ABSTRACT
O artigo propõe reflexões, à luz da bioética, acerca do dilema da alocação de recursos públicos para a assistência à saúde das pessoas com deficiência no Brasil. Para tanto, o conceito de deficiência e o marco legal brasileiro de assistência às pessoas com deficiência são apresentados; faz-se uma análise sobre a escassez de recursos; discutem-se referenciais teóricos atinentes e destaca-se o aporte da bioética de proteção e da bioética de intervenção. Conclui-se que, em razão de sua vulnerabilidade, as pessoas com deficiência devem ser protegidas pelo Estado e recursos devem ser empregados para garantir seu acesso aos serviços de saúde. Enfatiza-se, também, que apesar da previsão legal já existente, a efetiva destinação de recursos depende de outros fatores, tais como a participação sociopolítica das pessoas com deficiência na " pactuação" das políticas de saúde.
The purpose of this article is to analyze the dilemma of allocation of public funds to the healthcare of people with disabilities in Brazil from a bioethical standpoint. The concept of disability and the legal framework are presented; the question of budgetary constraints and theoretical bioethics references about this issue are discussed; and the role of Bioethics of Protection and Bioethics of Intervention is stressed. It is concluded that, because of their vulnerability, people with disabilities should be protected by the state and funds must be allocated to guarantee their access to healthcare services. However, in spite of the existing legal basis, the actual destination of public funds to people with disabilities still depends on other factors, among others social and political participation of the disabled persons themselves in the negotiation of healthcare policies.
Subject(s)
Humans , Bioethical Issues , Disabled Persons , Health Policy , Bioethical Issues/legislation & jurisprudence , Brazil , Disabled Persons/legislation & jurisprudence , Health Policy/legislation & jurisprudenceABSTRACT
The purpose of this article is to analyze the dilemma of allocation of public funds to the healthcare of people with disabilities in Brazil from a bioethical standpoint. The concept of disability and the legal framework are presented; the question of budgetary constraints and theoretical bioethics references about this issue are discussed; and the role of Bioethics of Protection and Bioethics of Intervention is stressed. It is concluded that, because of their vulnerability, people with disabilities should be protected by the state and funds must be allocated to guarantee their access to healthcare services. However, in spite of the existing legal basis, the actual destination of public funds to people with disabilities still depends on other factors, among others social and political participation of the disabled persons themselves in the negotiation of healthcare policies.