ABSTRACT
We describe a family with a severely disabled child who demonstrates many of the characteristics of resilient families: strong relationships, good communication, and profound love of the disabled child. But this family has a characteristic that is infrequently described in the literature yet common in practice: the mother initiated many medical decisions based on knowledge gathered on the Internet. Parental education on the Internet can now allow families to gain a sense of mastery over their child's disease.
Subject(s)
Community Participation , Disabled Children/psychology , Epilepsies, Myoclonic/psychology , Internet , Love , Mitochondrial Diseases/psychology , Parent-Child Relations , Parents/education , Resilience, Psychological , Social Support , Adolescent , Diet, Ketogenic , Epilepsies, Myoclonic/diet therapy , Epilepsies, Myoclonic/therapy , Follow-Up Studies , Humans , Male , Mitochondrial Diseases/diet therapy , Mitochondrial Diseases/therapy , Parental Consent , Parents/psychology , Quality of Life/psychologyABSTRACT
Single cerebral metastases in malignant disease pose a particular therapeutic challenge. The options consist of surgical resection, stereotactic radiation, and total brain irradiation. No significant therapeutic advantage for any of these methods has as yet been demonstrated in the literature. We present the case of a young patient with a single brain metastasis of a sigmoidal carcinoma, in stable general condition. We present our therapeutic regimen and discuss the various pros and cons of the different therapies.
