: Young people with asthma often lack engagement in self-management. Smartphone apps offer an attractive, immediate method for obtaining asthma information and self-management support. In this research we developed an evidence-based asthma app tailored to young peoples needs, created using a participatory design approach to optimize user engagement. This paper describes the participatory design process. Methods: This multi-phased research included concept generation and ideation of app design by young people with asthma, and development of asthma information by the research team. Clinical review was sought regarding safety and accuracy of app content. Participants suggestions for improvement and any problems with the app were logged throughout. Our young co-designers were invited back to test a high fidelity prototype app using a "think aloud" process and completed a usability questionnaire. Results: Twenty asthma patients aged 15-24 years contributed to the initial app design. Three respiratory specialists and two pharmacists suggested minor corrections to clinical terminology in the app which were all incorporated. Nine co-designers acted as expert reviewers of the prototype app, of whom eight completed a usability questionnaire. Median usability scores (maximum score 6) indicated high satisfaction with app content, usefulness and ease of use [median item score 5.3 (range 4.7-6.0)]. All feedback was incorporated to create an updated prototype app. Conclusions: A clinically sound asthma app has been developed which is considered highly acceptable to the young co-designers. A six-week test of the engagement, acceptability, and usefulness of the app in young people not involved in the participatory design will follow.


Subject(s)
Asthma/therapy , Mobile Applications , Self-Management/methods , Software Design , Adolescent , Female , Humans , Male , Patient Satisfaction , Patients/psychology , Pharmacists/psychology , Research Design , Respiratory Therapy/methods , Telemedicine , Young Adult
3.
Int J Tuberc Lung Dis ; 20(8): 1078-83, 2016 08.
Article in English | MEDLINE | ID: mdl-27393543

ABSTRACT

BACKGROUND: Tuberculosis (TB) can be prevented using isoniazid preventive therapy (IPT) among child contacts. However, the benefits of IPT depend on adherence to at least 6 months of daily treatment. A greater understanding of the barriers to and facilitators of adherence to IPT in resource-poor settings is required to optimise the benefits. METHODS: We prospectively evaluated adherence to IPT and its associated factors among child contacts (age 0-5 years) eligible for IPT. We undertook in-depth interviews with care givers and a focus group discussion with health care workers, which were thematically analysed to explore barriers to and facilitators of adherence from the perspective of both care givers and health workers. RESULTS: Of 99 eligible children, 49 (49.5%) did not complete 6 months of IPT. Children whose care giver collected their IPT medications from primary health centres were more likely to have incomplete adherence than those who collected them from hospitals (aOR 2.9, 95%CI 1.1-7.8). Thematic analyses revealed major barriers to and facilitators of adherence: regimen-related, care giver-related and health care-related factors, social support and access. Many of these factors are readily modifiable. CONCLUSION: Providing information about IPT and improving accessibility for care givers to receive IPT at the primary health care facility should be priorities to facilitate implementation.


Subject(s)
Antitubercular Agents/administration & dosage , Contact Tracing , Isoniazid/administration & dosage , Medication Adherence , Practice Patterns, Physicians' , Primary Prevention , Tuberculosis, Pulmonary/prevention & control , Tuberculosis, Pulmonary/transmission , Caregivers , Child, Preschool , Drug Administration Schedule , Female , Focus Groups , Guideline Adherence , Humans , Indonesia , Infant , Infant, Newborn , Interviews as Topic , Male , Odds Ratio , Practice Guidelines as Topic , Prospective Studies , Risk Factors , Time Factors , Treatment Outcome , Tuberculosis, Pulmonary/diagnosis
4.
Clin Exp Allergy ; 46(4): 602-9, 2016 Apr.
Article in English | MEDLINE | ID: mdl-26728850

