ABSTRACT
Grief support changes as more is learned from current grief theory and research. The authors provide a comprehensive overview of current grief support as it relates to Pediatric Palliative Care (PPC). The following aspects of grief are addressed: (1) anticipatory grief: the nondeath losses that occur with a complex and chronic illness, as well as the time leading up to death; (2) grief around the time of death: the intense and sacred experience of companioning with a dying child; (3) grief after death: supporting bereavement and mourning through programing and other methods; (4) innovative approaches: the future of grief support. The contents of this article are meant to support and educate programs currently providing grief services and those aiming to begin the meaningful work of grief support.
ABSTRACT
Conjoined twins offer unique challenges for the family and medical care team including psychosocial stressors, religious dilemmas and public relation considerations. The involvement of social workers, child life specialists, chaplains and public relation experts is an important component in the care of conjoined twins. In this paper, we discuss the issues that could be encountered when supporting families with conjoined twins and strategies to address them.