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1.
Health Psychol Behav Med ; 10(1): 92-103, 2022.
Article in English | MEDLINE | ID: mdl-34993008

ABSTRACT

OBJECTIVE: Family members of stroke survivors are often not supported for their caring role, with many reporting adjustment difficulties. This paper describes the development and content of a group-based intervention for informal carers of stroke survivors. METHOD: The intervention is based on the theoretical foundation of the biopsychosocial model with the aim to understand and address the physical, psychological and social factors of caring for stroke survivors. Findings from a comprehensive literature review and a qualitative study with carers and stroke professionals were synthesized to guide the intervention development. The Template for Intervention Description and Replication (TIDieR) checklist was used as a framework to describe the intervention. RESULTS: The intervention integrates cognitive-behavioural approaches via the identification of the biopsychosocial (physical, emotional, social) factors that can have an impact on the well-being of carers. It includes education on stroke-specific topics and advice on coping strategies. It consists of six structured two-hour group sessions facilitated in a community setting. It provides information and support on adjusting to the caring role in the first year post-stroke. Intervention materials were designed for addressing carers' specific needs using psychological techniques, such as problem-solving, goal setting and relaxation exercises. CONCLUSION: We have underlined the importance for describing and reporting the process of intervention development for complex interventions in the context of stroke rehabilitation. An intervention addressing the needs of informal stroke carers (Biopsychosocial Intervention for Stroke Carers; BISC) has been developed and described. BISC was further evaluated in a single-centre feasibility randomized controlled trial.

2.
J Stroke Cerebrovasc Dis ; 30(1): 105425, 2021 Jan.
Article in English | MEDLINE | ID: mdl-33161350

ABSTRACT

Assessment of mood is critical in determining rehabilitation outcomes for stroke and other acquired brain injury, yet a common consequence of such injuries is aphasia, where language is impaired. Consequently, the use of language-based measures in this population is often not possible. Following a critical review of the neuropsychological aspects of self-reported mood, this paper evaluates the problems in reporting mood after stroke due to aphasia, and discusses implications for the design of adapted instruments. The paper then appraises the construction and psychometric properties of existing, adapted self-report measures developed to try and address these problems, and evaluates their utility and limitations. This includes a focus on the recently validated tablet-based Dynamic Visual Analog Mood Scales (D-VAMS), which uses innovative non-verbal assessment methods based on facial expression modulated via a slider control on a touchscreen interface. Currently, most studies evaluating recovery interventions simply omit individuals with aphasia because of the difficulty of assessing mood and quality of life in this population. However, adapted scales such as the D-VAMS appear to represent an important step forward in assessing mood in people with language impairments, with the use of interactive modulated imagery having wider applications for nonverbal communication as well as the quantification of subjective phenomena.


Subject(s)
Affect , Aphasia/diagnosis , Language , Nonverbal Communication , Self Report , Stroke/diagnosis , Aphasia/etiology , Aphasia/physiopathology , Aphasia/psychology , Cognition , Humans , Mental Health , Predictive Value of Tests , Prognosis , Psychometrics , Quality of Life , Reproducibility of Results , Stroke/complications , Stroke/physiopathology , Stroke/psychology
3.
Clin Rehabil ; 34(10): 1268-1281, 2020 Oct.
Article in English | MEDLINE | ID: mdl-32567356

ABSTRACT

OBJECTIVE: To determine the feasibility of recruiting to and delivering a biopsychosocial intervention for carers of stroke survivors. DESIGN: Feasibility randomised controlled study with nested qualitative interview study. SETTING: The intervention was delivered in the community in either a group or one-to-one format. SUBJECTS: Carers and stroke survivors within one year of stroke onset. INTERVENTIONS: A carer targeted intervention delivered by a research psychologist in six structured two-hour sessions or usual care control. The intervention combined education about the biological, psychological and social effects of stroke with strategies and techniques focussing on adjustment to stroke and caregiving. Stroke survivors in both groups received baseline and follow-up assessment but no intervention. MAIN OUTCOME: Recruitment rate, study attrition, fidelity of intervention delivery, acceptability and sensitivity of outcome measures used (health related quality of life, anxiety and depression and carer burden six months after randomisation). RESULTS: Of the 257 carers approached, 41 consented. Six withdrew before randomisation. Eighteen participants were randomised to receive the intervention and 17 to usual care. Attendance at sessions was greater when treated one-to-one. Feedback interviews suggested that participants found the intervention acceptable and peer support particularly helpful in normalising their feelings. Thirty participants were assessed at follow-up with improvements from baseline on all health measures for both groups. CONCLUSIONS: Our results suggest that a biopsychosocial intervention was acceptable to carers and can be delivered in group and one-to-one formats. Timing of approach and mode of intervention delivery is critical and requires tailoring to the carers individual needs.