ABSTRACT

BACKGROUND: Asian infants born in Australia are three times more likely to develop nut allergy than non-Asian infants, and rates of challenge-proven food allergy in infants have been found to be unexpectedly high in metropolitan Melbourne. To further investigate the risk factors for nut allergy, we assessed the whole-of-state prevalence distribution of parent-reported nut allergy in 5-year-old children entering school. METHODS: Using the 2010 School Entrant Health Questionnaire administered to all 5-year-old children in Victoria, Australia, we assessed the prevalence of parent-reported nut allergy (tree nut and peanut) and whether this was altered by region of residence, socio-economic status, country of birth or history of migration. Prevalence was calculated as observed proportion with 95% confidence intervals (CI). Risk factors were evaluated using multivariable logistic regression and adjusted for appropriate confounders. RESULTS: Parent-reported nut allergy prevalence was 3.1% (95% CI 2.9-3.2) amongst a cohort of nearly 60 000 children. It was more common amongst children of mothers with higher education and socio-economic index and less prevalent amongst children in regional Victoria than in Melbourne. While children born in Australia to Asian-born mothers (aOR 2.67, 95% CI 2.28-3.27) were more likely to have nut allergy than non-Asian children, children born in Asia who subsequently migrated to Australia were at decreased risk of nut allergy (aOR 0.1, 95% CI 0.03-0.31). CONCLUSION: Migration from Asia after the early infant period appears protective for the development of nut allergy. Additionally, rural regions have lower rates of nut allergy than urban areas.


Subject(s)
Ethnicity , Nut Hypersensitivity/epidemiology , Child , Child, Preschool , Emigration and Immigration , Female , Geography , Humans , Male , Population Surveillance , Prevalence , Risk Factors , Rural Population , Socioeconomic Factors , Surveys and Questionnaires , Urban Population , Victoria/epidemiology
5.
Intern Med J ; 42(6): e136-44, 2012 Jun.
Article in English | MEDLINE | ID: mdl-21627747

ABSTRACT

BACKGROUND: Asthma guidelines advise addressing adherence at every visit, but no simple tools exist to assist clinicians in identifying key adherence-related beliefs or behaviours for individual patients. AIMS: To identify potentially modifiable beliefs and behaviours that predict electronically recorded adherence with controller therapy. METHODS: Patients aged ≥ 14 years with doctor-diagnosed asthma who were prescribed inhaled corticosteroid/long-acting ß(2)-agonist (ICS/LABA) completed questionnaires on medication beliefs/behaviours, side-effects, Morisky adherence behaviour score and Asthma Control Test (ACT), and recorded spirometry. Adherence with ICS/LABA was measured electronically over 8 weeks. Predictors of adherence were identified by univariate and multivariate analyses. RESULTS: 99/100 patients completed the study (57 female; forced expiratory volume in 1 s mean ± standard deviation 83 ± 23% predicted; ACT 19.9 ± 3.8). Mean electronically recorded adherence (n= 85) was 75% ± 25, and mean self-reported adherence was 85% ± 26%. Factor analysis of questionnaire items significantly associated with poor adherence identified seven themes: perceived necessity, safety concerns, acceptance of asthma chronicity/medication effectiveness, advice from friends/family, motivation/routine, ease of use and satisfaction with asthma management. Morisky score was moderately associated with actual adherence (r=-0.45, P < 0.0001). In regression analysis, 10 items independently predicted adherence (adjusted R(2) = 0.67; P < 0.001). Opinions of friends/family about the patient's medication use were strongly associated with poor adherence. Global concerns about ICS/LABA therapy were more predictive of poor adherence than were specific side-effects; the one-third of patients who reported experiencing side-effects from their steroid inhaler had lower adherence than others (mean 62% vs 81%; P= 0.015). CONCLUSIONS: This study identified several specific beliefs and behaviours which clinicians could use for initiating patient-centred conversations about medication adherence in asthma.


