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Wien Med Wochenschr ; 160(13-14): 325-7, 2010 Jul.
Article in English | MEDLINE | ID: mdl-20694760

ABSTRACT

We describe a family with a severely disabled child who demonstrates many of the characteristics of resilient families: strong relationships, good communication, and profound love of the disabled child. But this family has a characteristic that is infrequently described in the literature yet common in practice: the mother initiated many medical decisions based on knowledge gathered on the Internet. Parental education on the Internet can now allow families to gain a sense of mastery over their child's disease.


Subject(s)
Community Participation , Disabled Children/psychology , Epilepsies, Myoclonic/psychology , Internet , Love , Mitochondrial Diseases/psychology , Parent-Child Relations , Parents/education , Resilience, Psychological , Social Support , Adolescent , Diet, Ketogenic , Epilepsies, Myoclonic/diet therapy , Epilepsies, Myoclonic/therapy , Follow-Up Studies , Humans , Male , Mitochondrial Diseases/diet therapy , Mitochondrial Diseases/therapy , Parental Consent , Parents/psychology , Quality of Life/psychology
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