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J Cancer Surviv ; 13(1): 117-129, 2019 02.
Article in English | MEDLINE | ID: mdl-30645719

ABSTRACT

PURPOSE: The objectives of this study were to test the acceptability and feasibility of a survivorship needs assessment planning (SNAP) tool for head and neck cancer (HNC) survivors and caregivers, evaluate short-term changes in psychosocial outcomes after completing the SNAP session, and develop strategies for system refinement. METHODS: We used a prospective one-group design and mixed methods with HNC survivors and caregivers (N = 25 dyads). Participants completed baseline and 6-week surveys before and after completing a SNAP clinic visit to assess psychosocial outcomes and acceptability. Intervention sessions included tablet-based needs assessments driving tailored care plans. Dyads' open-ended feedback and clinician interviews (N = 12) evaluated acceptability and feasibility. RESULTS: SNAP data collection time burden and technology challenges were minimal, and care plans included messages (M = 19), educational materials (M = 13), and referrals (M = 4.5; 86% behavioral medicine, 77% nutrition, 65% physical therapy). Participants reported high satisfaction with the session and care plan, highlighting the key strengths of pulling complex medical information together and the focus on caregiver well-being, with multiple suggestions to facilitate clinic workflow. Depression and unmet needs decreased and survivorship knowledge increased significantly in survivors and caregivers (p < .05) over the 6-week period. CONCLUSIONS: The SNAP tool is an innovative technology-based survivor-centered strategy to assess and manage needs in HNC survivors and caregivers. Results support its acceptability and ability to address dyads' needs; the tool merits further testing in a clinical trial. IMPLICATIONS FOR CANCER SURVIVORS: Technology-enabled care planning may be a productive way to assess and address HNC dyads' dynamic needs after treatment.


Subject(s)
Cancer Survivors , Caregivers , Head and Neck Neoplasms/therapy , Health Services Needs and Demand/organization & administration , Needs Assessment , Survivorship , Adult , Aged , Cancer Survivors/psychology , Cancer Survivors/statistics & numerical data , Caregivers/psychology , Caregivers/statistics & numerical data , Depression/epidemiology , Depression/psychology , Depression/therapy , Female , Head and Neck Neoplasms/epidemiology , Head and Neck Neoplasms/psychology , Health Services Needs and Demand/statistics & numerical data , Humans , Male , Middle Aged , Needs Assessment/standards , Prospective Studies , Quality of Life/psychology , Surveys and Questionnaires
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