Perspectives on dying in severe and enduring eating disorders (SEEDs): A qualitative study among Dutch mental healthcare providers.

Dying of severe and enduring eating disorders (SEEDs) was studied using semi-structured interviews (n = 7) and a follow-up videoconferencing focus group (n = 3) with Dutch mental healthcare providers. We identified three main themes: the uncertainties of dying from SEEDs, dilemmas in defining treatment resistance and palliative care, and suicidal ideation and intent. There were two contrasting perspectives on good care, both centering on the patient. While mental healthcare providers strive toward healthy living, palliative care strives toward quality of life and dying. Clarifying underlying concepts enables flexibility in applying these perspectives to optimize individual patient care.

Caregiver-child communication on parental loss in the context of the AIDS epidemic in Namibia.

Personal grief takes place in a social context, such as the family setting. This study aimed to understand how Namibian caregivers and children/adolescents communicate parental loss, in the context of the HIV/AIDS epidemic. An ethnographic design was used, in which 38 children, adolescents, and their caregivers were interviewed. The results show that caregivers shared few memories and provided minimal information about the deceased parents. However, the majority of adolescents and children wished for information. A relational Sender-Message-Channel-Receiver model was used to map the reasons for this silence. This model is useful for grief interventions that aim to strengthen communication.

Why Chaplaincy at Asylum Centers is a Good Idea: A Care Ethics Perspective on Spiritual Care for Refugees.

This article argues in favor of introducing chaplaincy care at asylum centers and develops three arguments for doing so. First, chaplaincy is one way to protect the right to health of refugees and to improve their spiritual well-being. The positive contribution of chaplaincy services to mental health care is increasingly recognized, especially in the domain of PTSD. Second, chaplaincy services support asylum seekers in exercising their freedom of religion while entrusted to state care. Chaplains can create a safe space for asylum seekers to reflect on their spiritual and religious needs, orientation and belonging. Third, chaplains are well positioned to help asylum seekers in rebuilding their life-sustaining web, while at the same time promoting a climate of inclusion and respect in and outside the asylum center.

Disembodied ritual: An explorative study on the meanings of physical absence during funerals by bereaved in times of COVID-19.

Death is accompanied by rituals in every culture. It seems universal that we symbolically approach this life transition. This study focuses on experiences of bereaved who could not physically attend a funeral during COVID-19. Ten Dutch bereaved were interviewed. Disembodiment in terms of (1) not participating in ritual time and place, (2) experiencing live-stream funerals as lonely, and (3) feeling a disruption of one's grief, were revealed as main themes by thematic analysis. Without physical participation the respondents felt (partially) disconnected from the ritual and isolated from the community. The physical absence impacted ritual transformation and meaning making after a loss.

Ritual in Therapy for Prolonged Grief: A Scoping Review of Ritual Elements in Evidence-Informed Grief Interventions.

The aim of this article of to analyze ritual in evidence-informed treatments for prolonged and traumatic grief. A scoping review is conducted in order to give an overview of existing literature on ritual and symbolic interventions in grief therapies for prolonged grief and the type of evidence supporting these interventions. The 22 studies reported in this review reveal a variety of ritual elements ranging from symbolic expression and interaction, writing assignments, dialogue with the deceased or an imaginary person, to farewell ceremonies at the end of the treatment. The interventions are studied within different populations (e.g., bereaved spouses, perinatal loss, grief after violent death, and genocide). Almost all studies show significant effects of the grief treatment, trauma and related symptoms. However, the effects are mostly measured for the entire treatment and not separately for the ritual intervention. In the discussion we focus on the role of ritual and culture in prolonged grief treatment.

Grief in a biography of losses: Meaning-making in hard drug users' grief narratives on drug-related death.

The focus in grief theories has been increasingly shifting toward questions of meaning. In this study, we draw on the meaning-reconstruction model of grief for studying the unique case of hard drug users who have experienced a drug-related death. The social context of hard drug use, as well as the death and grief circumstances, is problematic and stigmatized. Grief narratives of 10 respondents were analyzed according to the principles of grounded theory. We identified four main themes: (1) the inhibition of emotion by drugs leading to fragmented grief reactions, (2) social exclusion and notions of disenfranchized grief, (3) the acceptance of death, and (4) meaningfulness in a "biography of losses." Connecting these results with the literature on meaning, we find that meaning-making is a multidimensional and layered process, where some layers result in meanings made while others do not. Finally, this study emphasizes the importance of social and emotional aspects of grieving, as well as the ambiguity of the notion of successful meaning-making in relation to grief.

Life-and-death decision-making in the acute phase after a severe stroke: Interviews with relatives.

BACKGROUND: Decision-making in the acute phase after a severe stroke is complex and may involve life-and-death decisions. Apart from the medical condition and prognosis, quality of life and the deliberation of palliative care should be part of the decision-making process. Relatives play an important role by informing physicians about the patient's values and preferences. However, little is known about how the patients' relatives experience the decision-making process. AIM: To elicit the perspective of relatives of severe stroke patients with regard to the decision-making process in the acute phase in order to understand how they participate in treatment decisions. DESIGN: An exploratory qualitative interview approach guided by the principles of grounded theory. SETTINGS/PARTICIPANTS: Relatives of severe stroke patients (n = 15) were interviewed about their experiences in the decision-making process in the acute phase. RESULTS: Four categories reflecting relatives' experiences were identified: (1) making decisions under time pressure, (2) the feeling of 'who am I' to decide, (3) reluctance in saying 'let her die' and (4) coping with unexpected changes. Following the treatment proposal of the physician was found to be the prevailing tendency of relatives in the decision-making process. CONCLUSION: A better understanding of the latent world of experiences of relatives that influence the decision-making process may help physicians and other health-care providers to better involve relatives in decision-making and enhance the care, including palliative care, for patients with severe stroke in line with their values and preferences. Communication between physician and relatives seems vital in this process.

Grief experiences and expectance of suicide.

Suicide is generally viewed as an unexpected cause of death. However, some suicides might be expected to a certain extent, which needs to be further studied. The relationships between expecting suicide, feeling understanding for the suicide, and later grief experiences were explored. In total, 142 bereaved participants completed the Grief Experience Questionnaire and additional measurements on expectance and understanding. Results supported the prediction of a link between expecting suicide and understanding the suicide. Higher expectance and understanding were related to less searching for explanation and preoccupation with the suicide. There was no direct association with other grief experiences. We conclude that more attention should be brought to the relation between expecting the suicide of a loved one and later grief responses in research and in clinical practice.

Overt and covert narcissism in Poland and The Netherlands.

This article reports a study of the relation between narcissism as a personality characteristic and the cultural dimension of individualism/collectivism. Participants from a more collectivistic society (Poland; n = 167) were compared with participants from a more individualistic society (The Netherlands; n = 156). Two dimensions of narcissism were distinguished: overt and covert. The cultural tendency for narcissism was measured by comparing average scores on both types of narcissism in both countries, as well as by the meaning that overt and covert narcissism seems to have for psychological well-being. More specifically, the correlations were compared among both types of narcissism and depression and meaning of life. In the Polish sample, the average score on covert narcissism was higher. In the Dutch sample, on the other hand, depression and meaning of life were significantly related to covert narcissism.