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J Pediatr Hematol Oncol ; 39(7): e377-e380, 2017 10.
Article in English | MEDLINE | ID: mdl-28085750

ABSTRACT

Most childhood cancer survivors need life-long care with specialized late-effects surveillance and screening. As these children age into adulthood, it is imperative to continue their survivor-focused care. To do so, health care systems must be prepared to care for this growing and aging population. This includes creating models of care that take into account the needs and desires of all key stakeholders: survivors, parents, pediatric providers, and adult providers. This clinical observation describes that parents desire comprehensive and highly accessible survivorship care that promotes survivor independence; yet, they also want to have a central role in their child's survivorship care.


Subject(s)
Neoplasms , Parents/psychology , Survivors , Transition to Adult Care , Adolescent , Child , Child, Preschool , Cross-Sectional Studies , Delivery of Health Care/trends , Female , Humans , Infant , Infant, Newborn , Male , Young Adult
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