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1.
Health Soc Care Community ; 30(4): 1578-1588, 2022 07.
Article in English | MEDLINE | ID: mdl-34254381

ABSTRACT

Promoting dementia-friendly communities is an important strategy for improving quality of life for people with dementia and dementia-family caregivers. The process of building dementia-friendly communities should include all people living in the community. The objective of this study was to compare perceived dementia friendliness in the community among people with dementia, family caregivers, service providers, and the general public. In Taiwan, we surveyed 60 people with dementia, 140 family caregivers, and 200 members of the general public face to face, with 200 service providers surveyed by mail. Participants completed the Perceived Community Dementia Friendliness measure, consisting of seven subscales: care services, community members, community environment, community interactions, transportation, hospitals, and stores and organisations. This measure has acceptable convergent validity, construct validity, and internal consistency reliability for use in Taiwan. Differences in perceived dementia friendliness were examined by chi-square tests/analysis of variance. Among the seven subscales, hospitals were rated with good dementia friendliness by 70% of people with dementia (n = 42); however, care services were rated poor by 23.3% of people with dementia (n = 14). Hospitals were also rated with good dementia friendliness by 39.2% of family caregivers (n = 54). Care services were rated as having good dementia friendliness by 43.5% of service providers (n = 87) and 47% of the general public (n = 86). Furthermore, community interactions were rated as good by small percentages of family caregivers (11.4%, n = 16), service providers (22.2%, n = 44), and the general public (30.9%, n = 58). Family caregivers, service providers, and the general public rated hospitals with the highest mean dementia-friendliness score and community interactions with the lowest. Perceived community-dementia friendliness among participants with dementia differed from that of participants without. People with dementia prioritised improving care services, while people without dementia rated facilitating community interactions as more vital. These differences provide vital insights into understanding the policies and administration of dementia-friendly communities.


Subject(s)
Caregivers , Dementia , Cross-Sectional Studies , Dementia/therapy , Humans , Quality of Life , Reproducibility of Results , Taiwan
2.
Gerontologist ; 60(3): 525-534, 2020 04 02.
Article in English | MEDLINE | ID: mdl-31091307

ABSTRACT

BACKGROUND AND OBJECTIVES: Improving quality of life for community-dwelling older persons with dementia symptoms (PWDS) and family caregivers requires promoting dementia-friendly communities (DFC). However, little is known regarding older Taiwanese Aboriginal PWDS' experiences of living in the community. We explored these experiences for older Atayal PWDS and their families in Taiwan. RESEARCH DESIGN AND METHODS: This grounded theory research used in-depth interviews to explore the perspectives of older PWDS (n = 4), their family members (n = 3), and key persons (n = 10) in an Atayal community in northern Taiwan. Data were analyzed using constant comparative analysis. Participants were interviewed between January and May 2015. RESULTS: Participants' experiences were captured by the overarching concept of "low dementia awareness, high family-like ambience in the community." Despite the low/absent community awareness of dementia, older Atayal PWDS functioned as freely in the community as at home due to a family-like supportive environment. Aboriginal PWDS and their families also faced environmental challenges, e.g., environmental constraints and barriers to transportation access. DISCUSSION AND IMPLICATIONS: Our results suggest that this Aboriginal community and culture offer important DFC components, and these strengths could be further studied to enhance DFC models elsewhere. Despite these strengths in supporting PWDS, environmental challenges to transportation access still cause difficulties for PWDS and their families and need improvement. The Atayal community's low dementia awareness suggests that services introduced must be culturally appropriate and nondisruptive to existing supportive helping systems. Our study can be a model for future studies to understand and identify PWDS' needs in Indigenous communities.


Subject(s)
Caregivers/psychology , Dementia/psychology , Family/psychology , Health Personnel/psychology , Indigenous Peoples/psychology , Adult , Aged , Aged, 80 and over , Female , Grounded Theory , Humans , Independent Living , Male , Middle Aged , Qualitative Research , Quality of Life , Taiwan
3.
J Adv Nurs ; 75(11): 2878-2889, 2019 Nov.
Article in English | MEDLINE | ID: mdl-31236955