Subject(s)
Caregivers/psychology , Psychosocial Intervention , Social Support , Stroke/psychology , Adult , Aged , Aged, 80 and over , Anxiety/psychology , Depression/psychology , Feasibility Studies , Female , Humans , Male , Middle Aged , Outcome Assessment, Health Care , Qualitative Research , Quality of Life , Stroke/therapy
4.
Int J Stroke ; 15(3): 244-255, 2020 04.
Article in English | MEDLINE | ID: mdl-31980004

ABSTRACT

BACKGROUND: Anxiety is a common and distressing problem after stroke. AIMS: To undertake an updated systematic review and meta-analysis of observational studies of anxiety after stroke and integrate the findings with those reported previously. SUMMARY OF REVIEW: Multiple databases were searched in May 2018 and 53 new studies were included following dual independent sifting and data extraction. These were combined with 44 previous studies to form a combined data set of 97 studies, comprising 22,262 participants. Studies using interview methods were of higher quality. Rates of anxiety by interview were 18.7% (95% confidence interval 12.5, 24.9%) and 24.2% (95% confidence interval 21.5, 26.9%) by rating scale. Rates of anxiety did not lower meaningfully up to 24 months after stroke. Eight different anxiety subtypes were also reported. CONCLUSIONS: This review confirms that anxiety occurs in around one in four patients (by rating scale) and one in five patients (by interview). More research on anxiety subtypes is needed for an informed understanding of its effects and the development of interventions.


Subject(s)
Anxiety/epidemiology , Anxiety/psychology , Observational Studies as Topic/methods , Stroke/epidemiology , Stroke/psychology , Anxiety/etiology , Humans , Quality of Life/psychology , Stroke/complications
5.
Health Technol Assess ; 23(47): 1-176, 2019 09.
Article in English | MEDLINE | ID: mdl-31524133

ABSTRACT

BACKGROUND: There is currently insufficient evidence for the clinical effectiveness and cost-effectiveness of psychological therapies for post-stroke depression. OBJECTIVE: To evaluate the feasibility of undertaking a definitive trial to evaluate the clinical effectiveness and cost-effectiveness of behavioural activation (BA) compared with usual stroke care for treating post-stroke depression. DESIGN: Parallel-group, feasibility, multicentre, randomised controlled trial with nested qualitative research and a health economic evaluation. SETTING: Acute and community stroke services in three sites in England. PARTICIPANTS: Community-dwelling adults 3 months to 5 years post stroke who are depressed, as determined by the Patient Health Questionnaire-9 (PHQ-9) or the Visual Analogue Mood Scales 'Sad' item. Exclusions: patients who are blind and/or deaf, have dementia, are unable to communicate in English, do not have mental capacity to consent, are receiving treatment for depression at the time of stroke onset or are currently receiving psychological intervention. RANDOMISATION AND BLINDING: Participants were randomised (1 : 1 ratio) to BA or usual stroke care. Randomisation was conducted using a computer-generated list with random permuted blocks of varying sizes, stratified by site. Participants and therapists were aware of the allocation, but outcome assessors were blind. INTERVENTIONS: The intervention arm received up to 15 sessions of BA over 4 months. BA aims to improve mood by increasing people's level of enjoyable or valued activities. The control arm received usual care only. MAIN OUTCOME MEASURES: Primary feasibility outcomes concerned feasibility of recruitment to the main trial, acceptability of research procedures and measures, appropriateness of baseline and outcome measures, retention of participants and potential value of conducting the definitive trial. Secondary feasibility outcomes concerned the delivery of the intervention. The primary clinical outcome 6 months post randomisation was the PHQ-9. Secondary clinical outcomes were Stroke Aphasic Depression Questionnaire - Hospital version, Nottingham Leisure Questionnaire, Nottingham Extended Activities of Daily Living, Carer Strain Index, EuroQol-5 Dimensions, five-level version and health-care resource use questionnaire. RESULTS: Forty-eight participants were recruited in 27 centre-months of recruitment, at a recruitment rate of 1.8 participants per centre per month. The 25 participants randomised to receive BA attended a mean of 8.5 therapy sessions [standard deviation (SD) 4.4 therapy sessions]; 23 participants were allocated to usual care. Outcome assessments were completed by 39 (81%) participants (BA, n = 18; usual care, n = 21). Mean PHQ-9 scores at 6-month follow-up were 10.1 points (SD 6.9 points) and 14.4 points (SD 5.1 points) in the BA and control groups, respectively, a difference of -3.8 (95% confidence interval -6.9 to -0.6) after adjusting for baseline PHQ-9 score and centre, representing a reduction in depression in the BA arm. Therapy was delivered as intended. BA was acceptable to participants, carers and therapists. Value-of-information analysis indicates that the benefits of conducting a definitive trial would be likely to outweigh the costs. It is estimated that a sample size of between 580 and 623 participants would be needed for a definitive trial. LIMITATIONS: Target recruitment was not achieved, although we identified methods to improve recruitment. CONCLUSIONS: The Behavioural Activation Therapy for Depression after Stroke trial was feasible with regard to the majority of outcomes. The outstanding issue is whether or not a sufficient number of participants could be recruited within a reasonable time frame for a definitive trial. Future work is required to identify whether or not there are sufficient sites that are able to deliver the services required for a definitive trial. TRIAL REGISTRATION: Current Controlled Trials ISRCTN12715175. FUNDING: This project was funded by the NIHR Health Technology Assessment programme and will be published in full in Health Technology Assessment; Vol. 23, No. 47. See the NIHR Journals Library website for further project information.


