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1.
Psychiatr Psychol Law ; 31(4): 764-791, 2024.
Article in English | MEDLINE | ID: mdl-39118786

ABSTRACT

The aim of this scoping review was to synthesise the literature to identify what the psychological impacts of family court processes were on mothers who had experienced DFV. Twenty-five articles met inclusion criteria with four themes capturing the findings: Perpetrators using the system as a mode of coercive control; Secondary victimisation as a result of interacting with the system; Required to relive their abuse; and, Long-term psychological consequences of having engaged with the system. Key findings were that perpetrators manipulated the system to perpetrate further abuse and continue/reassert their control. Secondary re-victimisation was common, with poor knowledge of DFV and limited understanding of coercive control tactics and how these were employed by perpetrators by legal professionals identified as contributing factors. This review suggests that mothers who engage with the family court system experience a range of short- and long-term psychological impacts and court processes facilitate ongoing abuse by the perpetrator.

2.
J Interpers Violence ; : 8862605241253026, 2024 May 16.
Article in English | MEDLINE | ID: mdl-38752449

ABSTRACT

Emerging research suggests that reproductive coercion and abuse (RCA), like intimate partner violence (IPV), is associated with poorer mental and sexual health outcomes, including greater symptoms of post-traumatic stress disorder (PTSD) and depression and poorer markers of physical and sexual health such as sexually transmitted infections, unplanned pregnancies and lowered sexual agency. Although victims/survivors of RCA report long-lasting impacts on future relationships, including fear and anxiety, little is known about impacts of RCA on anxiety and general wellbeing, nor emotional and mental components of sexual health that comprise a person's sexual self-concept. With community samples of participants in Australia, we conducted two studies to explore the impact of RCA and IPV on psychological (study 1) and sexual (study 2) health outcomes. Study 1 (n = 368) found that experiencing IPV and RCA both significantly and uniquely contributed to poorer mental health outcomes. After controlling for age and IPV, RCA significantly predicted symptoms of depression, anxiety, stress, PTSD, and reduced satisfaction with life. Study 2 (n = 329) found that IPV and RCA differentially predicted various components of sexual health. IPV predicted decreased sexual satisfaction and increased sexual anxiety, depression, and fear of sexual encounters. After controlling for age and IPV, RCA significantly and uniquely predicted lower levels of sexual assertiveness and increased sexual depression and fear of sexual encounters, but not sexual satisfaction or anxiety. We conclude that RCA is associated with significant psychological distress and a negative sexual self-concept that may impact future relationships. Screening for both IPV and RCA across settings is warranted.

3.
J Commun Healthc ; 16(2): 186-196, 2023 07.
Article in English | MEDLINE | ID: mdl-37401877

ABSTRACT

BACKGROUND: Patient-centered care (PCC) is the prevailing model of care globally. However, most research on PCC has been conducted in Westernized countries or has focused on only two facets of PCC: decision-making and information exchange. Our study examined how culture influences patients' preferences for five facets of PCC, including communication, decision-making, empathy, individualized focus, and relationship. METHODS: Participants (N = 2071) from Hong Kong, the Philippines, Australia, and the U.S.A. completed an online survey assessing their preferences for exchange of information, autonomy in decision-making, expression and validation of their emotions, focus on them as an individual, and the doctor-patient relationship. RESULTS: Participants from all four countries had similar preferences for empathy and shared decision-making. For other facets of PCC, participants in the Philippines and Australia expressed somewhat similar preferences, as did those in the U.S.A. and Hong Kong, challenging East-West stereotypes. Participants in the Philippines placed greater value on relationships, whereas Australians valued more autonomy. Participants in Hong Kong more commonly preferred doctor-directed care, with less importance placed on the relationship. Responses from U.S.A. participants were surprising, as they ranked the need for individualized care and two-way flow of information as least important. CONCLUSIONS: Empathy, information exchange, and shared decision-making are values shared across countries, while preferences for how the information is shared, and the importance of the doctor-patient relationship differ.