ABSTRACT

AIMS: To identify dementia-friendly communities' indicators and their current conditions in Taiwan from the perspectives of people with dementia and dementia-family caregivers. DESIGN: This qualitative study explored the opinions and experiences of people with dementia and dementia-family caregivers regarding dementia-friendly communities. METHODS: Participants (16 people with dementia and 20 family caregivers) were recruited from neurological clinics, day care centres for people with dementia and support groups for family caregivers in the Taipei community from July - October, 2016. Data were collected in face-to-face interviews, which were tape recorded and transcribed verbatim. Transcripts were analysed by Miles and Huberman's (1994) guidelines. RESULTS: Similar indicators for dementia-friendly communities were identified in Taiwan as in other countries, including dementia-friendly care services, dementia-friendly hospitals, dementia-friendly community environment, dementia-friendly transportation, dementia-friendly stores and shops, dementia friendly people, integrated dementia-related information and community contribution- and -involvement opportunities for people with dementia. However, Taiwanese people with dementia and family caregivers described no emphasis on the potential of people with dementia to contribute to developing dementia-friendly communities and more top-down expectations for the government's role. CONCLUSION: These indicators can be a guide for developing and evaluating dementia-friendly communities in Taiwan. Differences between Taiwan and Western developed countries in indicators for dementia-friendly communities can be further explored. Community nursing assessment, interventions, and evaluation based on these dementia-friendly communities indicators can be further developed. IMPACT: This study developed indicators for dementia-friendly communities in an Asian country. These indicators can be used as a guide for developing and evaluating dementia-friendly communities.


Subject(s)
Adaptation, Psychological , Caregivers/psychology , Dementia/nursing , Dementia/psychology , Family/psychology , Patients/psychology , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Qualitative Research , Residence Characteristics , Taiwan , Young Adult
4.
Article in English | MEDLINE | ID: mdl-28085050

ABSTRACT

Background: Alzheimer's disease (AD) is a significant public health issue. AD has been linked with methylenetetrahydrofolate reductase (MTHFR) C677T polymorphism, but the findings have been inconsistent. The purpose of this meta-predictive analysis is to examine the associations between MTHFR polymorphisms and epigenetic factors, including air pollution, with AD risk using big data analytics approaches. Methods and Results: Forty-three studies (44 groups) were identified by searching various databases. MTHFR C677T TT and CT genotypes had significant associations with AD risk in all racial populations (RR = 1.13, p = 0.0047; and RR = 1.12, p < 0.0001 respectively). Meta-predictive analysis showed significant increases of percentages of MTHFR C677T polymorphism with increased air pollution levels in both AD case group and control group (p = 0.0021-0.0457); with higher percentages of TT and CT genotypes in the AD case group than that in the control group with increased air pollution levels. Conclusions: The impact of MTHFR C677T polymorphism on susceptibility to AD was modified by level of air pollution. Future studies are needed to further examine the effects of gene-environment interactions including air pollution on AD risk for world populations.


Subject(s)
Air Pollution/analysis , Alzheimer Disease/epidemiology , Alzheimer Disease/genetics , Gene-Environment Interaction , Methylenetetrahydrofolate Reductase (NADPH2)/genetics , Genetic Predisposition to Disease , Genotype , Humans , Polymorphism, Genetic , Risk
5.
J Nurs Res ; 14(1): 1-8, 2006 Mar.
Article in English | MEDLINE | ID: mdl-16547901

ABSTRACT

The purpose of this study was to develop a web-based childbirth educational program for VBAC (vaginal birth after C-section) mothers. It contained two phases. In the first phase, analysis, design, development, implementation and evaluation (ADDIE) based on theoretical frameworks were used to establish the program. The second phase (implementation and evaluation) included: expert approval, posting on the Website of National Taipei College of Nursing, program registration through the Internet, implementing the educational program, and testing the results of the curriculum. Ten mothers who had experienced C-section previously and were currently pregnant for over 32 weeks participated in this program. The quantitative data was analyzed by descriptive statistics and pair-t test. Colaizzi's phenomenological method was used for the qualitative data. The first phase established the program goals, course content, teaching methods, and a 90- minute educational program. The outcomes of the second phase: the tests before and after the curriculum were significantly different in VBAC knowledge (p < .01) and attitude (p < .05), participants evaluated the program to be "thorough". This VBAC educational program can be offered to nursing staff as a means to promote VBAC.


Subject(s)
Computer-Assisted Instruction/methods , Internet/organization & administration , Mothers/education , Patient Education as Topic/organization & administration , Vaginal Birth after Cesarean/education , Adult , Attitude to Health , Cost-Benefit Analysis , Curriculum , Educational Measurement , Female , Health Knowledge, Attitudes, Practice , Humans , Mothers/psychology , Needs Assessment , Nursing Education Research , Nursing Methodology Research , Parturition/psychology , Pregnancy , Program Development , Program Evaluation , Qualitative Research , Taiwan , Vaginal Birth after Cesarean/psychology
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