ABSTRACT
Being in work or the equivalent is an important goal after allo-SCT and is used as an indicator of recovery. The aim was to elucidate occupational status and factors associated with work among SCT survivors. Adults in working age with a haematological disease (n=177) were followed up within a median of 8 (range 28) years post allo-SCT. Predictors of not being in work at all or working part-time because of sick leave, disability pension or early old-age pension were analyzed using logistic regression analyses. At diagnosis, 82% of the participants were working full-time and 2% were on sick leave or old-age pension. At follow-up, 52% were working full-time, 27% were working part-time and 17% were on sick leave, disability pension or old-age pension. Not working at all was associated with multi-morbidity (P=0.01) and poorer health (P=0.00). Working part-time was associated with a higher age at diagnosis (P=0.00), being a woman (P=0.03), being born abroad (P=0.03) and multi-morbidity (P=0.00). In conclusion, the majority of survivors were in paid work at follow-up; however, a substantial number were not working or worked part-time.
Subject(s)
Employment , Stem Cell Transplantation , Adolescent , Adult , Aged , Allografts , Female , Follow-Up Studies , Humans , Logistic Models , Male , Middle Aged , Quality of Life , Return to Work/psychology , Stem Cell Transplantation/adverse effects , Stem Cell Transplantation/psychology , Sweden , Work/psychology , Work Capacity Evaluation , Young AdultABSTRACT
The aim was to explore what expectations patients have concerning the recovery period after completed curative cancer treatment and the degree to which these expectations were realized slightly more than 1 year later. A purposeful sample of 16 patients was selected from a larger study and those patients were interviewed 16 months after treatment completion. The interviews were analysed using the phenomenographic method. Patients' expectation for their recovery period was generally to become well, but they often lacked plans for how to recover. If the recovery period was perceived as 'smooth' expectations were always met. However, if the period was perceived as 'tough' expectations were often unfulfilled, but most of these patients were satisfied with their current life anyway owing to positive changes and it was only a small proportion of the patients that still felt unwell. Even though most of the patients had managed to adjust well to the situation slightly more than 1 year after completed treatment, several patients had not been aware of how tough recovery could be and requested further support from the healthcare system.