Subject(s)
Asthma/therapy , Patient Compliance , Adult , Aged , Cross-Sectional Studies , Disease Management , Drug Monitoring/methods , Factor Analysis, Statistical , Female , Humans , Male , Middle Aged , Multivariate Analysis , Patient Compliance/statistics & numerical data , Principal Component Analysis , Prospective Studies , Self Report
6.
J Cyst Fibros ; 8(4): 264-9, 2009 Jul.
Article in English | MEDLINE | ID: mdl-19523883

ABSTRACT

BACKGROUND: Sexual and reproductive health (SRH) is increasingly relevant for men with CF. However, the extent of similarities or differences in SRH clinical practices across different centres or states is unknown as single clinic studies are not informative about variations in male preferences or clinical practices. We wished to determine the variability of male SRH knowledge and preferences, and clinical practices across different CF clinics. METHODS: Men attending 5 adult CF clinics in Australasia completed a survey of SRH knowledge, attitudes and behaviours. RESULTS: 264 (64%) men participated, with a median age of 30 years (17-56). 65% knew of near universal infertility due to a transport problem. 43% heard about infertility from their preferred source, but significantly later than desired. Less than half had undergone semen analysis (SA), which, while varying by site, was consistently later than preferred. 57 men were fathers, of whom 29 had utilised ART. CONCLUSION: Men's preferences around SRH were more consistent than clinical practices. Clinical practice guidelines and training for health professionals would help reduce the gap between men's SRH preferences and clinical practice.


Subject(s)
Cystic Fibrosis/complications , Cystic Fibrosis/psychology , Infertility, Male/complications , Infertility, Male/psychology , Sexuality , Adolescent , Adult , Attitude to Health , Fertility , Health Knowledge, Attitudes, Practice , Health Surveys , Humans , Male , Middle Aged , Patient Satisfaction , Quality of Life , Reproductive Health Services , Semen Analysis , Surveys and Questionnaires , Young Adult
7.
Cochrane Database Syst Rev ; (4): CD005110, 2007 Oct 17.
Article in English | MEDLINE | ID: mdl-17943840

ABSTRACT

BACKGROUND: Irritable bowel syndrome (IBS) is a common functional gastrointestinal disorder of unknown aetiology. Current pharmacological treatments have limited value. Hypnotherapy has been reported to have beneficial effects for IBS symptoms. OBJECTIVES: To evaluate the efficacy of hypnotherapy for the treatment of irritable bowel syndrome. SEARCH STRATEGY: Published and unpublished randomised clinical trials and quasi-randomised clinical trials were identified through structured searches of MEDLINE (1966 to March 2006), EMBASE (1980 to March 2006), PsycINFO (1806 to March 2006), CINAHL (Cumulative Index to Nursing and Allied Health Literature, 1982 to March 2006), AMED (Allied and Complementary Medicine Database, 1985 to March 2006) and The Cochrane Central Register of Controlled trials. Conference proceedings from Digestive Disease Week (1980 to 2005) were also searched. SELECTION CRITERIA: Eligible studies included all randomised and quasi-randomised clinical studies comparing hypnotherapy for the treatment of irritable bowel syndrome with no treatment or another therapeutic intervention. DATA COLLECTION AND ANALYSIS: All studies were evaluated for eligibility for inclusion. Included studies were assessed for quality and data were extracted independently by four authors. The primary outcome measure of interest was the overall bowel symptom severity score which combines abdominal pain, diarrhoea or constipation and bloating. Secondary outcomes included abdominal pain, diarrhoea, constipation, bloating, quality of life, patient's overall assessment of well-being, psychological measures as per validated questionnaires, and adverse events. MAIN RESULTS: Four studies including a total of 147 patients met the inclusion criteria. Only one study compared hypnotherapy to an alternative therapy (psychotherapy and placebo pill), two studies compared hypnotherapy with waiting-list controls and the final study compared hypnotherapy to usual medical management. Data were not pooled for meta-analysis due to differences in outcome measures and study design. The therapeutic effect of hypnotherapy was found to be superior to that of a waiting list control or usual medical management, for abdominal pain and composite primary IBS symptoms, in the short term in patients who fail standard medical therapy. Harmful side-effects were not reported in any of the trials. However, the results of these studies should be interpreted with caution due to poor methodological quality and small size. AUTHORS' CONCLUSIONS: The quality of the included trials was inadequate to allow any conclusion about the efficacy of hypnotherapy for irritable bowel syndrome. More research with high quality trials is needed.


