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1.
Qual Health Res ; 25(2): 168-78, 2015 Feb.
Article in English | MEDLINE | ID: mdl-25225048

ABSTRACT

We used a qualitative focus group design to explore the experiences and challenges of nurses who work with hospitalized patients experiencing the sudden inability to verbalize their needs, also known as sudden speechlessness. In response to open-ended questions in facilitated focus groups, 18 nurses discussed issues around the care and communication needs of suddenly speechless (SS) patients. Nurses identified multiple, commonly occurring communication challenges when caring for SS patients. They believed these challenges led to poorer recognition of patient needs, with the potential for compromised patient care. Nurses described how the lack of reliable strategies to facilitate communication sometimes resulted in negative patient outcomes, including unmet psychosocial needs and the potential that informed consent and educational issues were being inadequately addressed for the SS patients. Even experienced nurses indicated ongoing problems in communicating with SS patients, despite using a multitude of strategies, leaving many to deal with issues of frustration and role conflict.


Subject(s)
Communication , Inpatients , Nurses/psychology , Speech Disorders/nursing , Adult , Attitude of Health Personnel , Focus Groups , Humans , Male , Middle Aged , Nurse-Patient Relations , Qualitative Research
2.
Res Gerontol Nurs ; 2(1): 39-48, 2009 Jan.
Article in English | MEDLINE | ID: mdl-20077992

ABSTRACT

This article reports the qualitative arm of a mixed-methods study designed to test an in-home nighttime monitoring system (NMS) that tracks the nighttime activity of persons with dementia. Fourteen caregiver interviews were analyzed using grounded theory/full conceptual description methods to determine the issues associated with providing care at night and to explore the benefits of using the NMS. Caregivers not using the NMS experienced sleep disruption, overwhelming worry, and loss of personal space, leading to decreased energy and changes in mood. When the NMS was used, caregivers reported improved "peace of mind." The fear and uncertainty associated with worry was alleviated by reliable alerts regarding the whereabouts of the person with dementia. Some caregivers were able to better balance needs for personal space with needs to remain in contact with the person with dementia. Generally, caregivers reported improved quality of sleep, although some caregivers reported more awakenings due to the system alerts.


Subject(s)
Caregivers/psychology , Dementia/prevention & control , Family/psychology , Monitoring, Physiologic/methods , Night Care/methods , Wandering Behavior , Aged , Aged, 80 and over , Attitude to Health , Controlled Clinical Trials as Topic , Cross-Over Studies , Fear , Female , Health Status , Home Nursing/methods , Humans , Male , Middle Aged , Nursing Methodology Research , Qualitative Research , Safety Management , Stress, Psychological/prevention & control , Stress, Psychological/psychology , Uncertainty
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