Subject(s)
Patient Preference , Physician-Patient Relations , Humans , Patient Preference/psychology , Decision Making , Australia , Patient-Centered Care
4.
Med Decis Making ; 43(4): 498-507, 2023 05.
Article in English | MEDLINE | ID: mdl-37057384

ABSTRACT

BACKGROUND: General practitioners (GPs) provide the most antidepressant prescriptions and psychologist referrals in Australia, yet little is known about how they decide between treatments for depressive symptoms. AIMS: This study examined the decision cues that GPs use when deciding how to treat depressive symptoms and the meaning they attribute to these associations. METHODS: Structured interviews were conducted with 16 Australian GPs in a "think-aloud" verbal protocol analysis format. The transcripts were analyzed using content coding and thematic analysis, informed by the dual processes model of decision making. RESULTS: Participants associated prescribing antidepressants with severe depressive symptoms, and psychologist referrals were the preferred initial treatment provided patients were willing to engage. Four main themes emerged from the thematic analysis: 1) psychologist as default, 2) the risk is just too high, 3) medication as supplement, and 4) drivers of antidepressants. Contrary to previous findings, participants identified a strong heuristic association between depressive symptoms and psychologist referral. Antidepressant prescription was associated with severe symptoms, higher risk, and a cluster of cues that lead them away from psychologist referral. CONCLUSIONS: Participants demonstrated an oversensitivity to depressive symptom severity, associating psychologist referrals with subclinical depressive symptoms, and starting antidepressants for suicidal ideation and significant functional decline. HIGHLIGHTS: Psychologist referrals were the default preference for GPs when treating depressive symptoms, whereas antidepressants were reserved for patients with elevated risk from severe depressive symptoms and suicidal ideation.Participants' conceptualization of depression severity was oversensitive compared with treatment guidelines.Contrary to treatment guidelines, GPs in this study demonstrated their discomfort for referring patients with suicidal ideation to a psychologist without initiating antidepressants.GPs should consider whether patients within their mild to moderate assessment range can be treated exclusively with more cost-effective means than psychological therapy such as e-mental health programs, guided self-help, and lifestyle changes alone.


Subject(s)
Depression , General Practitioners , Humans , Depression/drug therapy , General Practitioners/psychology , Australia , Antidepressive Agents/therapeutic use
5.
Med Care Res Rev ; 80(2): 205-215, 2023 04.
Article in English | MEDLINE | ID: mdl-35815591

ABSTRACT

Inadequate consideration has been given to patient preferences for patient-centered care (PCC) across countries or cultures in our increasingly global society. We examined what 1,698 participants from the United States, Hong Kong, Philippines, and Australia described as important when making health care decisions. Analysis of frequencies following directed content coding of open-ended questions revealed differences in patients' preferences for doctor behaviors and decision-making considerations across countries. Being well informed by their doctor emerged as most important in decision-making, especially in Hong Kong. Participants in Australia and the United States wanted their doctor to meet their emotional needs. The safety and efficacy of treatments were the most common consideration, especially for Hong Kong. Findings suggest that doctors should focus on information exchange and identifying patient concerns about efficacy, lifestyle impact, cost, and recovery speed. Rather than assuming patients prefer shared decision-making, doctors must assess patient's decision control preferences.


Subject(s)
Patient Preference , Physicians , Humans , United States , Patient Preference/psychology , Decision Making , Patient-Centered Care , Patient Participation , Physician-Patient Relations
6.
Psychother Res ; 33(2): 251-263, 2023 02.
Article in English | MEDLINE | ID: mdl-35759688

ABSTRACT

OBJECTIVE: Despite the importance of spoken language in psychotherapy processes with clients whose native language is distinct from the language of therapy, there is a dearth of research on mental health practitioners (MHPs) language competence. This research aimed to develop the Perceptions of Cross-lingual Practice (PCLP) scale designed to aid MHPs' cross-lingual practice. METHOD: Study 1 developed items and collected data from Australian MHPs (n = 155) to test the scale's factor structure through exploratory factor analysis. Study 2 (n = 257) confirmed the emergent factor structure of the scale through confirmatory factor analysis and further assessed its reliability and convergent validity. RESULTS: The final 23-item measure had good reliability and validity. Three factors emerged; MHPs' perceptions of self-competence, MHPs' perceptions of difficulties faced by clients, and MHPs' perceptions of barriers for themselves imposed by language. The perceptions of self-competence subscale was weakly related to the other subscales highlighting a disconnect between MHPs' self-perceptions and perceptions of contextual factors. CONCLUSION: The PCLP is a reliable and valid measure of MHPs' perceptions of cross-lingual practice composed of three subscales each with good psychometric properties that can be used for various purposes in the evaluation and development of MHPs in post-graduate and professional settings.