Approximately one-third of stroke patients experience depression, which can have negative effects on recovery and quality of life (QoL). Currently, we do not have sufficient evidence to indicate which psychological interventions are effective and affordable to the NHS for treating post-stroke depression. We aimed to determine whether or not it is feasible to conduct a future large-scale study to evaluate a psychological intervention, called behavioural activation (BA) therapy, for treating post-stroke depression. BA aims to improve mood by identifying what stroke patients enjoy doing and helping them to undertake these activities. BA can be used with all stroke patients with depression, including people with cognitive or communication difficulties. We recruited 48 post-stroke patients who had suffered a stroke between 3 months and 5 years previously. People with dementia or significant aphasia were excluded. Participants were divided into two groups at random. About half of the participants received BA over a 4-month period and the other half did not. Participants received all other available care. After 6 months, participants completed questionnaires about their mood, activity level and QoL. We also interviewed 16 participants and 10 carers about their views on the actual research process and therapy. Although we were able to recruit participants to the study, we recruited fewer than the original target of 72 participants owing to delays in starting recruitment. However, we have identified ways to improve participant recruitment in a future study. We found that it was feasible to deliver BA, and the therapy was found to be acceptable to participants, carers and therapists. The results indicate that the benefits of conducting a large-scale future study would outweigh the costs. However, the main consideration will be whether or not we could identify enough stroke services able to run the study for a long enough period to recruit the large number of participants required.


Subject(s)
Cognitive Behavioral Therapy/methods , Depression/etiology , Stroke/psychology , Adult , Aged , Aged, 80 and over , Depression/therapy , Female , Humans , Male , Middle Aged , Psychiatric Status Rating Scales , Stroke/complications , Surveys and Questionnaires , Treatment Outcome
6.
Clin Rehabil ; 32(1): 94-102, 2018 Jan.
Article in English | MEDLINE | ID: mdl-28653547

ABSTRACT

OBJECTIVES: To validate a non-verbal self-report measure of mood - the Dynamic Visual Analogue Mood Scales (D-VAMS) - against the Hospital Anxiety and Depression Scale (HADS) and assess its suitability as an outcome measure or screening measure for depressed mood following stroke. DESIGN: Cross-sectional observational cohort study. PARTICIPANTS: Forty-six stroke survivors (24% with aphasia) recruited from online, from stroke clubs and via an NHS rehabilitation service. METHODS: A set of seven bipolar scales was developed enabling users to report mood by modifying facial expression images using a slider. Participants completed a tablet/computer task, reporting their mood on these scales mixed randomly with versions which used only words. The HADS was then completed, followed by a repeat run of the two versions in a different, random sequence. RESULTS: Exploratory factor analysis identified one factor consistent with pleasantness of mood accounting for 80% of the variance. Internal consistency of D-VAMS was high ( α = 0.95), and there was a high correlation between face-only D-VAMS scores and HADS total scores ( r = -0.80, P < 0.001), as well as HADS-D/HADS-A subscale scores ( r = -0.73, P < 0.001; r = -0.71, P < 0.001). D-VAMS showed good sensitivity and specificity against HADS, with means of 85%/77% (sensitivity/specificity) against the HADS-D and 80%/77% against the HADS-A across nine cut-offs. CONCLUSION: D-VAMS is a valid and reliable measure likely suitable for assessment of depressed mood in aphasia following stroke. Though D-VAMS performed well as a screening measure in this study sample, further study is needed in the acute stage post-stroke.