Subject(s)
Hypnosis , Irritable Bowel Syndrome/therapy , Female , Humans , Irritable Bowel Syndrome/psychology , Male , Randomized Controlled Trials as Topic
8.
Intern Med J ; 37(8): 555-60, 2007 Aug.
Article in English | MEDLINE | ID: mdl-17640188

ABSTRACT

As increasing numbers of young people with chronic illness reach adulthood, their ongoing medical care must evolve to be delivered in an adult rather than paediatric setting, a process known as transition. Towards this goal, increasing numbers of paediatric and adult hospitals are engaging in processes to promote the continuity of care for young people with chronic illness. Increasing evidence shows that adverse health consequences occur when inadequate transition arrangements are in place. This article draws from the experience of a transition programme emanating from the Royal Children's Hospital, Melbourne and describes the preparation that can ensure effective transition of young people with chronic illness to adult institutions. In paediatric settings, this includes opportunities for young people to be seen medically on their own to encourage independence with health-care goals and ensuring that adequate health information is transferred to the adult service. In adult institutions, understanding the concept of adolescent development will encourage young people's engagement with the new health-care providers to improve health outcomes. Joint clinics between paediatric and adult health-care teams can improve the transfer of individual patient knowledge, promote a collaborative approach to patient care, facilitate continuity of care and build confidence from both medical and patient perspectives. Including patients in decision-making processes around transition services will encourage youth-focused service developments that will help achieve optimal outcomes in young people with chronic illness.


Subject(s)
Chronic Disease , Continuity of Patient Care/organization & administration , Delivery of Health Care/organization & administration , Adolescent , Adult , Age Factors , Australia , Humans , Pediatrics , Self Care
9.
Palliat Med ; 20(8): 805-11, 2006 Dec.
Article in English | MEDLINE | ID: mdl-17148535

ABSTRACT

BACKGROUND: There is tension around the notion of research with bereaved parents. While it is recognised that the care of children with palliative care needs will only improve with better understanding of parent perspectives, the vulnerability of bereaved parents is equally recognised as a challenge to ethical research. An emerging literature suggests that research can be safely and ethically conducted with bereaved families, if performed sensitively. However, little is known about what research processes might enhance ethical research practice in this field. AIM: To explore the impact of the research process on bereaved parents, and to identify what elements enhance the experience of research participation. METHODS: This qualitative study used in-depth interview techniques with the bereaved parents of children who had died from a range of conditions. RESULTS: Interviews took place with 69 parents from 45 eligible families (70% of 64 selected eligible families) of children who had died from a range of chronic conditions. All participants considered the timing and nature of the initial approach by the researchers to be appropriate. The experience for parents was reported to be enhanced by the sensitivity of the initial approach. The use of in-depth qualitative interviews promoted parent empowerment through determining both pace and content of interviews. Although the majority of parents primarily chose to participate for altruistic reasons, many described the research process as personally beneficial. CONCLUSION: Participating in research was viewed positively by these bereaved parents. Careful attention to the research process in terms of timing, approach and the interviewer's skills were key elements that underpinned a positive experience. The skilled utilisation of in-depth interviewing techniques was perceived to enhance ethical research practice.


Subject(s)
Attitude , Bereavement , Ethics, Research , Palliative Care , Parents/psychology , Research Subjects/psychology , Adult , Child , Child, Preschool , Female , Humans , Interview, Psychological , Male
10.
Med Teach ; 28(5): e135-8, 2006 Aug.
Article in English | MEDLINE | ID: mdl-16973447

ABSTRACT

The majority of medical schools have curricula that address the health effects of smoking. However, there are many gaps in smoking education, especially in relationship to vertical integration. The authors aimed to determine whether medical students would better address adolescent smoking within a vertically integrated curriculum in comparison with the previous traditional curriculum. They studied two groups of fifth-year students; one group received a specific smoking intervention. Each group consisted of the entire cohort of students within the Child and Adolescent Health rotation of a newly designed medical curriculum. Two groups of students from the previous traditional undergraduate curriculum were available for direct comparison, one of which had received the same teaching on adolescent smoking. An objective structured clinical examination station was used to measure adolescent smoking enquiry. Intervention students in the new curriculum were more likely to enquire about smoking in the objective structured clinical examination than students who did not receive the intervention (p < 0.005). New curriculum students performed better than students from the previous curriculum, whether or not they had received the smoking intervention (p < 0.001). This study suggests that integrated undergraduate teaching can improve student clinical behaviours with regard to opportunistic smoking enquiry in adolescents.