Subject(s)
Mental Disorders , Mental Health Services , Humans , Mental Health , Mental Disorders/therapy , Reproducibility of Results , Australia
7.
Psychiatr Psychol Law ; 29(4): 610-630, 2022.
Article in English | MEDLINE | ID: mdl-35903501

ABSTRACT

Many lawyers experience regular exposure to traumatic material yet little is known about its effects. This study examines what traumatic material affects lawyers, how they respond in the moment and how they recover. The participants (n = 18 lawyers) completed a five-day diary study and a semi-structured interview regarding their experiences. The analysis identified clients' negative emotions and experiences, domestic violence and child abuse as most impactful. The participants reported experiencing sadness, anger, frustration, disgust and/or compassion; some reported not being overly distressed or not experiencing emotions. Most participants reported using social support and emotion-focused coping strategies, drawing on their identities as lawyers to suppress or conceal emotions. At the end of a working day many participants reported coping by working longer hours but also through physical activity and social interactions. We discuss the implications for lawyers' well-being and the role of organisations and education in managing the impacts of traumatic material.

8.
Reprod Health ; 19(1): 170, 2022 Jul 30.
Article in English | MEDLINE | ID: mdl-35907880

ABSTRACT

BACKGROUND: Reproductive coercion and abuse (RCA) interferes with a person's reproductive autonomy and can be classified into behaviours that are pregnancy promoting or pregnancy preventing (including coerced abortion). However, prevalence data are lacking, and little is known about whether particular forms of RCA are more or less common. The aims of our study were to explore how frequently people seeking pregnancy counselling reported RCA, the proportions reporting the different forms of RCA, and whether there were different trends based on a range of demographic factors. METHODS: Data were collected from 5107 clients seeking counselling support for their pregnancy between January 2018 and December 2020 from two leading providers of pregnancy counselling and sexual and reproductive health services in Australia, Marie Stopes Australia and Children by Choice. Counsellors identified and recorded the presence of RCA and whether the behaviour was pregnancy promoting and/or pregnancy preventing. Demographic factors included age, and whether the person identified as being from a migrant or refugee community or as an Aboriginal and/or Torres Strait Islander person. RESULTS: RCA was identified in 15.4% of clients, with similar proportions disclosing RCA towards pregnancy (6%) and towards pregnancy prevention or abortion (7.5%), and 1.9% experiencing RCA towards pregnancy and abortion concurrently. There were no differences based on age or whether the person identified as being from a migrant or refugee background, though people who identified as Aboriginal and/or Torres Strait Islander experienced RCA that was significantly more likely to be pregnancy promoting. CONCLUSIONS: RCA is commonly disclosed by people seeking support in a pregnancy counselling context, and coercion and abuse is equally likely to be towards pregnancy promotion or pregnancy prevention/abortion. Given the prevalence and negative impacts of RCA, regardless of age and background, we recommend sensitive and culturally respectful enquiry around experiences of RCA be embedded in healthcare, health education, and health research.


Reproductive coercion and abuse (RCA) is behaviour that interferes with a person's decision to become pregnant or to continue a pregnancy. We classified RCA into behaviours that attempt to promote pregnancy or to prevent/end a pregnancy. Drawing on data collected from 5107 people seeking counselling support for their pregnancy from two Australian services, this research explored how common the different types of RCA are. The research also looked at whether a person's age or whether the person identified as being from a migrant or refugee community or as an Aboriginal and/or Torres Strait Islander person made any difference to the type of RCA they experienced. We found that 15.4% of people reported RCA, with similar proportions reporting behaviours attempting to promote pregnancy and prevent/end pregnancy. Around 2% reported experiencing both forms of RCA. We found that there were no differences in frequency of RCA based on age or whether the person identified as being from a migrant or refugee background, although we found that people who identified as Aboriginal and/or Torres Strait Islander were proportionally more likely to experience RCA that was pregnancy promoting. Given how common RCA is, regardless of age and background, we recommend sensitive and culturally respectful enquiry around experiences of RCA be included in any conversations around sexual and reproductive health care and education.


