ABSTRACT
OBJECTIVE: Despite national guidelines recommending early concurrent palliative care for individuals newly diagnosed with metastatic cancer, few community cancer centers, especially those in underserved rural areas do so. We are implementing an early concurrent palliative care model, ENABLE (Educate, Nurture, Advise, Before Life Ends) in four, rural-serving community cancer centers. Our objective was to develop a "toolkit" to assist community cancer centers that wish to integrate early palliative care for patients with newly diagnosed advanced cancer and their family caregivers. METHOD: Guided by the RE-AIM (Reach, Effectiveness-Adoption, Implementation, Maintenance) framework, we undertook an instrument-development process based on the literature, expert and site stakeholder review and feedback, and pilot testing during site visits. RESULTS: We developed four instruments to measure ENABLE implementation: (1) the ENABLE RE-AIM Self-Assessment Tool to assess reach, adoption, implementation, and maintenance; (2) the ENABLE General Organizational Index to assess institutional implementation; (3) an Implementation Costs Tool; and (4) an Oncology Clinicians' Perceptions of Early Concurrent Oncology Palliative Care survey. SIGNIFICANCE OF RESULTS: We developed four measures to determine early palliative care implementation. These measures have been pilot-tested, and will be integrated into a comprehensive "toolkit" to assist community cancer centers to measure implementation outcomes. We describe the lessons learned and recommend strategies for promoting long-term program sustainability.
Subject(s)
Community Health Centers/trends , Neoplasms/therapy , Palliative Care/methods , Rural Population , Alabama , Humans , Medical Oncology , Palliative Care/psychology , Perception , Physicians/psychology , Pilot Projects , Program Evaluation/methods , Self-Assessment , South Carolina , Surveys and Questionnaires , WorkforceABSTRACT
OBJECTIVE: To evaluate the utility of offering physicians electronic options as alternatives to completing mail questionnaires. DATA SOURCE: A survey of colorectal cancer screening practices of Alabama primary care physicians, conducted May-June 2010. STUDY DESIGN: In the follow-up to a mail questionnaire, physicians were offered options of completing surveys by telephone, fax, email, or online. DATA COLLECTION METHOD: Detailed records were kept on the timing and mode of completion of surveys. PRINCIPAL FINDINGS: Eighty-eight percent of surveys were returned by mail, 10 percent were returned by fax, and only 2 percent were completed online; none were completed by telephone or email. CONCLUSIONS: Offering fax options increases response rates, but providing other electronic options does not.