Subject(s)
Adolescent Behavior , Curriculum , Education, Medical, Undergraduate , Educational Measurement , Health Promotion , Smoking/adverse effects , Students, Medical , Adolescent , Cohort Studies , Humans , Teaching
11.
Clin Exp Allergy ; 36(5): 609-13, 2006 May.
Article in English | MEDLINE | ID: mdl-16650045

ABSTRACT

BACKGROUND: Asthma is more prevalent among males in childhood, but females report higher rates in adulthood. The reasons are unknown; although it has been hypothesized that hormonal factors may explain this sex-dependent risk of adult-onset asthma. OBJECTIVE: To determine whether a woman's reproductive history or use of oral contraceptives is associated with adult-onset asthma. METHODS: In 1991-1993, we surveyed 681 women aged 29-32 years randomly sampled from participants first surveyed at age 7 years by the 1968 Tasmanian Asthma Survey, a study of all children born in 1961 and attending school. Current asthma was defined as reporting asthma or wheezy breathing in the past 12 months. RESULTS: In women who did not have asthma or wheezy breathing by age 7 years, 13% had current asthma. The risk of current asthma in these who were parous increased with the number of births (odds ratio (OR) 1.50 per birth, 95% confidence interval (CI) 1.01-2.23 P=0.04) while women with one birth were at a lower risk than nulliparous women (OR 0.46 95% CI 0.2-1.06, P=0.07). Independent of parity, the risk decreased by 7% (95% CI 0-13%) per year of oral contraceptive pill use in all women. In women who did have asthma or wheezy breathing by age 7 years, neither reproductive history nor oral contraceptive pill use predicted current asthma. CONCLUSION: Our observation that parity and decreased oral contraceptive use predict asthma in women, is consistent with the hypothesis that the asthma that develops after childhood is in part a response to endogenous and exogenous female hormones. This may be due to alterations of cytokine responses by the pregnant state, triggering adult-onset asthma in women.


Subject(s)
Asthma/etiology , Contraceptives, Oral/administration & dosage , Parity , Adult , Age Factors , Asthma/epidemiology , Educational Status , Female , Follow-Up Studies , Humans , Pregnancy , Prevalence , Prospective Studies , Respiratory Sounds , Risk Factors , Smoking/adverse effects , Tasmania/epidemiology
12.
Intern Med J ; 36(5): 302-7, 2006 May.
Article in English | MEDLINE | ID: mdl-16650195

ABSTRACT

The optimal management of adolescent and young adult cancer has been the subject of vigorous debate in paediatric and adult cancer community for many years. This debate is rapidly coming to the boil. There is international recognition that not only is cancer in young people on the rise but also that improvements in outcomes of cancer in young people lag well behind the advances that have been achieved for both children and older adults in the past 30 years. The underlying problems appear to relate to a complex set of interactions between the health-care system and the prevalence of cancer in this age group and the unique psychosocial and educational needs of this population. This article explores why we should be concerned about Australian health outcomes in this group and considers how best we might respond to these concerns.