Subject(s)
Affect , Aphasia/psychology , Stroke/psychology , Adult , Aged , Aged, 80 and over , Aphasia/etiology , Cohort Studies , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Psychometrics , Reproducibility of Results , Sensitivity and Specificity , Stroke/complications , Visual Analog Scale
7.
BMJ Open ; 7(10): e018309, 2017 Oct 22.
Article in English | MEDLINE | ID: mdl-29061630

ABSTRACT

INTRODUCTION: Reducing length of hospital stay for stroke survivors often creates a shift in the responsibility of care towards informal carers. Adjustment to the caregiving process is experienced by many carers as overwhelming, complex and demanding and can have a detrimental impact on mental and physical health and well-being. National policy guidelines recommend that carers' needs are considered and addressed; despite this, few interventions have been developed and empirically evaluated. We developed a biopsychosocial intervention in collaboration with carers of stroke survivors. Our aim is to determine whether the intervention can be delivered in a group setting and evaluated using a randomised controlled trial (RCT). METHODS AND ANALYSIS: Feasibility RCT and nested qualitative interview study. We aim to recruit up to 40 stroke carers within 1 year of the stroke onset. Carers are randomised to usual care or usual care plus biopsychosocial intervention. Each intervention group will consist of five stroke carers. The intervention will focus on: psychoeducation, psychological adjustment to stroke, strategies for reducing unwanted negative thoughts and emotions and problem-solving strategies. The main outcome is the feasibility of conducting an RCT. Carer outcomes at 6 months include: anxiety and depression, quality of life and carer strain. Data are also collected from stroke survivors at baseline and 6 months including: level of disability, anxiety and depression, and quality of life. ETHICS AND DISSEMINATION: Favourable ethical opinion was provided by East Midlands - Nottingham2 Research Ethics Committee (14/EMI/1264). This study will determine whether delivery of the biopsychosocial intervention is feasible and acceptable to stroke carers within a group format. It will also determine whether it is feasible to evaluate the effects of the biopsychosocial intervention in an RCT. We will disseminate our findings through peer-reviewed publications and presentations at national and international conferences. TRIAL REGISTRATION NUMBER: ISRCTN15643456; Pre-results.


Subject(s)
Anxiety/therapy , Caregivers/psychology , Depression/therapy , Psychotherapy , Stroke/therapy , Adaptation, Psychological , Anxiety/psychology , Depression/psychology , Feasibility Studies , Female , Humans , Male , Quality of Life , Research Design
8.
Article in English | MEDLINE | ID: mdl-27965862

ABSTRACT

BACKGROUND: There is currently insufficient evidence for the clinical and cost-effectiveness of psychological therapies for treating post-stroke depression. METHODS/DESIGN: BEADS is a parallel group feasibility multicentre randomised controlled trial with nested qualitative research and economic evaluation. The aim is to evaluate the feasibility of undertaking a full trial comparing behavioural activation (BA) to usual stroke care for 4 months for patients with post-stroke depression. We aim to recruit 72 patients with post-stroke depression over 12 months at three centres, with patients identified from the National Health Service (NHS) community and acute services and from the voluntary sector. They will be randomly allocated to receive behavioural activation in addition to usual care or usual care alone. Outcomes will be measured at 6 months after randomisation for both participants and their carers, to determine their effectiveness. The primary clinical outcome measure for the full trial will be the Patient Health Questionnaire-9 (PHQ-9). Rates of consent, recruitment and follow-up by centre and randomised group will be reported. The acceptability of the intervention to patients, their carers and therapists will also be assessed using qualitative interviews. The economic evaluation will be undertaken from the National Health Service and personal social service perspective, with a supplementary analysis from the societal perspective. A value of information analysis will be completed to identify the areas in which future research will be most valuable. DISCUSSION: The feasibility outcomes from this trial will provide the data needed to inform the design of a definitive multicentre randomised controlled trial evaluating the clinical and cost-effectiveness of behavioural activation for treating post-stroke depression. TRIAL REGISTRATION: Current controlled trials ISRCTN12715175.

9.
Age Ageing ; 45(1): 164-70, 2016 Jan.
Article in English | MEDLINE | ID: mdl-26764403

ABSTRACT

OBJECTIVES: to describe the views of healthcare workers on the facilitators of communication with people with dementia in a care setting. DESIGN: thematic analysis of semi-structured interviews. SETTING: all participants were interviewed in their place of work. PARTICIPANTS: sixteen healthcare workers whose daily work involves interacting with people with dementia. RESULTS: four overarching categories of themes were identified from the interviews that impact on communication: the attributes of a care worker, communication strategies used, organisational factors and the physical characteristics of the care environment. CONCLUSION: many strategies used by healthcare workers to facilitate communication have not yet been studied in the research literature. Participants' views on training should be incorporated into future dementia training programmes.


