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Sci Transl Med ; 16(746): eadn2401, 2024 May 08.
Article in English | MEDLINE | ID: mdl-38718133

ABSTRACT

The development of new genetic medicines to treat sickle cell disease highlights the need for greater collaboration between researchers and people with lived experiences. Drawing on the adage "Nothing about us, without us," we call for increased investments in community advocacy and engagement.


Subject(s)
Anemia, Sickle Cell , Patient Advocacy , Humans , Anemia, Sickle Cell/genetics , Genetic Therapy
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