Subject(s)
Neoplasms/psychology , Neoplasms/therapy , Adolescent , Adult , Age Factors , Australia , Clinical Trials as Topic , Humans , Incidence , Neoplasms/epidemiology , Personal Autonomy , Social Isolation , Treatment Failure
13.
Pediatr Cardiol ; 26(6): 805-11, 2005.
Article in English | MEDLINE | ID: mdl-16078118

ABSTRACT

BACKGROUND: Improved survival in young people with congenital heart disease (CHD) alters the significance of a range of developmentally important subjects, such as sexual and reproductive health. The aim of this study was to determine the level of knowledge about sexual and reproductive health issue in young people with CHD. METHODS: We undertook a systematic review of the literature from 1966 to March 2004, searching Medline, Psych Info, and Em base using a broad range of search terms. Additionally, we searched the literature for published guidelines on standards of care for young people with CHD. RESULTS: We identified ten articles that examined patients,' understanding of their heart disease. Seven of them specifically investigated knowledge of sexual and reproductive health as it related to cardiac disease. CONCLUSIONS: In general, young people have a poor understanding of their heart disease. They appear to have a particularly poor grasp of sexual and reproductive health issues, yet they are interested in these issues. Therefore, health care programs for young people with CHD should incorporate sexual and reproductive health information and include anticipatory counseling and health risk screening.


Subject(s)
Health Knowledge, Attitudes, Practice , Heart Defects, Congenital/psychology , Parenting/psychology , Sexual Behavior/psychology , Adolescent , Adult , Female , Health Status , Humans , Male , Reproduction , Sex Education
14.
Thorax ; 60(4): 326-30, 2005 Apr.
Article in English | MEDLINE | ID: mdl-15790989

ABSTRACT

BACKGROUND: Improved survival dramatically alters the consequences of adult co-morbidities in men with cystic fibrosis (CF) such as male infertility. Few studies have systematically addressed the impact of sexual and reproductive health issues in these men or considered the implications for healthcare delivery. METHOD: A descriptive cohort study was undertaken using a sexual and reproductive health survey of men from a large adult CF centre, including men with lung transplantation. RESULTS: The mean (SD) age of the 94 men (response rate 75%) was 30.5 (7.6) years. 94% knew that men with CF had reduced fertility. Men first heard about infertility later than desired (p<0.001) and only 53% heard from their preferred source. Men who were told about infertility when older were more likely to be upset than those told earlier (p<0.01). 53% of men had undergone semen analysis: 68% of men who had not been tested wanted semen analysis. 73% believed semen analysis should occur before 18, but the youngest age of testing was 24 years. In adolescence, one in three men had assumed they did not need to use condoms and one in 10 had confused infertility with impotence. 66% of men wanted more information on reproductive options and 84% wanted children. Seventeen men were parents by natural conception (n = 1), micro-epididymal sperm aspiration (n = 6), donor sperm (n = 9), and through step children (n = 1). CONCLUSIONS: Men with CF desire more sexual and reproductive health information. Earlier discussion of sexual and reproductive health is indicated in paediatric settings, and semen analysis should be routinely offered. In adult services greater discussion of reproductive health options is indicated.


Subject(s)
Cystic Fibrosis/complications , Sexual Behavior , Adolescent , Adult , Cohort Studies , Cystic Fibrosis/psychology , Health Knowledge, Attitudes, Practice , Health Surveys , Humans , Infertility, Male/etiology , Interpersonal Relations , Male , Patient Education as Topic , Reproductive Medicine , Semen/chemistry , Sexual Dysfunction, Physiological/etiology , Sexual Partners , Surveys and Questionnaires
15.
Fam Pract ; 21(2): 166-72, 2004 Apr.
Article in English | MEDLINE | ID: mdl-15020386

ABSTRACT

BACKGROUND: Asthma treatment guidelines currently recommend a 'therapeutic partnership' to achieve best care. It is frequently assumed that individuals presenting to emergency departments with asthma do not have a good doctor-patient relationship. We asked what is the nature of patients' relationships with their doctors in those presenting to hospital emergency departments for asthma care. METHODS: A qualitative study of all consenting individuals aged 18-70 years who presented to a hospital emergency department over 2 months was carried out. Sixty-two participants (19 male) engaged in in-depth interviews which were taped, transcribed and underwent thematic analysis. Questionnaire data were also collected and asthma severity determined. RESULTS: Nearly all patients (61/62) had a doctor whom they saw for their asthma. Patients made thoughtful choices on where they sought care according to their needs. Our findings identified that perceptions of doctors' competence, listening to patients and time constraints were important influences on doctor-patient relationships. Participants had strong expectations that their personal disease experience would be acknowledged by their doctors. CONCLUSION: This group of patients had doctors who cared for their asthma. The acceptability of medical care was determined as much by patient choice as by the quality of the doctor-patient relationship.