Subject(s)
Attitude of Health Personnel , Communication , Dementia/therapy , Geriatrics , Health Knowledge, Attitudes, Practice , Health Personnel/psychology , Homes for the Aged , Nursing Homes , Professional-Patient Relations , Clinical Competence , Dementia/diagnosis , Dementia/psychology , Health Services Research , Humans , Interviews as Topic , Patient Care Team , Workforce , Workplace
10.
Clin Rehabil ; 27(12): 1097-106, 2013 Dec.
Article in English | MEDLINE | ID: mdl-23881337

ABSTRACT

OBJECTIVE: To assess the treatment integrity of behavioural therapy for low mood in stroke patients with aphasia. DESIGN: Participants were recruited to a multicentre randomized controlled trial (Communication and Low Mood; CALM trial) comparing behavioural therapy with a usual care control group. SUBJECTS: Of the 51 participants randomly allocated to receive behavioural therapy, 44 participants completed treatment. METHODS: Participants were assessed on measures of disability, language and mood. The number and length of therapy sessions, and therapist was recorded. Allocation of time to therapy components was compared across three phases of therapy. Associations between levels of disability, aphasia, mood and the therapy patients received were determined. Therapy content was compared between centres and at the beginning and end of the trial. RESULTS: The mean number of therapy sessions was 9.1 (range 3-18, SD 2.6) and the mean duration of sessions was 58 minutes (range 30-89 minutes, SD 10.7). Allocation of time to each therapy component significantly differed across the three phases of therapy (P < 0.05). There were no significant associations (P > 0.05) between the length and number of sessions and patients' aphasia, mood or disability, suggesting similar levels of therapy were provided regardless of patients' characteristics. The content of therapy showed some differences between centres (P < 0.01) and there was programme drift in some components of therapy. CONCLUSIONS: The results support the ability of the therapists to deliver behavioural therapy according to the treatment manual. However there were differences between centres and over time in some components of therapy.


Subject(s)
Aphasia/rehabilitation , Cognitive Behavioral Therapy/standards , Mood Disorders/therapy , Randomized Controlled Trials as Topic/standards , Stroke Rehabilitation , Analysis of Variance , Aphasia/etiology , Aphasia/psychology , Clinical Competence , Cognitive Behavioral Therapy/methods , England , Guideline Adherence , Humans , Mood Disorders/etiology , Multicenter Studies as Topic , Stroke/complications , Stroke/psychology , Time Factors
11.
Clin Rehabil ; 27(5): 398-408, 2013 May.
Article in English | MEDLINE | ID: mdl-23059701

ABSTRACT

OBJECTIVE: The aim was to evaluate behavioural therapy as a treatment for low mood in people with aphasia. DESIGN: A randomized controlled trial comparing behavioural therapy plus usual care with a usual care control. Potential participants with aphasia after stroke were screened for the presence of low mood. Those who met the criteria and gave consent were randomly allocated. SETTING: Participants were recruited from hospital wards, community rehabilitation, speech and language therapy services and stroke groups. SUBJECTS: Of 511 people with aphasia identified, 105 had low mood and were recruited. INTERVENTIONS: Behavioural therapy was offered for up to three months. Outcomes were assessed three and six months after random allocation. MAIN MEASURES: Stroke Aphasic Depression Questionnaire, Visual Analog Mood Scales 'sad' item, and Visual Analogue Self-Esteem Scale. RESULTS: Participants were aged 29 to 94 years (mean 67.0, SD 13.5) and 66 (63%) were men. Regression analysis showed that at three months, when baseline values and communication impairment were controlled for, group allocation was a significant predictor of the Stroke Aphasic Depression Questionnaire (P < 0.05), visual analogue 'sad' (P = 0.03), and Visual Analogue Self-Esteem Scale (P < 0.01). At six months, group alone was a significant predictor of the Stroke Aphasic Depression Questionnaire (P < 0.05), and remained significant when baseline values were controlled for (P = 0.02). Mean Stroke Aphasic Depression Questionnaire 10-item hospital version scores decreased from baseline to six months by six points in the intervention group as compared with an increase of 1.9 points in the control group. CONCLUSIONS: Behavioural therapy seemed to improve the mood of people with aphasia.