Subject(s)
Child Abuse , Native Hawaiian or Other Pacific Islander , Australia/epidemiology , Child , Coercion , Counseling , Female , Humans , Pregnancy
9.
Patient Educ Couns ; 105(1): 198-205, 2022 01.
Article in English | MEDLINE | ID: mdl-34023173

ABSTRACT

OBJECTIVE: A robust physician-patient relationship has been linked to better health outcomes for a range of chronic conditions. Our study aimed to identify physician behaviors patients consider contribute to good physician-patient relationships. METHOD: Fifty patients with a chronic condition and a self-reported good physician-patient relationship were interviewed using the Critical Incidents technique and asked to describe observable behaviors that contributed to their good physician-patient relationship. A sub-sample of 30 participants rated the importance of each behavior and sorted them into self-labelled, mutually exclusive, and conceptually homogenous categories. Multivariate concept mapping with hierarchal cluster analysis was performed. RESULTS: Patients reported 65 behaviors, which were grouped into six overarching domains: valuing the whole person, investigation and future planning, collaboration and empowerment, validation and emotional support, politeness and courtesy, and professionalism. CONCLUSION: Results indicate patients with chronic conditions have a broader conceptualization and identified additional behaviors that reflect components of the physician-patient relationship than has been identified in researcher and practitioner based models. PRACTICE IMPLICATIONS: Practitioners could utilize these concrete behaviors when forming relationships with their patients. These behaviors could also be incorporated into a tool designed to teach and assess the physician-patient relationship.


Subject(s)
Physician-Patient Relations , Physicians , Chronic Disease , Humans
10.
J Interpers Violence ; 37(5-6): NP2823-NP2843, 2022 03.
Article in English | MEDLINE | ID: mdl-31057040

ABSTRACT

Reproductive coercion is any interference with a person's reproductive autonomy that seeks to control if and when they become pregnant, and whether the pregnancy is maintained or terminated. It includes sabotage of contraceptive methods and intervention in a woman's access to health care. Our study sought to explore the prevalence and associations with reproductive coercion within Queensland, Australia, where legislation addressing domestic violence and abortion are largely state based and undergoing a period of law reform. The study was a retrospective analysis of 3,117 Queensland women who contacted a telephone counseling and information service regarding an unplanned pregnancy. All data were collected by experienced counselors regarding circumstances within a current pregnancy between January 2015 and July 2017. Overall, experience of current domestic violence was significantly more likely to co-occur with reproductive coercion (21.1%) compared with reproductive coercion identified in the absence of other domestic violence (3.1%). Furthermore, significantly more mental health issues were reported by 36.6% of women affected by reproductive coercion, compared with 14.1% of women with no reproductive coercion present. Disclosure for reproductive coercion, violence, and mental health issues was much higher among women who made a repeat contact to the counselors about their pregnancy (17.8%) compared with those who disclosed at first contact (5.9%). These findings demonstrate the importance for health services to ensure that appropriate screening (and re-screening) for reproductive coercion is completed as a distinct part of screening for violence during a health care relationship.


Subject(s)
Domestic Violence , Intimate Partner Violence , Coercion , Female , Humans , Intimate Partner Violence/psychology , Male , Pregnancy , Queensland , Retrospective Studies , Sexual Partners/psychology
11.
Cult Health Sex ; 24(4): 466-481, 2022 04.
Article in English | MEDLINE | ID: mdl-33428538

ABSTRACT

Reproductive coercion and abuse is defined as behaviour that deliberately interferes with a person's reproductive autonomy. It is typically perpetrated by men against women in a context of fear and control and includes forcing a woman to become pregnant or to terminate a pregnancy. There is a dearth of qualitative research investigating experiences of reproductive coercion and abuse, particularly for women from minority ethnic backgrounds. In this study, we address this gap through qualitative analysis of data from six focus groups with service providers in Australia. Three main themes were developed: 1) exploiting structural inequalities; 2) women as reproductive property; and 3) pregnancy as a form of control. Findings confirm the complex interplay between reproductive coercion and abuse, intimate partner and sexual violence, and suggest that community attitudes towards women's role in sex and reproduction and structural risk factors may complicate this nexus even further for minority ethnic women. It is important for service providers supporting minority ethnic women - particularly in antenatal and abortion care - to be aware of reproductive coercion and abuse. Similarly, policies concerning access to financial support for minority ethnic women should acknowledge the critical role this could play in facilitating or preventing abuse.