Subject(s)
Asthma/therapy , Emergency Service, Hospital/statistics & numerical data , Health Knowledge, Attitudes, Practice , Patient Participation/statistics & numerical data , Physician-Patient Relations , Adolescent , Adult , Aged , Australia , Female , Health Care Surveys , Humans , Male , Middle Aged , Patient Acceptance of Health Care/statistics & numerical data , Physician's Role , Qualitative Research
16.
Med Educ ; 37(8): 704-8, 2003 Aug.
Article in English | MEDLINE | ID: mdl-12895250

ABSTRACT

BACKGROUND: We developed a 1-hour teaching seminar for medical students on anti-smoking health promotion for adolescents. We report the development of the programme and a performance-based evaluation. AIM: To develop a seminar for medical students with the objective of improving medical student inquiry into smoking and the delivery of advice accordingly for adolescent patients in routine consultations. METHOD: The seminar was developed using principles of adult learning and delivered to a cohort of medical students (intervention group). Participants were Year 5 medical students in their paediatrics term. A comparison group of 58 medical students who did not receive the seminar was studied in the semester prior to the intervention. The primary outcome measure was a change in anti-smoking health promotion practice within an objective structured clinical examination (OSCE), where taking a smoking history and making links between smoking status and health were indicated in a 15-year-old simulated patient (SP) with poorly controlled asthma. This was part of the summative assessment in the paediatrics term. RESULTS: In the OSCE, 21 of 58 (36%) students in the comparison group asked the asthmatic SP about smoking, compared with 41 of 56 (73%) students in the intervention group (P = 0.0001). In all, 15 (26%) of the comparison group students addressed the patient's smoking, compared with 33 of the 56 (59%) intervention group students (P = 0.0004). CONCLUSION: A carefully designed seminar addressing adolescent smoking can increase the frequency of smoking inquiry and advice by medical students.


Subject(s)
Education, Medical, Undergraduate/methods , Health Promotion/methods , Smoking Prevention , Adolescent , Australia , Cohort Studies , Counseling , Humans , Program Development , Smoking/adverse effects
17.
J Paediatr Child Health ; 39(4): 315-7, 2003.
Article in English | MEDLINE | ID: mdl-12755943

ABSTRACT

We report two 16-year-old female intravenous drug users who, after making purchases from street suppliers, both presented with symptoms of acute opioid withdrawal. Urine toxicology revealed naltrexone, a long-acting opioid antagonist used in detoxification and maintenance therapy in opioid dependence. While the safety and efficacy of opiate antagonist treatment is being debated, the present case highlights the vulnerability of this young population. The recent availability of non-prescribed opiate antagonists suggests that both health professionals and young people themselves need to be aware of their effects.


Subject(s)
Naltrexone/adverse effects , Narcotic Antagonists/adverse effects , Substance Abuse, Intravenous , Substance Withdrawal Syndrome/physiopathology , Adolescent , Female , Humans , Substance Withdrawal Syndrome/diagnosis
18.
Ann Acad Med Singap ; 32(1): 36-42, 2003 Jan.
Article in English | MEDLINE | ID: mdl-12625096

ABSTRACT

INTRODUCTION: This paper aims to provide an overview of chronic illness and disability in young people, focusing on the developmental needs of young people and the impact of chronic illness on adolescence. The emotional well-being of the young person with chronic illness is explored and strategies that promote better health outcomes for the young person through health, family and school settings are discussed. METHODS: Literature was searched using Medline from 1980 to 2002 using the keywords chronic illness, chronic disease, disability, psychological, social, outcomes and transition. Articles were also hand searched from retrieved articles. CONCLUSIONS: Young people with chronic illness have the same developmental needs as other adolescents. Traditional health care is focused on disease outcomes; however, young people do not necessarily share the same focus. Improving health outcomes for young people involves health professionals having an understanding of adolescent development and broadening the medical perspective to incorporate the developmental perspective. Building competence in young people with chronic illness, strengthening connectedness within the family, school and peer group and building the capacity of the health care team in different settings will provide opportunities to enhance resilience in young people with chronic illness. In doing so, their health outcomes will hopefully also be improved.


