A new scale informed by the Reciprocal-Engagement Model for quality evaluation of genetic counselling by patients: Development and initial validation.

Monitoring the quality of genetic counselling is essential to ensure appropriate provision. This study describes the development and initial psychometric validation of a novel scale for genetic counselling quality evaluation by patients. A deductive approach was taken to formulate scale items. Exploratory factor analysis with the principal axis factoring method was used to assess the scale's factor structure (n = 118). Internal consistency (Cronbach's Alpha) was also examined. Exploratory factor analysis resulted in a single overarching construct consisting of seven factors, which account for 59% of the variance explained. Items showed, in general, strong factor loadings (>0.5). Some items focused on patient satisfaction with services provision did not load onto the factors. Thus, another factor analysis was performed with these items, which resulted in one-factor. The identified factor accounted for 57% of variance explained, and communalities were strong (≥0.5) for most items. Cronbach's alpha score for the scale was 0.85, indicating high internal consistency. Factors were significantly and moderately interrelated (from r = 0.31 to r = 0.71). Further studies are needed to establish the psychometric validity of the scale.

The psychological adjustment of children with asthma: study of associated variables

As part of a larger research project aimed to understand the impact of asthma in the psychological adjustment of children, this study focuses in the identification of factors associated with this process. The sample of this study consisted of 89 children, aged 8 to 12 with physician diagnosed asthma. To assess children’s adjustment, the Portuguese versions of the following instruments were used: School-age Temperament Inventory (McClowry, 1995) Schoolagers Coping Strategies Inventory (Ryan-Wenger, 1990); Pediatric Quality of Life Inventory - PedsQL (Varni, Seid & Kurtin, 2001); The Self-perception Profile for Children (Harter, 1985), Child Behavior Checklist (Achenbach, 1991); Social Skills Rating System (Gresham & Elliot, 1990). The results revealed that negative reactivity predicts the level of anxiety/depression, task persistence and perceived coping efficacy predicts social skills and that self-esteem is a significant predictor of the perceived quality of life. A significant proportion of shared variance was also found what seems to confirm the existence of multi-determination in the process of adjustment. The main conclusion is that two dimensions of temperament (negative reactivity and task persistence), as well as perceived coping efficacy and self-esteem, play a significant role in influencing the psychological adjustment of children with asthma (AU)

Como parte de un proyecto de investigación más extenso cuyo objetivo es comprender el impacto del Asma en el ajuste psicológico de los niños, este estudio se centra en la identificación de los factores asociados a este proceso. La muestra de este estudio incluyó a 89 niños con edades comprendidas entre los 8 y 12 años y con diagnóstico médico de asma. Para medir el ajuste de los niños se utilizaron versiones en portugués de los siguientes instrumentos: School-age Temperament Inventory (McClowry, 1995) Schoolagers Coping Strategies Inventory (Ryan-Wenger, 1990); Pediatric Quality of Life Inventory - PedsQL (Varni, Seid & Kurtin, 2001; The Self-perception Profile for Children (Harter, 1985), Child Behavior Checklist (Achenbach,1991); Social Skills Rating System (Gresham & Elliot, 1990). Los resultados revelaron que la reactividad negativa predice el nivel de ansiedad/depresión, la persistencia de tarea y la eficacia de afrontamiento percibida predicen habilidades sociales y que la autoestima es un predictor significativo de la calidad de vida percibida. Se encontró también una proporción significativa de la varianza compartida lo que confirma la existencia de multi determinación en el proceso de ajuste. La conclusión principal es que dos dimensiones de temperamento (reactividad negativa y persistencia en la tarea), así como la eficacia de enfrentamiento percibida y la autoestima, juegan un papel significativo en el ajuste psicológico de los niños con asma (AU)