Subject(s)
Aphasia/rehabilitation , Cognitive Behavioral Therapy/methods , Mood Disorders/therapy , Stroke Rehabilitation , Adult , Aged , Aged, 80 and over , Aphasia/etiology , Aphasia/psychology , Female , Humans , Male , Middle Aged , Mood Disorders/etiology , ROC Curve , Regression Analysis , Self Concept , Statistics, Nonparametric , Stroke/complications , Stroke/psychology , Visual Analog Scale
12.
J Surg Educ ; 69(6): 819-25, 2012.
Article in English | MEDLINE | ID: mdl-23111053

ABSTRACT

OBJECTIVES: To assess if implementing Nighttime Nurse and Physician Paging System (NNAPPS) would improve nurse and physician communication as well as reduce the number of nonurgent pages to residents taking overnight call. DESIGN: NNAPPS was implemented on the busiest General Surgery and Transplant wards at our University Hospital. We conducted 2 prospective studies that logged pages received by on call surgery residents for 2-month blocks. The logs captured time, source, reason, and action resulting from pages. Independent reviewers determined urgency of the pages. Primary outcome measures were comparison of average nonurgent pages, total pages and total pages per patient during a night shift between the NNAPPS ward and all other wards that care for surgical patients. SETTING: University teaching hospital. PARTICIPANTS: General surgery residents working overnight call shifts on nine surgical services. RESULTS: In both studies combined, there were a total of 107 night shifts during which 771 pages were received. Total census was 1179 patients. Nurses initiated most pages (67%). Eight percent of pages interrupted patient care, while 40% of pages interrupted resident sleep. Most pages resulted in either a "new order" (39%) or "patient assessment" (22%), while 36% resulted in "no action." Most pages (56%) were "urgent," 25% "nonurgent," and 19% "unable to determine urgency." Regarding the Transplant ward, significant differences (p < 0.05) existed between average nonurgent pages (0.46 vs 2.14), total pages (3.69 vs 6.14) and total pages/patient during a shift (0.38 vs 0.68) when comparing pre- and post-NNAPPS data. CONCLUSIONS: NNAPPS significantly reduced nonurgent pages, total pages and pages per patient during a night shift compared to services with conventional systems. Streamlined paging systems lead to more efficient communication between providers and decrease the nonurgent pages to residents. NNAPPS continued high standards of patient care and improved sleep patterns for residents.


Subject(s)
Efficiency , Internship and Residency/standards , Nurses , Physicians , Workload , Accreditation , Education, Medical, Graduate , Prospective Studies , Time Factors
13.
Clin Rehabil ; 26(4): 372-81, 2012 Apr.
Article in English | MEDLINE | ID: mdl-22023890

ABSTRACT

OBJECTIVE: To assess the psychometric properties of an observational screening measure of depressive symptoms (SADQH-10; 10-item Hospital version of the Stroke Aphasic Depression Questionnaire) for use in stroke patients with aphasia and to determine the convergent and divergent validity of the SADQH-10. DESIGN: Cross-sectional cohort. SETTING: Hospital and community. PARTICIPANTS: Stroke patients with aphasia (n = 165) were recruited through hospital wards and community services as part of a randomised controlled trial. Participants were aged 29 to 94 years (68.6 ± 12.1) and 65% were men. RESULTS: The SADQH-10 demonstrated good internal consistency (α = 0.77). Factor analysis revealed the SADQH-10 to be measuring three constructs (social interaction and physical pain, tearfulness, loss of interest and motivation). Significant correlations were found between scores on the SADQH-10 and VAMS 'sad' item (r(s) = 0.297, P < 0.01) but not with the VASES 'depression' item (r(s) = 0.064, P = 0.590) or measures of physical and language abilities. CONCLUSIONS: The SADQH-10 is both a valid and reliable observational screening measure of depressive symptoms for stroke patients with aphasia.


Subject(s)
Aphasia/psychology , Depression/diagnosis , Psychometrics/instrumentation , Stroke/psychology , Adult , Aged , Aged, 80 and over , Aphasia/complications , Aphasia/etiology , Cross-Sectional Studies , Depression/etiology , Female , Humans , Male , Middle Aged , Multicenter Studies as Topic , Randomized Controlled Trials as Topic , Reproducibility of Results , Stroke/complications
14.
Health Care Women Int ; 30(1-2): 93-113, 2009.
Article in English | MEDLINE | ID: mdl-19116824

ABSTRACT

African American women find themselves at a high risk of experiencing feelings of powerlessness associated with socioeconomic disparities rooted in a history of racism and sexism. The authors present a conceptual model that discusses powerlessness as a significant variable that contributes to the experience of anger and stress in African American women, and consequently to the adverse health consequences of such anger and stress. The authors review the current literature as well as census and health statistics to discern critical historical, social, and cognitive aspects of powerlessness and anger in African American women. Implications for practitioners are addressed.