Subject(s)
Chronic Disease , Outcome Assessment, Health Care , Adaptation, Psychological , Adolescent , Body Image , Chronic Disease/psychology , Delivery of Health Care , Disabled Persons , Humans , Risk Assessment , Schools , Sickness Impact Profile
19.
Ann Acad Med Singap ; 32(1): 43-50, 2003 Jan.
Article in English | MEDLINE | ID: mdl-12625097

ABSTRACT

INTRODUCTION: The purpose of this study was to investigate the psychosocial issues facing young people living with a chronic medical condition. MATERIALS AND METHODS: Subjects were young people with a range of medical conditions who were on a waiting list to participate in the Chronic Illness Peer Support programme at the Centre for Adolescent Health, Royal Children's Hospital, Melbourne, Australia. Young people agreed to in-depth interviews which were taped and transcribed. Thematic analysis was undertaken by two researchers working independently. RESULTS: Thirty-five young people were interviewed. Thematic analysis revealed five broad themes: control (in control, under control, out of control); emotional reactions (happiness, frustration, anger, sadness, anxiety); acceptance (of illness, of others, of self); coping strategies, and; a search for meaning. The importance of social connections was emphasised. While illustrating the difficulties of managing a chronic medical condition during adolescence, a generally positive message emerges about these young people. CONCLUSIONS: Many young people with chronic illness appear relatively resilient in the face of the adjustment challenges presented by their illness. Interventions that allow a young person to explore meaning, build self-esteem, and acceptance through positive social connections are likely to improve adjustment outcomes in this group.


Subject(s)
Adaptation, Psychological , Chronic Disease/psychology , Social Adjustment , Adolescent , Adult , Anxiety , Attitude to Health , Emotions , Female , Humans , Internal-External Control , Male
20.
Ann Acad Med Singap ; 32(1): 58-63, 2003 Jan.
Article in English | MEDLINE | ID: mdl-12625099

ABSTRACT

INTRODUCTION: Adolescent inpatient facilities emerged in Australia in the 1980s to cater for an increasing number of young people with chronic illness and disability. Yet, there is minimal published data on the number of young people admitted to hospital within these units, their unit of admission, length of stay or reason for admission. A 12-year audit of adolescents admitted to a tertiary hospital with a dedicated adolescent unit and adolescent medicine programme in Victoria, Australia, was conducted to review the pattern of hospitalisation in young people in order to provide data to assist healthcare policy and planning agendas. MATERIALS AND METHODS: Admissions to the Royal Children's Hospital in Victoria, Australia, of adolescents aged 10 years and above were reviewed over a 12-year period from 1990 to 2001. We identified the annual number of adolescents admitted, the proportion of adolescents admitted to the Adolescent Inpatient Unit (ward) and annual admissions under the Adolescent Medicine Unit (department). RESULTS: Adolescents now constitute nearly 30% of all admissions at this children's hospital. Over this period, admissions to the Adolescent Inpatient Unit have nearly doubled and annual admissions under the Adolescent Medicine Unit rose from 38 to 288. The majority of adolescents were admitted under specialty medical and surgical units. CONCLUSIONS: The knowledge that nearly one in three admissions to this tertiary children's hospital is over 10 years old should help promote the development of planning and policy agendas that better balance both health and developmental priorities in this age group.


Subject(s)
Hospitalization/statistics & numerical data , Hospitals, Pediatric/statistics & numerical data , Adolescent , Humans , Length of Stay , Retrospective Studies , Victoria
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