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1.
J Occup Rehabil ; 27(2): 296-305, 2017 06.
Article in English | MEDLINE | ID: mdl-26857027

ABSTRACT

Introduction Individuals diagnosed with cancer look to health care professionals as primary sources of information. This positions staff in oncology settings in an ideal role to inform patients, who continue workforce participation in increasing numbers, about resources that might help them to handle work-related issues related to their oncological symptoms. This article reports on findings from a survey of staff that provide nonmedical services to cancer patients in two Houston area hospital systems. The impetus for this survey was two-fold: the trend in recent years for increasing numbers of cancer survivors to stay in the workforce after or even during treatment, and low levels of awareness that these employees are eligible for protection under the Americans with Disabilities Act of 1990 and its 2008 amendments (ADA Amendments Act of 2008, Pub. L. 110-325, 122 Stat. 3553, 2008; Americans with Disabilities Act, 42 U.S.C. § 12111-17, 2006). The survey assesses perceptions of the effects of cancer on patients' employment status, levels of knowledge about supports to address these employment-related needs, and respondents' preferred modes for information receipt. The latter topic serves the purpose of tailoring training activities to the respondents' informational needs and learning preferences. Methods Data were collected via an online survey administered in two Houston-area hospital systems. This article reports on the findings from 86 respondents. Results Tenure as measured by years in oncology is related positively to level of knowledge about disability-related benefits, legislation and programs (r = .32, P < .01). Respondents with more years in their profession worked with patients whom they reported had a higher number of cancer side effects that "created work difficulties for patients" (r = .24, P < .05). The number of side effects was in turn positively associated with negative effects of the diagnosis at work (r = .27, P < .05). A higher score of negative effects of the cancer diagnosis at work in turn correlated with unwanted consequences of disclosing the cancer at work (r = .36, P < .01). No statistically significant correlations were observed among the variables measuring respondents' reported knowledge of disability-related benefits, laws and programs, their perception of patients' level of understanding of these topics, and reports of patients' receipt of reasonable accommodation. Conclusions Health care professionals who treat cancer patients could benefit from training resources about how survivors might address their employment-related needs, including how to convey that knowledge to their patients. Mentoring programs might also have positive outcomes, since respondents with greater tenure in oncology-related settings reported higher levels of knowledge about disability-related topics.


Subject(s)
Cancer Survivors , Employment/legislation & jurisprudence , Health Knowledge, Attitudes, Practice , Health Personnel/statistics & numerical data , Return to Work , Disabled Persons/legislation & jurisprudence , Female , Humans , Male , Professional-Patient Relations , Reproducibility of Results , Surveys and Questionnaires
2.
Rehabil Nurs ; 42(1): 22-32, 2017.
Article in English | MEDLINE | ID: mdl-26879100

ABSTRACT

PURPOSE: To describe the trajectory of viewing self in a mirror after an ampu-tation and participants' perceptions of what health care professionals should know about mirrors. DESIGN: Hermeneutic phenomenologyMETHODS: Focus groups were conducted to collect the research data. FINDINGS: The mirror experience had three key moments: decision, seeing, and consent. The trajectory of viewing self in a mirror had four key themes: mirror shock, mirror anguish, recognizing self, and acceptance: a new normal. Participants' recommendations for introducing the mirror after an amputation and using a mirror to avoid skin breakdown and infection, and correct gait and balance are described. CONCLUSIONS: This study provides a unique viewpoint into the world of those who have suffered amputation of a limb. CLINICAL RELEVANCE: Rehabilitation nurses and other health care professionals are encouraged through these participants to consider the effect and value of mirrors when caring for those who have had an amputation.


Subject(s)
Amputees/psychology , Body Image/psychology , Adult , Aged , Amputees/rehabilitation , Female , Focus Groups , Humans , Male , Middle Aged , Rehabilitation Nursing
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