Subject(s)
Anger , Black or African American/psychology , Cultural Characteristics , Health Status , Mental Health , Stress, Psychological/ethnology , Attitude to Health/ethnology , Female , Humans , Interpersonal Relations , United States , Women's Health
15.
Disabil Rehabil ; 30(23): 1779-85, 2008.
Article in English | MEDLINE | ID: mdl-19031206

ABSTRACT

PURPOSE: The Stroke Cognitions Questionnaire Revised (SCQR) was developed to assess the frequency of positive and negative cognitions of stroke patients. This paper aims to examine the construct validity, internal consistency, test--retest and inter-rater reliability of the SCQR. METHOD: The SCQR was constructed by revising the Stroke Cognitions Questionnaire and developing new items from the cognitive-behavioural-therapy treatment notes of depressed stroke patients. Fifty hospitalised stroke patients were assessed on the SCQR and the Beck Depression Inventory II. Test - retest reliability over a 1-week interval and inter-rater reliability were evaluated with the first 20 patients. RESULTS: Total scores on the SCQR and the total number of positive and negative cognitions reported were significantly correlated with scores on the Beck Depression Inventory II (r = 0.54-0.80, p < 0.001). The scale had high internal consistency (Cronbach's alpha coefficient of 0.91). Depressed patients reported significantly more negative cognitions and significantly less positive cognitions than those not depressed. Excellent agreement was found between two raters for all items on the SCQR (Kappa 0.89-1.00), and test--retest reliability was also good (r = 0.81, p < 0.001). CONCLUSIONS: The SCQR is a reliable and valid measure of cognitions relevant to stroke patients. The pattern of cognitions was similar to that found in primary depression (more negative and less positive cognitions), suggesting that therapies developed from the cognitive model of depression may be appropriate for stroke patients.


Subject(s)
Cognition Disorders/etiology , Depressive Disorder/etiology , Stroke/complications , Stroke/psychology , Aged , Cognition Disorders/diagnosis , Depressive Disorder/diagnosis , Female , Humans , Male , Observer Variation , Reproducibility of Results , Stroke Rehabilitation , Surveys and Questionnaires
16.
Stroke ; 39(4): 1240-5, 2008 Apr.
Article in English | MEDLINE | ID: mdl-18292381

ABSTRACT

BACKGROUND AND PURPOSE: The aim of this prospective longitudinal study was to identify factors relating to emotional distress in the first 6 months after stroke in a sample including patients with aphasia. METHODS: One hundred patients who were in hospital at 1 month after stroke were recruited and assessed on measures of communication impairment (Sheffield Screening Test), personal activities of daily living (Barthel Index), and emotional distress (Visual Analogue Self-Esteem Scale). Demographic and stroke characteristics were recorded. Patients (n=92) were reassessed on the same measures 6 months after stroke, in addition to assessing extended activities of daily living (Nottingham Extended Activities of Daily Living Scale). RESULTS: Patients were aged 44 to 86 years (51 men), and 21 were classified as having aphasia. Multiple linear regression showed that expressive communication impairment and dependence in personal activities of daily living were significant predictors of emotional distress at 1 month after stroke (R(2)=24%). Expressive communication impairment, emotional distress at 1 month after stroke, and having a more severe stroke were significant predictors of emotional distress at 6 months after stroke (R(2)=55%). Distress levels were similar at 1 month and 6 months after stroke. Demographic characteristics and side of lesion were unrelated to distress. CONCLUSIONS: Expressive communication impairment and level of disability in personal activities of daily living were related to distress. Distress was persistent in the first 6 months after stroke. Appropriate treatment strategies need to be developed and evaluated for patients who have communication impairments.


Subject(s)
Affective Symptoms/diagnosis , Affective Symptoms/epidemiology , Stroke/epidemiology , Stroke/psychology , Activities of Daily Living , Aged , Aphasia/epidemiology , Aphasia/psychology , Communication Barriers , Disability Evaluation , Female , Humans , Linear Models , Longitudinal Studies , Male , Middle Aged , Predictive Value of Tests , Risk Factors
18.
Violence Against Women ; 12(7): 663-92, 2006 Jul.
Article in English | MEDLINE | ID: mdl-16777951

ABSTRACT

Traumatic stress symptoms were assessed for 218 children ages 5 to 13 following exposure to intimate partner violence: 33% of Caucasian and 17% of minority children were diagnosed with posttraumatic stress disorder. A risk and protective factors model was used to predict traumatic stress symptoms. For Caucasian children, the best predictors were mothers' mental health and low self-esteem. For minority children, the amount of violence, mothers' low self-esteem, and low income predicted traumatic stress. Social support to the mother, inclusive of friends, relatives, and religion, was a protective element. Implications for assessment and intervention are discussed in light of each group's experiences.