Subject(s)
Intimate Partner Violence , Sex Offenses , Coercion , Female , Humans , Male , Pregnancy , Reproduction , Sexual Partners
12.
Int J Pediatr Otorhinolaryngol ; 148: 110822, 2021 Sep.
Article in English | MEDLINE | ID: mdl-34225081

ABSTRACT

BACKGROUND: Parents of infants identified with unilateral hearing loss (UHL) make decisions about managing their infant's hearing loss based on limited evidence and before knowing whether their infant will require additional support. OBJECTIVES: The decision-making processes of parents and clinicians regarding the management of UHL following newborn hearing screening were examined. PROCEDURE: Two convenience samples were recruited: 15 parents of children with permanent UHL aged under 4 years, and 14 clinicians. Applied thematic analysis of the semi-structured interviews elicited insight into the complexities surrounding decision-making from a parent and clinician perspective. RESULTS: Three main themes captured the decision-making process: motivation for decision-making, limited evidence creates uncertainty, and available evidence builds certainty. The diverse experiences and opinions of parents and clinicians highlight the complexity of decision-making when there are contested opinions and no clear best management option. CONCLUSIONS: The choices parents make about the management of their child's UHL can have lifelong implications for their child. Many questions need answering before parents can effectively evaluate the short- and long-term consequences of their options and whether the advantages outweigh the disadvantages in the long-term. This uncertainty is challenging for professionals and parents and risks cognitive biases influencing clinical and parental decision-making.


Subject(s)
Deafness , Hearing Loss, Unilateral , Hearing Loss , Aged , Child , Decision Making , Hearing Loss/diagnosis , Hearing Loss/therapy , Hearing Loss, Unilateral/diagnosis , Humans , Infant , Infant, Newborn , Parents
13.
Psychiatr Psychol Law ; 28(3): 363-381, 2021.
Article in English | MEDLINE | ID: mdl-35530124

ABSTRACT

Lawyers experience significant levels of psychological distress. We argue that one reason, which has received insufficient attention from researchers, is their exposure to traumatic material. Our study examined the lived experience of lawyers who are exposed to traumatic material, including the role their organisation and profession play in shaping their experiences. Thirty-five lawyers or barristers, from both the public and the private sector, participated in in-depth interviews about how their exposure to traumatic material affected them, and how their organisation shaped their experiences. Our analysis identified six themes: when material becomes traumatic, fear of stigma, everyday recovery, boundaries through denial and distancing, using social support normatively and making meaning. Our findings identify that lawyers can experience strong emotional reactions to traumatic material, and their experience is influenced by the professional norms and training in law. Moreover, their organisation has an important role in either ameliorating or exacerbating their responses.

14.
Health Commun ; 35(7): 902-909, 2020 06.
Article in English | MEDLINE | ID: mdl-30947559

ABSTRACT

Both international tourism and migration of people with low English proficiency (LEP) to Australia are increasing. Thus, health-care practitioners (HPs) increasingly use interpreters to communicate with patients with LEP. Although qualified interpreters are the most suggested and policy-endorsed mechanism for communicating with patients with LEP, family members (FMIs) are also used as interpreters. This study investigated (a) when do health professionals consider it appropriate to use FMIs and (b) what characteristics of family members health professionals believe make them suitable to act as FMIs. As part of a larger project examining the decision-making processes of HPs regarding interpreter use, 69 HPs from neonatal and pediatric departments in one hospital in Queensland Australia were interviewed. Results indicated HPs thought the appropriateness of using FMIs depended on the type of information, such that it was either completely acceptable (e.g., explaining some basic or non-medical information) or completely unacceptable (e.g., confidential information or consent). However, in an emergency, when no other options were available, FMIs were used. The characteristics of suitable FMIs included age, level of English proficiency and medical understanding, and the relationship between patient and FMI. Results were to some extent consistent with Queensland government policies but there were notable differences, including using children and regarding FMIs as first preference. Improving HP's knowledge of policies may increase their confidence in their practice and appropriate use of FMIs, thereby improving their care delivery to patients and families with LEP.


