Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care.

BACKGROUND:: Education and training for interdisciplinary pediatric providers requires training in principles of palliative and end-of-life (EOL) care. The experiences of bereaved parents can inform and enhance palliative care educational curricula in uniquely powerful and valuable ways. The objective of this study is to present an innovative palliative care educational program facilitated by trained bereaved parents who serve as volunteer educators in local and national palliative care educational forums and to describe how incorporation of bereaved parents in these educational forums affects participant comfort with communication and management of children at the EOL. METHODS:: Parent educators underwent both general and session-specific training and participated in debriefings following each session. Survey tools were developed or adapted to determine how bereaved parent educators affected participant experiences in 3 different educational forums. Pre- and postsession surveys with incorporation of retrospective preprogram assessment items to control for response shift were used in the evaluation of institutional seminars on pediatric palliative and EOL care and role-play-based communication training sessions. Results from feedback surveys sent to attendees were used to appraise the participants' experience at the international oncology symposium. RESULTS:: Involvement of trained parent educators across diverse, interdisciplinary educational forums improved attendee comfort in communicating with, and caring for, patients and families with serious illness. Importantly, parent educators also derive benefit from involvement in educational sessions with interdisciplinary clinicians. CONCLUSIONS:: Integration of bereaved parents into palliative and EOL care education is an innovative and effective model that benefits both interdisciplinary clinicians and bereaved parents.

Empowering Bereaved Parents Through the Development of a Comprehensive Bereavement Program.

Parents who experience the loss of a child have unique and valuable insights into the grief journey and can help health care providers identify key components intrinsic to the development, implementation, and maintenance of a comprehensive bereavement program. The bereavement program at St. Jude Children's Research Hospital was developed by pediatric palliative care experts in collaboration with bereaved parents to standardize and improve the institutional support provided to families around and after the death of a child. This article describes the components of a parent-derived bereavement program and presents early results on the effects of specific program components. The program, under the leadership of the bereavement coordinator, includes clinical and supportive interventions offered throughout the grief journey, parent-created bereavement support materials, and opportunities for parents and families to participate in research, quality improvement initiatives and educational interventions. Parents report that services and interventions provided through the bereavement program are beneficial to families after the death of their child. In addition, both health care providers and bereaved parents report that participation in educational interventions positively impacts their experiences as clinicians and parents, respectively. The innovative nature of this parent-driven, comprehensive bereavement program may serve as a paradigm for the development of bereavement programs in the fields of pediatrics, palliative oncology and hospice and palliative medicine.

Public health accreditation addresses issues facing the public health workforce.

As the Public Health Accreditation Board (PHAB) launched the nation's only accreditation program for state, local, tribal, and territorial health departments in September 2011, attention to the issues facing the public health workforce in these health departments was included. PHAB developed several measures in the accreditation standards and measures related to public health workforce development. The accreditation process calls upon health departments to focus more intentionally on their current workforce, while also supporting the development of future public health workers. Working with a group of public health workforce thought leaders, PHAB developed a long-range plan for the expectation of accredited health departments in workforce development. Beginning with the development of intentional standardization in workforce development and moving into future challenges and issues, PHAB uses its platform of quality improvement to bring emphasis on the current and future public health workforce. This article describes the development of the workforce components of public health department accreditation as well as future plans to ensure that the momentum continues. Using data from the accredited health departments at the time of article submission, PHAB also describes some of the approaches that governmental public health departments that have completed the accreditation process are using to develop their own workforce and support the development of the future public health workforce. Challenges faced by health departments in these areas are also described.

A consensus-based approach to national public health accreditation.

The Public Health Accreditation Board (PHAB) solicited (and continues to solicit) the input of more than 400 subject matter experts in various areas of public health during the development and ongoing revision of the accreditation standards and measures. This process is designed to ensure that the standards and measures remain relevant and accommodate the various contexts under which public health departments practice in the United States. One way PHAB gathers feedback is convening a series of discussion meetings, or think tanks, with thought leaders in specific areas of public health, that focus on specific programmatic areas of public health, on the broader context of public health practice, or on emerging issues, such as public health informatics. The think tanks complement other mechanisms to assure that standards and measures are relevant, including gathering input from the practice community, receiving recommendations from public health departments that have undergone the accreditation process, and reviewing relevant literature. While this process allows PHAB to demonstrate its commitment to continuous quality improvement by modifying and improving the standards and measures, it also serves as a communication vehicle for PHAB to educate thought leaders and public health practitioners about the national accreditation program.

The value template process: a participatory evaluation method for community health partnerships.

This article presents the results of a pilot implementation of an evaluation process designed to help community health collaboratives obtain relevant information for planning and evaluation. The Value Template Process assists collaboratives to identify performance and impact indicators that are meaningful and measurable with accessible data. The process also encourages communication and engagement in assessment among collaborative members. The pilot study demonstrated that the process's underlying assumptions of social capital were valid and that the process was feasible and useful to the community health collaborative.

Scent counter-marks: specialized mechanisms of perception and response to individual odors in golden hamsters (Mesocricetus auratus).

Scent counter-marking is a wide-spread phenomenon among mammals that is not well understood. Using a habituation paradigm, it was found that male golden hamsters (Mesocricetus auratus) exposed to partially overlapping scents of 2 females behaved on test trials as if they remembered the top scent but not the bottom scent. If the 2 females' scents did not overlap during exposure trials, males remembered both of them. Thus, if 2 individual scents partially overlap, hamsters (a) perceive which of the 2 scents was deposited most recently and (b) either remember the top scent and forget the bottom scent or attach greater significance to the top scent. These results indicate the existence of specialized perceptual and cognitive or motivational mechanisms that are used for interpretation and response to complex arrays of social odors.