Subject(s)
Child Behavior Disorders/psychology , Child Behavior/psychology , Domestic Violence/psychology , Stress Disorders, Post-Traumatic/psychology , White People/psychology , Adolescent , Child , Child Behavior/ethnology , Child Behavior Disorders/ethnology , Child Welfare/ethnology , Female , Humans , Male , Michigan , Minority Groups/psychology , Mother-Child Relations , Narration , Poverty , Social Support , Stress Disorders, Post-Traumatic/etiology , Surveys and Questionnaires
19.
J Natl Med Assoc ; 98(4): 505-14, 2006 Apr.
Article in English | MEDLINE | ID: mdl-16623062

ABSTRACT

PURPOSE: To assess factors associated with perceptions of prostate cancer screening among African-American men aged > or = 55 years based upon items developed using the Preventive Health model (PHM). RESEARCH APPROACH: Focus group research and thematic coding using content analysis. SETTING: A large midwestern, private, nonprofit health system. PARTICIPANTS: African-American men aged > or = 55 years. Focus group 1 included 10 men who ranged in age from 55-87 years, with a mean age of 73.4 years. The 11 participants in focus group 2 ranged in age from 55-81 years, with a mean age of 68.7 years. METHODOLOGICAL APPROACH: Focus group questions were developed based on the conceptual framework of the PHM. African-American men aged > or = 55 years were randomly selected from the patient population of the healthcare system to participate in one of two focus groups. Content analysis was used to code the focus group transcripts. MAIN RESEARCH VARIABLES: Self-reported perceptions of prostate cancer screening. FINDINGS: Major themes emerging from the focus groups related to prostate cancer screening include: lack of knowledge regarding cancer, fear of cancer, confusion between prostate cancer screening and prostate cancer diagnostic tests, encouragement by others as motivation for cancer screening, intergenerational transfer of health information, lack of health insurance coverage as a barrier to prostate cancer screening and treatment, and limited availability of screening clinic hours during nonworking hours. INTERPRETATION: The information gained from this study could be used to develop interventions promoting informed and shared decision-making by patients and their providers regarding prostate cancer screening.


Subject(s)
Black or African American/psychology , Health Behavior , Mass Screening/psychology , Prostatic Neoplasms/prevention & control , Age Factors , Aged , Aged, 80 and over , Focus Groups , Health Behavior/ethnology , Humans , Intention , Male , Middle Aged , Preventive Health Services , Prostatic Neoplasms/diagnosis
20.
Br J Clin Psychol ; 45(Pt 1): 49-61, 2006 Mar.
Article in English | MEDLINE | ID: mdl-16480566

ABSTRACT

OBJECTIVES: Depression is common after stroke and can impede rehabilitation. The aim of this study was to determine which factors predicted the severity of depression at the time of recruitment to a treatment study and depression 6 months later. DESIGN: A questionnaire-based longitudinal study. METHODS: A total of 123 depressed stroke patients who were between 1 and 6 months post-stroke and had mild to moderate disabilities were recruited to a randomized controlled trial of cognitive behavioural psychotherapy (CBT) to treat depression (Lincoln & Flannaghan, 2003). At recruitment and at 6 months follow-up, patients (N=112) were assessed on the Beck Depression Inventory (BDI), General Health Questionnaire-28 (GHQ-28), Wakefield Depression Inventory (WDI), Barthel index, Extended activities of daily living scale (EADL), Sheffield Screening Test for Acquired Language Disorders (SST) and Recovery locus of control scale (RLOC). RESULTS: Logistic regression showed that greater communication impairment on the SST at recruitment was predictive of severe depression on the BDI at recruitment (OR=0.72, p=.01). Patients with greater communication impairment (OR=0.69, p<.05) and a more external locus of control (OR=0.89, p<.05) at recruitment were more likely to remain depressed at follow-up. Patients who remained depressed at follow-up were more severely depressed at recruitment (p=.001). CONCLUSIONS: Locus of control and communication impairment were related to depression. Communication impairment was the strongest predictor of depression severity and prognosis. Mild depression was more likely to resolve. The regression models only accounted for a small proportion of the variance in depression scores. Therefore, further studies of psychosocial factors in a more representative sample are required.


Subject(s)
Depression/etiology , Stroke/psychology , Aged , Depression/diagnosis , Female , Humans , Internal-External Control , Male , Severity of Illness Index , Surveys and Questionnaires
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