Subject(s)
Communication Barriers , Translating , Australia , Child , Delivery of Health Care , Family , Humans , Infant, Newborn
15.
Patient Educ Couns ; 102(9): 1629-1635, 2019 09.
Article in English | MEDLINE | ID: mdl-30981411

ABSTRACT

OBJECTIVE: To examine how health professionals decide whether family members require an interpreter. METHODS: 69 health professionals, doctors, nurses, and allied health, from neonatal and pediatric units participated. Interviews used a verbal protocol analysis, which elicited their thoughts about using interpreters, including how they decided if an interpreter was needed. RESULTS: Five themes captured the decision-making process health professionals use. Of these, three themes described the goals and beliefs participants brought to their interactions with family members: Ensuring understanding, Addressing socioemotional needs, and Who decides. The theme Assessing understanding was prominent within the interaction, while the final theme was Contextual factors influencing decision making. No differences were found between mono and multilingual participants, and few differences between health professional groups. CONCLUSION: Health professionals find it difficult to assess whether a family member needs an interpreter and there is no consistency in how they make this decision, with some using heuristics and others a more systematic approach. Health professionals have beliefs about the purpose of an interpreter that potentially limit the voice of family members. PRACTICE IMPLICATIONS: Health professionals need training to assist them in decisions about whether an interpreter is needed, including a decision tool and knowledge about policies.


Subject(s)
Communication Barriers , Decision Making , Health Personnel/psychology , Pediatrics , Translating , Adult , Attitude of Health Personnel , Female , Humans , Male , Multilingualism
16.
Appetite ; 133: 70-76, 2019 02 01.
Article in English | MEDLINE | ID: mdl-30359629

ABSTRACT

Reinforcement Sensitivity Theory has been used to investigate personality in the development and maintenance of disordered eating. However, the vast majority of research from this perspective has been limited by the use of measures developed to assess the original theory, rather than the significantly revised theory, potentially overlooking key personality differences in eating disorder subtypes. The current study aimed to overcome limitations when using measures based on the original theory by investigating differences and similarities in reinforcement sensitivity across eating disorder subtypes and healthy controls. The measure based on the revised theory assesses i) reward sensitivity [goal-drive persistence; reward interest, reward reactivity], ii) impulsivity, iii) behavioural inhibition, and iv) threat sensitivity. A total of 374 women from the community participated, including those with a past or present AN-R diagnosis (AN-R = 109); those with a past or present binge-type ED (Binge-type = 132); and healthy controls (HC = 133). Participants completed a questionnaire assessing personality, eating disorder symptoms, and past or present eating disorder diagnoses. Results showed that both the AN-R and Binge-type groups were higher in behavioural inhibition and threat sensitivity compared to the HC group. The Binge-type group showed higher impulsivity relative to the AN-R and HC group, and lower Goal-Drive Persistence relative to the HC group. The AN-R group showed lower Reward Interest and Reward Responsiveness relative to the HC group. This study supports and extends previous research with the findings of heightened threat and anxiety sensitivity in those with diagnosed eating disorders. Additionally, among those with a past or present eating disorder, the findings implicate impulsivity in differentiating bingeing versus restricting subtypes.


Subject(s)
Feeding and Eating Disorders/psychology , Personality , Reinforcement, Psychology , Adolescent , Adult , Bulimia , Case-Control Studies , Female , Humans , Impulsive Behavior , Reward , Surveys and Questionnaires , Young Adult
17.
Psychiatr Psychol Law ; 26(4): 541-552, 2019.
Article in English | MEDLINE | ID: mdl-31984095

ABSTRACT

This study aimed to establish the proportion of women seeking information regarding unintended pregnancy in the context of domestic violence (DV) and/or sexual assault (SA) experiences in Queensland. Mental health, sociodemographic variables, and gestation at first and repeated contacts were examined for 6249 women primarily seeking information regarding abortion options during an unintended pregnancy over the 5-year period from July 2012 to June 2017. Reports of DV and SA and associations with mental health issues increased significantly across the 5 years. First contact rates of disclosure were 12.2% for DV and 3% for SA, and higher among repeat contacts (38.1% for DV and 14.1% for SA), with recurring contact facilitating violence disclosure. Restricting access to abortions in the context of violence impedes a woman's agency in attempts to separate from violence and highlights the need for safe, supportive, and accessible services, to assist in screening and assisting with violence.

