Pathways to severe mental illness care: A retrospective study of patients seeking psychiatric care at Department of Psychiatry, AIIMS, Delhi.

BACKGROUND AND AIM: Globally, very few patients with mental illness go to health care facilities to receive psychiatry treatment. This study aims to identify pathways used by patients with severe mental disorders who seek mental health care services in the psychiatry unit of AIIMS, New Delhi. MATERIALS AND METHODS: It is a retrospective cross-sectional study with convenience sampling technique was used, and data were collected from 123 caregivers of patients with severe mental illnesses using standardized tools like MINI, BPRS, YMRS and WHO Encounter pathway. RESULTS: The findings revealed that 41.5% of the patients made their first contact with the faith healers, 27.6% with AYUSH medical practitioners, 14.6% with psychiatrists and 12.2% with allopathic medical practitioners. About 26% of the patients reported hallucinations as the first symptom for seeking help. In the majority of cases (96.7%), the patient's relatives made the decision for the patient to seek treatment the first time to manage the symptoms. The psychotic symptoms (65.1%) helped the patient's relatives to take the decision for first seek. The mean delay for seeking treatment from psychiatrists was 13.31 ± 10.6 (months). CONCLUSION: This study showed that a higher proportion of patients received treatment from the faith healer at the first seek, whereas only a few patients approached psychiatrist directly. Hence, there is an immense need to create awareness regarding mental illness and treatment options available.

Is India ready for mental health apps (MHApps)? A quantitative-qualitative exploration of caregivers' perspective on smartphone-based solutions for managing severe mental illnesses in low resource settings.

BACKGROUND: Mobile application based delivery of psycho-social interventions may help reduce the treatment gap for severe mental illnesses (SMIs) and decrease the burden on caregivers. Apps developed in high income settings show effectiveness, but they suffer from lack of applicability in low resource scenarios due to the difference in technology penetration, affordability, and acceptance. OBJECTIVE: This study aimed to understand health technology usage, perceived needs, and acceptability of app based interventions in patients with SMIs to improve illness management and reduce caregiver burden. METHODS: The study was conducted in inpatient and outpatient settings of a tertiary care center in North India. A cross-sectional survey assessed smartphone and health app usage. Further, three focus group discussions evaluated the needs and apprehensions in using apps in management of SMIs. RESULTS: A total of 176 participants including 88 patients and 88 caregivers completed the survey. Smartphone ownership was similar to the national average (30%) in both caregivers (38.6%) and in patients (31.8%). Although subjects regularly used a third party app, health app usage was very low. Cost, unfamiliarity, and language were significant barriers to adoption. The focus group discussions provided insight into the various apprehensions of caregivers in using and in allowing patients to use smartphones and such apps. Caregivers wanted mobile apps for accessing information regarding services and resources available for people with SMI, and they felt such apps can be helpful if they could automate some of their routine caregiving activities. However, the significant difficulty was perceived in regards to the cost of the device, language of the medium, and unfamiliarity in using technology. Apprehensions that SMI patients might misuse technology, or damage the device were also prevalent. CONCLUSIONS: The study systematically looks into the scope, design considerations and limitations of implementing a mobile technology based intervention for low resource settings. With only one-third of the patients and caregivers having access to smartphones and internet, parallel outreach strategies like IVRS should be actively considered while designing interventions. The difficulty of understanding and searching in a non-native language needs to be addressed. Hand holding of caregivers and frequent encouragement from treating doctors might significantly help in technology adoption and in surmounting the apprehensions related to using technology. To make the solution acceptable and useful to the already over-burdened caregivers, developers need to work closely with patients' family members and follow a ground-up collaborative approach to app development. The scope of delivering mental health services through technology is immense in resource constrained settings like India, provided we, researchers, appreciate and accept the fact that in the varied landscape of a divergent economic, educational, and cultural milieu, a single solution will never suffice for all, and intervention modality matching with end user capacity will be of paramount importance in determining the success of the endeavor.

A study of disability and its correlates in somatization disorder.

OBJECTIVE: The present study was conducted to assess disability, and its demographic and clinical correlates in patients suffering from somatization disorder. METHOD: Sixty-six patients, diagnosed as somatization disorder according to ICD 10 Diagnostic Criteria for Research (ICD 10-DCR), were assessed for disability using the Indian Disability Evaluation and Assessment Scale (IDEAS). Patients were also assessed for associated anxiety, depression, neuroticism and subjective distress using the Hamilton Rating Scale for Anxiety (HAM-A), Hamilton Rating Scale for Depression (HAM-D), PGI Health Questionnaire N2 (PGIN2), and Visual Analog Scale, respectively. RESULTS: Mean age of the sample was 34.5±5.8 years. Females constituted about 60% of the sample. Mean duration of illness was 9.14±4.13 years. More than 70% of the subjects suffered moderate to severe disability. Age, number of symptoms, duration of illness, and scores on HAM-A and HAM-D showed a positive correlation with disability. CONCLUSION: Somatization disorder is associated with significant disability which increases with the number of somatic symptoms, duration of illness, associated depressive and anxiety symptoms.

Wires in the body: a case of factitious disorder.

Factitious disorder can present with a wide variety of symptomatology. We present a case of a young girl presenting with spontaneous extrusion of wires from her limbs. These metallic wires were present in both her upper and lower limbs in the muscle bulk and were visible on X-ray. She sought repeated surgical removal of these wires, but the wires would invariably reappear. The patient could not be engaged in a therapeutic relationship and the family took premature discharge against medical advice, as they believed in supernatural causation for the phenomenon and were afraid that medical intervention might bring further ill fortune. The case highlights the importance of belief systems of family members as a barrier in managing such cases.