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1.
Psychol Health ; 38(4): 445-458, 2023 04.
Article in English | MEDLINE | ID: mdl-34436936

ABSTRACT

OBJECTIVE: Scars resulting from burn injury can pose social and psychological problems that may affect body image and self-esteem. This study aimed to investigate whether burn severity, age and female gender are associated with body image dissatisfaction and self-esteem, through an association with perceived stigmatization and fear or negative evaluation. DESIGN & MAIN OUTCOME MEASURES: Burn survivors (N = 224) completed the Fear of Negative Evaluation scale (FNE) and the Perceived Stigmatization Questionnaire (PSQ) at 3 months post-burn, and the Rosenberg Self-Esteem scale (RSE) and the Satisfaction with Appearance scale (SWAP) at 6 months post-burn. Path analysis was used to test the relationships. RESULTS: Body image dissatisfaction and self-esteem were moderately associated. Burn severity was directly and indirectly associated with body image dissatisfaction through perceived stigmatization. Female gender and age were indirectly associated with body image dissatisfaction though fear of negative evaluation. Age was indirectly associated with both perceived stigmatization and fear of negative evaluation. Perceived stigmatization and fear of negative evaluation were associated with self-esteem through body image dissatisfaction, the first indirectly and the latter both directly and indirectly. CONCLUSIONS: Findings highlight that both burn-specific factors and psychological vulnerability should be taken into account to deal with social challenges that may affect body image and self-esteem after burns.


Subject(s)
Body Dissatisfaction , Stereotyping , Humans , Female , Self Concept , Fear , Survivors/psychology
2.
Burns ; 47(6): 1381-1388, 2021 09.
Article in English | MEDLINE | ID: mdl-33947597

ABSTRACT

OBJECTIVE: Burn scars can attract attention from others which can be perceived as stigmatizing behavior with negative psychological consequences. The Perceived Stigmatization Questionnaire (PSQ) is a validated instrument measuring the perception of stigmatization in burn survivors. The objective of this study was to examine the psychometric properties of the Dutch version of the PSQ, specifically its factor structure, reliability, and associations with other relevant constructs. METHOD: Patients (N = 220) completed the PSQ at 3 months after burn. The factor structure was examined with explorative (EFA) and confirmatory (CFA) factor analyses at 3 and 12 months after burn, and reliability was examined using Cronbach's alpha. Three months measurements were used to examine associations of the PSQ with 'depressive mood' (Beck Depression Inventory, BDI-II), 'interpersonal relations' and 'body image' (Burn Specific Health Scale-Brief, BSHS-B), and two scales of the Illness Invalidation Inventory (3*I). RESULTS: A four factor model showed the best fit to the data. Two factors, 'confused/staring behavior' and 'hostile behavior', were identical to the original PSQ. The third original factor, 'absence of friendly behavior', was now divided into two factors separating absence of friendly behavior of strangers and other people. Internal consistency ranged from .60 to .88. Especially the 'confused/staring behavior' factor was related to the other questionnaire scores. CONCLUSION: The current study shows acceptable reliability and structural validity of the Dutch version of the PSQ in a 4-factor solution. Further research into measurement invariance across languages is recommended to establish a uniform multicultural instrument.


Subject(s)
Burns , Social Stigma , Stereotyping , Surveys and Questionnaires , Adult , Humans , Language , Netherlands , Psychometrics , Reproducibility of Results
3.
J Health Psychol ; 24(11): 1461-1472, 2019 09.
Article in English | MEDLINE | ID: mdl-29355049

ABSTRACT

Applying the Common Sense Model, this cross-sectional study examines associations between illness perceptions and quality of life and the mediating role of coping in 243 adults with alopecia areata, a chronic dermatological condition. At least some QoL impairment was reported by 84 percent of participants, with 31 percent reporting very to extremely large impairment. Stronger perceptions of consequences, emotional representations, identity, and lower attribution to chance were related to more impairment, with avoidant coping acting as (partial) mediator. Illness perceptions and avoidant coping seem to play an important role in QoL and are relevant intervention targets in alopecia areata.


Subject(s)
Adaptation, Psychological , Alopecia Areata/psychology , Attitude to Health , Quality of Life/psychology , Adult , Cross-Sectional Studies , Emotions , Female , Humans , Internationality , Male , Surveys and Questionnaires
4.
Support Care Cancer ; 24(4): 1813-20, 2016 Apr.
Article in English | MEDLINE | ID: mdl-26446701

ABSTRACT

PURPOSE: Peer support groups for cancer patients show mixed findings regarding effectiveness on psychological wellbeing. When embedded in a psychosocial intervention, such as mindfulness-based stress reduction (MBSR), peer support might be of more benefit to participants. This study is a qualitative exploration of how women with breast cancer experience the possible benefits and impediments of participating with fellow patients in an MBSR training. METHODS: Five focus groups (n = 37) and three individual interviews (n = 3) were conducted with breast cancer patients who participated in MBSR. The qualitative data were analysed with the constant comparative method in order to develop a grounded theory. RESULTS: We could identify a process where at the start of MBSR, patients experienced anticipatory fear for facing the suffering of fellow patients, especially for those who could not be cured anymore. In most women, this fear gradually subsided during the first two sessions. The atmosphere in the MBSR training was experienced as safe and supportive, providing a context where participants could connect with and trust one another. In turn, this facilitated participants to learn from one another. CONCLUSIONS: Our findings do not only show that the peer group facilitates the learning process in MBSR, but the MBSR also seemed to provide an atmosphere that promotes the experienced social support in participants. In addition, the results emphasize the importance for mindfulness teachers to acknowledge and explore the fear for facing fellow patients in the group. Future research should examine whether the results are generalizable to patients with other cancer types.


Subject(s)
Breast Neoplasms/psychology , Mindfulness/methods , Social Support , Stress, Psychological/therapy , Adult , Fear , Female , Focus Groups , Humans , Middle Aged , Patient Acceptance of Health Care/psychology , Peer Group , Qualitative Research , Stress, Psychological/psychology , Trust
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