18.
Psychooncology ; 27(10): 2317-2326, 2018 10.
Article in English | MEDLINE | ID: mdl-30071150

ABSTRACT

PURPOSE: Brain tumor has been found to have a major impact on children's quality of life (QOL); yet, the subjective impact of the illness is still not well understood. This review aimed to investigate factors related to children's subjective well-being (SWB), or self-reported QOL and mental health after brain tumor. A further aim was to determine the consistency between child and parent-proxy ratings of children's SWB and common factors associated with both child and parent-proxy ratings. METHODS: A systematic search of PsycINFO, MEDLINE, Cumulative Index to Nursing and Allied Health Literature, Embase, and Scopus was conducted from 1980 to May 2018 to identify eligible studies. Methodological quality of these studies was assessed by 2 independent reviewers. RESULTS: Twenty studies investigated factors related to children's self-reported mental health or QOL. Fourteen studies examined these factors from the perspectives of both children and their parents. Overall, risk factors for poor QOL included infratentorial tumors, radiation, hydrocephalus, lower IQ, and behavioral problems. Only 5 studies examined mental health outcomes, the findings of which were mixed. Relatively few studies examined psychosocial variables related to children's SWB. CONCLUSIONS: Although several risk factors for poor QOL were identified, further research investigating mental health outcomes and the influence of psychosocial factors on children's SWB is needed to guide support interventions for pediatric brain tumor.


Subject(s)
Brain Neoplasms/psychology , Mental Health , Quality of Life/psychology , Adolescent , Child , Child, Preschool , Female , Humans , Male , Parents/psychology , Proxy/psychology , Self Report
19.
J Pediatr Nurs ; 31(5): e301-12, 2016.
Article in English | MEDLINE | ID: mdl-27311300

ABSTRACT

UNLABELLED: This study examined the influence of neonatal nursery design on interactions between nurses and mothers of infants in the nursery. DESIGN AND METHODS: We used a natural quasi-experimental design, using semi-structured interviews and a structured measure of mothers' and nurses' perceptions of nursing care, to compare mothers (n=26 and n=40) and nurses (n=22 and n=29) in an open-bay (OB) nursery and a single family room (SFR) nursery. Thematic analysis was used to generate key themes from the interviews. RESULTS: Mothers and nurses in both nursery designs talked about Valuing interactions; the importance of interactions between mothers and nurses. Mothers and nurses described SFRs as providing a space, My/their room, which enhanced mothers' sense of control and connection with the infant. SFRs were also associated with Changing the norms of interactions with nurses and other mothers, which created challenges in the desired quantity and quality of interactions for mothers and nurses. Nurses in the SFR nursery also reported Enhanced interactions, including improved confidentiality and personalized communication. Mothers in the OB nursery reported more supportive mothering actions from nurses than mothers in the SFR nursery. Both mothers and nurses in the OB nursery also talked about Our nursery community, which captured the value of having other nurses and mothers in the rooms. CONCLUSION: Mothers and nurses perceived that the SFR nursery enhanced privacy and maternal closeness for mothers compared to the OB nursery. However, the SFR nursery design presented challenges to some interactions of value to nurses and mothers.


Subject(s)
Family Nursing/organization & administration , Infant, Premature , Nurseries, Hospital/organization & administration , Patients' Rooms , Adaptation, Psychological , Adult , Anxiety, Separation/psychology , Female , Hospital Design and Construction , Humans , Infant, Newborn , Intensive Care Units, Neonatal/organization & administration , Male , Maternal Behavior , Mother-Child Relations , Neonatal Nursing/standards , Neonatal Nursing/trends , Nursing Methodology Research , Queensland
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