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1.
J Pediatr ; 169: 194-200.e1, 2016 Feb.
Article in English | MEDLINE | ID: mdl-26608087

ABSTRACT

OBJECTIVE: To compare the eating behaviors and nutrition-related concerns in children with fetal alcohol spectrum disorder (FASD) with those in typically developing children. STUDY DESIGN: A survey that assessed eating behaviors was completed between October 2013 and May 2014 by the caregivers of children screened for FASD at the University of Minnesota's Fetal Alcohol Spectrum Disorders Program, and typically developing children recruited from that clinic or from the Research Participation Core of the Waisman Center, University of Wisconsin. RESULTS: Compared with controls (N = 81), children with FASD (N = 74) had delayed acquisition of self-feeding behavior (P < .001) and solid food introduction (P < .001). Impaired satiety was common and independent of medication use: 23.0% were never full/satisfied, 31.1% snacked constantly, and 27.0% concealed food (all P ≤ .002). They consumed the equivalent of an additional meal/snack daily (P < .01). Children with FASD were more likely to have a past diagnosis of underweight (P < .001). Mean body mass index was significantly reduced for males (P = .009) but not females (P = .775) with FASD, and only 2 children with FASD were currently underweight. Children with FASD were more physically active (P < .01). CONCLUSIONS: Abnormal eating patterns are common in children with FASD and may contribute to their delayed growth and nutritional inadequacies. Their poor satiety may reflect poor impulse control. Children with FASD may benefit from diet counseling. Conversely, some children with hyperphagia may warrant referral for FASD screening.


Subject(s)
Feeding Behavior , Fetal Alcohol Spectrum Disorders , Child , Cross-Sectional Studies , Female , Fetal Alcohol Spectrum Disorders/physiopathology , Humans , Male
2.
J Gerontol Nurs ; 31(9): 27-35, 2005 Sep.
Article in English | MEDLINE | ID: mdl-16190010

ABSTRACT

The purpose of this qualitative study was to explore spiritual care for dying nursing home residents from the perspectives of registered nurses, practical nurses, certified nursing assistants, advanced practice nurses, and physicians. Five major themes emerged: honoring the person's dignity, intimate knowing in the nursing home environment, wishing we could do more, personal knowing of self as caregiver, and struggling with end-of-life treatment decisions. Spiritual caring was described within the context of deep personal relationships, holistic care, and support for residents. Spiritual care responses and similarities and differences in the experiences of participants are presented. Education and research about how to assist residents and families as they struggle with difficult end-of-life decisions, adequate time and staff to provide the kind of care they "wished they could," and development of models that honor the close connection and attachment of staff to residents could enhance end-of-life care in this setting.


Subject(s)
Attitude of Health Personnel , Empathy , Nursing Homes/organization & administration , Pastoral Care/organization & administration , Spirituality , Terminal Care/organization & administration , Adaptation, Psychological , Adult , Advance Directives , Aged , Attitude to Death , Decision Making , Family/psychology , Female , Geriatric Nursing/organization & administration , Health Services Needs and Demand , Holistic Health , Humans , Male , Medical Staff/psychology , Middle Aged , Nurse-Patient Relations , Nursing Assistants/psychology , Nursing Methodology Research , Nursing Staff/psychology , Qualitative Research
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